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題名:慢性阻塞性肺病末期病人使用限期嘗試性治療的照護經驗
書刊名:安寧療護
作者:黎瑞萍李淑靜陳巧萍王寧道洪宗杰
作者(外文):Li, Jui-pingLi, Shu-chingChen, Chiao-pingWang, Ning-taoHung, Tsung-chieh
出版日期:2012
卷期:17:2
頁次:頁210-221
主題關鍵詞:慢性阻塞性肺疾病呼吸器醫療意願書末期病人限期嘗試性治療Chronic obstructive Pulmonary DiseaseCOPDVentilatorEnd stage patientTime limited trial
原始連結:連回原系統網址new window
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  • 共同引用共同引用:19
  • 點閱點閱:59
本文個案是位老礦工,已有呼吸困難症狀數年,加上長期抽菸併發慢性阻塞性肺病(chronic obstructive pulmonary disease, COPD),病程持續進展到需要依賴他人完全照顧,住院頻率增加,時間也一次比一次久,生活品質持續不斷惡化。個案在就醫期間,陸續清楚明確的向醫師表達,拒絕插管使用呼吸器來延長生命的意願。家屬及個案對末期階段的醫療計畫及要求是不同步的,令醫療團隊夾於個案與家屬間陷入兩難。此次個案發生呼吸衰竭面臨須插管使用呼吸器,考量其慢性阻塞性肺病末期判斷不易且醫療處置不確定絕對有利的情況下,嘗試安寧緩和醫療意願書加註限期嘗試性治療(time limited trial)的簽立,協助個案、家屬與醫療團隊緩解困境,依共同協議的疾病末期醫療計畫進行醫療照護。最後,個案在家屬陪伴下返家,安祥的往生。此案例浮現了在尊重病人自主權與家屬醫療期盼不一致的衝突。而限期嘗試性治療的加註,提供了彈性與空間,讓病患、家屬及醫療團隊等三方達成共識,使醫療照護能順利進行。
This article is about an old coal-miner, who's having intermittent respiratory distress for several years. He is also a heavy cigarette smoker, and complicated with chronic obstructive pulmonary disease (COPD). His disease status deteriorated, and symptoms became more severe and prominent. He needed total care. Hospitalization became more frequent and duration of stay became longer. The quality of life of this patient continued to deteriorate. Although the patient had clearly expressed the refusal of endotracheal intubation, no official documentation was made. Meanwhile, the family's opinion opposed that with the patient, which made it difficult for the medical staff to deal with. He developed respiratory failure despite the use of NIPPV, and conducted trial of time-limited intubation and mechanical ventilator use, which is compatible with care of the terminal COPD patient who wishes to have extubation if no improvement noted. The patient's condition deteriorated, and on the 13th day of ventilator use, he was extubated and palliative treatment was done. After discussion with the family members, he was brought home for peaceful death. This combination of hospice care and time-limited respiratory trial therapy has helped resolving the conflict between the patient's will, the family's expectations and the concepts of the medical team. The flexibility and time given in this method, is an easy access in aiding to achieve satisfactory result agreeable for the 3 parties, at the same time able to perform proper medical care. Therefore, we share this experience for use of this method in care of terminal COPD patients.
Other
1.Viegi G MS, Pistelli F, Baldacci S, Carrozzi L(2006)。Epidemiology of chronic obstructive pulmonary disease: health effects of air pollution。  new window
2.行政院衛生署中央健康保險局。今(98) 年9 月1 日起,新增八類非癌症重症末期病患也能接受安寧療護服務,並正式納入健保給付。  延伸查詢new window
3.Barnes PJ, Celli BR(2009)。Systemic manifestations and comorbidities of COPD。  new window
4.Eisner MD, Blanc PD, Yelin EH, et al(2010)。Influence of anxiety on health outcomes in COPD。  new window
5.張惠雯(2010)。慢性阻塞性肺病的末期醫療照護。  延伸查詢new window
6.Mahler DA, Selecky PA, Harrod CG, et al(2010)。American College of Chest Physicians consensus tatement on the management of dyspnea in patients with advanced lung or heart disease。  new window
7.The SUPPORT Principal Investigators(1995)。Investigators TSP: A controlled trial to improve care for seriously ill hospitalized patients。  new window
8.鄭千剛、高華芷、姚建安(2010)。淺談末期腎臟疾病的安寧緩和醫療。  延伸查詢new window
9.Couceiro VA, Pandiella A. COPD(2010)。A Model for Using Advanced Directives and Care Planning。  new window
10.Martinez FJ, Foster G, Curtis JL, et al(2006)。Predictors of mortality in patients with emphysema and severe airflow obstruction。  new window
11.Quill TE, Holloway R(2011)。Time-limited trials near the end of life。  new window
12.胡文郁、蔡甫昌、鄭安理(2007)。癌末病情告知指引。  延伸查詢new window
13.Marquis DK(2001)。Advance care planning: A practical guide for physicians。  new window
14.Moore CD(2007)。Advance care planning and end-of-life decision making。  new window
期刊論文
1.Curtis, J. R.(20080900)。Palliative and end-of-life care for patients with severe COPD.。Eur Respir J,32(3),796-803。  new window
2.胡文郁、楊嘉玲(20090200)。生命末期之病情告知與預立照護計畫。護理雜誌,56(1),23-28。new window  延伸查詢new window
3.Elkington, H.、White, P.、Addington-Hall, J.、Higgs, R.、Edmonds, P.(2005)。The healthcare needs of chronic obstructive pulmonary disease patients in the last year of life。Palliative Medicine,19(6),485-491。  new window
4.許正園、辛幸珍(20110300)。非癌疾病的安寧療護:談COPD末期照護倫理。臺灣醫學,15(2),180-186。  延伸查詢new window
圖書
1.彭瑞鵬、黃明賢、薛尊仁、蔡熒煌、余忠仁、陳芳祝(2007)。慢性阻塞性肺病診治指引。台北市:台灣胸腔暨重症加護醫學會。  延伸查詢new window
圖書論文
1.Starks, H.、Vig, E. K.、Pearlman, R. A.(2007)。Advance Care Planning。Palliative care core skills and clinical competencies。Philadelphia:Elsevier。  new window
 
 
 
 
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