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題名：母親獲得照顧先天性心臟病孩之知能的過程
書刊名：榮總護理
作者：蘇婉麗／金繼春
作者(外文)：Su, Wan-li／Chin, Chi-chun
出版日期：2004
卷期：21:1
頁次：頁21-34
主題關鍵詞：母親；先天性心臟病；病孩；照顧知能；自我覺察；Mother；Congenital heart disease；Sick child；Ability in taking care of；Self-awareness
原始連結：連回原系統網址new window
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  • 被引用次數被引用次數:期刊(1) 博士論文(0) 專書(0) 專書論文(0)
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  • 共同引用共同引用:0
  • 點閱點閱:2
本質性研究之目的在探索母親獲得照顧先天性心臟病病孩之知識與技能的學習過程。以深度訪談法收集九位母親養育其病孩的經驗，用Colaizzi(1978)的現象學分析步驟，整理與歸納所收集的訪談資料。結果顯示母親獲得照顧病孩之知能包括四個主要主題：發現問題(包括母親自我覺察、醫護人員告知)、產生動機(包括角色期待與責任、愛與保護)、解決問題(包括遵循指導、嘗試調整、累積經驗、小心求證、勇於試用及歸納經驗)與自我評價(包括學習障礙與學習成果)。同時也發現「自我覺察」是母親學習過程的起始點。為增加母親對先天性心臟病孩的照顧能力，提升兒科護理人員的護理服務品質，提出提昇母親覺察能力的建議。本研究的結果可作為先天性心臟病孩護理指導的參考。
The purpose of this qualitative study was to explore certain mothers' learning processes of obtaining knowledge and skills in taking care of their children with congenital heart disease. Nine mothers' experiences along with the journey of taking care of their sick children were collected by in-depth interview and analyzed by Colaizzi's phenomenological research method. Four major themes within the learning process were found, including problem discovery (mother's self-awareness and informed by medical personnel), motivation generation (maternal role-expectation and responsibility, love, and protection), problem solving methods (following medical instructions, adjustment, accumulating experience and carefully confirming information, bravely trying and inducting new experiences), and self-evaluation (barriers and achievements). The researcher also found that mothers' self-awareness was a starting point in the learning process of taking care of their sick child. To improve mother's ability to take care of their children and the nursing quality of pediatric nurses, the researcher provides a suggestion to promote mothers' self-awareness. The findings of this study could be used as a reference to develop nursing instructions concering children with congenital heart disease.
期刊論文
1.呂鴻基、洪啟仁、吳美環、候守賢、朱樹勳、連文彬(19930300)。臺灣的先天性心臟病。臺灣醫學會雜誌，92，S1-S12。  延伸查詢new window
2.Gessner, B. A.(1989)。Adult education: The cornerstone of patient teaching。Nursing Clinic of North America，24(3)，589-595。  new window
3.Rubin, R.(1967)。Food And Feeding: A Matrix of Relationships。Nursing Forum，6(2)，195-206。  new window
4.Beck, C. T.(1993)。Qualitative research: The evaluation of its credibility, fittingness, and auditability。Western Journal of Nursing Research，15(2)，263-266。  new window
5.徐仲豪、吳俊仁(20000700)。現今嬰幼兒及兒童鬱血性心臟衰竭之探討。中華民國重症醫學雜誌，2(3)，199-206。  延伸查詢new window
6.張瀞文(19991100)。母親們的學習經驗--在讀書會中的觀點轉換。兩性平等教育季刊，9，85-92。  延伸查詢new window
7.蔡麗芳(19970300)。女性母親角色的省思及諮商上的涵義。輔導季刊，33(1)，14-20。new window  延伸查詢new window
8.蘇婉麗(20010600)。一位長期住院患孩母親對護理人員的感受。榮總護理，18(2)，213-215。new window  延伸查詢new window
9.Casey, F. A.、Craig, B. G.、Mulholland, H. C.(1994)。Quality of life in surgically palliated complex congenital heart disease。Archives of Disease in Childhood，70(5)，382-386。  new window
10.Easton, K. L.、Mccomish, J. F.、Greenberg, R.(2000)。Avoiding common pitfalls in qualitative data collection and transcription。Qualitative Health Research，10(5)，703-707。  new window
11.Gupta, S.、Giuffre, R. M.、Crawford, S.、Waters, J.(1998)。Covert fears, anxiety and depression in congenital heart disease。Cardiology in the Young，8(4)，491-499。  new window
12.Higgins, S. S.、Kaskani, I. A.(1986)。The Cyanotic Child: Heart Defects And Parental Learning Needs。The American journal of maternal child nursing，11(4)，259-262。  new window
13.Horn, J. D.、Feldman, H. M.、Ploof, D. L.(1995)。Parent and professional perceptions about stress and coping strategies during a child's lengthy hospitalization。Social Work in Health Care，21(1)，107-127。  new window
14.Morrow, W. R.(2000)。The New World of Pediatric Cardiology: Issues and Answers。Pediatric Annals，29(8)，464-466。  new window
15.O'Brien, P.、Boisvert, J. T.(1989)。Discharge planning for children with heart disease。Critical care nursing clinics of North America，1(2)，297-305。  new window
16.De Staebel, O.(2000)。Malnutrition in Belgian children with congenital heart disease on admission to hospital。Journal of Clinical Nursing，9(5)，784-791。  new window
17.Pridham, K. F.、Schroeder, M.、Brown, R.(1999)。The adaptiveness of mothers' working models of caregiving through the first year: infant and mother contributions。Research in Nursing & Health，22(6)，471-485。  new window
18.Rogan, F.、Shimed, V.、Barclay, L.、Everitt, L.、Wyllie, A.(1997)。'Becoming a mother'--developing a new theory of early motherhood。Journal of Advanced Nursing，25(5)，877-885。  new window
19.Saezn, R. B.、Beebe, D. K.、Triplett, L. C.(1999)。Caring for infants with congenital heart disease and their families。American family physician，59(7)，1857-1868。  new window
20.Saunders, C. P.、Roberts, G. J.(1997)。Dental attitudes, knowledge, and health practices of parents of children with congenital heart disease。Archives of Disease in Childhood，76(6)，539-540。  new window
21.Wray, J.、Sensky, T.(1998)。How does the intervention of cardiac surgery affect the self-perception of children with congenital heart disease?。Child: Care, Health and Development，24(1)，57-72。  new window
會議論文
1.游素碧、梁美寬(2000)。先天性心臓病嬰兒父母對護理指導需求調查。中華民國護理學會第16次研究論文發表會。  延伸查詢new window
圖書
1.Clinchy, Blythe McVicker、Belenky, Mary Field、Goldberger, Nancy Rule、Tarule, Jill Mattuck、蔡美玲(1995)。對抗生命衝擊的女人：女性自我、聲音與心智的發展。臺北：遠流。  延伸查詢new window
2.Vygotsky, L. S.、蔡敏玲、陳正乾(1997)。社會中的心智：高層次心理過程的發展。台北：心理。  延伸查詢new window
3.Rubin, R.(1984)。Maternal identity and the maternal experience。New York：Springer Publishing Company。  new window
圖書論文
1.Alexander, J. E. Sr、DeMeester, D. W.、Lauer, T.、Marriner-Tomey, A.、Neal, S. E.、Williams, S.(1998)。Virginia Henderson: Definition of nursing。Nursing theorists and their work。St. Louis：Mosby-Year Book, Inc。  new window
2.Colaizzi, Paul F.(1978)。Psychological research as the phenomenologist views it。Existential-phenomenological alternatives for psychology。New York：Oxford University Press。  new window
 
 
 
 
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