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題名：母血篩檢唐氏症陽性反應的孕婦面對羊膜穿刺之決策經驗
書刊名：護理雜誌
作者：黎小娟／李從業
作者(外文)：Li, H. J.／Lee, T. Y.
出版日期：1998
卷期：45:3
頁次：頁51-64
主題關鍵詞：母血篩檢唐氏症；現象學研究；意義；生活經驗；Maternal serum screening for Down syndrome；Phenomenological research；Meaning；Lived experiences
原始連結：連回原系統網址new window
相關次數：
  • 被引用次數被引用次數:期刊(5) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:4
  • 共同引用共同引用:4
  • 點閱點閱:19
　　　　　唐氏症是最常發生的體染色體異常，也是智障最常見的原因。本研究為現象學研究，旨在探討母血篩檢唐氏症陽性反應對孕婦的意義，以及孕婦在面對羊膜穿刺時的決策經驗。共訪談了十七位母血篩檢唐氏症陽性反應的孕婦，以開放、無結構、不引導的方式進行訪談，所有訪談內容均予以錄音，並以 Giorgi 的現象學方法來分析所收集的資料。結果萃取出六個主要的概念：篩檢結果的迷思、尋求行為、母性任務的達成、抉擇的擺盪、傳統女性的桎梏、傳統命運觀。而護理人員經由深入瞭解這些孕婦的生活經驗，則可依照個案的需求，來設計適當的遺傳諮詢，並提供孕婦適當的支持。
　　　　　Down syndrome is the most common cause of autonomic abnormality and mental retardation. The main purpose of this phenomenological research was to examine the meaning to pregnant women of positive results on maternal serum screening for Down syndrome, and their experiences of decision making on amniocentesis. The researcher interviewed seventeen pregnant women who showed positive results on maternal serum screening for Down syndrome. The participants were interviewed and audio taped in an open-ended, non structured and unguided way. Giorgi's qualitative method of phenomenology was used to analyze collected data. The major findings of this research were that six essential concepts emerged as follows: (1) myths of screening result, (2) seeking behavior, (3) attainment of maternal tasks, (4) swing of decision making, (5) traditional women's shackles, (6) traditional concept of fate. Thoroughly understanding the lived experiences of these pregnant women can enable nurses to design appropriate genetic counseling according to clients' needs.
期刊論文
1.Stainton, M. C.、McNeil, D.、Harvey, S.(1992)。Maternal tasks of uncertain motherhood。Maternal-Child Nursing Journal，20(3/4)，113-123。  new window
2.Davies, B. L.、Doran, T. A.(1982)。Factors in a woman's decision to undergo genetic amniocentesis for advanced maternal age。Nursing Research，31(1)，56-59。  new window
3.Dixson, B.、Richards, T. L.、Reinsch, S.、Edrich, V. B.、Matson, M. R.、Jones. O. W.(1981)。Midtrimester amniocentesis subjective maternal responses。The journal of Reproductive Medicine，26(1)，10-16。  new window
4.Sheldon, T. A.、Simpson, J.(1991)。Appraisal of a new scheme for prenatal screening for Down's syndrome。British Medical Journal，302(6785)，1133-1136。  new window
5.Beeson, D.、Golbus, M. S.(1979)。Anxiety engendered by amniocentesis。Birth Defects: Original Article Series，15(5)，191-197。  new window
6.Beekhuis, J. R.、De-Wolf, B. T.、Mantingh, A.、Heringa, M. P.(1994)。The influence of serum screening on the amniocentesis rate in women of advanced maternal age。Prenatal Diagnosis，14(3)，199-202。  new window
7.Beck, C. T.(1994)。Reliability and validity issues in phenomenological research。Western Journal of Nursing Research，16(3)，254-267。  new window
8.Grubb, C. B.(1976)。Body image concerns of a multipara in the situation of intrauterine fetal death。Maternal Child Nursing Journal，5(2)，93-116。  new window
9.Green, D.、Malin, J.(1988)。When reality shatters parents' dreams。Nursing，18(2)，61-64。  new window
10.Lippman-Hand, A.、Cohen, D. I.(1980)。Influence of obstetricians' attitudes on their use of prenatal diagnosis for the detection of Down's syndrome。Canadian Medical Association Journal，122(12)，1381-1386。  new window
11.Lindsay, P.(1994)。Making sense of maternal serum screening。Nursing Times，90(49)，31-32。  new window
12.Kemp, V. H.、Page, C. K.(1986)。The psychosocial impacts of high-risk pregnancy on the family。Journal of Obstetrics, Gynecological, and Neonatal Nursing，15(3)，232-236。  new window
13.Haddow, J. E.、Palomaki, G. E.、Knight, G. J.、Williams, J.、Pulkkinen, A.、Canick, J. A.、Saller, D. N., Jr.、Bowers, G. B.(1992)。Prenatal screening for Down's syndrome with the use of maternal serum markers。The New England Journal of Medicine，327(9)，588-593。  new window
14.Rosenfeld, D. L.、Mitchell, E.(1979)。Treating to emotional aspects of infertility: Couseling services in an infertility clinic。American Journal of Obstetric and Gynecology，135(2)，177-180。  new window
15.Omery, A.(1983)。Phenomenology: A method for nursing research。Adavanccs in Nursing Science，5(2)，49-63。  new window
16.Simpson, N. E.、Dallaire, L.、Miller, J. R.、Siminovich, L.、Hamerton, J. L.、Miller, J.、McKeen, C.(1976)。Prenatal diagnosis of genetic disease in Canada: Report of a collaborative study。Canadian Medical Association Journal，115(8)，739-748。  new window
17.陳淑溫(19950300)。醫師、護理師及病人間意義差距的省思。護理雜誌，42(1)，95-99。new window  延伸查詢new window
18.Moatti, J. P.、Le-Gales, C.、Julian, C.、Durbec, J. P.、Mattei, J. F.、Ayme, S.(1990)。Socio-cultural inequities in access to prenatal diagnosis: The role of insurance coverage and regulatory policies。Prenatal Diagnosis，10(5)，313-325。  new window
會議論文
1.楊玉娥(1995)。高血清胎兒蛋白孕婦接受羊膜穿剌術前後之主觀經驗。國際護理榮譽學會中華民國分會質性研究研習會，49-55。  延伸查詢new window
2.Spencer, K.、Coombes, E. J.、Mallard, A. S.、Ward, A. M.(1992)。Unconjugated oestriol has no place in second trimester Down's syndrome screening。the ACB National Meeting。  new window
研究報告
1.謝豐舟(1995)。母血篩檢唐氏症之合作研究。  延伸查詢new window
2.黃璉華、柯滄銘、謝豐舟、李鎡堯(1991)。影響孕婦接受羊膜穿刺諸因素及其關注之探討。  延伸查詢new window
圖書
1.林秀娟(1996)。優生保健。台北：華杏。  延伸查詢new window
2.中華民國周產期醫學會(1995)。母血篩檢唐氏症工作手冊。台北：中華民國周產期醫學會。  延伸查詢new window
3.Giorgi, A.(1988)。Phenomenology and psychological research。Pittsburgh, PA：Duquesne University Press。  new window
4.Reeder, S. J.、Martin, L. L.、Koniak, D.(1992)。Maternity nursing: Family, newborn, and women's health care。New York：J. B. Lippincott。  new window
5.Olds, S. B.、London, M. L.、Ladewig, P. A.(1992)。Maternity newborn nursing: A family-centered Approach。Redwood City, CA：Addison-Wesley。  new window
6.Rubin, R.(1984)。Maternal identity and the maternal experience。New York：Springer Publishing Company。  new window
圖書論文
1.Giorgi, A.(1989)。Learning and memory from the perspective of phenomenological psychology。Existential phenomenological perspectives in psychology。New York：Plenam。  new window
 
 
 
 
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