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題名:醫療系統以家庭為中心精神建構早期療育服務模式之歷程及成效研究
作者:徐 敏
作者(外文):HSU, MIN
校院名稱:國立高雄師範大學
系所名稱:特殊教育學系
指導教授:劉萌容
學位類別:博士
出版日期:2023
主題關鍵詞:以家庭為中心早期療育專業團隊family-centered servicesearly interventionteam-based model
原始連結:連回原系統網址new window
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「以家庭為中心」的服務觀念已是目前早期療育服務的發展重點,強調家庭與兒童皆為早期療育中重要的一環,本研究旨在建立一套可實施在醫療院所「以家庭為中心」早療專業團隊服務模式,並探討家庭與專業人員在進行研究過程中之變化與兒童之成效。
本研究採用質性研究中的行動研究方法,以14位專業人員與九組家庭為研究參與者,透過每組家庭執行研究方案六個月的模式過程,蒐集相關資料作為了解家庭與專業團隊在模式建立關係的歷程與成效。經資料分析後的結果如下。
一、透過執行科學的方式,在不同的執行時期調整所需之驅動成分,不斷的修正實施的程序與內容,發展出運用團隊合作提供醫療院所可實施「作息本位介入醫療模式」服務模式。
二、透過研究方案,專業人員的服務品質皆有顯著的變化。與家庭建立合作關係的過程能夠深刻體驗「以家庭為中心」的信念與精神。
三、家庭能感受到「以家庭為中心」服務品質的提升,藉由家庭所擁有的資源與支持,了解孩子的優勢與長處,進而學習如何幫助孩子的發展,達到「家庭增能」的目的;當對孩子的目標設定符合家庭需求,是能幫助提升兒童在日常生活中的功能性活動執行能力。
根據研究發現與結論,分別對實務方面與未來研究提出建議。
The family-centered early intervention practice emphasizes that the family are as importance as the children with developmental delay when they receive the service. The aim of this research attempted to build a professional team-based model and investigated the effect of family-centered services in the medical systems. This research included 9 children with their families and 14 professionals providing services for the families. Action research was employed to explore the progress of model building and collaboration between families and professionals. The results indicated the application of implementation science could be useful for promoting professional development to provide family-centered early intervention in the medial system. The result also showed significant improvements in the quality of family-centered services provided by the professional team-based model. Another significant result was found in family outcomes, such as understanding rights, helping children learn and creating a support system for their own family The outcomes of the children also showed significant improvements in GAS. The research suggests the professional team-based model to provide family-centered early intervention services could be effective through collaboration for enhancing functions of family and promoting development of children with special needs.  
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