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J.(2003)。Parental stress in mothers of boys with Ducehnne muscular dystrophy。Journal of Pediatric Psychology,28,473-484。 | 19. | Olsen, S. F., Marshall, E. S., Mandleco, B. L., Allred, K. W.,Dyches, T. T.,、Sansom, N.(1999)。Support, communication,and hardiness in families with children with disabilities。Journal of Family Nursing,8,275-291。 | 20. | Pa¨ ivi, A. S. K., Tarkka, M. T., Rikala,M. R., Lehti, K.,、Paavilainen, E.(2009)。Further testing of a family nursing instrument (FAFHES)。International Journal of Nursing Studies,46(3),350-359。 | 21. | Raina, P., O’Donnell, M., Rosenbaum, P., Brehaut, J., Walter, S. D., Russell, D., et al.(2005)。The health and well-being of caregivers of children with cerebral palsy。Pediatrics,15(6),626-636。 | 22. | Sawin, J. 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Y.、Instone, S. L.(2008)。Family resilience and functioning in child with DMD: Functioning and resilience in families with children with Duchenne muscular dystrophy。Saarbrucken, Germany:DM Verlag Dr. Muller Aktiengesellschaft。 | 2. | Kliegman, R. M., Behrman, R. E., Jenson, H. B.,、Stanton, B. F.(2007)。Muscular dystrophies。Nelson textbook of pediatrics。Philadelphia。 | 3. | McCubbin, H. I.、Thompson, A. I.、McCubbin, M. A.(2001)。Family measures: Stress, coping, and resiliency--Inventories for research and practice。Honolulu, HI:Kamehameha Schools。 | 4. | Parkerson, G. R.(2002)。User’s guide for Duke health measures。Durham, NC。 | |