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題名:生命末期的另一個照護議題:周產期安寧照護
書刊名:安寧療護
作者:陳馥萱 引用關係余玉眉
作者(外文):Chen, Fu-hsuanChao Yu, Yu-mei
出版日期:2012
卷期:17:3
頁次:頁329-339
主題關鍵詞:周產期死亡周產期失落周產期安寧療護預立醫療照護計劃生命末期照護Perinatal deathPerinatal lossPerinatal hospiceAdvance care planningEnd-of-life care
原始連結:連回原系統網址new window
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  • 被引用次數被引用次數:期刊(0) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:0
  • 共同引用共同引用:25
  • 點閱點閱:24
面對胎兒異常,大多數父母會選擇終止妊娠,但其實在國外已發展周產期安寧照護以協助繼續懷孕的婦女與家庭接受胎兒的出生與死亡,此為另一個生命末期的照護議題,值得醫護人員的關注,我國因文化信念與國情之不同,在獲知胎兒有致命性異常時,大多數父母會選擇終止妊娠,但這個決定常讓許多父母帶著深重的罪惡感自我療傷,筆者建議國人應改變觀念,認同胎兒的生命能持續懷孕至足月的價值,若仍決定終止妊娠者,在決定終止妊娠之前至少有十數天時間也可以應用周產期安寧照護的理念提供婦女與家庭相關的協助,本文依胎兒異常對家庭的衝擊、我國周產期安寧照護需求,並以國外周產期安寧照護發展及現況,參考安寧照護的理念,以「診斷確立至抉擇是否繼續懷孕」、「待產至胎兒娩出」、「胎兒死亡後」等三個階段分別對照護的內容進行說明,期望本文可引發對此生命末期照護議題的關注,並建議我國亦能發展符合我文化需求的照護模式。
Perinatal hospice care is an alternative option for the woman with fetal anomaly and her family to be able to accept the fetal birth and death. Most parents with fetal anomaly choose termination under our traditional Chinese culture. However, they are usually suffering from a deeply guilty during decision-making and self-healing process. Perinatal hospice care will be helpful during decision-making process and after termination.This article expounds the impact of fetal anomalies on the family, and perinatal hospice needs in Taiwan. Further, we describe three stages of preinatal hospice care, which are ”establish diagnosis to decide termination or not”, ”delivering the fetus” and ”after fetal death”. This article is trying to trigger the concern of issues of end-of-life care. It also suggests that perinatal hospice care should be modified to develop a care model in accordance with our cultural needs.
期刊論文
1.Collier, R.(2011)。Providing hospice in the womb。CMAJ: Canadian Medical Association Journal,183(5),E267-E268。  new window
2.Hoeldtke, NJ.、Calhoun, BC.(2001)。Perinatal hospice。American American Journal of Obstetrics and Gynecology,185(3),525-529。  new window
3.陳馥萱、王素秋(201111)。以家庭生態系統觀點論死產婦女的處境與健康。助產雜誌,53,12-16。  延伸查詢new window
4.Engelder S.、Davies K.、Zeilinger T.、Rutledge D.(2012)。A model program for perinatal palliative services。Advances in Neonatal Care,12(1),28-36。  new window
5.Lathrop, A.、VandeVusse, L.(2011)。Affirming motherhood: Validation and invalidation in women’s perinatal hospice narratives38(3),256-265。  new window
6.Calhoun, BC.、Reltman, JS.(1997)。Perinatal hospice: A response to partial birth abortion for infants with congenital defects。Issues in Law & Medicine,13(2),125-143。  new window
7.林美玲、陳持平(200709)。遺傳諮詢:一位懷有鑲嵌型透那氏症胎兒之母親心理反應及抉擇過程。當代醫學,34(9),742-747。  延伸查詢new window
8.Wool, C.(2011)。Systematic review of theliterature: parental outcomes after diagnosis of fetal anomaly。Adv Neonatal Care,3,182-192。  new window
9.Lathrop, A.、VandeVusse, L.(2011)。Continuity and change in mothers' narratives of perinatal hospice。J Perinat Neonatal Nurs,1,21-31。  new window
10.陳德人、毛家舲(200909)。新生兒急救的倫理原則和臨終照護。臺灣醫學,13(5),509-512。  延伸查詢new window
11.孫瑞瓊、黃慧琪、許樹珍(201012)。夫婦面對胎兒異常接受終止妊娠之經驗歷程。長庚科技學刊,13,55-64。  延伸查詢new window
12.李從業(2002)。傷痛關懷服務於產科護理的運用。護理雜誌,49(1),28-33。new window  延伸查詢new window
13.陳翠玲、張德馨、李美玉、許碧鳳、占雪貞(2012)。運用產後關懷照護模式提升死產產婦產後護理執行率。馬偕護理雜誌,6(1),36-47。  延伸查詢new window
14.Whitfield, JM.、Siegel, RE.、Glicken, AD.、Harmon, RJ.、Powers, LK.、Goldson, EJ.(1982)。The application of hospice concepts to neonatal care。Am J Dis Child,54,775-780。  new window
15.徐金梅、蘇燦煮、陳月枝、黃建榮(200712)。胎兒染色體異常的婦女於第二孕期接受終止妊娠之生活經驗。護理雜誌,54(6),22-30。new window  延伸查詢new window
16.Chen, Rong-chi、Chung, David C. H.、Lai, Enoch Y. L.、Chao, Chantal C. S.(20010200)。The Development of Hospice Palliative Care in Taiwan。安寧療護,6(1),2-13。new window  new window
17.廖珍娟(19980800)。喪失嬰兒父母之照顧。護理雜誌,45(4),23-32。new window  延伸查詢new window
18.張麗娟、黃美智(20090600)。先天性畸型新生兒不施行心肺復甦術的倫理抉擇。護理雜誌,56(3),99-104。new window  延伸查詢new window
19.陳淑齡、余玉眉(20000400)。懷有唐氏症胎兒的初孕婦接受終止妊娠過程的生活處境。護理研究,8(2),177-189。new window  延伸查詢new window
其他
1.行政院衛生署。安寧緩和有註記,臨終更尊嚴立法院三讀通過安寧緩和醫療條例部分條文修正草案,http://www.doh.gov.tw/CHT2006/DM/DM2_p01.aspx?class_no=25&now_fod_list_no= 11573 &le vel_no=2 &doc_no=7 8755, 20110110。  延伸查詢new window
2.行政院衛生署。善用產前遺傳檢驗,孕育健康下一代,http://www.doh.gov.tw/CHT2006/other/ShowCopy.aspx?doc_no=71573&class_no=25, 20120104。  延伸查詢new window
3.行政院衛生署。100年施政績效報告,http://www.doh.gov.tw/ufile/doc/100%e5%b9%b4%e6%96%bd%e6%94%bfyoe7%b8%be%e6%95%88%e5%a0%bl%e5%9l%8a.doc, 20120627。  new window
 
 
 
 
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