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題名：「礙」到老？中高齡終身障礙者老化經驗初探
書刊名：社會政策與社會工作學刊
作者：陳伶珠 引用關係
作者(外文)：Chen, Ling-chu
出版日期：2010
卷期：14:1
頁次：頁119-162
主題關鍵詞：終身障礙者；現象學；老化經驗；道德調和老化經驗；People with a lifelong disability；Phenomenology；Aging experiences；Moral harmonized aging experiences
原始連結：連回原系統網址new window
相關次數：
  • 被引用次數被引用次數:期刊(4) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:4
  • 共同引用共同引用:1272
  • 點閱點閱:340
終身障礙者老化已成爲新興社會現象，國外對此議題有較多面向的探討，國內相關研究仍相當欠缺。本研究旨在探究中高齡終身障礙者的老化經驗，增進政策規劃者與服務供給者對他們有更深刻的認識。研究方法與對家：運用現家學方法，深度訪談中高齡終身障礙者29位，女性15位，男性14位，年齡43-59歲，障礙持續時間15-56年。研究參與者依障礙經驗分爲三個群組：「不只是個孩子」、「一路走來始終如一」、及「生命大逆轉」。研究結果：不同群組中高齡終身障礙者有其獨特障礙經驗，以及共通相似的老化經驗脈絡，研究者歸納爲「道德的調和老化經驗」，包括三個老化經驗結構主軸：1.老化具有多重面向－「老」是生活發生斷裂之處；2.老年生活籌劃受老化經驗與能力資源影響；3.老年生活是調和環境與期待的道德存在美學－在照顧自己也照顧他人之間取得平衡。研究者認爲：中高齡終身障礙者的健康與療癒照顧需要更多投入、規劃友善終身障礙者老化的社會政策與社會服務措施、終身障礙者的老化與療癒、照顧需要更多學術與實務的關注。
People aged with a lifelong disability is a relatively new social phenomena. Many dimensions of this agenda have been discussed in western countries, but not the case of Taiwan. This study employs phenomenology to investigate the aging experiences of middle-aged people with a lifelong disability. A total of 29 participants aged 43 to 59 are divided into 3 groups: "more than a child", "consistent along the way", and "the great life reversed". Results show participants have their unique and common aging experiences. Their aging experiences is named "moral harmonized aging experiences", including 3 structural axles: (1) aging has multi-dimensions: aging in the discontinuity of life, (2) aging living plans are influenced by one's aging experiences, abilities and resources, (3) aging living plans are moral aesthetic of existence and harmonized with environment and expectations: taking balance between self care and care others. Researcher suggests more efforts on inquiring health and healing and care issues for middle-age people with a lifelong disability, developing aging disability friendly social policies and social services, and more researches and practical services for this agenda.
期刊論文
1.陳淑芳、李期田、鍾嘉明、林儒詣、李貴美、陳敬吾、黃建龍、陳存壽(200607)。智能障礙者高齡化之安置照顧服務探討。臺灣老人保健學刊，2(1)，80-95。new window  延伸查詢new window
2.王國羽、呂朝賢(20041200)。世界衛生組織身心障礙人口定義概念之演進：兼論我國身心障礙人口定義系統問題與未來修正方向。社會政策與社會工作學刊，8(2)，193-235。new window  延伸查詢new window
3.Janicki, M. P., A. J. Dalton, C. M. Henderson and P. W. Davidson(1999)。Mortality and Morbidity among Older Adults with Intellectual Disability: Health Services Considerations’。Disability and Rehabilitation，21(5-6):，284-294。  new window
4.Lincoln, Y. S.(1995)。‘Emerging Criteria for Quality in Qualitative and Interpretative research’。Qualitative Inquiry，1 (3):，275-289。  new window
5.Giorgi, Amedeo(1997)。The Theory, Practice, and Evaluation of the Phenomenological Method as a Qualitative Research Procedure。Journal of Phenomenological Psychology，28(2)，235-260。  new window
6.Lowes, L.、Prowse, M. A.(2001)。Standing outside the interview process? The illusion of objectivity in phenomenological data generation。International Journal of Nursing Studies，38(4)，471-480。  new window
7.陳伶珠、黃源協(20080400)。身心障礙老人的健康狀況與需求--以南投縣為例。長期照護雜誌，12(1)，42-56。  延伸查詢new window
8.王國羽(20070300)。居家中老年智障者的照顧問題：性別、居住安排與相關論述。身心障礙研究，5(1)，1-29。  延伸查詢new window
9.Rowe, John Wallis、Kahn, Robert L.(1997)。Successful Aging。The Gerontologist，37(4)，433-440。  new window
10.Ballin, L. and S. Balandin(2007)。An Exploration of Loneliness:Communication and the Social Networks of Older People with Cerebral Palsy’。Journal of Intellectual and Developmental Disability，32 (4):，315-327。  new window
11.Bigby, C.(2002)。Ageing People with a Lifelong Disability: Challenges for the Aged Care and Disability Sectors’。Journal of Intellectual and Developmental Disability，27 (4):，231-241。  new window
12.Bland, R., N. Hutchinson, P. Oakes and C. Yates(2003)。Double Jeopardy? Needs and Services for Older People who Have Learning Disabilities’。Journal of Learning Disabilities，7 (4)，323-344。  new window
13.Buys, L., G. Boulton, J. Tedman, H. Edwards, M. Knox and C. Bigby(2008)。Issues of Active Ageing: Perceptions of Older People with Lifelong Intellectual Disability’。Australasian Journal on Ageing，27(2)，67-71。  new window
14.Capoor, J. and A. B. Stein(2005)。‘Aging with Spinal Cord Injury’。Physical Medicine and Rehabilitation Clinics of North America，16(1)，129-161。  new window
15.Evenhuis, H., C. M. Henderson, H. Beange, N. Lennox and B. Chicoine(2001)。‘Healthy Ageing—Adults with Intellectual Disabilities: Physical Health Issues’。Journal of Applied Research in Intellectual Disabilities，14 (3):，175。  new window
16.Fisher, K. and P. Kettl(2005)。Aging with Mental Retardation: Increasing Population of Older Adults with MR Require Health Interventionsand Prevention St。Geriatrics,，60 (4):，26-29。  new window
17.Har r i son, T. C. and A. Stui fbergen(2005)。‘A Hermeneutic Phenomenological Analysis of Aging with a Childhood Onset Disability’。Health care for Women International，26 (8):，731-747。  new window
18.Hecht, M., T. Hillemacher, E. Grasel, S. Tigges, M. Winterholler, D. Heuss, M. Hilz and B. Neundorfer(2002)。’Subjective Experienceand Coping in ALS’。Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders，3 (4):，225-232。  new window
19.Holicky, R. and S. Charlifue(1999)。Ageing with Spinal Cord Injury: The Impact of Spousal support’。Disability and Rehabilitation，21 (5/6):，250-257。  new window
20.Janicki, M. P., P. W. Davidson, C. M. Henderson, P. McCallion, J. D.Taets and L. T. Force(2002)。‘Health Characteristics and Health Services Utilization in Older Adults with Intellectual Disability Living in Community Residences’。Journal of Intellectual Disability Research，46 (4):，287-298。  new window
21.Kemp, B. J. and J. S. Krause(1999)。Depression and Life Satisfaction among People Ageing with Post-polio and Spinal Cord Injury。Disability and Rehabilitation，21 (5/6):，241-249。  new window
22.Kennedy, J.(2002)。Disability and Aging-Beyond the Crisis Rhetoric:Introduction to the Special Issue’。Journal of Disability Policy Studies，12 (4):，226-228。  new window
23.Klingbeil, H., H. R. Baer and P. E. Wilson(2004)。‘Aging with a Disability’。Archives of Physical Medicine and Rehabilitation，85(Suppl. 3)，68-73。  new window
24.Lantz, M. S.(2009)。‘The Older Adult with Cerebral Palsy’。Clinical Geriatrics，17 (1):，13-16。  new window
25.Long, T. and S. Kavarian(2008)。Aging with Developmental Disabilities: An Overview’。Topics in Geriatric Rehabilitation，24 (1):，2-11。  new window
26..inkler, M. and P. Fadem(2002)。Successful Aging: A Disability Perspective’。Journal of Disability Policy Studies，12 (4):，229-235。  new window
27.Pentland, W., J. Walker, P. Minnes, M. Tremblay, B. Brouwer and M.Gould(2002)。‘Women with Spinal Cord Injury and the Impact of Aging’。Spinal Cord，40 (8):，374-387。  new window
28.Schwartz, L., J. M. Engel and M. P. Jensen(1999)。‘Pain in Persons with cerebral palsy’。Archives of Physical Medicine and Rehabilitation，80(10)，1243-1246。  new window
29.Sheets, D.(2005)。Aging with Disabilities: Ageism and More’。Generations,，29 (3):，37-41。  new window
30.Stone, E. and M. Priestley(1996)。Parasites, Pawns and Partners:Disability Research and the Role of Non-disabled Researchers’。The British Journal of Sociology，47 (4):，699-716。  new window
31.Svien, L. R., P. Berg and C. Stephenson(2008)。‘Issues in Aging with Cerebral Palsy’。Topics in Geriatric Rehabilitation，24 (1):，26-40。  new window
32.Tighe, C. A.(2001)。‘Working at Disability: A Qualitative Study of the Meaning of Health and Disability for Women with Physical Impairments’。Disability and Society，16 (4):，511-529。  new window
研究報告
1.林昭吟、林季平(2004)。身心障礙者提前老化現象與健康照護需求之研究 (計畫編號：093000000AU631001)。臺北市：內政部社會司。  延伸查詢new window
圖書
1.Quinn, P.(1998)。Understanding Disability: A Lifespan Approach。Understanding Disability: A Lifespan Approach。Thousand Oaks, CA：Sage。  new window
2.Moustakas, C.(1994)。Phenomenological Research Method。Sage Publications。  new window
3.Atchley, R. C.(1997)。Social Forces and Aging: An Introduction to Social Gerontology。Belmont, CA：Wadsworth Publishing Company。  new window
4.Oliver, M.(1983)。Social work with disabled people。Macmillan。  new window
5.Padgett, Deborah K.(1998)。Qualitative Methods in Social Work Research: Challenges and Rewards。SAGE Publication。  new window
6.Creswell, John W.(1998)。Qualitative inquiry and research design: Choosing among five traditions。Sage Publications。  new window
7.Hooymsn, Nancy R.、Kiyak, H. Asuman(2002)。Social Gerontology: A Multidisciplinary Perspective。Allyn and Bacon。  new window
8.Erlandson, D. A.、Harris, E. L.、Skipper, B. L.、Allen, S. D.(1993)。Doing Naturalistic Inquiry: A Guide to Methods。Sage Publications。  new window
9.陳向明(20020000)。社會科學質的研究。臺北：五南。new window  延伸查詢new window
10.蔡美麗(1990)。胡塞爾。東大。  延伸查詢new window
11.Bigby, C.(2004)。Ageing with a Lifelong Disability: A Guide to Practice,Program, and Policy Issues for Human Services Professionals。London:。  new window
12.Bright, R.(1997)。Wholeness in Later Life。Kingsley。  new window
13.Estes, C. L., S. P. Wallace, K. W. Linkins and E. A. Binney(2001)。The Medicalization and Commodification of Aging and the Privatizationand Relationalization of Old Age Policy’,。Social Policy and Aging: A Critical Perspective。CA:。  new window
14.Fawcett, B.(2000)。Feminist Perspectives on Disability。Essex:。  new window
15.Hall, D. A.(1976)。The Aging of Connective Issue。New York:。  new window
16.Moody, H. R.(2000)。Aging: Concepts and Controversies ( 3rd ed.).。CA:。  new window
17.Neuman, W. L.(2003)。Social Research: Qualitative and Quantitative Approach。MA：Allyn and Bacon。  new window
18.Patton, M. Q.(2002)。Qualitative Evaluation and 3 Research Methods 3rd ed.。Thousond OaksCA:。  new window
19.Zarb, G.(1993)。Forgotten but not Gone: the Experience of Ageing with a Disability’。Ageing, Independence and the Life Course。London。  new window
圖書論文
1.Rowe, J. Wallis、Kahn, Robert L.(1998)。The Structure of Successful Aging。Successful Aging。New York：Random House。  new window
2.Lincoln, Y. S.、Guba, E. G.(1985)。Establishing trustworthiness。Naturalistic inquiry。Beverly Hills, CA：Sage。  new window
 
 
 
 
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