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題名:推動預立醫療自主計畫之宣導--初探
書刊名:安寧療護
作者:王淑貞范聖育章淑娟 引用關係張智容王英偉
作者(外文):Wang, Shu-chenFan, Sheng-yuChang, Shu-chuanChang, Chih-jungWang, Ying-wei
出版日期:2013
卷期:18:2
頁次:頁129-141
主題關鍵詞:安寧緩和療護預立醫療自主計畫社區志工Hospice and palliative careAdvance care planningCommunityVolunteer
原始連結:連回原系統網址new window
相關次數:
  • 被引用次數被引用次數:期刊(3) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:3
  • 共同引用共同引用:45
  • 點閱點閱:72
背景:安寧緩和療護在台灣已推動超過20年,並於2009年服務範圍從癌症病人擴展至非癌症病人。安寧緩和醫療條例明訂末期病人可拒絕接受心肺復甦術,而預立醫療自主計畫可讓民眾及早表達意願以達善終。研究目的:本研究目的在探討醫院志工對於生命末期照護與預立醫療自主計畫的看法。材料與方法:橫斷式調查研究,以不記名問卷調查384位志工,對於預立醫囑的看法。依據專家設計「預立醫療自主計畫」手冊,以五次焦點團體訪談10位醫院志工,訪談預立醫囑及手冊內容,作為未來預立醫療自主宣導活動之參考。結果與結論:22.7%的志工已簽署安寧緩和醫療意願書。簽署的主要原因包括:能有尊嚴的離開人間、不要浪費醫療資源、以及不要拖累家人。好處有:讓病人有心理準備、瞭解病人的想法、以及彼此溝通、心靈交流。討論預立醫囑的困難有:病人拒談、不知如何開啟話題、缺乏討論技巧、以及擔心病人負面的情緒。未來可針對討論的好處與困難設計相關介入方案以提升討論意願與簽署比率。
Background: The hospice and palliative care movement in Taiwan is more than 20 years, and in recent years it has been spread out from cancer to non-cancer disease. The Hospice Palliative Care Act defines people have right to reject cardiopulmonary resuscitation, and the promotion of advanced care planning (ACP) in the general population becomes important for achieving good death. Purpose: The purpose of this study was to understand the point of view and belief of volunteers about the end of life care and ACP at four counties in Taiwan. Material and Method: A cross-sectional anonymous survey was conducted for the volunteer in the community. There were total of 384 participants in the study. Data were analyzed by descriptive statistics. In addition, five focus group interviews (n=10) were used to explore the contents and process of ACP discussions. Results and Discussion: There was 22.7.0% of the participants who had completed the advance directive document, and the major reasons were death with dignity, do not want to waste medical resources, and reducing burden on family. Benefits from ACP were to prepare in advance, understand the patient's preferences for treatment, and communicate with others be loved. Barrier about ACP discussion were that patients refuse to talk; family do not know how to open this topic, lack of communication skills, and worried patients' negative emotion. It is necessary to develop effective educational material and interventional program for facilitating the ACP discussion.
期刊論文
1.Sanders, C.、Seymour, J.、Clarke, A.、Gott, M.、Welton, M.(2006)。Development of a peer education programme for advance end-of-life care planning。Intern J Palliat Nurs,12(5),214-223。  new window
2.林慧美、楊嘉玲、陳美妙、邱泰源、胡文郁(20111100)。住院病人簽署預立醫療指示的意願及接受宣導的意向。安寧療護,16(3),281-295。new window  延伸查詢new window
3.Kwak, J.、Salmon, J. R.(2007)。Attitudes and preferences of Korean-American older adults and caregivers on end-of-life care。J Am Geriatr Soc,55(11),1867-1872。  new window
4.Heyman, J. C.、Gutheil, I. A.(2010)。Older Latinos’ attitudes toward and comfort with end-of-life planning。Heal Soc Work,35(1),17-26。  new window
5.Kelley, A. S.、Wenger, N. S.、Sarkisian, C. A.(2010)。Opiniones: End-of-life care preferences and planning of older Latinos。J Am Geriatr Soc,58(6),1109-1116。  new window
6.Fried, T. R.、Bullock, K.、Iannone, L.、O'Leary, J. R.(2009)。Understanding advance care planning as a process of health behavior change。Journal of the American Geriatrics Society,57(9),1547-1555。  new window
7.Chan, H. Y. L.、Pang, S. M. C.(2011)。Readiness of Chinese frail old age home residents towards end-of-life care decision making。J Clin Nurs,21(11),1454-1461。  new window
8.張淑真、董和銳(20100600)。中部某榮家住民對使用維生治療之態度及其相關因素探討。臺灣老人保健學刊,6(1),77-94。new window  延伸查詢new window
9.Fried, T. R.、Redding, C. A.、Robbins, M. L.、O’Leary, J. R.、Iannone, L.(2011)。Agreement between older persons and their surrogate decision-makers regarding participation in advance care planning。J Am Geriatr Soc,59(6),1105-1109。  new window
10.Chan, H. Y. L.、Pang, S. M. C.(2010)。Let me talk--An advance care planning programme for frail nursing home residents。J Clin Nurs,19(5),3073-3084。  new window
11.Jeong, S. Y.、Higgins, I.、McMillan, M.(2010)。The essential of advance care planning for end-of-life care for older people。J Clin Nurs,19,389-397。  new window
12.Sudore, R. L.、Schickedanz, A. D.、Landefeld, C. S.(2008)。Engagement in multiple steps of the advance care planning process: A descriptive study of diverse old adults。J Am Geriatr Soc,56(6),1006-1013。  new window
13.趙可式(20090200)。臺灣安寧療護的發展與前瞻。護理雜誌,56(1),5-10。new window  延伸查詢new window
圖書
1.內政部統計處。內政部統計年報。  延伸查詢new window
2.Pearlman, R.、Starks, H.、Cain, K.、Cole, W.、Rosengren, D.、Patrick, D.(2010)。Your Life, Your Choices: Planning for future medical decisions: How to prepare a personalized living will。DIANE Publishing。  new window
其他
1.行政院衛生署。衛生統計系列(一)死因統計上卷--100年度死因統計電子書,http://www.doh.gov.tw/CHT2006/DM/DM22. aspx?now_fod-list -no=12743&class_no=440&level_no=4, 2013/01/07。  延伸查詢new window
2.National Institutes of Health。National Institute on Aging,http://www.nia.nih.gov/health/publication/advance-care-planning, 2013/01/07。  new window
3.行政院衛生署。衛生法規資料檢索系統--安寧緩和醫療條例,http://dohlaw.doh.gov.tw/Chi/FLAW/FLAWDAT0202.asp, 2012/12/30。  延伸查詢new window
4.行政院衛生署。衛生署RSS焦點新聞,http://www.doh.gov. tw/CHT2006/DM/DM2_p01.aspx?class no=25& now-fod_list_no=12326&level_no=2&doc_ no=87171, 2013/01/07。  new window
5.Royal College of Physicians。Concise guidance to good practice--Advance care planning,http://www.rcplondon.ac.uk, 2013/01/07。  new window
6.Aging with dignity。Five wishes,http://www.agingwithdignity.org/five-wishes.php, 2010/08/20。  new window
 
 
 
 
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