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題名:生育先天性缺陷兒對家庭的影響
書刊名:中華公共衛生雜誌
作者:黃璉華
出版日期:1995
卷期:14:4
頁次:頁299-313
主題關鍵詞:先天性缺陷衝擊家庭Congenital defectsImpactFamily
原始連結:連回原系統網址new window
相關次數:
  • 被引用次數被引用次數:期刊(6) 博士論文(1) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:5
  • 共同引用共同引用:9
  • 點閱點閱:47
     本研究探討生育先天生性缺陷兒對家庭的影響。研究對象為衛生署登記的八十年 度生育先天性缺陷兒家庭,以郵寄問卷及電話訪問的方式收集資料,以 SPSS 電腦軟體和內 容分析法分析資料,共有 51 個家庭參與本研究。研究結果發現先天性缺陷兒對母親的影響 是多方面的。缺陷特性的嚴重度、配偶及其他有意義家人的態度、醫護人員的態度會影響母 親對缺陷兒的感受及態度。所以護理人員在照護生育先天性缺陷兒母親時,應慎加注意本身 的言行態度,同時須瞭解其他有意義家人的態度與需要,才能幫助母親調適因生育先天性缺 陷兒帶來的壓力與影響,進而協助整個家庭的適應過程。研究結果顯示生育先天性缺陷兒對 父親亦同樣造成影響,但對母親的影響大於對父親的影響。 其它家人, 包括手足及 (外 ) 祖父母,也不可避免的有哀傷及情緒反應。因生育先天性缺陷兒會對整個家庭帶來影響,建 議衛生機構、社會福利及教育當局提供適切的服務。
     The purpose of this study was to investigate the impact of the birth of a child with a congenital defect on the family. The target population were mothers who gave birth to a child with a congenital defect in 1991. Data were collected by mailed questionnaires and telephone interveiws and were analyzed by using Author Write out full name computer software and content analysis. A total of 51 families participated in this study. The study results revealed that the impact of having an imperfect child on a mother was multidimensional: the characteristics of the congenital defect, the attitudes of the spouse and other family members, health profcssionsls' attitudes, and the mother's attitudes and feelings were found to be correlated. Clinical implications are that health professionals are obligated to help the child's mother and family cope with the periodic adjustment stress. Gender differences were found between mothers' and fathers' responses to having a child with a cougenital defect. As for other family members, such as siblings and grand parents, unavoidable grief and emotional reaction were noted. The impact of a child with birth defects on the whole family is obvious. It is recommended that comprehensive health, welfare and educational serrices be provided.
期刊論文
1.田聖芳(19930300)。母親面對先天性缺陷兒之養育問題與情緒適應。護理雜誌,40(1),27-32。new window  延伸查詢new window
2.Childs, R. E.(1984)。Maternal psychological conflicts associated with the birth of a retarded child。Maternal Child Nursing Journal,14,175-182。  new window
3.Olshansky, S.(1962)。Chronic sorrow: A response to having a mentally defective child。Social Casework,43,190-194。  new window
4.Damrosch, S. P.、Perry, L. A.(1989)。Self-reported adjustment, chronic sorrow, and coping of parents of children with down syndrome。Nursing Research,38(1),25-29。  new window
5.Lynch, M. E.(1989)。Congenital defects: parental issues and nursing supports。J Perinat Neonatal Nurs,2(4),53-59。  new window
6.Zamerowski, S. T.(1982)。Helping families to cope with handicapped children。Topics in Clinical Nursing,4(2),41-56。  new window
7.Coughlin, M.(1989)。Disappointment and Its application to the grief process for parents whose child has a severe anomaly or dies。Issues in Comprehensive Pediatric Nursing,12,281-283。  new window
8.Butani, P.(1974)。Reaction of mothers to the birth of an anomalous infant: a review of the literature。Maternal Child Nursing Journal,3(2),59-76。  new window
9.Butani, P.(1984)。Coping with the birth of an anomalous infant。Nursing Paper,16(1),14-24。  new window
10.Romney, M. C.(1984)。Congenital defects: implications on family development and parenting。Issues in Comprehensive Pediatric Nursing,7,1-15。  new window
11.Horan, M. L.(1982)。Parental reaction to the birth of an infant with a defect: An attributional approach。Advances in Nursing Sciences,5,57-68。  new window
12.Sabbeth, B.(1984)。Understanding the impact of chronic childhood illness on families。Pediatric Clinics of North America,31(1),47-57。  new window
13.Schilling, R. F.、Schinke, S. P.、Kirkham, M. A.(1985)。Coping with a handicapped child: differences between mothers and fathers。Soc Sci Med,21(8),857-863。  new window
14.Blacher, J.(1984)。Sequential stages of parental adjustment to the birth of a child with handicaps: fact or artifact?。Mental Retardation,22(2),55-68。  new window
15.West, M.(1984)。The mother, the developmentally disabled child and the nurse。Topics in Clinical Nursing,6,19-28。  new window
16.Shapiro, J.(1983)。Family reactions and coping strategies in response to the physically ill or handicapped child: a review。Soc Sci Med,17(14),913-931。  new window
17.Murphy, A.、Pueschel, S.、Duffy, T.、Brady, E.(1976)。Meeting with brothers and sisters of children with down's syndrome。Children Today,5(2),20-33。  new window
18.Gerver, J. M.(1983)。A grandparent's view。Children Today,12(6),12-13。  new window
19.Gracely, K. A.(1977)。Parental attachment to a child with a congenital defect。Pediatric Nursing,3(5),15-17。  new window
20.Gath, A.(1977)。The impact of an abnormal child upon the parents。British Journal of Psychiatry,130,405-410。  new window
21.Riper, M. V.、Ryff, C.、Pridham, K.(1992)。Parental and family well-being in families of children with down syndrome: A comparative study。Research in Nursing & Health,15,227-235。  new window
22.Fajardo, B.(1987)。Parenting a damaged child: mourning, regression, and disappointment。Psychoanalytic Review,74(1),19-43。  new window
23.Clubb, R. L.(1991)。Chronic sorrow: Adaptation patterns of parents with chronically ill children。Pediatric Nursing,17(5),461-466。  new window
24.Drotar, D.、Baskiewicz, A.、Irvin, N.、Kennell, J.、Klaus, M.(1975)。The adaptation of parents to the birth of an infant with a congenital malformation: A hypothetical model。Pediatrics,56(5),710-717。  new window
25.程子芸(19930900)。父母親對先天缺陷兒的反應型態及影響因素:一個探討性的概念模式。護理雜誌,40(3),79-86。new window  延伸查詢new window
圖書
1.Wikler, L.、Wasow, M.、Hatfield, E.(1981)。Chronic sorrow revisited: parent vs. professional depiction of the adjustment of parents of mentally retarded children。American Orthopsychiatric Association。  new window
 
 
 
 
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