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題名：一位罕見肌萎縮性側索硬化症患者之護理經驗
書刊名：長庚護理
作者：藍心妤／黃煒淇／蔡麗紅 引用關係
作者(外文)：Lan, Sin-yu／Huang, Wei-chi／Tsai, Li-hung
出版日期：2015
卷期：26:1=89
頁次：頁66-76
主題關鍵詞：罕見疾病；肌萎縮性側索硬化症；呼吸道清除功能失效；體溫過高；無望感；Rare disease；Amyotrophic lateral sclerosis；ALS；Ineffective airway clearance；Hyperthermia；Hopelessness
原始連結：連回原系統網址new window
相關次數：
  • 被引用次數被引用次數:期刊(1) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:1
  • 共同引用共同引用:23
  • 點閱點閱:20
本文旨在描述一位肌萎縮性側索硬化症患者，面臨呼吸肌肉衰弱引發肺部合併症，所造成的生理及心理衝擊的護理經驗。護理期間自2013年4月16日至5月10日。在照護期間運用Roy適應模式為評估架構，確立個案有：「呼吸道清除功能失效」、「體溫過高」及「無望感」之健康問題。於護理過程中，筆者藉由陪伴、傾聽並鼓勵個案說出心裏的感受，另外強化社會支持系統及協助個案探索生命的意義，以肯定自己存在的價值；執行胸腔護理並教導腹式呼吸及手操作腹部推力的技巧，以增加痰液清除之功效；利用促進散熱的方法，以維持體溫的恆定，並提供發燒的個別性護理指導以增進個案的身體舒適。盼藉此經驗能提供護理人員作為日後在照顧類似病患之參考。
The case report described the nursing experience of caring a patient with amyotrophic lateral sclerosis (ALS) complicated with respiratory muscle weakness induced pulmonary complications. The nursing care duration was from April 16 to May 10, 2013. The Roy Adaptation Model was used as the assessment framework. The patient's health problems were identified as follows: ineffective airway clearance, hyperthermia, and hopelessness. The author encouraged the patient to express his feelings and concerns in order to solve the patient's nursing problems. The author also enhanced the patient's social support system and assisted the patient in exploring the meaning of his life and validating the value of his existence. In addition, the nursing interventions included providing chest physical care, teaching deep breath skill, and performing manual abdominal thrust to improve sputum cleaning, and providing fever nursing care to improve comfort level. The individual nursing interventions in this article could serve as a reference for caring ALS patients in the future.
期刊論文
1.Phukan, J.、Hardiman, O.(2009)。The management of amyotrophic lateral sclerosis。Journal of Neurology，256(2)，176-186。  new window
2.Senent, C.、Golmard, J. L.、Salachas, F.、Chiner, E.、Morelot-Panzini, C.、Meninger, V.、Gonzalez-Bermejo, J.(2011)。A comparison of assisted cough techniques in stable patients with severe respiratory insufficiency due to amyotrophic lateral sclerosis。Amyotrophic Lateral Sclerosis，12(1)，26-32。  new window
3.Spataro, R.、Lo-Re, M.、Piccoli, T.、Piccoli, F.、La-Bella, V.(2010)。Causes and place of death in Italian patients with amyotrophic lateral sclerosis。Acta Neurologica Scandinavica，122(3)，217-223。  new window
4.Wood-Allum, C.、Shaw, P. J.(2010)。Motor neurone disease: A practical update on diagnosis and management。Clinical Medicine，10(3)，252-258。  new window
5.吳姿瑩、黃露萩(20120900)。肌萎縮性側索硬化症病人之護理經驗。北市醫學雜誌，9(3)，268-280。  延伸查詢new window
6.彭逸豪、蘇靜華(20130100)。肌萎縮性側索硬化症的呼吸問題處置。呼吸治療雜誌，12(1)，35-45。  延伸查詢new window
7.Davis, M.、Lou, J. S.(2011)。Management of amyotrophic lateral scler-osis (ALS) by the family nurse practitioner: A timeline for anticip-ated referrals。Journal of the American Academy of Nurse Practitioners，23(9)，464-472。  new window
8.Da-Silva, J. M.、Henricson, M.(2013)。Promotion of hope in patients cared for in an intensive care unit in Indonesia。Nordic Journal Nursing Research & Clinical Studies，33(1)，4-8。  new window
9.Felgoise, S. H.、Chakraborty, B. H.、Bond, E.、Rodriguez, J.、Bremer, B. A.、Walsh, S. M.、Simmons, Z.(2010)。Psychological morbidity in ALS: the importance of psychological assessment beyond depress-ion alone。Amyotrophic Lateral Sclerosis，11(4)，351-358。  new window
10.Hardiman, O.(2011)。Management of respiratory symptoms in ALS。Journal of Neurology，258(3)，359-365。  new window
11.Lai, C. H.、Tseng, H. F.(2008)。Epidemiology and medical expenses of motor neuron disease in Taiwan。Neuroepidemiology，31(3)，159-166。  new window
12.Montel, S.、Albertini, L.、Spitz, E.(2012)。Coping strategies as related to medical and demographic data in amyotrophic lateral sclerosis。Acta Neurologica Scandinavica，125(2)，136-140。  new window
13.Mora, J. S.、Salas, T.、Fajardo, M. L.、Ivanez, L.、Rodriguez-Santos, F.(2012)。Self perceived emotional functioning of Spanish patients with amyotrophic lateral sclerosis: a longitudinal study。Frontiers in Psychology，3，1-8。  new window
14.蘇清菁、陳玉敏(20091200)。無望感之概念分析。長庚護理，20(4)=68，456-462。new window  延伸查詢new window
 
 
 
 
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