資料載入處理中...
臺灣人文及社會科學引文索引資料庫系統
:::
網站導覽
國圖首頁
聯絡我們
操作說明
English
行動版
(18.119.119.213)
登入
字型:
**字體大小變更功能,需開啟瀏覽器的JAVASCRIPT,如您的瀏覽器不支援,
IE6請利用鍵盤按住ALT鍵 + V → X → (G)最大(L)較大(M)中(S)較小(A)小,來選擇適合您的文字大小,
如為IE7以上、Firefoxy或Chrome瀏覽器則可利用鍵盤 Ctrl + (+)放大 (-)縮小來改變字型大小。
來源文獻查詢
引文查詢
瀏覽查詢
作者權威檔
引用/點閱統計
我的研究室
資料庫說明
相關網站
來源文獻查詢
/
簡易查詢
/
查詢結果列表
/
詳目列表
:::
詳目顯示
第 1 筆 / 總合 1 筆
/1
頁
來源文獻資料
摘要
外文摘要
引文資料
題名:
肌肉萎縮症患孩母親的心理社會衝擊
書刊名:
護理研究
作者:
黃璉華
/
戴玉慈
作者(外文):
Huang, Lian-hua
/
Dai, Yu-tzu
出版日期:
1998
卷期:
6:2
頁次:
頁137-151
主題關鍵詞:
肌肉萎縮症
;
母親
;
心理社會衝擊
;
Muscular dystrophy
;
Mothers
;
Psychosocial impact
原始連結:
連回原系統網址
相關次數:
被引用次數:期刊(
1
) 博士論文(0) 專書(0) 專書論文(0)
排除自我引用:
1
共同引用:
10
點閱:31
X連鎖隱性遺傳疾病,如裘馨氏(Duchenne)肌肉萎縮症等,通常需要長時間的特殊 照護,當家庭中有這類患孩時,會對整個家庭帶來很大的衝擊。尤其對母親更是一大打擊, 因為X連鎖隱性遺傳疾病的遺傳方式是經由女性帶因者,也就是母親本身。本研究目的為瞭 解肌肉萎縮症患孩健康與行為問題,和母親的心理社會衝擊及相關因素。本研究透過肌原性 肌肉萎縮症基金會收集肌肉萎縮症個案的名冊,以郵寄問卷的方式收集資料。研究發出問卷 195份,回收之有效問卷為78份,回覆率40%。所得資料輸入電腦以SPSS處理分析。研究結果 顯示肌肉萎縮症患孩母親大多有悲傷、無助、不能接受等的情緒反應,患孩母親的焦慮程度 與患孩的健康狀況、情緒反應、和適應能力有關。患孩健康狀況與適應能力有關,而患孩適 應能力又與情緒反應有關。家庭適應狀況及患孩適應能力同時與母親的焦慮程度有關。影響 母親焦慮的因素有患孩的情緒反應和母親是否有宗教信仰。建議未來應建立國人肌肉萎縮症 發生流行病學的資料庫,提供肌肉萎縮症家庭的護理與諮詢服務,提高醫療服務的品質,並 強化家長支持團體。
以文找文
X-linked recessive diseases, such as Duchenne Muscular Dystrophy, usually require a long period of special care. For families who must face the reality of an affected son, the diagnosis marks the beginning of a long and painful process. It inevitably has a tremendous impact on the entire family, especially on the mother, the obligate carrier. The purpose of this study was understand the health and behavior problems of children with muscular dystrophy, and the psychosocial impact on the mothers with affected children. The Study sample were recruited from the Muscular Dystrophy Foundation. Mailed questionnaires were sent to 195 mothers of children with muscular dystrophy; 78 valid questionnaires were returned, which gave a response rate of 40%. Data were analyzed via SPSS computer software. Study results revealed that mothers had emotional responses such as sadness, helplessness, and denial; mothers' emotional responses were related to the child's health condition, emotional responses, and adaptability. The health condition of the sick child was found to correlate to its adaptability, and adaptability correlated to emotional responses. The adapability of the whole family and the sick child were related to mother's level of anxiety. The predictors of a mother's level of anxiety were the child's emotional responses and whether the mother had religious belief. It is recommended to establish an epidemiological data set for muscular dystrophy. Further, to provide nursing and counseling services to strengthen parents' support groups and to enhance the quality of services is also suggested.
以文找文
期刊論文
1.
黃璉華(19940900)。養育唐氏症兒對家庭的衝擊。護理研究,2(3),253-262。
延伸查詢
2.
Thompson, R. J. J.、Zeman, J. L.、Fanurik, D.、Sirotkin-Roses, M.(1992)。The role of parent stress and coping and family functioning in parent and child adjustment to Duchenne muscular dystrophy。Journal Clinical Psychology,48(1),11-19。
3.
黃璉華(19950800)。生育先天性缺陷兒對家庭的影響。中華公共衛生雜誌,14(4),299-313。
延伸查詢
4.
Buchanan, D.、LaBarbera, C.、Roelofs, R.、Olson, W.(1979)。Reactions of families to children with Duchenne Muscular Dystrophy。General Hospital Psychiatry,1(3),262-269。
5.
Beeson, D.、Golbus, M.(1985)。Decision making: Whether or not to have prenatal diagnosis and abortion for X-lmked conditions。American Journal of Medical Genetics,20(1),107-114。
6.
Fitzpatrick, C.、Barry, C.(1990)。Cultural differences in family commimication about Duchenne Muscular Dystrophy。Developmental Medicine & Child Neurology,32(1),967-973。
7.
Fitzpatrick, C.、Barry, C.(1986)。Communication with families about Duchenne Muscular Dystrophy。Developmental Medicine & Child Neurology,28(5),596-599。
8.
Firth, M.、Gardner-Medwin, D.、Hosking, G.、Wilkmson, E.(1983)。Interviews with parents of boys suffering from Duchenne muscular dystrophy。Developmental Medicine & Child Neurology,25(4),466-471。
9.
Parsons, E.、Clarke, A.(1993)。Genetic risk: Women's understanding of carrier risks in Duchenne Muscular Dystrophy。Journal of Medical Genetics,30(7),562-566。
10.
Kornfeld, M. S.、Siegel, I.(1980)。Parental group therapy in management of two fatal childhood diseases: A comparison。Health and Social Work,5(1),28-34。
11.
Hutton, E.、Thompson, M.(1976)。Carrier detection and genetic counseling in Duchenne Muscular Dystrophy: A followup study。Canadian Medical Association Journal,115(8),749-752。
12.
Gagliardi, B. A.(1991)。The impact of Duchenne Muscular Dystrophy on families。Orthopaedic Nursing,10(5),41-49。
13.
Fowler, W. M., Jr.、Abresch, R. T.、Aitkens, S.、Carter, G. T.、Johnson, E. R.、Kilmer, D. M. D.、McCrory, M. A.、Wright, N. C.(1995)。Profiles of neuromuscular diseases: design of the protocol。American Journal of Physical Medicine & Rehabilitation,74(suppl.),S62-S69。
14.
Witte, R.(1985)。The psychosocial impact of a progressive physical handicap in terminal illness (Duchenne muscular dystrophy) on adolescents and their families。British Journal of Medical Psychology,58(2),179-187。
15.
Clubb, R. L.(1991)。Chronic sorrow: Adaptation patterns of parents with chronically ill children。Pediatric Nursing,17(5),461-466。
16.
Fitzpatrick, C.、Barry, C.、Garvey, C.(1986)。Psychiatric disorder among boys with Duchenne muscular dystrophy。Developmental Medicine & Child Neurology,28(5),589-595。
圖書
1.
肌原性肌肉萎縮症基金會(1990)。肌原性肌肉萎縮症。台北:肌原性肌肉萎縮症基金會。
延伸查詢
推文
當script無法執行時可按︰
推文
推薦
當script無法執行時可按︰
推薦
引用網址
當script無法執行時可按︰
引用網址
引用嵌入語法
當script無法執行時可按︰
引用嵌入語法
轉寄
當script無法執行時可按︰
轉寄
top
:::
相關期刊
相關論文
相關專書
相關著作
熱門點閱
1.
先天性腎上腺增生症患童父母之家庭經驗敘事
2.
唇顎裂兒童母親親職壓力之初探
3.
是「愛」亦是「礙」的照顧:兼論障礙社會模式
4.
罕見疾病家庭的壓力源:一項探索式的質化研究
5.
一位先天性膽道閉鎖患孩母親之壓力及因應行為
6.
遺傳諮詢的內容及影響諮詢滿意度的相關因子--以唐氏症為例
7.
「她是我一生的課題」:一位自閉症青年母親的養育經驗
8.
協助一位母親與唇顎裂兒建立親子依附關係的護理過程
9.
先天性缺陷兒母子互動關係與影響因素
10.
醫療決策分析:以唐氏症之診斷為例
11.
生育先天性缺陷兒對家庭的影響
12.
養育唐氏症兒對家庭的衝擊
1.
多向度家庭功能評估工具之發展及特殊需求學生家庭功能之研究
無相關書籍
無相關著作
無相關點閱
QR Code