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題名:運用Swanson關懷理論協助家庭面對嬰兒診斷CHARGE症候群之衝擊及護理經驗
書刊名:護理雜誌
作者:李典蓉錢佳慧蔡劭瑜
作者(外文):Lee, Tien-jungChien, Chia-huiTsai, Shao-yu
出版日期:2022
卷期:69:2
頁次:頁104-111
主題關鍵詞:Swanson關懷照護理論CHARGE症候群罕見疾病Swanson's caring theoryCHARGE syndromeRare disease
原始連結:連回原系統網址new window
相關次數:
  • 被引用次數被引用次數:期刊(0) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:0
  • 共同引用共同引用:19
  • 點閱點閱:2
期刊論文
1.黃希文、陳佩珊、鄭素芳、王儷穎(20080600)。早產兒餵食困難之評估與介入。物理治療,33(3),188-196。  延伸查詢new window
2.Swanson, K. M.(1993)。Nursing as informed caring for the well-being of others。Image: the Journal of Nursing Scholarship,25(4),352-357。  new window
3.范卉妤、邱銘心(20161200)。罕見疾病兒童與青少年之主要照護者資訊需求與資訊行為研究。圖書資訊學刊,14(2),127-153。new window  延伸查詢new window
4.Andershed, B.、Olsson, K.(2009)。Review of research related to Kristen Swanson's middle-range theory of caring。Scandinavian Journal of Caring Sciences,23(3),598-610。  new window
5.陳曉琦、周汎澔(20100600)。Watson人性化關懷照護理論與Swanson關懷照護理論之比較。護理雜誌,57(3),86-92。new window  延伸查詢new window
6.Allen, T.(2012)。CHARGE syndrome: Diagnosis and clinical management in the NICU。Advances in Neonatal Care,12(6),336-342。  new window
7.Anderzén-Carlsson, A.(2015)。CHARGE Syndrome—A Five Case Study of the Syndrome Characteristics and Health Care Consumption During the First Year in Life。Journal of Pediatric Nursing,30(1),6-16。  new window
8.Blake, K. D.、Hudson, A. S.(2017)。Gastrointestinal and feeding difficulties in CHARGE syndrome: A review from head-to-toe。American Journal of Medical Genetics Part C: Seminars in Medical Genetics,175(4),496-506。  new window
9.Blake, K. D.、Prasad, C.(2006)。CHARGE Syndrome。Orphanet Journal of Rare Diseases,1(1)。  new window
10.Currie, G.、Szabo, J.(2019)。'It would be much easier if we were just quiet and disappeared': Parents silenced in the experience of caring for children with rare diseases。Health Expectations,22(6),1251-1259。  new window
11.Currie, G.、Szabo, J.(2020)。Social isolation and exclusion: The parents' experience of caring for children with rare neurodevelopmental disorders。International Journal of Qualitative Studies on Health and Well-Being,15(1)。  new window
12.Dijk, D. R.、Bocca, G.、Van Ravenswaaij-Arts, C. M.(2019)。Growth in CHARGE syndrome: Optimizing care with a multidisciplinary approach。Journal of Multidisciplinary Healthcare,12,607-620。  new window
13.Erbasi, E.、Scarinci, N.、Hickson, L.、Ching, T. Y. C.(2018)。Parental involvement in the care and intervention of children with hearing loss。International Journal of Audiology,57(Sup2),S15-S26。  new window
14.Hudson, A.、Trider, C.-L.、Blake, K.(2017)。CHARGE Syndrome。Pediatrics in Review,38(1),56-59。  new window
15.Johnson, J.、Johnson, O.、Heyhoe, J.、Fielder, C.、Dunning, A.(2018)。Parent Experiences and Preferences When Dysmelia is Identified During the Prenatal and Perinatal Periods: A Qualitative Study Into Family Nursing Care for Rare Diseases。Journal of Family Nursing,24(2),271-293。  new window
16.Macdonald, M.、Hudson, A.、Bladon, A.、Ratcliffe, E.、Blake, K.(2017)。Experiences in feeding and gastrointestinal dysfunction in children with CHARGE syndrome。American Journal of Medical Genetics Part A,173(11),2947-2953。  new window
17.Morelli, F.、Aprile, G.、Cappagli, G.、Luparia, A.、Decortes, F.、Gori, M.、Signorini, S.(2020)。A multidimensional, multisensory and comprehensive rehabilitation intervention to improve spatial functioning in the visually impaired child: A community case study。Frontiers in Neuroscience,14。  new window
18.Nazzal, M. S.、Al-Rawajfah, O. M.(2018)。Lived experiences of Jordanian mothers caring for a child with disability。Disability and Rehabilitation,40(23),2723-2733。  new window
19.Pelentsov, L. J.、Fielder, A. L.、Esterman, A. J.(2016)。The supportive care needs of parents with a child with a rare disease: A qualitative descriptive study。Journal of Pediatric Nursing,31(3),e207-e218。  new window
20.Pelentsov, L. J.、Laws, T. A.、Esterman, A. J.(2015)。The supportive care needs of parents caring for a child with a rare disease: A scoping review。Disability and Health Journal,8(4),475-491。  new window
21.Purdy, I. B.、Craig, J. W.、Zeanah, P.(2015)。NICU discharge planning and beyond: Recommendations for parent psychosocial support。Journal of Perinatology,35(Suppl 1),S24–S28。  new window
22.Van Ravenswaaij-Arts, C.、Martin, D. M.(2017)。New insights and advances in CHARGE syndrome: Diagnosis, etiologies, treatments, and research discoveries。American Journal of Medical Genetics Part C: Seminars in Medical Genetics,175(4),397-406。  new window
23.Vance, A. J.、Knafl, K.、Brandon, D. H.(2021)。Patterns of parenting confidence among infants with medical complexity: A mixed-methods analysis。Advances in Neonatal Care,21(2),160-168。  new window
24.Verloes, A.(2005)。Updated diagnostic criteria for CHARGE syndrome: A proposal。American Journal of Medical Genetics Part A,133A(3),306-308。  new window
25.Wei, H.、Roscigno, C. I.、Swanson, K. M.(2017)。Healthcare providers' caring: Nothing is too small for parents and children hospitalized for heart surgery。Heart & Lung,46(3),166-171。  new window
26.Brambring, M.(2006)。Divergent Development of Gross Motor Skills in Children Who are Blind or Sighted。Journal of Visual Impairment & Blindness,100(10),620-634。  new window
圖書論文
1.陳玉枝(2011)。兒童的生長與發展。實用兒科護理。華杏。  延伸查詢new window
 
 
 
 
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