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題名：腦瘤病童母親照護之需求
書刊名：長庚護理
作者：李淑珠／葉昭幸／蔡佳玲
作者(外文)：Lee, S. C.／Yeh, C. H.／Tsai, J. L.
出版日期：2000
卷期：11:1=29
頁次：頁10-21
主題關鍵詞：腦瘤病童；母親；照護需求；Child with brain tumor；Mother；Care needs
原始連結：連回原系統網址new window
相關次數：
  • 被引用次數被引用次數:期刊(1) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:1
  • 共同引用共同引用:20
  • 點閱點閱:7
　　　　　本質性研究主要目的是探討腦瘤病童母親照護之的需求。研究對象為某醫學中心兒童醫院住院接受治療之腦瘤病童之8位母親為對象，以立意取樣，採質性研究方法，依據訪談大綱作面對面開放式訪談。資料的收集方式包括正式及非正式訪談、參與觀察、研究員的反應性日記及相關病歷資料的收集。資料分析係以Miles及Huberman之內容比較法，加以歸納及整理。研究結果顯示：腦瘤病童母親照護之需求內容歸納出七項需求包括：（1）獲得相關資訊之需求；（2） 滿足生理之需求；（3）維持心理社會穩定之需求；（4）尋求社會支持之需求；（5）滿足靈性需求；（6）家庭經濟支援需求；（7）如何告訴病童真相之需求。本研究結果可做為臨床護理人員提供護理措施之參考依據，藉此提升臨床對於腦瘤病童及其家屬高品質的護理服務。
　　　　　The purpose of this qualitative study was to explore the care needs of mother with brain tumor child. A purposive sampling was employed to collected data through face to face interviews. Data were also collected through interviews with primary care nurse, participant observation, researcher's reflexive journals and medical charts. Eight mothers with brain tumor child who receive treatment in a Medical-Center Children's Hospital were enrolled into this study. Content analysis summary table by Miles and Huberman was used for data analysis. The study showed that the care needs of mother with brain tumor child were categorized as following: (1) the need of receiving medical-related information; (2) the need of adequate physiological need; (3) the need of maintaining psychosocial stability; (4) the need of social support; (5) the need of satisfying spiritual need; (6) the need of financial status; (7) the need of whether to tell the truth to the child. The findings of this study provided qualitative for nursing interventions that could enhance advanced care for brain tumor child and family.
期刊論文
1.沈青青、顧小明(19980600)。住院癌症病童父母需要之先期研究。榮總護理，15(2)，125-135。new window  延伸查詢new window
2.Lewandowski, W.、Jones, S. L.(1988)。The family with cancer: Nursing interventions throughout the course of living with cancer。Cancer Nursing，11(6)，313-321。  new window
3.葉昭幸(19980600)。罹患急性白血病兒童父母決定中斷治療及再度接受治療之心理過程探討。長庚護理，9(2)=22，51-58。new window  延伸查詢new window
4.黃淑姿、湯玉英(19961200)。罹患腦瘤死亡兒童母親所面臨的失落哀傷反應及調適行為。護理雜誌，43(4)，34-41。new window  延伸查詢new window
5.Hileman, J. W.、Lackey, N. R.、Hassanein, R. S.(1992)。Identifying the needs of home caregivers of patients with cancer。Oncology Nursing Forum，19(5)，771-777。  new window
6.Wingate, A. L.、Lackey, N. R.(1989)。A description of the needs of noninstitutionalized cancer patients and their primary caregivers。Cancer Nursing，12(4)，216-225。  new window
7.吳麗彬、顧乃平(19940600)。肝癌病人家屬的需要。護理研究，2(2)，180-190。new window  延伸查詢new window
8.余秀娥(1998)。協助一位母親對愛子瀕死之護理經驗。長庚護理，9(1)，53-59。  延伸查詢new window
9.兒童癌症基金會(1998)。中華民國兒童癌症基金會統計資料。中華民國兒童癌症基金會會訊，63，32-34。  延伸查詢new window
10.兒童癌症基金會(1994)。中華民國兒童癌症基金會統計資料。中華民國兒童癌症基金會會訊，43，12-20。  延伸查詢new window
11.Brown, P. G.(1989)。Families who have a child diagnosed with cancer: What the medical caregiver can do to help them and themselves。Issues in Comprehensive Pediatric Nursing，12，247-260。  new window
12.Graves, C. G.、Hayes, V. E.(1996)。DO Nurse parents of children with chronic conditions agree on parental needs。Journal of Pediatric Nursing，11(5)，288-299。  new window
13.Fife, B. L.(1980)。Childhood cancer Is a family crisis: A review。Journal of Psychiatric Nursing and Mantal Health Servies，18(5)，29-35。  new window
14.Hayes, V. E.、Knox, J. E.(1984)。The experience of stress In parents of children hospitalized with longterm disabilities。Journal of Advanced Nursing，9(4)，333-341。  new window
15.Graves, J. K.、Wave, M. E.(1990)。Parents' and health professionals' perceptions concerning parental stress during a child's hospitalization。Children’s Health Care，19(1)，37-42。  new window
16.Stetz, K. M.(1987)。Caregivering demands during advanced cancer: The spouse’s needs。Cancer Nursing，10，260-268。  new window
17.Robert, S. J.(1988)。Social Support and help seeking: Review of the Literature。Advance Nurses Science，10(2)，1-11。  new window
18.Popper, B. C.(1990)。A parent’s perspective: The changing role of parent involvement in the health care system。Children's Health Care，19(4)，242-244。  new window
19.Watt-wastson, J.、Evernden, C.、Lawson, C.(1990)。Parent’s perceptions of their child’s acute pain experience。Journal of Pediatric Nuring，5，344-349。  new window
20.Tringal, C. A.(1986)。The needs of family members of cancer patients。Oncology Nursing Forum，13(4)，65-70。  new window
21.Norbeck, J. S.、Lindsey, A. M.、Carrieri, V. L.(1981)。The development of an instrument to measure social support。Nursing Research，30(5)，264-269。  new window
22.Cobb, Sidney(1976)。Presidential Address-1976. Social Support as a Moderator of Life Stress。Psychosomatic Medicine，38(5)，300-314。  new window
學位論文
1.Chen, Y. C.(1988)。A Taoist model for, human caring: The lived experiences and caring needs of mothers with children suffering from cancer in Taiwan(博士論文)。University of Colorado，Denver。  new window
2.曾紀瑩(1993)。癌症患童母親之壓力與調適行為(碩士論文)。國立臺灣大學。  延伸查詢new window
圖書
1.徐畢卿(1992)。健康與護理行為之護理。台北：文軒。  延伸查詢new window
2.Miller, J. F.(1992)。Copy with chroniciliness overcoming powerlessness。Philadelphia：F. A. Davis。  new window
3.Luker, K.、Orr, J.(1985)。Health Visiting。Oxford：Blackwell。  new window
4.Thoits, S. E.(1991)。Health Psychology。New York：McGram-Hill inc.。  new window
5.Wilkin, D.、Hallam, L.、Doggett, M. A.(1992)。Measures of need and outcome for primary health care。Oxford：Oxford University Press。  new window
6.McKillip, J.(1987)。Need analysis: tools for the human services and education。Newbury Park, CA：Sage。  new window
7.Miles, M. B.、Huberman, A. M.(1994)。Qualitative Data Analysis。Sage。  new window
8.Lincoln, Yvonna S.、Guba, Egon G.(1985)。Naturalistic Inquiry。Sage。  new window
9.Strauss, Anselm L.、Corbin, Juliet M.(1990)。Basics of qualitative research: Grounded theory procedure and techniques。Sage。  new window
圖書論文
1.Cohen, S.、Syme, S. L.(1985)。Issues in the study and application of social support。Social Support and Health。Orlando：Academic press。  new window
 
 
 
 
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