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題名:臺灣醫療院所記名通報實務與規範研究
書刊名:輔仁法學
作者:江浣翠 引用關係林采蓉
作者(外文):Chiang, Wan-tsuiLin, Tsai-tung
出版日期:2018
卷期:56
頁次:頁139-202
主題關鍵詞:公共衛生監測記名通報強制通報個人資料保護法Public health surveillanceName-based reportingCompulsory reportingPersonal Information Protection Act
原始連結:連回原系統網址new window
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  • 共同引用共同引用:60
  • 點閱點閱:2
我國衛生主管機關藉由公共衛生監測與健康補助計畫,自醫療院所蒐集大量民眾個人資料。公共衛生監測係長期、廣泛、系統性地蒐集資料,除為了立即的公共衛生目的外,並可能長期保存並利用於政策評估或研究。我國公共衛生監測下之強制記名通報,雖然大部分均有法律依據,但在本研究發現的28項監測中,仍有3項規範依據中未明確提及通報系統的建置;而且,僅有6項載明蒐集目的,並普遍無法確實達成授權明確性的要求。另一方面,主管機關透過與醫院訂定行政契約或當事人申請健康補助,獲得大量病患的個人資料,但甚少告知當事人通報事實與蒐集個人資料後的利用情況。我國個人資料保護法對公務機關的個人資料行為規範鬆散,主管機關在組織法的職權下,無須作用法的授權,即可蒐集、處理、利用,甚或蒐集目的外利用民眾的個人資料,甚或建置資料庫提供外部研究使用。本研究透過訪談與規範分析,以了解我國醫療院所受記名通報之實務與規範情況,最後建議修正個人資料保護法,強化對公務機關蒐集、處理、利用個人資料之規範密度。
Public health authorities collect large amounts of personal information from medical institutions through name-based reporting; this collection is facilitated by public health surveillance and medical subsidy plans. Public health surveillance involves the continual, general, and systematic collection of personal information. Collected information is not only used in efforts to achieve immediate public health goals but also preserved for long-term usage such as policy evaluation and research. In this study, we observed 28 name-based-reporting systems used in public health surveillance in Taiwan. Ostensibly, all these systems are legally authorized; however, three have not been mentioned in any legal articles. Only the six of these systems state the purposes for data collection in the authorization provisions. Most of the authorization laws do not include required details regarding system regulation. On the other hand, public health authorities offer subsidies to medical institutions and patients through contracts and receive enormous amounts of personal medical information from reimbursement. Under the Personal Information Protection Act in Taiwan, the government agencies possess the authority to collect and process people's personal information from organization laws. In the absence of specific regulations, government agencies may legally use collected data of relevant individuals without informed consent for purposes not specified in the data collection terms. For example, information may be used to establish a database for academic research. This study explored the regulations and practices of name-based reporting in Taiwan by conducting interviews and analyzing the relevant laws and regulations. The results of this study suggest that the government should revise the Personal Information Protection Act to establish comprehensive regulations for name-based reporting.
期刊論文
1.劉靜怡(20100800)。不算進步的立法:「個人資料保護法」初步評析。月旦法學,183,147-164。new window  延伸查詢new window
2.范姜真媺(20160700)。個人醫療資料之保護與利用--以全民健康保險為中心。法學叢刊,61(3)=243,41-72。new window  延伸查詢new window
3.李震山(20051100)。來者猶可追,正視個人資料保護問題--司法院大法官釋字第六○三號解釋評析。臺灣本土法學雜誌,76,222-234。  延伸查詢new window
4.范姜真媺(20130600)。醫學研究與個人資料保護--以日本疫學研究為中心。科技法學評論,10(1),61-113。new window  延伸查詢new window
5.邱文聰(20180100)。被淘空的法律保留與變質的資訊隱私憲法保障--評最高行政法院一〇六年度判字第五四號判決與相關個資法條文。月旦法學,272,32-44。new window  延伸查詢new window
6.李建良(20180100)。資料流向與管控環節--個資保護ABC。月旦法學,272,25-31。new window  延伸查詢new window
7.江浣翠(20170700)。公共衛生監測之規範問題研究--以美國法及我國現況為中心。東吳法律學報,29(1),81-126。new window  延伸查詢new window
8.Mariner, Wendy K.(2007)。Mission Creep: Public Health Surveillance and Medical Privacy。B.U. L. Rev.,87,347-396。  new window
9.蕭奕弘(20120600)。論個人資料保護法的法制性問題。成大法學,23,141-191。new window  延伸查詢new window
學位論文
1.林采蓉(2015)。台灣醫院記名通報規範與執行之實證研究--論公共衛生實踐中病患醫療資訊之保護(碩士論文)。國立交通大學。  延伸查詢new window
圖書
1.Gostin, Lawrence O.、Hodge, James G. Jr.(1999)。Model State Public Health Privacy Act。  new window
2.李建良(2014)。行政法基本十講。台北:元照出版公司。  延伸查詢new window
3.UNAIDS(2000)。The Role of Name-Based Notification in Public Health and HIV Surveillance。  new window
4.WHO(2017)。WHO Guidelines on Ethical Issues in Public Health Surveillance。  new window
其他
1.健保資料庫案釋憲理由書公開,https://www.tahr.org.tw/news/2136。  延伸查詢new window
2.新生兒篩檢:採集作業注意事項,https://www.hpa.gov.tw/Pages/Detail.aspx?nodeid=499&pid=406。  延伸查詢new window
3.台灣人權促進會。健保資料庫訴訟案,https://www.tahr.org.tw/cases/NHID。  延伸查詢new window
圖書論文
1.Thacker, Stephen B.(2010)。Historical Development。PRINCIPLES & PRACTICE OF PUBLIC HEALTH SURVEILLANCE。  new window
2.Mathews, Ben、Walsh, Kerryann(2014)。Mandatory Reporting Laws。FAMILIES, POLICY AND THE LAW。  new window
3.Heilig, Charles M.、Sweeney, Patricia(2010)。Ethics in Public Health Surveillance。PRINCIPLES & PRACTICE OF PUBLIC HEALTH SURVEILLANCE。  new window
 
 
 
 
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