There is no doubt that the revolution in human genomic research has led to a rapid expansion in genomic medicine. Each year, our government invests vast amount of money into the National Research Program for Genomic Medicine. However, based on the number of projects funded in 2003, there were not many projects targeting special needs of rare disease patients. These special needs include a variety of genetic testing, medicine and drugs, and a high quality of genetic counseling. This paper not only aims at addressing these patients' need for quality genetic counseling, but also proposes guidelines that protect the rights of these patients.