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題名:罹患急性白血病兒童父母決定中斷治療及再度接受治療之心理過程探討
書刊名:長庚護理
作者:葉昭幸蔡佳玲林秋芬
作者(外文):Yeh, C. H.Tsai, C. L.Lin, C. F.
出版日期:1998
卷期:9:2=22
頁次:頁51-58
主題關鍵詞:心理過程白血病中斷治療化學治療Psychosocial processmleukemiaDrop outChemotherapy
原始連結:連回原系統網址new window
相關次數:
  • 被引用次數被引用次數:期刊(3) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:3
  • 共同引用共同引用:6
  • 點閱點閱:21
     本個案研究為探討一位罹患急性白血病兒童父母決定中斷治療及再度接受治療心 理過程,資料收集的方法包括與病童主要照顧者之正式探入訪談、非正式訪談、參與觀察、 病歷參考、護士之護理報告及資料收集員的反應性日記。由研究結果得知病童父母在中斷治 療及再度接受治療時的心理過程包括:內心掙扎及想要使情況好轉、尋找比較容易接受的解 釋、貶值自我及引發過度保護行為,因此照顧重點除了照顧病童的護理需求外,醫護人員肯 定父母為小孩所做的努力,並隨時給予情緒的關懷及支持,以家庭為中心的護理理念,提供 相互參與的護理模式,將父母視照護上的夥伴,讓父母有醫護團隊和他們在一起奮鬥的感覺 ,朝向提升病童家庭的生活品質的努力。
     This case study attempts to explore the psychosocial process of parent- al decision on continuation or withdrawal from chemotherapy for actute lymphobl- astic leukemia patients with a 4 years child.Data were collected from interviews with the parents of patient,prospective follow-up,medical charts,and notes of attending nurses.Factors related to the parents' decisions include initial hesi- tation for participating chemotherapy and desire for better treatment,searching an easier and acceptable explanation of diagnosis,self-devaluation,and induced overprotective behavior.Emotional and psychosocial supports for patients;parents are necessary priior to and during the essential for establishing mutual trustf- ul relationship between parents and attending nurses,and thus for the completion of a therapy.
期刊論文
1.Sawyer, M. G.、Gannoni, A. F.、Toogood, I. R.、Antoniou, G.、Rice, M.(1994)。The use of alternative therapies by children with cancer。Medical Journal of Australia,160(6),320-322。  new window
2.曾紀瑩(19960300)。兒童罹患癌症對父母親的衝擊及需求。護理新象,6(1)=41,9-11。  延伸查詢new window
3.Kersey, J. H.(1997)。Fifty Years of Studies of the Biology and Therapy of Childhood Leukemia。The Journal of the American Society of Hematology,90(11),4243-4251。  new window
4.顏秋芳(19930300)。一位母親面臨女兒遽患白血病的情緒反應與適應行為。護理雜誌,40(1),49-54。new window  延伸查詢new window
5.Enskär, K.、Carlsson, M.、Golsäter, M.、Hamrin, E.、Kreuger, A.(1997)。Parental Reports of Changes and Challenges That Result From Parenting a Child With Cancer。Journal of Pediatric Oncology Nursing,14(3),156-163。  new window
6.中華民國兒童癌症基金會(1998)。86年新發病個案統計資料。中華民國兒童癌症基金會會訊,59,46。  延伸查詢new window
7.賴鈺玫(19960300)。淺談兒童癌症研究之一--TPOG研究計畫之介紹。護理新象,6(1)=41,21-24。  延伸查詢new window
8.Martinson, I.、Chen, Y.、Liu, B.、Lo, L.、Ou, J.、Wang, R.、Chao, Y.(1982)。Impact of childhood cancer on Chinese families。Medical Science,4(4),1395-1415。  new window
9.Morse, J. M.(1991)。Analyzing unstructured, Interactive interviews using the Macintosh computer。Qualitative Health Research,1(1),117-122。  new window
10.徐翠霞(19951200)。一位急性淋巴性白血病復發病童及其主要照顧者的護理。榮總護理,12(4),278-286。new window  延伸查詢new window
11.Romaniuk, D. K.、Kristjanson, L. J.(1995)。The parent-nurse relationship from the perspective of parents of children with cancer。Journal of Pediatric Oncology Nursing,12(2),80-89。  new window
研究報告
1.行政院衛生署衛生署(1997)。衛生統計。  延伸查詢new window
圖書
1.唐秀治、林玉娟、陳秋慧(1995)。癌症化學治療護理。台北:匯華。  延伸查詢new window
2.長庚紀念醫院小兒科護理部(1996)。小兒衛教系列之6:認識白血病。長庚紀念醫院小兒科護理部。  延伸查詢new window
3.陳百合、謝巾英、廖秀宜(1997)。最新兒科護理學。台北:華杏。  延伸查詢new window
4.Foley, G. V.、Fochtman, D.、Mooney, K. H.(1993)。Nursing care of the child with cancer。Philadelphia, PA:W.B. Saunders。  new window
5.Wong, D. L.(1995)。Whaley and Wong's nursing care of infants and children。St. Louis:Mosby。  new window
6.Lincoln, Yvonna S.、Guba, Egon G.(1985)。Naturalistic Inquiry。Sage。  new window
單篇論文
1.林秋芬(1995)。癌症兒童中斷治療原因之探討。  延伸查詢new window
其他
1.周大觀關懷生命文教基金會(1997)。組織章程。  延伸查詢new window
 
 
 
 
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