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題名:人體生物資料庫之隱私權爭議:美國法的啟示
書刊名:法律與生命科學
作者:張兆恬
出版日期:2016
卷期:5:1
頁次:頁29-46
主題關鍵詞:人體生物資料庫資訊隱私資訊自決告知同意去識別化個人資料保護法人體生物資料庫管理條例
原始連結:連回原系統網址new window
相關次數:
  • 被引用次數被引用次數:期刊(3) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:2
  • 共同引用共同引用:32
  • 點閱點閱:1
期刊論文
1.Wolf, Leslie E.(2010)。Advancing research on stored biological materials: reconciling law, ethics and practice。Minnesota Journal of Law, Science & Technology,11(1)。  new window
2.Greely, Henry T.(1999)。Breaking the Stalemate: A Prospective Regulatory Framework for Unforeseen Research Uses of Human Tissue Samples and Health Information。Wake Forest Law Review,34,737-766。  new window
3.Tene, Omer、Polonetsky, Jules(2013)。Big Data for All: Privacy and User Control in the Age of Analytics。Northwestern Journal of Technology and Intellectual Property,11(5),239-274。  new window
4.Richards, Neil M.、King, Jonathan H.(2013)。Three Paradoxes of Big Data。Stanford Law Review Online,66,41-46。  new window
5.Ohm, Paul(2010)。Broken Promises of Privacy: Responding to the Surprising Failure of Anonymization。UCLA L. REV.,57,1701-1777。  new window
6.Solove, Daniel J.(2001)。Privacy and Power: Computer Databases and Metaphors for Information Privacy。Stanford Law Review,53,1393-1462。  new window
7.劉宏恩(20040600)。冰島設立全民醫療及基因資料庫之法律政策評析--論其經驗及爭議對我國之啟示。臺北大學法學論叢,54,41-43+45-99。new window  延伸查詢new window
8.Gymrek, Melissa(2013)。Identifying Personal Genomes by Surname Inference。SCI,339。  new window
9.Drabiak-Syed, Katherine(2011)。Legal Regulation of Biobanking Newborn Blood Spots for Research: How Bearder and Beleno Resolved the Question of Consent。HOUS. J. HEALTH L. & POL'Y,11。  new window
10.Dwork, Cynthia、Mulligan, Deirdre K.(2013)。It's Not Privacy, and It's Not Fair。STAN. L. REV. ONLINE,66。  new window
11.O'Neill, Onora(2001)。Informed Consent and Genetic Information。STUD. HIST. PHIL. BIOL. & BIOMED. SCI.,32(4)。  new window
12.Lagos, Yianni、Polonetsky, Jules(2013)。Public v. Nonpublic Data: the Benefits of Administrative Controls。STAN L. REV. ONLINE,66。  new window
13.Jerome, Joseph W.(2013)。Buying and Selling Privacy: Big Data's Different Burdens and Benefits。STAN. L. REV. ONLINE,66。  new window
14.Winickoff, David E.(2007)。Partnership in U.K. Biobank: A Third Way for Genomic Property?。J. L. MED. & ETHICS,35,440-456。  new window
圖書
1.Kaye, Jane(2012)。Governing Biobanks: Understanding the Interplay between Law and Practice。  new window
2.Beauchamp, Tom L.、Childress, James F.(2012)。Principles of biomedical ethics。  new window
其他
1.王超群,李宗祐,邱俊吉(20060123)。找20萬人採血 中研院基因庫探隱私,http://www.nbic.org.tw/newsDetail.aspx?NEWS_ID=210。  延伸查詢new window
2.楊仁煌(20060126)。我的基因 你的研究,http://talk.ltn.com.tw/article/paper/55064。  延伸查詢new window
3.邱伊翎(20121107)。超越隱私權爭議的全國基因資料庫,http://pnn.pts.org.tw/main/2012/11/07/超越隱私權爭議的全國基因資料庫。  延伸查詢new window
4.(20130917)。超級健康雲 要幫健保省千億。  延伸查詢new window
5.(20140911)。衛福部否認『超級健康雲』計畫 台聯批說謊。  延伸查詢new window
6.劉靜怡(20130920)。病態健康雲 將監控全民。  延伸查詢new window
7.PRESIDENTIAL COMM'N FOR THE STUDY OF BIOETHICAL ISSUE(2012)。PRIVACY AND PROGRESS IN WHOLE GENOME SEQUENCING,http://bioethics.gov/cms/node/764。  new window
8.(20140206)。CLIA Program and HIPAA Privacy Rule: Patients' Access to Test Reports,http://www.regulations.gov/#!documentDetail;D=CMS_FRDOC_0001-1397,(79 FR 7290-01)。  new window
9.PRESIDENTIAL COMM'N FOR THE STUDY OF BIOETHICAL ISSUES(2013)。ANTICIPATE AND COMMUNICATE: ETHICAL MANAGEMENT OF INCIDENTAL AND SECONDARY FINDINGS IN THE CLINICAL, RESEARCH, AND DIRECT-TO-CONSUMER CONTEXTS,http://bioethics.gov/sites/default/files/FINALAnticipateCommunicate_PCSBI_0.pdf。  new window
10.Sorrell v. IMS Health Inc.(20090915)。Brief of amicus curiae Electronic Privacy Information Center (EPIC) in support of Appellee and urging affirmance,http://epic.org/privacy/ims_sorrell/epic_amicus.pdf。  new window
11.(2007)。UK Biobank Ethics and Governance Framework,https://www.ukbiobank.ac.uk/wp-content/uploads/2011/05/EGF20082.pdf。  new window
12.NATIONAL INSTITUTES OF HEALTH(2004)。ICELAND'S RESEARCH RESOURCES: THE HEALTH SECTOR DATABASE, GENEALOGY DATABASES, AND BIOBANKS,http://grants.nih.gov/grants/icelandic_research.pdf。  new window
13.NAT'L BIOETHICS ADVISORY COMM'N(1999)。RESEARCH INVOLVING HUMAN BIOLOGICAL MATERIALS: ETHICAL ISSUES AND POLICY GUIDANCE,https://bioethicsarchive.georgetown.edu/nbac/hbm.pdf。  new window
14.PRESIDENTIAL COMM'N FOR THE STUDY OF BIOETHICAL ISSUES(20101216)。NEW DIRECTIONS: THE ETHICS OF SYNTHETIC BIOLOGY AND EMERGING TECHNOLOGIES,http://bioethics.gov/cms/synthetic-biology-report。  new window
15.PRESIDENTIAL COMM'N FOR THE STUDY OF BIOETHICAL ISSUES(20150309)。GRAY MATTERS: TOPICS AT THE INTERSECTION OF NEUROSCIENCE, ETHICS, AND SOCIETY,http://bioethics.gov/sites/default/files/GrayMatter_V2_508.pdf。  new window
16.OHRP(20081016)。Guidance on Research Involving Coded Private Information or Biological Specimens,http://www.hhs.gov/ohrp/policv/cdebiol.html。  new window
圖書論文
1.Nordal, Salvor(2007)。Privacy。THE ETHICS AND GOVERNANCE OF HUMAN GENETIC DATABASES: EUROPEAN PERSPECTIVES。  new window
2.Peel, Deborah C.(2013)。An Implementation Path to Meet Patients' Expectations and Rights to Privacy and Consent。INFORMATION PRIVACY IN THE EVOLVING HEALTHCARE ENVIRONMENT。  new window
3.Knoppers, Bartha Maria、Abdul-Rahman, Ma'n H.(2008)。Biobanks in the Literature。ETHICAL ISSUES IN GOVERNING BIOBANKS: GLOBAL PERSPECTIVES。  new window
4.Skene, Loane(2009)。Feeding back Significant Findings to Participants and Relatives。PRINCIPLES AND PRACTICE IN BIOBANK GOVERNANCE。  new window
5.Elger, Bernice(2008)。Consent and Use of Samples。ETHICAL ISSUES IN GOVERNING BIOBANKS: GLOBAL PERSPECTIVES。  new window
6.Kristinsson, Sigurdur、Arnason, Vilhjalmur(2007)。Informed Consent and Human Genetic Database Research。THE ETHICS AND GOVERNANCE OF HUMAN GENETIC DATABASES: EUROPEAN PERSPECTIVES。  new window
7.Gottweis, Herberet、Petersen, Alan(2008)。Biobanks and Governance: an Introduction。BIOBANKS: GOVERNANCE IN COMPARATIVE PERSPECTIVE。  new window
8.Oonagh Corrigan、Petersen, Alan(2008)。UK Biobank: Bioethics as a Technology of Governance。Biobanks: Governance in Comparative Perspective。  new window
 
 
 
 
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