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題名:健康數據所有權之探討
書刊名:智慧財產權月刊
作者:葉咨甫林澂
作者(外文):Yeh, Tzu-fuLin, Chen
出版日期:2021
卷期:269
頁次:頁55-74
主題關鍵詞:健康數據所有權二次使用隱私個資外洩利益分享Health dataOwnershipSecondary usePrivacyPersonal information leakageBenefit sharing
原始連結:連回原系統網址new window
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期刊論文
1.Winau, Rolf(1994)。The Hippocratic oath and ethics in medicine。Forensic Science International,69(3),285-289。  new window
2.de Montjoye, Yves-Alexandre、Hidalgo, Cesar A.、Verleysen, Michel、Blondel, Vincent D.(2013)。Unique in the Crowd: The Privacy Bounds of Human Mobility。Scientific Reports,3,(1376)1-(1376)5。  new window
3.Bridy, Annemarie(2012)。Coding Creativity: Copyright and the Artificially Intelligent Author。Stanford Technology Law Review,5,1-28。  new window
4.(2014)。世界醫師會赫爾辛基宣言--人體醫學研究的倫理原則。臺灣醫界,57(5),46-49。  延伸查詢new window
5.蔡志偉(20121200)。人體研究與原住民族集體權:人權規範與發展的新課題。刑事政策與犯罪研究論文集,15,103-116。  延伸查詢new window
6.Powles, Julia、Hodson, Hal(2017)。Google DeepMind and Healthcare in an Age of Algorithms。Health and Technology,7(4),351-367。  new window
7.Dash, S.、Shakyawar, S. K.、Sharma, M.(2019)。Big data in healthcare: management, analysis and future prospects。J Big Data,6。  new window
8.何建志(20191200)。跨醫療機構分享個人電子健康紀錄之倫理法律問題:以健保署雲端藥歷為例。法律與生命科學,8(2),23-44。new window  延伸查詢new window
9.Feld, Andrew D.(2005)。The Health Insurance Portability and Accountability Act (HIPAA): Its broad effect on practice。American Journal of Gastroenterology,100(7),1440-1443。  new window
10.Tanner, Adam、黃榮棋(2016)。病歷大拍賣!。科學人,169。  延伸查詢new window
11.Ienca, M.、Ferretti, A.、Hurst, S.(2018)。Considerations for ethics review of big data health research: a scoping review。PLOS ONE,13(10)。  new window
12.Montgomery, Jonathan(2017)。Data sharing and the idea of ownership。New Bioeth,23(1),81-86。  new window
13.丁曉東(2020)。數據到底屬於誰?。華東政法大學學報,2020(5),69-83。  延伸查詢new window
14.王麗莎(2017)。互聯網醫療大數據的法律與倫理規制研究。月旦醫事法,11。  延伸查詢new window
15.Chander, Anupam(2014)。How Law Made Silicon Valley。Emory Law Journal,63(3)。  new window
16.Mearian, Lucas(20191115)。Yes, Google's using your healthcare data - and it's not alone。Computerworld。  new window
17.Ballantyne, Angela(2020)。How should we think about clinical data ownership?。J MED ETHICS,46,289-294。  new window
18.Rocher, Luc、Hendrickx, Julien M.、de Montjoye, Yves-Alexandre(2019)。Estimating the success of re-identifications in incomplete datasets using generative models。Nature Communications,10(1)。  new window
19.Van Noorden, R.(20140203)。Scientists may be reaching a peak in reading habits。Nature。  new window
20.Cate, Fred H.(2010)。Protecting Privacy in Health Research: The Limits of Individual Choice。California Law Review,98(6),1765-1803。  new window
學位論文
1.劉承慶(2004)。生物科技智慧財產權歸屬之研究--以人體組織所衍生之權利為中心(碩士論文)。國立成功大學。  延伸查詢new window
2.宋佩珊(2007)。醫療資訊電子化對隱私權之影響(碩士論文)。世新大學。  延伸查詢new window
圖書
1.Topol, Eric、張南(2014)。顛覆醫療:大數據時代的個人健康革命。北京院電子工業出版社。  延伸查詢new window
2.薛兆豐(2018)。薛兆豐經濟學講義,第021講:誰用得好就歸誰。中信出版社。  延伸查詢new window
3.馬科尼、萊曼、何承恩(2017)。醫療大數據。天下文化。  延伸查詢new window
4.Aristotle、Jowett, Benjamin。Politics。  new window
單篇論文
1.約瑟夫.費爾德,李政軍。科斯定理文獻總結,科斯定理1-2-3,http://mitiq.mit.edu/MIT_Plato/MIT_Plato_Uploads/Literature%20Summary%20on%20Coase%20Theorem(in%20Chinese).pdf。  延伸查詢new window
其他
1.What are patient-generated health data?,https://www.healthit.gov/topic/otherhot-topics/what-arepatient-generated-health-data。  new window
2.Parke, David W. II。Medical Record Ownership and Access,https://www.aao.org/eyenet/article/medical-record-ownership-and-access。  new window
3.Dao, Tony。Who Owns Patients' Data?,https://www.pharmacytimes.com/publications/health-system-edition/2020/May2020/who-owns-patients-data。  new window
4.Carlston, Jenny。What is a Data Owner, Really?,https://www.pluralsight.com/techblog/what-is-a-data-owner-really/。  new window
5.韓亦舜,薛亞菲,韓亦舜。醫療數據隱私權思辨(附PPT),http://www.cbdio.com/BigData/2016-08/15/content_5185435.htm。  延伸查詢new window
6.趙天宇。新冠催化的殘酷生意: 患者健康數據開發加速 醫療數字化金礦有多大,https://news.sina.com.tw/article/20200626/35586608.html。  延伸查詢new window
7.Harris, Richard。If Your Medical Information Becomes A Moneymaker, Could You Get A Cut?,https://www.npr.org/sections/health-shots/2018/10/15/657493767/if-your-medical-informationbecomes-a-moneymaker-could-you-could-get-a-cut。  new window
8.章忠信。病歷的智慧財產權,http://www.copyrightnote.org/ArticleContent.aspx?ID=2&aid=214。  延伸查詢new window
9.章忠信。病歷之管理與使用,http://www.copyrightnote.org/ArticleContent.aspx?ID=9&aid=2568。  延伸查詢new window
10.Sharma, Raj。Who Really Owns Your Health Data?,https://www.forbes.com/sites/forbestechcouncil/2018/04/23/who-really-owns-your-health-data/?sh=6965a33b6d62。  new window
11.Koh, Dean。Patient data: Access, privacy & ownership,https://www.healthcareitnews.com/news/asia-pacifi c/patient-data-access-privacy-ownership。  new window
12.胡清暉(20070606)。電子病歷10醫學中心加入試辦,https://news.ltn.com.tw/news/life/paper/134212。  延伸查詢new window
13.North, Michael(2002)。Greek Medicine: "I Swear by Apollo Physician...": Green Medicine from the Gods to Galen,https://www.nlm.nih.gov/hmd/greek/greek_oath.html。  new window
14.Regardless of the method by which de-identifi cation is achieved, the Privacy Rule does not restrict the use or disclosure of de-identified health information, as it is no longer considered protected health information,https://www.hhs.gov/hipaa/for-professionals/privacy/special-topics/de-identifi cation/index.html。  new window
15.(20180802)。If personal data can be truly anonymised then the anonymised data is not subject to the GDPR,https://ico.org.uk/media/for-organisations/guide-to-the-general-dataprotection-regulation-gdpr-1-0.pdf。  new window
16.Delvin, H.。Uk life sciences industry review of NHS data sharing,https://www.theguardian.com/science/2017/aug/30/uk-needs-to-acturgently-to-secure-nhsdata-for-british-public-report-warns。  new window
17.朱瑞陽。從全民健保數據庫判決看開放數據前景,http://www.opendata4tw.org.tw/article_detail.php?id=10&aid=77。  延伸查詢new window
18.Oltman, Michael。Faster health data exchange starts with addressing health IT's control concerns,https://medcitynews.com/2020/07/faster-health-dataexchange-starts-with-addressing-health-its-control-concerns/。  new window
19.IQVIA Reports Fourth-Quarter and Full-Year 2019 Results,https://www.businesswire.com/news/home/20200212005256/en/IQVIA-Reports-Fourth-Quarter-Full-Year-2019-Results-Issues。  new window
20.Hays, Connor。The Ultimate Guide to Data Breaches,https://bloom.co/blog/ultimateguide-to-data-breaches-and-identity-theft/?utm_source=reddit&utm_medium=post&utm_campaign=data_breach_guide。  new window
21.Anzilotti, E.(20180727)。This co-opLETS patients monetize their own health data,https://www.fastcompany.com/90207550/this-co-op-lets-patients-monetize-their-own-health-data。  new window
22.Davis, Jessica。Ransomware attack on Hancock Health drives providers to pen and paper,https://www.healthcareitnews.com/news/ransomware-attack-hancock-healthdrives-providers-pen-and-paper。  new window
23.Holmes, Aaron(20200306)。Google faces backlash from privacy activists for gathering people's health data from hospitals across the country to build its algorithms,https://www.businessinsider.com/google-backlash-lawsuit-over-collecting-hospital-health-data-2020-3。  new window
24.林綠紅(20190116)。海拉細胞後面的那個女人、家庭與倫理議題,https://huspat.org/2019/01/16/1010/。  延伸查詢new window
25.朱育嫻(20181205)。17秒讀完250本醫學書!華生醫師幫人類抗癌能診斷13種癌症,https://health.tvbs.com.tw/medical/312674。  延伸查詢new window
26.博立斯工業機器人(20170217)。醫生將失業?機器人十分鐘診斷疾病!,https://kknews.cc/health/6n8lq5m.html。  延伸查詢new window
27.蔣蓉(20141112)。全美第一腫瘤醫院電腦醫生開始坐診,https://kknews.cc/health/3mj94y3.html。  延伸查詢new window
28.洪于庭,李建良。醫療行為與醫療器材、侵權行為法的合理人責任與合理演算法責任,https://ai.iias.sinica.edu.tw/medicine-legal-rights/。  延伸查詢new window
29.郭一璞,問耕(20180730)。IBM Watson爆出致命Bug:開錯藥給病人,醫死人算誰的責任?,https://buzzorange.com/techorange/2018/07/30/ai-ibm-watson-give-wrong-medical-suggest-that-may-kill-people/。  延伸查詢new window
30.(20180702)。日本要制定AI 醫療規則 責任由醫生承擔,https://zh.cn.nikkei.com/politicsaeconomy/politicsasociety/31084-2018-07-02-05-00-30.html。  延伸查詢new window
31.Wayman, Chris。Realising the value of health care data: a framework for the future,https://assets.ey.com/content/dam/ey-sites/ey-com/en_gl/topics/life-sciences/lifesciences-pdfs/ey-value-of-health-care-data-v20-fi nal.pdf。  new window
32.Yaraghi, Niam(20181111)。Who should profit from the sale of patient data?,https://www.brookings.edu/blog/techtank/2018/11/19/who-should-profit-from-the-sale-of-patientdata/。  new window
33.(20180707)。What if people were paid for their data?,https://www.economist.com/the-world-if/2018/07/07/data-workers-of-the-world-unite。  new window
34.Ford, Piers(20191227)。The economy of connecting,https://www.healthcareitnews.com/news/europe/economy-connecting。  new window
35.Nguyen, N.。Will blockchain bring data ownership back to users?,https://bigdata-madesimple.com/tug-of-war-will-blockchain-bring-data-ownership-back-to-users/。  new window
圖書論文
1.Sulston, J.(2012)。Intellectual Property and the Human Genome。Global intellectual property rights。Palgrave Macmillan。  new window
2.沈宗倫(2018)。人工智慧科技與智慧財產權法制的交會與調和--以著作權法與專利權法之權利歸屬為中心。人工智慧相關法律議題芻議。元照。  延伸查詢new window
 
 
 
 
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