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題名:善終評量之反思
書刊名:安寧療護
作者:陳亭儒胡文郁程劭儀邱泰源 引用關係
作者(外文):Chen, Ting-ruHu, Wen-yuCheng, Shao-yiChiu, Tai-yuan
出版日期:2013
卷期:18:1
頁次:頁76-88
主題關鍵詞:善終死亡品質評量工具生命末期Good deathQuality of dyingMeasuresEnd-of-life
原始連結:連回原系統網址new window
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  • 被引用次數被引用次數:期刊(5) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:5
  • 共同引用共同引用:21
  • 點閱點閱:21
善終是末期照顧成果重要指標之一,但善終概念屬性的複雜與多元,加上其動態的本質,致使善終評量面臨瓶頸與挑戰。本文搜尋文獻發現有九個較為常見的「善終」或「臨終與死亡品質」測量工具;進而檢視各評量工具的評量內容、被評量者、題數、計分方式、工具信效度及評量者。評析結果發現評量工具內容涵蓋3~18個層面,評量者大多數為家屬或醫療專業人員,工具信效度則以內容一致性及專家內容效度的檢測最常見。有些評量工具內容參雜著其他構念成份而超出「臨終品質」的評量範圍,評量結果方面,可能會因為不同的評量者、評量時機以及未以病人的偏好為依據而導致差異。據此評析結果,建議未來可將善終偏好納入預立醫療照護計畫的討論內容,以提早評量病人對善終的想法與期待,提供更符合末期病人需求之優質末期照顧,並作為日後病人臨終時,評量其是否達到善終的依據以及生命末期照顧品質的重要評價指標之一。
One of the most important outcomes of end-of-life care is achieving a ”good death” or a ”good dying process.” Since the complexity and diversity attributes and the dynamic nature of good death, it made this outcome measurement so difficult and challenged. The purposes of this article were to discuss the measures of good death that were currently used in the literature. Nine published measures were found. The aspects of discussion include contents, items, scoring, validity, reliability and rater. The domains of the instruments varied from three to eighteen. The item number ranged from five to thirty one. Most measurements relied upon retrospective reports by family caregivers and/or clinicians. The reliability of the instruments mostly been tested by Cronbach's αcoefficients and the validity mostly been examined by experts. Some instruments constituted scopes beyond the ”good death” or ”quality of dying and death” construct. The varied results of measures may come from different raters, administration timing and the assessment not base on patients' preferences. We suggest to incorporate the preferences and desires of patients toward good death into advance directive care plan and to discuss it with patients as early as possible in the future. Thus, it enables the clinicians to provide the tailored end-of-life care that can meet patients' needs, and to serve as the base for measuring the achievement of good death. The appropriate good death measurement could demonstrate the effectiveness of the effort in end-of-life care.
期刊論文
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9.Goldsteen M、Houtepen R、Proot IM、Abu-Saad HH、Spreeuwenberg C、Widdershoven G(2006)。What is a good death? Terminally ill patients dealing with normative expectations around death ang dying。Patient Educ Couns,64,378-386。  new window
10.Vig EK、Davenport NA、Pearlman RA(2002)。Good death, bad death, and preferences for the end of life: A qualitative study of geriatric outpatients。J Am Geriatr Soc,50,1541-1548。  new window
11.Kehl KA(2006)。Moving toward peace: an analysis of the concept of a good death。Am J Hosp Palliat Med,23,277-286。  new window
12.Schwartz CE、Mazor K、Rogers J、Ma Y、Reed G(2003)。Validation of new measure of concept of a good death。J Palliat Med,4,575-584。  new window
13.Levy CR、Ely EW、Payne K、Engelberg RA、Patrick DL、Curtis JR(2005)。Quality of dying and death in two medical ICUs: Perceptions of family and clinicians。CHEST,127,1775-1783。  new window
14.Munn JC、Zimmerman S、Hanson LC, et al.(2007)。Measuring the quality of dying in the long-term care。J Am Geriatr Soc,55,1371-1379。  new window
15.Miyashita, Mitsunori、Morita, Tatsuya、Sato, Kazuki、Hirai, Kei、Shima, Yasuo、Uchitomi, Yosuke(2008)。Good death inventory : A measure for evaluating good death from the bereaved family member's perspective。Journal of Pain and Symptom Management,35(5),486-498。  new window
16.曾韻如、邱泰源、胡文郁、程劭儀、姚建安、陳慶餘(20050200)。老年癌末病人善終之評估。安寧療護,10(1),13-23。new window  延伸查詢new window
17.Downey L、Curtis JR、Lafferty WE、Hering JR、Engelberg RA(2010)。The quality of dying and death questionnaire(QODD): Empirical domains and theoretical perspectives。J. Pain Symptom Manage,39,9-22。  new window
18.Proulx K、Jacelon C(2004)。Dying with dignity: The good patient versus the good death。Am J Hosp Palliat Med,21,116-120。  new window
19.Steinhauser KE、Clipp EC、Tulsky JA(2002)。Evolution in measuring the quality of dying。J Palliat Med,5,407-414。  new window
20.Van Soest-Poorvliet MC、van der Steen JT、Zimmerman S, et al.(2011)。Measuring the quality of dying and quality of care when dying in Long-term care settings: a qualitative content analysis of available instruments。J. Pain Symptom Manage,42(6),852-863。  new window
21.Hales, S.、Zimmermann, C.、Rodin, G.(2010)。The quality of dying and death: a systematic review of measures。Palliat Med,24(2),127-144。  new window
22.Mularski R、Curtis R、Osborne M、Engelberg RA、Ganzini L(2004)。Agreement among family members in their assessment of the quality of dying and death。J. Pain Symptom Manage,28(4),306-315。  new window
23.Hales S、Gagliese L、Nissim R、Zimmermann C、Rodin G(2012)。Understanding bereaved caregiver evaluations of the quality of dying and death: an application of cognitive interviewing methodology to the quality of dying and death questionaire。J. Pain Symptom Manage,43(2),195-204。  new window
24.Engelberg RA(2006)。Measuring the quality of dying and death: methodological considerations and recent findings。Curr Opin Crit Care,12(5),381-387。  new window
25.賴和賢、邱泰源、胡文郁、張皓翔、姚建安、陳慶餘(20050500)。善終服務之文獻複查。安寧療護,10(2),174-185。new window  延伸查詢new window
26.Mak, J. M. H.、Clinton, M.(1999)。Promoting a good death: an agenda for outcomes research--a review of the literature。Nursing Ethics,6(2),97-106。  new window
27.Steinhauser, Karen E.、Clipp, Elizabeth C.、McNeilly, Maya、Christakis, Nicholas A.、McIntyre, Lauren M.、Tulsky, James A.(2000)。In Search of a Good Death: Observations of Patients, Families, and Providers。Annals of Internal Medicine,132(10),825-832。  new window
28.Patrick, Donald L.、Curtis, J. Randall、Engelberg, Ruth A.、Nielsen, Elizabeth、McCown, Ellen(2003)。Measuring and Improving the Quality of Dying and Death。Annals of Internal Medicine,139(5),410-415。  new window
29.程劭儀、邱泰源、胡文郁、郭斐然、王浴、周玲玲、陳慶餘(19960600)。癌症末期病人善終之初步研究。中華民國家庭醫學雜誌,6(2),83-92。  延伸查詢new window
圖書
1.Field MJ、Cassell CK(1997)。Approaching Death: Improving Care at the Eend of Life。Washington DC:National Academy Press。  new window
 
 
 
 
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