Taiwanese Fathers' Experiences of Having Their Child Diagnosed with a Developmental Disability_

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題名：	Taiwanese Fathers' Experiences of Having Their Child Diagnosed with a Developmental Disability
書刊名：	The Journal of Nursing Research
作者：	黃玉苹／Winsome St John／蔡森蔚／陳秀蓉
作者(外文)：	Huang, Yu-ping／Tsai, Sen-wei／Chen, Hsiu-jung
出版日期：	2011
卷期：	19:4
頁次：	頁239-249
主題關鍵詞：	發展障礙；孩童；診斷；父親；護理；現象學；Development disability；Child；Diagnosis；Fathers；Nursing；Phenomenology
原始連結：	連回原系統網址
相關次數：	被引用次數:期刊(0) 博士論文(0) 專書(0) 專書論文(0) 排除自我引用:0 共同引用:0 點閱:16

背景 : 當孩子被診斷為發展障礙時，對父母親而言是一個危機，當探討孩子的診斷對父母的衝擊時，父母的性別須加以考量，但現今多數研究多焦點在探討母親的經驗，對父親經驗的探討相當的貧乏，因此本研究結果可提供醫療人員有關父親在孩子被診斷發展障礙時的經驗。目的 : 本研究目的在探討在中國文化情境下，父親得知孩子被診斷為發展障礙時的生活經驗。方法 : 本研究乃運用海德格（Heidegger）的詮釋現象學為研究方法，以立意性取樣在中部教學醫院募集研究對象，共有16位父親參與本研究，以深入及半結構式的訪談收集資料，以詮釋循環分析研究資料。結果 : 研究結果呈現四個主題：㈠失去希望、㈡失敗感、㈢對家庭的衝突感到挫折及㈣尋求正向因應策略。結論／臨床應用 : 父親在孩子被診斷為發展障礙時，對自我會有負向的批判及情緒，因此護理人員應主動了解父親對孩子發展障礙的感覺及想法，以便提供情緒及訊息的支持，因此不應只焦點在母親的部份。當父親與發展障礙兒的祖父母有所衝突時，必須提供適當的支持及轉介。護理人員應該協助父親了解孩子的發展障礙，並且運用文化架構、文化信念及價值觀協助父親了解發展障礙兒生命的意義。

以文找文

Background: Receiving a diagnosis of a developmental disability in a child can be a crisis event for parents. Gender differences in parental roles are worth considering when exploring the impact of having a child with a disability. However, most studies on this topic have focused on the mother’s experience, and little is known about what the father goes through as the parent of a child diagnosed with a disability. Even less is known regarding this experience in the context of the Chinese culture. Purpose: The goal of this study was to explore fathers’ experiences of having a child diagnosed with a developmental disability in a Chinese cultural context. Methods: This study used a hermeneutic phenomenological approach informed by the philosophical world views of Heidegger. The 16 fathers who participated in the study were purposively sampled from a teaching hospital in central Taiwan. Data were collected using in-depth and semistructured interviews and were analyzed using hermeneutic analysis. Results: Data analysis revealed four shared meanings: losing hope, feelings of failure, being frustrated with family conflicts, and searching for positive coping strategies. Conclusions/Implications for Practice: Fathers feel shock and despair as well as personally devalued when learning that their child has been diagnosed with a developmental disability. Chinese cultural beliefs and values can elicit different experiences for fathers while helping them make sense of their experiences and accept their child in meaningful ways. Nurses can actively engage fathers as well as mothers to understand their feelings and thoughts about their child’s disability to provide appropriate emotional and informational support. Providing support or referral is necessary particularly when fathers encounter issues with the child’s grandparents. Nurses can assist fathers to find a way to make sense of having a child with a disability within their cultural frame of reference by adapting cultural beliefs and values to their situation and to make meaning of their child’s life.

以文找文

期刊論文
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其他
1.	Liu, G. Z.(2001)。Chinese culture and disability: information for U.S. service providers，http://cirrie.buffalo.edu/monographs/china.php， 20100915。

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