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題名:癌症青少年的生活經驗之探討
書刊名:長庚護理
作者:洪麗貞葉昭幸
作者(外文):Hung, L. C.Yeh, C. H.
出版日期:2000
卷期:11:3=31
頁次:頁14-24
主題關鍵詞:癌症青少年生活經驗CancerAdolescentLife experience
原始連結:連回原系統網址new window
相關次數:
  • 被引用次數被引用次數:期刊(6) 博士論文(1) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:6
  • 共同引用共同引用:0
  • 點閱點閱:22
     本研究目的是探討癌症青少年生活的有關經驗。採質性研究法(Qualitative Research),自民國88年2月至6月止,於某醫學中心兒童血液腫瘤病房實際參與護理癌症青少年及其主要照顧者,藉由非正式及正式個別深入訪談、參與觀察、行為過程記錄和第一研究者的反應性日記等方式,進行收集資料;研究經立意取樣(Purposive Sampling),共訪談五位癌症青少年,研究資料分析採Miles與Huberman之內容介析比較法,加以歸納及整理。結果顯示,癌症青少年的生活經驗是指個案因經歷診斷癌症後,進行相關治療時所引起之症狀困擾(如噁心、噁吐、發燒或腹瀉)、心理困擾(包括擔心、身體心像改變、不確定感和失落感)、家人互動改變(指與母親爭執增加和與父親關係改變)、失去同儕及休閒娛樂型態改變之生活經驗。希望藉由本研究結果提供護理人員照顧癌症青少年時之參考。
     This qualitative study was to explore the life experiences of adolescents with cancer. Qualitative research methods(multiple individual in-depth interviews with patients and primary caregiver, participant observations, and research's reflexivejournals) were used to collect longitudinal data. Content analysis suggested by Miles and Huberman was used for dataanalysis. The study findings shown that the life experiences of adolescents with cancer were began at the time of cancerdiagnosed and while related treatments proceeded. Life experiences of adolescents with cancer included distress symptoms(i.e., nausea, vomiting and fever or diarrhea), psychological disturbance (i.e., worry, change of body image, uncertainty andloss), different interaction patterns between family and patients (i.e., increased argument with mother and changed relationshipwith father), loss contacts with peers and the changed of entertainment style. The findings will be provided as a guidance fornurses while caring for adolescent cancer patients.
期刊論文
1.Novakovic, B.、Fears, T. R.、Wexler, L. H.、McClure, L. L.、Wilson, D. L.、McCalla, J. L.、Tucker, M. A.(1996)。Experiences of cancer in children and adolescents。Cancer Nursing,19(1),54-59。  new window
2.Enskar, K.、Carlsson, M.、Golsater, M.、Hamrin, E.(1997)。Symptom distress and life situation in adolescents with cancer。Cancer Nursing,20(1),23-33。  new window
3.江玲敏、曾紀瑩(19990800)。一位父親面臨愛子遽患急性骨髓性白血病的角色衝突之護理經驗。護理雜誌,46(4),31-39。new window  延伸查詢new window
4.Aaronson, N. K.(1991)。Methodologic issues in assessing the quality of life of cancer patients。Cancer,67,844-850。  new window
5.Boman, K.、Bodegard, G.(1995)。Psychological long-term coping with experience of disease and treatment in childhood cancer survivors。Acta Paediatrica,84(12),1395-1402。  new window
6.Ellis, J. A.(1991)。Coping with adolescents cancer: It's a matter of adaptation。Journal of Pediatric Oncology Nursing,8(1),10-17。  new window
7.Ettinger, R. S.、Heiney, S. P.(1993)。Cancer in adolescents and young adults: Psychosocial cancers, coping strategies, and interventions。Cancer,71,3276-3280。  new window
8.Haase, J. E.、Rostad, M.(1994)。Experiences of completing cancer therapy: Children's perspectives。Cancer Nursing,21(9),1483-1492。  new window
9.Hinds, P. S.、Martin, J.(1988)。Hopefulness and the self-sustaining process in adolescents with cancer。Nursing Research,37(6),336-340。  new window
10.Kazak, A. E.、Meadows, A. T.(1989)。Families of young adolescents who have survived cancer: Social-emotional adjustments, adaptability, and social support。Journal of Pediatric Psychology,114(2),175-191。  new window
11.Hinds, P. S.、Quargnenti, A. G.、Wentz, T. J.(1992)。Measuring symptom distress in adolescents with cancer。Journal of Pediatric Oncology Nursing,9(2),84-86。  new window
12.Neville, K.(1998)。The relationships among uncertainty, social support, and psychological distress in adolescents recently diagnosed with cancer。Journal of Pediatric Oncology Nursing,15(1),37-46。  new window
13.Pidgeon, V.(1985)。Children's concepts of illness: Implications for health teaching。Matemal-Child Nursing Journal,14(1),23-35。  new window
14.Ritchie, M. A.(1992)。Psychosocial functioning of adolescents with cancer; A developmental perspective。Oncology Nursing Forum,19(10),1497-1501。  new window
15.Trudel, J. G.、Rivard, M.、Dobkin, P. L.、Leclerc, J. M.、Robaey, P.(1998)。Psychometric properties of the health utilities index mark 2 system in paediatric oncology patients。Quality of Life Research,7,421-432。  new window
16.Van Dongen-Melman, J. E. W. M.、Pruyn, J. F. A.、Van Zanen, G. E.、Sanders- woudstra, J. A. R.(1986)。Coping with childhood cancer: A conceptual view。Journal of Psychosocial Oncology,4(1),147-161。  new window
17.Vami, J. W.、Katz, E. R.、Seid, M.、Quiggins, D. J. L.、Friedman-Bender, A.(1998)。The pediatric cancer quality of life inventory-32 (PCQL-32): I. Reliability and validity。Cancer,82(6),1184-1196。  new window
18.Zeltzer, L. K.(1993)。Cancer in adolescents and young adults psychosocial aspects。Cancer,15(10),3463-3468。  new window
學位論文
1.古佩玉(1995)。急性淋巴性白血病患童接受化學治療期間對其身體心像認知之探討(碩士論文)。國防醫學院。  延伸查詢new window
2.葉麗娟(1996)。癌症青少年接受化學治療的症狀困擾及其因應策略之探討(碩士論文)。國防醫學院,台北。  延伸查詢new window
3.鄭美玲(1997)。青少年癌症患者的住院經驗(碩士論文)。高雄醫學院。  延伸查詢new window
圖書
1.兒童癌症基金會(1995)。兒童癌症基金會追蹤調查。台北:兒童癌症基金會。  延伸查詢new window
2.劉玉秀(1991)。小兒科護理學。台北:華杏。  延伸查詢new window
3.Nelson, W. E.(1996)。Textbook of pediatrics。Philadelphia:Saunders company。  new window
4.Piaget, J.(1973)。The Child and Reality。New York:Grossman。  new window
5.Miles, M. B.、Huberman, A. M.(1994)。Qualitative Data Analysis。Sage。  new window
6.Lincoln, Yvonna S.、Guba, Egon G.(1985)。Naturalistic Inquiry。Sage。  new window
7.Strauss, Anselm L.、Corbin, Juliet M.(1990)。Basics of qualitative research: Grounded theory procedure and techniques。Sage。  new window
單篇論文
1.Taiwan Pediatric Oncology Group(1997)。Protocols for childhood cancer foundation of R.O.C.。  new window
圖書論文
1.梁德城(1994)。小兒腫瘤學。臨床兒科學。台北:嘉洲。  延伸查詢new window
2.Freese, B. T.、Beckman, S. J.、Boxely-Hages, S.、Bruick-Sorge, C.、Harris, S. M.、Hermiz, M. E.、Meininger, M.、Steinkeler, S. E.(1998)。Betty Neuman system model。Nursing Theorists and their Work。Missouri:Mosby。  new window
 
 
 
 
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