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題名：重型β海洋性貧血青少年疾病知識、社會支持與自我照顧行為之探討
書刊名：護理研究
作者：楊惠娟／陳月枝／毛新春／林凱信
作者(外文)：Yang, Hui-chuan／Chen, Yueh-chih／Mao, Hsin-chun／Lin, Kai-hsin
出版日期：2001
卷期：9:2
頁次：頁114-124
主題關鍵詞：重型β海洋性貧血青少年；疾病知識；社會支持；自我照顧行為；Adolescents with beta-thalassemia major；Illness knowledge；Social support；Self-care behavior
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  • 被引用次數被引用次數:期刊(2) 博士論文(0) 專書(0) 專書論文(0)
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　　　　　本研究目的在瞭解重β海洋性貧血青少年的疾病知識、社會支持及自我照顧行為概況，進而探討疾病知識、社會支持與自我照顧行為間的關係。研究對象為12—20歲重β型海洋性貧血青少年，取自北部三所醫院之血液特別門診共58位，以問卷來收集資料。所得資料以描述性統計、one-way ANOVA, t-test, Pearson correlation, stepwise multiple regression進行分析。研究結果顯示：研究對象在治療知識的認知最正確，而合併症及症狀知識的認知最差。在社會支持方面，以來自家人的社會支持程度最大，而以來自同學朋友的支持程度最低。在自我照顧行為中以醫療與排鐵相關的處置執行情形最好，而問題的處理與調適最差。妵性別、教育程度、患病時間、患有重β型海洋性貧血併發症、因併發症而住院、接受其他治療方式等六項的個別差異，在疾病知識、社會支持或自我照顧行為上有顯著的不同。妺疾病知識、社會支持皆與自我照顧行為呈正相關。姏家人的情緒支持、基本常識、治療知識、家人的評價支持可解釋自我照顧行為50.0%的變異量。本研究結果可做為日後護理研究和臨床護理應用之參考。
　　　　　The purpose of this study was to explore the relationships among illness knowledge, social support and self-care behavior in adolescents with beta-thalassemia major. The subjects were 58 beta-thalassemia major adolescents recruited from the pediatric hematology outpatient departments of three hospitals in North Taiwan. All data were analyzed by descriptive statistics, one-way ANOVA, t-test, Pearson correlation, and stepwise multiple regression. The results showed that: (1) Scoring in illness knowledge, the best was treatment know-ledge, and the worst was the knowledge of complications and symptoms. (2) The result for social support indicated that the family was the major source of support, and that classmates/friends provided the least support for thalassemic adolescents. (3) Scoring in self care behavior, the best was the medical and chelate therapy, and the worst was the management of problems and coping. (4) Individual characteristic differences, including sex, level of education, length of illness, complications of thalassemia, hospitalization due to thalassemic complications and receiving other treatments were correlated with their illness knowledge, social support or self-care behavior. (5) Illness knowledge, social support which were positively correlated with self-care behavior. (6) 50.0% of the variance in self-care behavior can be explained by emotional support from family, general know-ledge of thalassemia, treatment knowledge and appraisal support from family. These findings could provide referential material for nursing research and nursing practice.
期刊論文
1.Muhlenkamp, A. F.、Sayles, J. A.(1986)。Self-esteem, social support and positive health practices。Nursing Research，35(6)，334-338。  new window
2.Dodd, M. J.(1984)。Measuring informational intervention for chemotherapy knowledge and self-care behavior。Research in Nursing and Health，7(1)，43-50。  new window
3.Tilden, V. P.、Weinert, C.(1987)。Social support and the chronically ill individual。Nursing Clinics of North America，22(3)，613-620。  new window
4.林東燦、李雅玲(1997)。當前重型海洋性貧血患童的治療與護理趨勢。護理雜誌，44(4)，15-21。new window  延伸查詢new window
5.王玉祥(1999)。地中海貧血（海洋性貧血）可以治癒嗎？。臺灣醫界，42(5)，13-16。  延伸查詢new window
6.Christensen, K. S.(1983)。Self-management in diabetes children。Diabetes Care，6(6)，552-555。  new window
7.Dorn, L. D.(1984)。Children's concepts of illness: clinical applications。Pediatric Nursing，10(5)，325-327。  new window
8.Hentinen, M.、Kyngas, H.(1996)。Diabetes adolescents' compliance with health regimens and associated factor。International Journal of Nursing Study，33(3)，325-337。  new window
9.Joseph, L. S.(1980)。Self care and the nursing process。Nursing Clinics of North America，15(1)，131-143。  new window
10.Mahon, N. E.、Yarcheski, A.、Yarcheski, T. J.(1994)。Difference in social support and loneliness in adolescents according to developmental stage and gender。Public Health Nursing，11(5)，361-368。  new window
11.Martin, M. B.、Butler, R. B.(1993)。Understanding the basics of β thalassemia major。Pediatric Nursing，19(2)，143-145。  new window
12.McCaleb, A.、Edgil, A.(1994)。Self concept and self care practice of healthy adolescents。Journal of Pediatric Nursing，9(4)，233-238。  new window
13.Pidgeon, V.、Olson, S.(1986)。A comparison of illness concepts of school age children and adolescents。Issue in Comprehensive Pediatric Nursing，9(3)，209-221。  new window
14.Politis, C.、Richardson, C.、Yfantopoulos, J. G.(1991)。Public knowledge of thalassemia in Greece and current concept of the social status of the thalassemia patient。Social Science & Medicine，32(1)，59-64。  new window
15.Ratip, S.、Skuse, D.、Porter, J.、Wonke, B.、Yardumian, A.、Modell, B.(1995)。Psychosocial and clinical burden of thalassemia intermedia and its implication for prenatal diagnosis。Archives of Disease in Children，72(5)，408-412。  new window
16.Sherman, M.、Koch, D.、Giardina, P.、Hymowitz, P.、Siegel, R.、Shapiro, T.(1985)。Thalassemic children's understanding of illness: A study of cognitive and emotional factors。Annals of the New York Academy of Sciences，445，327-336。  new window
17.Shumaker, S. A.、Brownell, A.(1984)。Toward a theory of social support: Closing concept gaps。Journal of Social Issues，40(4)，11-36。  new window
18.Tebbi, C. K.、Stern, M.、Royle, M.、Mettlin, C. J.、Mindel, E. R.(1985)。The role of social support systems in adolescent cancer amputees。Cancer，56(4)，965-971。  new window
19.Tsiantis, J.(1990)。Family reactions and relationships in thalassemia。Annals of the New York Academy of Sciences，612，451-461。  new window
20.Wolfish, M. G.、Mclean, J. A.(1974)。Chronic illness in adolescents。Pediatric Clinics of North America，21(4)，1043-1049。  new window
21.Woo, R.、Giardina, J. V.、Hilgartner, M. W.(1985)。A psychosocial needs assessment of patients with homozygous β-thalassemia。Annals of the New York Academy of Sciences，445，316-323。  new window
22.Zani, B.、Dipalma, A.、Vullo, C.(1995)。Psychosocial aspects of chronic illness in adolescents with thalassaemia major。Journal of Adolescence，18，387-402。  new window
學位論文
1.曾翠華(1997)。自發性脊椎側彎青少年的疾病知識、身體心像與自我照顧行為(碩士論文)。國立臺灣大學。  延伸查詢new window
圖書
1.胡幼慧(1991)。性別與健康。社會流行病學。臺北市。  延伸查詢new window
2.胡海國(1987)。青春期前期。青少年心理學。臺北：桂冠。  延伸查詢new window
3.顏貴紗(1991)。青少年時期。人類發展學－人生過程整體探討。臺北：華杏。  延伸查詢new window
4.Hoffbrand, A. V.、Pettit, J. E.(1993)。Genetic defects of hemoglobin。Essential hematology。Boston, MA：Blackwell Science。  new window
5.House, J. S.(1981)。The nature of social support。Work stress and social support。Philippines：Addison-Wesley。  new window
6.Orem, D. E.(1991)。Nursing: Concept of practice。Nursing: Concept of practice。St. Louis：Mosby Year Book。  new window
 
 
 
 
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