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題名：癲癇青少年生活品質量表（QOLIEA）之發展與信、效度檢定
書刊名：長庚護理
作者：劉筱瓊／葉昭幸
作者(外文)：Liu, Shiau-chiung／Yeh, Chao-hsing
出版日期：2003
卷期：14:3=43
頁次：頁244-255
主題關鍵詞：癲癇；生活品質；量表；Epilepsy；QOL；Inventory
原始連結：連回原系統網址new window
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  • 被引用次數被引用次數:期刊(0) 博士論文(1) 專書(0) 專書論文(0)
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  • 共同引用共同引用:15
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　　　　　本文旨在發展癲癇青少年生活品質量表QOLIEA並建立其信度與效度。QOLIEA乃經文獻查證、參考相關量表、焦點團體訪談資料、專家意見及項目分析等過程發展，包括：生理功能、心理功能、社會功能、認知功能與疾病 / 治療相關症狀等五次量表，共53題，適用於10-18歲之癲癇青少年。本研究收集92位10-18歲之癲癇青少年及其主要照顧者以建立QOLIEA的信度與效度，發現QOLIEA具有不錯的內在一致性、再測信度、內容效度、輻合效度、效標效度及臨床效度，但有三個次量表的結果無法證實其辨別效度是否良好。QOLIEA是國內目前唯一針對癲癇青少年設計的本土化生活品質量表，可由青少年本身自評其生活品質的問題與需求，進而提供醫護人員於臨床評價護理措施及醫療處置成效的參考，以促進癲癇青少年的生活品質。
　　　　　The aims of article were ot develop a Quality of Life Inventory for Epileptic Adolescents (QOLIEA) and to demonstrate it's reliability and validity. The item pool of QOLIEA was developed by literature review, relevant instrument (QOLIE-AD-48), qualitative study of an adolescents' focus group interviews, and experts' suggestions. There were 53 items including subscales of functions of physical, psychological, social, cognitive, and disease / treatment related symptoms. In order to demonstrate the reliability and validity of QOLIEA, 92 adolescents with epilepsy and their major caregiver were recruited. The results indicated that QOLIEA had good internal consistency reliability, test-retest reliability, content validity, convergent validity, criterion-related validity, and clinical validity. However, some results of discriminate validity did not support the hypothesis. This study demonstrated that the QOLIEA was a reliable and valid measurement for health-related quality of life for epileptic adolescents. It is a fair instrument to evaluate outcomes of nursing and medical interventions.
期刊論文
1.Cramer, J. A.、Westbrook, L. E.、Devinsky, O.、Perrine, K.、Glassman, M. B.、Camfield, C.(1999)。Development of the Quality of Life in Epilepsy Inventory for Adolescents: The QOLIE-AD-48。Epilepsia，40(8)，1114-1121。  new window
2.Aaronson, N. K.(1988)。Quality of life: What is it? How should it be measured?。Oncology，2(5)，69-76。  new window
3.Baker, G. A.、Brooks, J.、Buck, D.、Jacoby, A.(2000)。The stigma of epilepsy: a European perspective。Epilepsia，41(1)，98-104。  new window
4.Arunkumar, G.、Wyllie, E.、Kotagal, P.、Ong, H. T.、Gilliam, F.(2000)。Parent- and Patient- Validated Content for Pediatric Epilepsy Quality-of-Life Assessment。Epilepsia，41(11)，1474-1484。  new window
5.Austin, J. K.、Dunn, D. W.、Huster, G. A.(2000)。Childhood epilepsy and asthma: Changes in behavior problems related to gender and change in condition severity。Epilepsia，41(5)，615-623。  new window
6.Bailet, L. L.、Turk, W. R.(2000)。The Impact of Childhood Epilepsy on Neurocognitive and Behavioral Performance: A Prospective Longitudinal Study。Epilepsia，41(4)，426-431。  new window
7.Carpay, H. A.、Vermeulen, J.、Onselaar, C. A. V.、Aldenkamp, A. P.、Arts, W. F. M.、Stroink, H.、Peters, A. C. B.(1997)。Disability due to restrictions in childhood epilepsy。Developmental Medicine and Child Neurology，39(8)，521-526。  new window
8.Clement, M. J.、Wallace, J.(1990)。A survey of adolescents with epilepsy。Developmental Medicine and Child Neurology，32(10)，849-857。  new window
9.Jalava, M.、Sillanpää, M.、Camfield, C.、Camfield, P.(1997)。Social Adjustment and Competence 35 Years After Onset of Childhood Epilepsy: A Prospective Controlled Study。Epilepsia，38(6)，708-715。  new window
10.Kim, W. J.(1991)。Psychiatric Aspects of Epileptic Children and Adolescents。Journal of American Academy Children and Adolescents' Psychiatry，30(6)，874-886。  new window
11.Oostrom, K. J.、Schouten, A.、Olthof, T.、Peters, A. C. B.、Jennekens-Schinkel, A.(2000)。Negative Emotions in Children with Newly Diagnosed Epilepsy。Epilepsia，41(3)，326-331。  new window
12.Sabaz, M.、Cairns, D. R.、Lawson, J. A.、Nheu, N.、Bleasel, A. F.、Bye, A. M. E.(2000)。Validation of a New Quality of Life Measure for Children with Epilepsy。Epilepsia，41(6)，765-774。  new window
13.Singhi, P. D.、Bansal, U.、Singhi, S.、Pershad, D.(1992)。Determinants of IQ profile in children with idiopathic generalized epilepsy。Epilepsia，33(6)，1106-1114。  new window
14.Ziegler, R. G.、Erba, G.、Holden, L.、Dennison, H.(2000)。The Coordinated Psychosocial and Neurologic Care of Children with Seizures and Their Families。Epilepsia，41(6)，732-743。  new window
15.劉雪娥(19930600)。家屬生活品質量表心理測定學之探討。護理研究，1(2)，127-136。new window  延伸查詢new window
16.Hoare, P.、Russell, M.(1995)。The quality of life of children with chronic epilepsy and their families: Preliminary findings with a new assessment measure。Developmental Medicine and Child Neurology，37(8)，689-696。  new window
17.Stein, R. E. K.、Jessop, D. J.(1990)。Functional Status II(R): A Measure of Child Health Status。Medical Care，28(11)，1041-1055。  new window
18.Ferrans, C. E.、Powers, M. J.(1985)。Quality of life index: Development and psychometric properties。Advances in Nursing Science，8(1)，15-24。  new window
研究報告
1.梁培勇(1996)。唇顎裂兒童之壓力、因應和社會支持與其發展之間的關係。  延伸查詢new window
2.黃惠玲、莊勝發、王雅琴、陳永成、曾嫦嫦、丘彥南、陳映雪、余麗華、吳英璋(1993)。發展台灣地區的多軸兒童行為衡鑑評量表。  延伸查詢new window
學位論文
1.謝玉玲(1996)。癲癇青少年生活品質內涵初探：主觀性生活情境之研究(碩士論文)。長庚大學，桃園。  延伸查詢new window
2.洪麗真(2000)。癌症病童生活品質量表(QOLCC)之發展及信度和效度檢定(碩士論文)。長庚大學。  延伸查詢new window
3.薛惠琪(1995)。兒童行為問題實徵性多軸衡鑑與分類之相關研究(碩士論文)。中原大學。  延伸查詢new window
4.李欣瑩(2001)。桃園市國中生主觀生活壓力、社會支持、因應行為與身心健康之關係研究(碩士論文)。國立臺灣師範大學。  延伸查詢new window
5.陳麗娟(2001)。癲癇青少年生活品質及相關因素之探討(碩士論文)。臺北醫學大學。  延伸查詢new window
圖書
1.施茂雄(1998)。癲癇不再發作。台北：宏欣文化。  延伸查詢new window
2.Achenbach, T. M.(1999)。Manual for the child behavior checklist/4-18 and 1991 profile。Burlington, VT：Department of Psychiatry, University of Vermont。  new window
3.Erikson, E. H.(1978)。Childhood and society。St. Albans：Triad / Paladin。  new window
4.張紹勳、張紹評、劉秀娟(2000)。SPSS for Windows統計分析：初等統計與高等統計。臺北：松崗。  延伸查詢new window
5.Harter, S.(1985)。Manual for the Self-perception Profile for Children。Denver, CO：University of Denver。  new window
6.DeVellis, Robert F.(1991)。Scale development: Theory and application。Sage。  new window
圖書論文
1.康百淑(1998)。青少年期。當代人類發展學。台北：匯華。  延伸查詢new window
2.Devinskey, O.(1996)。Quality of life with epilepsy。The treatment of epilepsy: Principles and practice。London：Williams andWilkins。  new window
 
 
 
 
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