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題名:罕見疾病家庭的壓力源:一項探索式的質化研究
書刊名:特殊教育研究學刊
作者:唐先梅 引用關係曾敏傑 引用關係
作者(外文):Tang, Shain-mayTseng, Min-chieh
出版日期:2008
卷期:33:2
頁次:頁47-70
主題關鍵詞:罕見疾病罕見疾病患者身心障礙者壓力Rare diseasesRare disordersThe disabledSources of stressFamily systems theoryDouble ABC-X model
原始連結:連回原系統網址new window
相關次數:
  • 被引用次數被引用次數:期刊(9) 博士論文(2) 專書(2) 專書論文(0)
  • 排除自我引用排除自我引用:9
  • 共同引用共同引用:98
  • 點閱點閱:122
期刊論文
1.黃璉華(19940900)。養育唐氏症兒對家庭的衝擊。護理研究,2(3),253-262。new window  延伸查詢new window
2.利翠珊(20050600)。身心障礙兒童家庭中夫妻的壓力、付出與恩情。中華心理衛生學刊,18(2),25-54。new window  延伸查詢new window
3.McKenry, P. C.、Price, S. J.(1994)。Families Coping with Problems and Change: A Conceptual Overview。Families and Change: Coping with Stressful Events,2,1-20。  new window
4.Hill, R.(1958)。Social stresses on the family-generic features of families under stress。Social Casework,39,139-150。  new window
5.徐畢卿(20020400)。智能障礙兒的婦女家庭照顧者--以自閉兒母親為例。護理雜誌,49(2),22-28。new window  延伸查詢new window
6.穆佩芬、馬鳳岐、顧小明、許洪坤、黃碧桃(20001000)。有罹患癌病兒童之家庭的壓力--對母親之衝擊。護理研究,8(5),568-578。new window  延伸查詢new window
7.許淑敏、邱啟潤(20031000)。家庭照顧者的壓力源與因應行為--以一個支持團體為例。護理雜誌,50(5),47-55。new window  延伸查詢new window
8.程子芸、陳月枝(19980600)。影響先天缺陷兒童母親在治療過程中壓力源與因應行為的因素。中臺學報,10,19-37。new window  延伸查詢new window
9.趙明玲、高淑芬、葉健全(19980600)。探討父母親照顧家中長期重度慢性疾病兒的感受。護理研究,6(3),219-230。new window  延伸查詢new window
10.Miles, M. S.、Funk, S. G.、Kasper, M. A.(1992)。The stress response of mothers and fathers of preterm infants。Research in Nursing & Health,15,261-269。  new window
11.王天苗(19960600)。臺灣地區心智發展障礙幼兒早期療育服務供需及相關問題之研究。特殊教育研究學刊,14,21-44。new window  延伸查詢new window
12.Clements, D. B.、Copeland, L. G.、Loftus, M.(1990)。Critical times for families with a chronically ill child。Pediatric Nursing,16(2),157-161。  new window
13.程子芸(19961200)。慢性病兒童家庭的適應。護理雜誌,43(4),49-53。new window  延伸查詢new window
14.程子芸(19941200)。一位生下先天缺陷兒的母親其壓力源及克服行為。護理雜誌,41(4),39-48。new window  延伸查詢new window
15.林金定、嚴嘉楓、陳美花(20050600)。質性研究方法:訪談模式與實施步驟分析。身心障礙研究,3(2),122-136。  延伸查詢new window
16.陳季員、鐘育志(20060600)。杜顯型肌肉失養症病童之父母面臨的壓力模式。護理雜誌,53(3),44-51。new window  延伸查詢new window
17.Faux, S. A.(1993)。Siblings of Children with Chronic Physical and Cognitive Disabilities。Journal of Pediatric Nursing,8,305-317。  new window
18.Feeman, D. J.、Hagen, J. W.(1990)。Effects of Childhood Chronic Illness on Families。Social Work in Health Care,14(3),37-53。  new window
19.嚴嘉楓、林金定、顏慶徽、李志偉、吳佳玲(2004)。智能障礙者人口學特徵與障礙成因初探:以臺灣官方身心障礙人口資料檔檔調查分析。臺灣家庭醫學雜誌,14,173-183。  延伸查詢new window
20.Sahler, O. J. Z.、Roghmann, K. J.、Carpenter, P. J.、Mulhern, R. K.、Dolgin, M. J.、Sargent, J. R.、Barbarin, O. A.、Copeland, D. R.、Zelter, L. K.(1994)。Sibling Adaptation to Childhood Cancer Collaborative Study: Prevalence of Sibling Distress and Definition of Adaptation Levels。Journal of Developmental and Behavioral Pediatrics,15,353-366。  new window
21.Dolgin, M. J.、Phipps, J.、Harow, E.(1990)。Parental Management of Fear in Chronically Ill and Healthy Children。Journal of Pediatric Psychology,15,733-744。  new window
22.Gil, K. M.、Williams, D. A.、Thompson, R. J.(1991)。Sickle Cell Disease in Children and Adolescents: The Relation of Child and Parent Pain Coping Strategies to Adjustment。Journal of Pediatric Psychology,16,643-663。  new window
23.Timko, C.、Stovel, K. W.、Moos, R. H.(1992)。Functioning among Mothers and Fathers of Children with Juvenile Rheumatic Disease: A Longitudinal Study。Journal of Pediatric Psychology,17,705-724。  new window
24.Walker, J. G.、Manion, I. G.、Cloutier, P. F.(1992)。Measuring Marital Distress in Couples with Chronically Ill Children: The Dyadic Adjustment Scale。Journal of Pediatric Psychology,17,345-357。  new window
25.Canning, R. D.、Harris, E. S.、Kelleher, K. J.(1996)。Factors Predicting Distress among Caregivers to Children with Chronic Medical Conditions。Journal of Pediatric Psychology,21,735-749。  new window
26.Hahn, B. A.、Schone, B. S.(1996)。Maternal Psychological Distress: The Role of Childre's Health。Women & Health,24,59-75。  new window
27.Eisdorfer, C.(1996)。Families in Distress: Caring is More Than Loving。Psychiatric Annals,26,285-288。  new window
28.Wood, B. L.(1993)。Beyond the "Psychosomatic Family": A Biobehavioral Family Model of Pediatric Illness。Family Process,32,261-278。  new window
29.Baldwin, K.、Brown, R. T.、Buchanan, I.、Doepke, K.、Eckman, J.、Goonan, B.、Kaslow, N. J.(1993)。Psychosocial and Family Functioning in Children with Sickle Cell Syndrome and Their Mothers。Journal of the American Academy of Child & Adolescent Psychiatry,32,545-553。  new window
30.Brown, R. T.、Eckman, J.、Sharpe, J. N.、Thompson, N. J.(1994)。Predictors of Coping with Pain in Mothers and Their Children with Sickle Cell Syndrome。Journal of the American Academy of Child & Adolescent Psychiatry,33,1246-1255。  new window
31.Weitzner, M. A.、Knutzen, R.(1998)。The Impact of Pituitary Disease on the Family Caregiver and Overall Family Functioning。Psychotherapy and Psychosomatics,67,181-188。  new window
32.王慧儀、張志仲(1996)。探討殘障兒童家屬執行居家治療計畫所面臨之問題。中華民國物理治療學會雜誌,21(4),215-222。  延伸查詢new window
33.Barlow, J. H.、Ellard, D. R.(2006)。The Psychosocial Well-being of Children with Chronic Disease, Their Parents and Siblings: An Overview of the Research Evidence Base。Child: Care, Health & Development,32(1),19-31。  new window
34.林綺華、蔡芸芳、陳月枝、黃美涓(2005)。腦性麻痺病童父母親之壓力。臺灣醫學,9(5),565-576。  延伸查詢new window
會議論文
1.Mey-Dan, M.、Lavee, Y.(1997)。When the Child Has Cancer: Effect of the Illness on the Parents' Marital Relationship。0。  new window
2.French, D. J.、Cotgreave, M. C. D.(1999)。The Contribution of Illness-related and Non-illness - Related Stress to the Psychological Adjustment of Children with Asthma。0。  new window
3.林志鴻、曾敏傑(2004)。罕見疾病病患長期照護體系探討。0。  延伸查詢new window
研究報告
1.周月清(1995)。殘障者及其家庭在家或社區照護需求之研究-「以家庭為中心」或「社區照顧」福利服務模式可行之探討。0。  延伸查詢new window
2.葉秀珍、曾敏傑、林志鴻(2002)。各國罕見疾病相關法案之比較研究。臺北。  延伸查詢new window
3.唐先梅(2002)。由倫理道德觀點探討罕見疾病個案(含遺傳性疾病)基因診斷的合宜性。臺中。  延伸查詢new window
學位論文
1.Bernstein, C.(1997)。Recurrent Loss and Grief in Families Coping with Childhood Chronic Illness: Stephen and His Family,Chicago, IL。  new window
圖書
1.周麗端、吳明燁、唐先梅、李淑娟(1999)。婚姻與家人關係。臺北市:國立空中大學。  延伸查詢new window
2.Nolan, M.、Grant, G.、Keady, J.(1996)。Understanding family care。Buckingham, England:Open University Press。  new window
3.Boss, P.(1988)。Family stress management。Newbury Park, CA。  new window
4.Morgan, David L.(1988)。Focus Groups as Qualitative Research。Sage Publications。  new window
5.Day, R. D.(1995)。Family-systems Theory。Research and Theory in Family Science。Pacific Grove, CA。  new window
6.Seligman, M.、Darling, R. B.(1989)。Ordinary Families, Special Children - A Systems Approach to Childhood Disability。Ordinary Families, Special Children - A Systems Approach to Childhood Disability。New York, NY。  new window
7.McCubbin, H. I.、Patterson, J.、Wilson, L.(1981)。Family Inventory of Life Events and Changes (FILE): Research Instrument。Family Inventory of Life Events and Changes (FILE): Research Instrument。St. Paul, MN。  new window
8.行政院衛生署國民健康局婦幼組(2004)。罕見先天性代謝疾病通報與成果。代謝性疾病:臺灣經驗。臺中。  延伸查詢new window
9.趙美琴(2004)。遺傳性代謝疾病的一般治療原則。代謝性疾病:臺灣經驗。臺中。  延伸查詢new window
10.(2004)。代謝性疾病:臺灣經驗。代謝性疾病:臺灣經驗。臺中。  延伸查詢new window
圖書論文
1.Olson, D. H.(1993)。Circumplex model of marital and family systems: assessing family functioning。Normal family processes。Guilford Press。  new window
2.胡幼慧(1996)。質性研究的分析與寫成。質性研究:理論、方法及本土女性研究實例。臺北:巨流。  延伸查詢new window
3.胡幼慧、姚美華(1996)。一些質性方法上的思考:信度與效度?如何抽樣?如何收集資料、登錄與分析?。質性研究:理論、方法及本土女性研究實例。巨流圖書股份有限公司。  延伸查詢new window
 
 
 
 
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