| 期刊論文1. | Wolf, Leslie E.(2010)。Advancing research on stored biological materials: reconciling law, ethics and practice。Minnesota Journal of Law, Science & Technology,11(1)。 | 2. | Greely, Henry T.(1999)。Breaking the Stalemate: A Prospective Regulatory Framework for Unforeseen Research Uses of Human Tissue Samples and Health Information。Wake Forest Law Review,34,737-766。 | 3. | Tene, Omer、Polonetsky, Jules(2013)。Big Data for All: Privacy and User Control in the Age of Analytics。Northwestern Journal of Technology and Intellectual Property,11(5),239-274。 | 4. | Richards, Neil M.、King, Jonathan H.(2013)。Three Paradoxes of Big Data。Stanford Law Review Online,66,41-46。 | 5. | Ohm, Paul(2010)。Broken Promises of Privacy: Responding to the Surprising Failure of Anonymization。UCLA L. REV.,57,1701-1777。 | 6. | Solove, Daniel J.(2001)。Privacy and Power: Computer Databases and Metaphors for Information Privacy。Stanford Law Review,53,1393-1462。 | 7. | 劉宏恩(20040600)。冰島設立全民醫療及基因資料庫之法律政策評析--論其經驗及爭議對我國之啟示。臺北大學法學論叢,54,41-43+45-99。 延伸查詢 | 8. | Gymrek, Melissa(2013)。Identifying Personal Genomes by Surname Inference。SCI,339。 | 9. | Drabiak-Syed, Katherine(2011)。Legal Regulation of Biobanking Newborn Blood Spots for Research: How Bearder and Beleno Resolved the Question of Consent。HOUS. J. HEALTH L. & POL'Y,11。 | 10. | Dwork, Cynthia、Mulligan, Deirdre K.(2013)。It's Not Privacy, and It's Not Fair。STAN. L. REV. ONLINE,66。 | 11. | O'Neill, Onora(2001)。Informed Consent and Genetic Information。STUD. HIST. PHIL. BIOL. & BIOMED. SCI.,32(4)。 | 12. | Lagos, Yianni、Polonetsky, Jules(2013)。Public v. Nonpublic Data: the Benefits of Administrative Controls。STAN L. REV. ONLINE,66。 | 13. | Jerome, Joseph W.(2013)。Buying and Selling Privacy: Big Data's Different Burdens and Benefits。STAN. L. REV. ONLINE,66。 | 14. | Winickoff, David E.(2007)。Partnership in U.K. Biobank: A Third Way for Genomic Property?。J. L. MED. & ETHICS,35,440-456。 | 圖書1. | Kaye, Jane(2012)。Governing Biobanks: Understanding the Interplay between Law and Practice。 | 2. | Beauchamp, Tom L.、Childress, James F.(2012)。Principles of biomedical ethics。 | 其他1. | 王超群,李宗祐,邱俊吉(20060123)。找20萬人採血 中研院基因庫探隱私,http://www.nbic.org.tw/newsDetail.aspx?NEWS_ID=210。 延伸查詢 | 2. | 楊仁煌(20060126)。我的基因 你的研究,http://talk.ltn.com.tw/article/paper/55064。 延伸查詢 | 3. | 邱伊翎(20121107)。超越隱私權爭議的全國基因資料庫,http://pnn.pts.org.tw/main/2012/11/07/超越隱私權爭議的全國基因資料庫。 延伸查詢 | 4. | (20130917)。超級健康雲 要幫健保省千億。 延伸查詢 | 5. | (20140911)。衛福部否認『超級健康雲』計畫 台聯批說謊。 延伸查詢 | 6. | 劉靜怡(20130920)。病態健康雲 將監控全民。 延伸查詢 | 7. | PRESIDENTIAL COMM'N FOR THE STUDY OF BIOETHICAL ISSUE(2012)。PRIVACY AND PROGRESS IN WHOLE GENOME SEQUENCING,http://bioethics.gov/cms/node/764。 | 8. | (20140206)。CLIA Program and HIPAA Privacy Rule: Patients' Access to Test Reports,http://www.regulations.gov/#!documentDetail;D=CMS_FRDOC_0001-1397,(79 FR 7290-01)。 | 9. | PRESIDENTIAL COMM'N FOR THE STUDY OF BIOETHICAL ISSUES(2013)。ANTICIPATE AND COMMUNICATE: ETHICAL MANAGEMENT OF INCIDENTAL AND SECONDARY FINDINGS IN THE CLINICAL, RESEARCH, AND DIRECT-TO-CONSUMER CONTEXTS,http://bioethics.gov/sites/default/files/FINALAnticipateCommunicate_PCSBI_0.pdf。 | 10. | Sorrell v. IMS Health Inc.(20090915)。Brief of amicus curiae Electronic Privacy Information Center (EPIC) in support of Appellee and urging affirmance,http://epic.org/privacy/ims_sorrell/epic_amicus.pdf。 | 11. | (2007)。UK Biobank Ethics and Governance Framework,https://www.ukbiobank.ac.uk/wp-content/uploads/2011/05/EGF20082.pdf。 | 12. | NATIONAL INSTITUTES OF HEALTH(2004)。ICELAND'S RESEARCH RESOURCES: THE HEALTH SECTOR DATABASE, GENEALOGY DATABASES, AND BIOBANKS,http://grants.nih.gov/grants/icelandic_research.pdf。 | 13. | NAT'L BIOETHICS ADVISORY COMM'N(1999)。RESEARCH INVOLVING HUMAN BIOLOGICAL MATERIALS: ETHICAL ISSUES AND POLICY GUIDANCE,https://bioethicsarchive.georgetown.edu/nbac/hbm.pdf。 | 14. | PRESIDENTIAL COMM'N FOR THE STUDY OF BIOETHICAL ISSUES(20101216)。NEW DIRECTIONS: THE ETHICS OF SYNTHETIC BIOLOGY AND EMERGING TECHNOLOGIES,http://bioethics.gov/cms/synthetic-biology-report。 | 15. | PRESIDENTIAL COMM'N FOR THE STUDY OF BIOETHICAL ISSUES(20150309)。GRAY MATTERS: TOPICS AT THE INTERSECTION OF NEUROSCIENCE, ETHICS, AND SOCIETY,http://bioethics.gov/sites/default/files/GrayMatter_V2_508.pdf。 | 16. | OHRP(20081016)。Guidance on Research Involving Coded Private Information or Biological Specimens,http://www.hhs.gov/ohrp/policv/cdebiol.html。 | 圖書論文1. | Nordal, Salvor(2007)。Privacy。THE ETHICS AND GOVERNANCE OF HUMAN GENETIC DATABASES: EUROPEAN PERSPECTIVES。 | 2. | Peel, Deborah C.(2013)。An Implementation Path to Meet Patients' Expectations and Rights to Privacy and Consent。INFORMATION PRIVACY IN THE EVOLVING HEALTHCARE ENVIRONMENT。 | 3. | Knoppers, Bartha Maria、Abdul-Rahman, Ma'n H.(2008)。Biobanks in the Literature。ETHICAL ISSUES IN GOVERNING BIOBANKS: GLOBAL PERSPECTIVES。 | 4. | Skene, Loane(2009)。Feeding back Significant Findings to Participants and Relatives。PRINCIPLES AND PRACTICE IN BIOBANK GOVERNANCE。 | 5. | Elger, Bernice(2008)。Consent and Use of Samples。ETHICAL ISSUES IN GOVERNING BIOBANKS: GLOBAL PERSPECTIVES。 | 6. | Kristinsson, Sigurdur、Arnason, Vilhjalmur(2007)。Informed Consent and Human Genetic Database Research。THE ETHICS AND GOVERNANCE OF HUMAN GENETIC DATABASES: EUROPEAN PERSPECTIVES。 | 7. | Gottweis, Herberet、Petersen, Alan(2008)。Biobanks and Governance: an Introduction。BIOBANKS: GOVERNANCE IN COMPARATIVE PERSPECTIVE。 | 8. | Oonagh Corrigan、Petersen, Alan(2008)。UK Biobank: Bioethics as a Technology of Governance。Biobanks: Governance in Comparative Perspective。 | |