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題名:人工協助生殖科技的資料登錄與健康監測:跨國比較研究
書刊名:臺灣公共衛生雜誌
作者:吳嘉苓雷文玫鄧宗業 引用關係謝新誼
作者(外文):Wu, Chia-lingRei, WenmayDeng, Chung-yehHsieh, Hsin-yi
出版日期:2017
卷期:36:1
頁次:頁6-20
主題關鍵詞:人工協助生殖科技登錄制多胚胎植入健康監測Assisted reproductive technologiesRegistryMultiple embryo transferHealth surveillance
原始連結:連回原系統網址new window
相關次數:
  • 被引用次數被引用次數:期刊(3) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:3
  • 共同引用共同引用:2
  • 點閱點閱:16
目標:全國性的資料登錄以及公共報告,是監測人工協助生殖科技健康風險的重要策略。本文透過跨國比較研究,探討各國登錄制的特性,母嬰健康風險的重視程度,以及資料使用的公共性。方法:本文選取英、美、瑞典、日本以及台灣,透過檔案資料與二手文獻進行制度比較,並針對台日參與政策制定的相關行動者進行深度訪談,作為補充資料。結果:英美瑞台都透過國家法令建立強制登錄制,日本則由醫學會主管,近年已達成100%的通報率。登錄內容逐漸趨向重視母嬰健康指標,而非僅是以成功率展示技術能力。英美瑞日台都十分重視體外授精的多胚胎植入數目以及多胞胎孕產率,有些並已提出「選擇性單一胚胎植入比例」,「足月、正常體重、單胞胎活產率」等新興指標。英美瑞在報告資料的詮釋與可讀性,提出創新設計;日台則僅限於專業社群閱讀,缺乏公共溝通性。結論:台灣是世界上少數全面長期追蹤人工協助生殖科技資料的國家,但是在母嬰健康風險指標的精進,以及公眾溝通的品質上仍十分不足,建議參考國際趨勢進行改革。
Objectives: A national registry and public data reporting have together become an important strategy for health surveillance of assisted reproductive technologies (ARTs). We have analyzed the development of registry systems, the tendency to highlight maternal and infant health risk, and the formats for public reporting based on a cross-national comparison. Methods: We selected the UK, US, Sweden, Japan, and Taiwan as countries for comparison. Archival data, secondary literature, and in-depth interviews of relevant policy-makers in Japan and Taiwan were included. Results: The UK, US, Sweden, and Taiwan have achieved compulsory registry through legal requirement. The Japan Society of Obstetrics and Gynecology has adopted a voluntary reporting system, and has recently achieved a 100% reporting rate. Most countries gradually focus on the health risk for mothers and infants, rather than merely display the technical competence by calculating success rates. The number of multiple embryos transferred during IVF, and multiple pregnancy and live birth rates were shown to serve as important indicators of health risk surveillance. Some countries report new indicators, such as "elective single embryo transfer rate" and "term, normal weight, and singleton" live birth rate. The UK, US, and Sweden provide innovative formats to make reporting data accessible, readable, and useful for the general public. Taiwan and Japan limit its readership to professionals and lack efforts for broader public communication. Conclusions: Taiwan has one of the most complete ART registry systems in the world, but the surveillance on maternal and infant health and the quality of public reporting remains inadequate. To build evidence-based policy-making and to improve ART safety, surveillance reporting in Taiwan needs to meet the global standard.
期刊論文
1.Wu, Chia-Ling(2012)。IVF Policy and Global/Local Politics: The Making of Multiple-Embryo Transfer Regulation in Taiwan。Social Science and Medicine,75(4),725-732。  new window
2.Ha, Jung-Ok(2013)。Risk disparities in the globalisation of assisted reproductive technology: the case of Asia。Global Public Health: An International Journal for Research, Policy and Practice,8(8),904-925。  new window
3.de Mouzon, J.、Lancaster, P.(1997)。World collaborative report on in vitro fertilization. Preliminary data for 1995。J Assist Reprod Gen,14,251-265。  new window
4.Sullivan, E. A.、Zegers-Hochschild, F.、Mansour, R.(2013)。International Committee for Monitoring Assisted Reproductive Technologies (ICMART) world report: assisted reproductive technology 2004。Human Reproduction,28,1375-1390。  new window
5.de Geyter, C.、Wyns, C.、Mocanu, E.、de Mouzon, J.、Calhaz-Jorge, C.(2016)。Data collection systems in ART must follow the pace of change in clinical practice。Hum Reprod,31,2160-2163。  new window
6.Committee for Assisted Reproductive Technology、Statistics, Korean Society for Assisted Reproduction、Lee, G. H.、Song, H. J.、Lee, K. S.、Choi, Y. M.(2016)。Current status of assisted reproductive technology in Korea, 2011。Clin Exp Reprod Med,43,38-43。  new window
7.Adashi, Eli Y.、Wyden, Ron(2011)。Public reporting of clinical outcomes of assisted reproductive technology programs: implications for other medical and surgical procedures。JAMA,306,1135-1136。  new window
8.Dyer, S.、Chambers, G. M.、De Mouzon, J.、Nygren, K. G.、Zegers-Hoschild, F.、Mansour, R.、Ishihara, O.、Banker, M.、Adamson, G. D.(2016)。International Committee for Monitoring Assisted Reproductive Technologies World Report: Assisted Reproductive Technology 2008, 2009, and 2010。Human Reproduction,31(7),1588-1609。  new window
9.MacNaughton, Malcolm(2005)。Regulation before the HFEA。Human Fertility,8,61-62。  new window
10.MRC Working Party on Children Conceived by In Vitro Fertilisation(1990)。Births in Great Britain resulting from assisted conception, 1978-87。BMJ,300(6734),1229-1233。  new window
11.Cohen, J.、Trounson, A.、Dawson, K.(2005)。The early days of IVF outside the UK。Human Reprod Update,11,439-459。  new window
12.Feinman, M.、Sher, G.(1996)。Comparing the British and American approaches to regulating ART programmes。Hum Reprod,11,1366-1367。  new window
13.Adamson, D.(2002)。Regulation of assisted reproductive technologies in the United States。Fertil Steril,78,932-942。  new window
14.Chang, W. Y.、DeCherney, A. H.(2003)。History of regulation of assisted reproductive technology (ART) in the USA: a work in progress。Hum Fertil,6,64-70。  new window
15.Frith, L.、Blyth, E.(2014)。Assisted reproductive technology in the USA: is more regulation needed。Reprod Biomed Online,29,516-523。  new window
16.ISLAT (Institute for Science Law, and Technology) Working Group(1998)。ART into science: regulation of fertility techniques。Science,281,651-652。  new window
17.Sunderam, S.、Kissin, D. M.、Crawford, S. B.(2015)。Assisted reproductive technology surveillance-United States, 2013。MMWR Surveill Summ,64,1-25。  new window
18.Mneimneh, A. S.、Boulet, S. L.、Sunderam, S.(2013)。States Monitoring Assisted Reproductive Technology (SMART) Collaborative: data collection, linkage, dissemination, and use。J Womens Health,22,571-577。  new window
19.Hamberger, L.、Wikland, M.、Nilsson, L.、Ianson, P. O.、Sjogren, A.、Hillensj, T.(1982)。Methods for aspiration of human oocytes by various techniques。Acta Med Rom,20,370-378。  new window
20.Bergh, C.(2015)。Single embryo transfer: a mini-review。Human Reprod,20,323-327。  new window
21.石原理(2013)。VF-ET(單一胚移植,安全管理)。日產婦誌,65,207-302。  延伸查詢new window
22.齊藤英和、石原理、久具宏司(2015)。日本產科婦人科學會平成26年倫理委員會.登錄.調查小委員會報告(2013年分の体外受精.胚移植等の臨床實施成績および2015年7月における登錄設施名)。日產婦誌,67,2077-2121。  延伸查詢new window
23.Ferraretti, A. P.、Gianaroli, L.、Magli, M. C.、Devroey, P.(2015)。Mild ovarian stimulation with clomiphene citrate launch is a realistic option for in vitro fertilization。Fertil Steril,104,333-338。  new window
24.European IVF-Monitoring Consortium、European Society of Human Reproduction and Embryology、Kupka, M. S.(2016)。Assisted reproductive technology in Europe, 2011: results generated from European registers by ESHRE。Human Reprod,31,233-348。  new window
25.韓佩軒、李昇暾、許明暉、呂宗學(20160800)。臺灣政府衛生福利開放資料現況及利用率分析。臺灣公共衛生雜誌,35(4),395-405。new window  延伸查詢new window
26.Chambers, Georgina M.、Van Hoang, Phuong、Sullivan, Elizabeth A.、Chapman, Michael G.、Ishihara, Osamu、Zegers-Hochschild, Fernando、Nygren, Karl G.、Adamson, G. David(2014)。The impact of consumer affordability on access to assisted reproductive technologies and embryo transfer practices: an international analysis。Fertility and Sterility,101(1),191-198。  new window
27.Martin, J. R.、Bromer, J. G.、Denny, Sakkas D.、Patrizio, P.(2011)。Insurance coverage and in vitro fertilization outcomes: a U.S. perspective。Fertil Steril,95,964-969。  new window
28.Pennings, Guido、Ombelet, Willem(2007)。Coming Soon to Your Clinic: Patient-Friendly ART。Human Reproduction,22(8),2075-2079。  new window
會議論文
1.Wu, C. L.(2013)。Choreographing risk: fetal reduction in Taiwan。The Society for Social Studies of Science (4S) Annual Meeting。San Diego, California:Society for Social Studies of Science。  new window
研究報告
1.矢內原巧(1998)。不妊治療の在り方にする研究。東京:厚生勞働省。  延伸查詢new window
2.苛原稔(1997)。多胎妊娠生にする研究.生殖補助療の安全管理および心理的支援を含む統合的運用システムにする研究。東京:厚生勞働省。  延伸查詢new window
圖書
1.Warnock, Mary(1984)。Report of the Committee of Inquiry into Human Fertilisation and Embryology。London:Her Majesty's Stationery Office。  new window
2.Centers for Disease Control and Prevention、American Society for Reproductive Medicine、Society for Assisted Reproductive Technology(2015)。2013 Assisted Reproductive Technology Fertility Clinic Success Rates Report。Atlanta, GA:US Department of Health and Human Services。  new window
3.Styhre, A.、Arman, R.(2016)。Institutionalizing Assisted Reproductive Technologies: The Role of Science, Professionalism, and Regulatory Control。New York, NY:Routledge。  new window
4.柘植あづみ(1999)。文化としての生殖技術--不妊治療にたずさわる師の語り。京都:松籟社。  延伸查詢new window
5.柘植あづみ(2012)。生殖技術:不妊治療と再生療は社に何をもたらすか。東京:みすず書房。  延伸查詢new window
6.大木秀一(2007)。多胎兒家庭支援の地域保健アプローチ。東京:ビネバル。  延伸查詢new window
7.衛生福利部國民健康署(2016)。民國103年台灣地區人工協助生殖施行結果分析報告。台北:衛生福利部國民健康署。  延伸查詢new window
8.衛生福利部國民健康署(2011)。新世紀台灣嬰幼兒健康圖像。台北:衛生福利部國民健康署。  延伸查詢new window
其他
1.Human Fertilisation and Embryology Authority。Fertility treatment in 2014: trends and figures,http://www.hfea.gov.uk/10243.html。  new window
2.Human Fertilisation and Embryology Authority(2015)。Improving outcome for fertility patient: multiple birth 2015,http://www.hfea.gov.uk/docs/Multiple_Births_Report_2015.pdf。  new window
3.Q-IVF, Nationellt Kvalitetsregister för Assisterad Befruktning,http://www.ucr.uu.se/qivf/index php/behandlingsresultat。  new window
4.Dodd, J. M.,Dowswell, T.,Crowther, C. A.。Reproduction of the number of fetuses for women with a multiple pregnancy,http://www.cochrane.org/CD003932/PREG_reducing-number-fetuses-womenmultiple-pregnancy。  new window
圖書論文
1.Hazekamp, J.、Hamberger, L.(2005)。Legislation and regulation of assisted reproductive technology in the Nordic countries。A Textbook of In Vitro Fertilization and Assisted Reproduction: The Bourn Hall Guide to Clinical and Laboratory Practice。Florida:CRC Press。  new window
2.International Working Group for Registers on Assisted Reproduction(2002)。World Collaborative report on assisted reproductive technology, 1998。Reproductive Medicine in the Twenty-First Century。London:The Parthenon Publishing Group。  new window
 
 
 
 
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