唐氏症嬰幼兒父母認知真相後之調適過程__臺灣人文及社會科學引文索引資料庫

:::

詳目顯示

第 1 筆 / 總合 1 筆

/1頁

來源文獻資料
摘要
外文摘要
引文資料

題名：	唐氏症嬰幼兒父母認知真相後之調適過程
書刊名：	護理研究
作者：	蔣欣欣／喻永生
作者(外文)：	Chiang, Hsien-hsien／Yuh, Yeong-Seng
出版日期：	1997
卷期：	5:1
頁次：	頁19-29
主題關鍵詞：	唐氏症；認知真相；父母調適歷程；Down syndrome；Disclosure of handicap；Parental coping process
原始連結：	連回原系統網址
相關次數：	被引用次數:期刊(2) 博士論文(0) 專書(0) 專書論文(0) 排除自我引用:1 共同引用:2 點閱:32

　　　　　本研究旨在瞭唐氏症嬰幼兒的父母親在認知患兒診斷及身體的先天性缺陷後,對此危機的調適過程。為能深入了解這些父母親的主觀經驗，故採用參與觀察的質性研究，主要以會談及觀察法訪談10位母親及6位父親，研究者根據收集的資料做內容比分析，結果發現家庭調適歷程可區分為三個階段：（1）震驚疑慮期，包括當頭被打一棒，獨自哭泣，懷疑是不是診斷錯誤，求家人告訴實情。（2）掙扎期，包括認為是他人的錯，尋找可以接受的病因，保護隔離（有苦在心口難開，擔心他人的眼光）。（3）崩耗（覺得很累而易發脾氣）或接受期（患孩是家中的寶）。最後，依據研究結果討論唐氏症嬰幼兒家庭的動態關係，認知真相的處境，以及專業人員應有的態度。

以文找文

　　　　　The purpose of the study was to detect the subjective experience of parents having Down syndrome children under three years old. The suthors as participant observers, interviewed 8 mothers and 6 fathers about their experience on disclosure of diagnosis of their child's handicap. The interview data were transcribed and analyzed by constant comparative analysis. The results manifested three adaptation stages of these parents. The stages of the adaptive process were shock and suspicion stage, struggling stage, acceptance or burnout. The experience of shock and suspicious stage included feelings of " being hit on the head", "crying alone", "something wrong with the diagnosis", "please tell me the truth". The struggling stage included blaming others, searching for acceptable causes of disease, keeping apart from other people. Acceptance was to see the child as a valued family member. Burnout was the situation of "being tired and getting angry easily". These findings can help health caregivers to understand the situation of families with Down syndrome children. Based on the results, the authors discuss the proper way to interact with these clients.

以文找文

期刊論文
1.	Erickson, M.、Upshur, C. C.(1989)。Caretaking burden and social support: Comparison of mothers of infants with and without disabilities。American Journal on Mental Retardation，94(3)，250-258。
2.	喻永生(19930100)。唐氏症候群。國防醫學，16(1)，35-45。延伸查詢
3.	黃璉華(19871000)。遺傳諮詢與遺傳諮詢人員之養成。護理雜誌，34(4)，37-40。延伸查詢
4.	Appleton, P. L.、Minchon, P. E.(1991)。Models of parent partnership and child development centres。Child: Care, Health and Development，17，27-38。
5.	Carr, J.(1988)。Six weeks to twenty-one years old: A longitudinal study of children with Down s syndrome and their families。Journal of Children Psychological Psychiatry，29(4)，407-431。
6.	Chao, Y. M.(1977)。A habitual aborter's self--concept during the course of a successful pregnancy。Maternal Child Nursing Journal，6(3)，165-175。
7.	Childs, R. E.(1984)。Maternal psychological conflicts associated with the birth of a retarded child。Maternal Child Nursing Journal，14，175-182。
8.	Cottrell, D. J.、Summer, K.(1990)。Communicating an evolutionary diagnosis of disability to parents。Child:Care, Health and Development，16，211-218。
9.	Cunningham, C. C.、Slope, P.(1977)。A positive approach to pareni and professional collaboration。Health Visit，50，32-37。
10.	Cunningham, C. C.、Sloper, P.(1985)。Parents of Down's syndrome babies: Their early needs。Child: Care, Health and Development，3，325-347。
11.	Farnham, R.(1988)。Grief work with mothers of retarded children in a group setting。Issues in Mental Health Nursing，9(1)，73-82。
12.	Humphreys, P.、Berkeley, D.(1987)。Representing risks: Supporting genetic counseling。Birth Defects，23(2)，227-250。
13.	Kessler, S.、Kessler, H.、Ward, P.(1984)。Psychosocial aspects of genetic counseling III, management of guilt and shame。American Journal of Medical Genetics，17(3)，673-697。
14.	MeConachie, H. R.(1991)。Home--based teaching: What are we asking of parents。Child: Care, Health, Development，17(2)，123-136。
15.	MeConachie, H. R.(1991)。What parents think about parenting and teaching。Journal of Mental Deficiency Research，35(Pt1)，58-65。
16.	Olshansky, S.(1962)。Chronic sorrow: A response to having a mentally defective child。Social Casework，43，190-194。
17.	Sloper, S.、Arnljotosdottir, M.、Cunningham, C. C.(1983)。Parent reactions to early intervention with their Down’s syndrome infants。Child: Care, Health and Development，9(6)，357-379。
18.	Wertz, D. C.、Sorenson, J. R.、Hecreb, T. C.(1986)。Clients' interpretation of risks provided in genetic counseling。American Journal of Human Genetics，39(2)，253-264。

圖書
1.	Silverman, D.(1987)。Communication and Medical Practice: Social Relations in the Clinic。London：Sage。
2.	余玉眉、田聖芳、蔣欣欣(1991)。質性研究。台北：巨流。延伸查詢
3.	Aguilera, D. C.、Messick, J. M.(1986)。Crisis intervention。St. Louis：C. V. Mosby Company。
4.	Anthony, E.、Benedek, T.(1970)。Parenthood。Boston：Little, Brown and Company。
5.	Barnard, K. E.、Powell, M. E.(1972)。Teaching the mental retarded child: A family approach。St. Louis：The C. V. Mosby Company。
6.	Glaser, B. G.、Strauss, A. L.(1966)。Awareness of dying。Chicago：Adline PublishingCompany。
7.	Strauss, Anselm L.(1987)。Qualitative analysis for social science。Cambridge University Press。
8.	Denzin, Norman K.、Lincoln, Yvonna S.(1994)。Handbook of Qualitative Research。Sage。
9.	Riessman, C. K.(1993)。Narrative analysis-qualitative research method volune 30。London：Sage。

圖書論文
1.	Cohen, F. L.(1986)。Genetic counseling。Comtempory women's health。California：Addison Wesley Publishing。
2.	Cunningham, C. C.、Davis, H.(1985)。Early parent counselling。Mental Handicape。London：Bailliere Tindall。
3.	Russell, F. F.(1987)。Intervening with families of infants with Down's syndrome。Family and chronic illness。Pennyslvania：Springhouse。
4.	Stevenson, D. K.、Goldworth, A.(1989)。The appropriateness of intensive care applications。Fetal and neonatal brain injury。Philadelphia：B. C. Decker Inc.。

推文
推薦
引用網址
引用嵌入語法
轉寄

top

:::

相關期刊
相關論文
相關專書
相關著作
熱門點閱

1.	一位青少年脊髓小腦退化性動作協調障礙病患之護理經驗
2.	剖析產前遺傳檢測之諮詢與倫理議題
3.	遺傳諮詢的內容及影響諮詢滿意度的相關因子--以唐氏症為例
4.	遺傳諮詢於社區護理之應用
5.	遺傳諮詢與遺傳諮詢人員之養成

無相關博士論文

無相關書籍

無相關著作

無相關點閱

QR Code

臺灣人文及社會科學引文索引資料庫系統

詳目顯示

臺灣人文及社會科學引文索引資料庫