臺灣人文及社會科學引文索引資料庫系統

:::

詳目顯示

回上一頁
第 1 筆 / 總合 1 筆   第一頁 上一頁 下一頁 最後一頁
/1頁
題名：父母或主要照顧者參與智能障礙子女未來照護規劃之調查研究
書刊名：特殊教育研究學刊
作者：陳淑瑜 引用關係
作者(外文)：Chen, Shu-yu
出版日期：2003
卷期：25
頁次：頁85-106
主題關鍵詞：智能障礙；未來照護規劃；家庭；父母；非障礙手足；轉銜；Mental retardation；Future planning；Family；Parents；Siblings；Transition
原始連結：連回原系統網址new window
相關次數：
  • 被引用次數被引用次數:期刊(14) 博士論文(3) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:14
  • 共同引用共同引用:18
  • 點閱點閱:155
　　　　　本研究旨在調查父母或主要照顧者對智能障礙子女目前及未來之居所、經濟和監護權的安排，以及社會支持的期望。研究資料的蒐集採用研究者自編設計之「長程規劃問卷調查表」。參與本研究的主要照顧者共計207位，其中包括父母、非障礙手足或祖父母、親戚等延伸家庭成員。參與者之智能障礙子女年齡介與12至29歲之間，而且研究調查期間與參與者同住。 本研究結果顯示，已為智障子女做好未來照顧規劃的父母或主要照顧者不及參與者的二分之一。大部份的照顧者對目前的居所安置感到滿意，並傾向於未來讓子女維持現有的安置方式。但多數的照顧者也表示憂慮目前的經濟匱乏狀況，但卻只有不及三分之一的家庭曾獲得經濟援助。超過三分之一的家庭沒有獲得社會性支持，而且家庭獲得社會性支持與否與規劃未來的照顧安排並沒有顯著關係。 多數的父母或主要照顧者偏好由非障礙手足擔負智障子女未來照顧的責任，但這有約一半的父母或主要照顧者曾和家庭成員討論過未來照護的安排。非障礙手足的需求需要專業人員的重視並提供相關的資訊。此外，研究也發現，背景因素與未來的安置計畫有所關聯。研究結果也強調提早進行轉銜計畫、促進有效的家庭溝通、以及加強障礙與非障礙手足之間的關係之重要性。
　　　　　 The purpose of current study was to investigate the primary caregivers expectations of current and future residential, financial, and legal arrangements as sell as social support for their children with mental retardation. The Long-Term Planning Questionnaire (LTPQ), was used to collect data in Kaohsing City, Taiwan. Participants (N=207) were primary caregivers including parents, siblings, or other extended family members. Their children with mental retardation were between the ages of 12 and 29 years old and living at home at the time of investigation. The findings indicated that less than half of the primary caregivers had made future plans for their children with mental retardation. The majority of caregivers were satisfied with their current living arrangements and intended to maintain their children in their current placement in future. Most caregivers reported concern about their financial insufficiency; but less than one-third of respondents actually received outside financial aid. There are more than one-third of families received no social support nor was there a significant relationship between social support and any future arrangements. Most primary caregivers preferred a sibling to be the future caregiver for their children with mental retardation. However, only approximately half of the primary caregivers had discussed with their family about future arrangements. Professionals must provide resources available to prepare siblings for their roles. In addition, demographic characteristics were found to be associated with future arrangements. The results also highlighted the importance of early transition planning, family communication, and sibling relationships.
期刊論文
1.Heller, T.、Factor, A.(1991)。Permanency planning for adults with mental retardation living with family caregivers。American Journal on Mental Retardation，96(2)，163-176。  new window
2.Sherman, B. R.(1988)。Predictors of the Decision to Place Developmentally Disabled Family Members in Residential Care。American Journal on Mental Retardation，92(4)，344-351。  new window
3.Hughes, C.、Eisenman, L. T.、Hwang, B.、Kim, J. H.、Killian, D. J.、Scott, S. V.(1997)。Transition from secondary special education to adult life: A review and analysis of empirical measures。Education and Training in Mental Retardation and Development Disabilities，32(2)，85-104。  new window
4.Halpern, A. S.(1994)。The Transition of Youth with Disabilities to Adult Life: A Position Statement of the Division on Career Development and Transition, The Council for Exceptional Children。Career Development for Exceptional Individuals，17(2)，115-124。  new window
5.周月清(19960600)。成年心智障礙者對家庭的影響與未來安置模式選擇因素探討。特殊教育研究學刊，14，45-66。new window  延伸查詢new window
6.Bigby, C.(1996)。Transferring responsibility: The nature and effectiveness of parental planning for the future of adults with intellectual disability who remain at home until mid-life。Journal of Intellectual and Developmental Disability，21(4)，295-312。  new window
7.Brotherson, M. J.、Turnbull, A. P.、Bronicki, G. J.、Houghton, J.、Roeder-Gordon, C.、Summers, J. A.、Turnbull, H. R. III(1988)。Transition into adulthood: Parental planning for sons and daughters with disabilities。Education and Training in Mental Retardation，23，165-174。  new window
8.Cole, D. A.、Meyer, L. H.(1989)。Impact of needs and resources on family plans to seek out-of-home placement。American Journal on Mental Retardation，93，380-387。  new window
9.Cramer, S.、Erzkus, A.、Mayweather, K.、Pope, K.、Roeder, J.、Tone, T.(1997)。Connecting with siblings。Teaching Exceptional Children，30(1)，46-51。  new window
10.Engelhardt, J. L.、Brubaker, T. H.、Lutzer, V. D.(1988)。Older caregivers of adults with mental retardation: Service utilization。Mental Retardation，26，191-195。  new window
11.Griffiths, D. L.、Unger, D. G.(1994)。Views about planning for the future among parents and siblings of adults with mental retardation。Family Relations，43(2)，221-227。  new window
12.Heller, T.、Factor, A.(1988)。Permanency planning among black and white family caregivers of older adults with mental retardation。Mental Retardation，26，203-208。  new window
13.Kaufman, A. V.、Adams, J. P., Jr.、Campbell, V. A.(1991)。Permanency planning by older parents who care for adult children with mental retardation。Mental Retardation，29，293-300。  new window
14.McDonnell, J.、Wilcox, B.、Boles, S.(1986)。Do we know enough to plan for transition? National survey of state agencies responsible for services to persons with severe handicaps。Journal of the Association for Persons with Severe Handicaps，11，53-60。  new window
15.Smith, G. C.、Tobin, S. S.(1993)。Practice with older parents of developmentally disabled adults。Clinical Gerontologist，14，59-77。  new window
16.Suelzle, M.、Keenan, V.(1981)。Changes in family support networks over the life cycles of mentally retarded persons。American Journal of Mental Deficiency，86，267-274。  new window
17.Thorin, E.、Yovanoff, P.、Irvin, L.(1996)。Dilemmas faced by families during their young adults transitions to adulthood: A brief report。Mental Retardation，34，117-120。  new window
18.Vadasy, P. F.、Fewell, R. R.、Greenberg, M. T.、Dermond, N. L.、Meyer, D. J.(1986)。Follow-up evaluation of the effects of involvement in the fathers programs。Topics in Early Childhood Special Education，6，16-31。  new window
19.Wehman, P.、Revell, W. G.(1997)。Transition into supported employment for young adults with severe disabilities: Current practices and future directions。Journal of Vocational Rehabilitation，8，65-74。  new window
20.Zetlin, A. G.、Turner, J. L.(1985)。Transition from adolescence to adulthood: Perspectives of mentally retarded individuals and their families。American Journal of Mental Deficiency，89(6)，570-579。  new window
研究報告
1.行政院經濟建設委員會(1996)。中華民國臺灣地區民國84年至125年人口推計。臺北：行政院經濟建設委員會。  延伸查詢new window
2.內政部統計處(2000)。中華民國八十九年臺閩地區身心障礙者生活需求調查報告。臺北：內政部統計處。  延伸查詢new window
學位論文
1.張淑真(2000)。多重障礙者家庭照顧歷程之探討--以台北市接受在家巡迴教育者為例(碩士論文)。國立臺灣大學。  延伸查詢new window
圖書
1.Seltzer, M. M.、Krauss, M. W.(1994)。Aging Parents With Coresident Adult Children: The Impact of Lifelong Caregiving。Life Course Perspectives on Adulthood and Old Age。Washington, DC：AAMR。  new window
2.DHSS(1981)。Growing Older。London：HMSO。  new window
3.Turnbull, Ann P.、Turnbull, H. Rutherford(1997)。Families, professionals, and exceptionality: A special partnership。Upper Saddle River, NJ：Prentice-Hall, Inc。  new window
4.Will, M. C.(1984)。OSERS programming for the transition of youth with disabilities: Bridges from school to working life。OSERS programming for the transition of youth with disabilities: Bridges from school to working life。Washington, DC：Office of Special Education and Rehabilitative Service, U. S. Department of Education。  new window
5.Berry, J. O.、Hardman, M. L.(1998)。Lifespan perspectives on the family and disability。Lifespan perspectives on the family and disability。Boston, MA。  new window
6.Clees, T. J.(1996)。Supported living and collaborative transition。Mental retardation and developmental disabilities。Austin, TX。  new window
7.Dobroff, R.(1985)。Some observations from the field of aging。Aging and developmental disabilities: Issues and approaches。Baltimore, MD。  new window
8.Eyman, R.、Borthwick-Duffy, S.(1994)。Trends in mortality rates and predictos of mortality。Life course perspectives on adulthood and old age。Washington, DC。  new window
9.Fujiura, G. T.、Braddock, D.(1992)。Fiscal and demographic trends in mental retardation services: The emergence of the family。Mental retardation in the year 2000。New York, NY。  new window
10.Heller, T.、Factor, A.(1994)。Facilitating future planning and transitions out of the home。Life course perspectives on adulthood and old age。Washington, DC。  new window
11.Paul, J. L.、Porter, P. B.、Falk, G. D.(1993)。Families of children with disabling conditions。Children with special needs: Family, culture, and society。Fort Worth, TX。  new window
12.Seltzer, G. B.、Begun, A.、Magan, R.、Luchterhand, C.(1993)。Social supports and expectations of family involvement after out of home placement。Older adults with developmental disabilities: Optimising choice and change。Baltimore, MD。  new window
13.Smith, G. C.(1995)。Preventive approaches to building competencies。Strengthening aging families: Diversity in practice and policy。Newbury Park, CA。  new window
14.Turnbull, A. P.、Summers, J. A..、Brotherson, M. J.(1984)。Working with families with disabled members: A family systems approach。Lawrence, KS：Kansas University Affiliated Facility, University of Kansas。  new window
其他
1.內政部統計處(1996)。中華民國八十三年臺閩地區殘障者生活狀況調查報告，臺北市：內政部。  延伸查詢new window
2.內政部統計處(2002)。中華民國九十一年內政統計年報臺閩地區身心障礙人數按年齡或等級分，臺北。  延伸查詢new window
3.Chen, S. Y.(2000)。The impact of sibling relationships on parental and nondisabled siblings' expectations of long-term planning for children with mental retardation，沒有紀錄。  new window
 
 
 
 
第一頁 上一頁 下一頁 最後一頁 top
:::
無相關著作
 
QR Code
QRCODE

臺灣人文及社會科學引文索引資料庫

目前上線人數：465（臺灣：448，外國：17） ／ 本年度總使用人次：1614293 ／ 訪客人次（自102年09月）：67418581
國家圖書館著作權聲明 Copyright © 2013 All rights reserved.
本館地址: 100201臺北市中山南路20號． 本館地圖及交通資訊．
總機：(02)23619132．最佳瀏覽解析度為1024x768以上