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題名：心智障礙者自我倡導團體的發展--八個單位比較
書刊名：東吳社會工作學報
作者：王育瑜 引用關係
作者(外文)：Wang, Yu-yu
出版日期：2016
卷期：31
頁次：頁77-115
主題關鍵詞：心智障礙者；自我倡導；自立生活；自我決策；Persons with intellectual disabilities；Self-advocacy；Independent living；Self-determination
原始連結：連回原系統網址new window
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  • 被引用次數被引用次數:期刊(2) 博士論文(0) 專書(0) 專書論文(0)
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  • 點閱點閱:9
自1970 年代中期起，「自我倡導團體」在世界各國紛紛成立，使心智障礙者在支持與充權下自我決策與發聲。國內1990 年代中期起陸續成立「智青團體」，而「自我倡導」概念的導入則源於2008 年中華民國智障者家長總會「自我倡導」交流平台的成立。本研究目的是探索國內自我倡導團體發展脈絡與作法，以為後續相關工作推展之參考。研究採質性探究取向，深度訪談方式蒐集資料。研究對象為較為穩定推展「智青團體」工作且持續參與智總自我倡導交流平台的8 個單位的15 名單位工作人員與3 名心智障礙青年（智青）。研究發現這些自我倡導團體的成立，皆源於專業人員因應「服務」與「服務對象需求」間的落差而設計。各單位皆透過主題式小規模定期聚會，長期支持心智障礙者發展自我倡導。然而隨著組織脈絡與服務定位的差異，不同單位發展出不同的運作方式與內容。對照自我倡導文獻與國外自我倡導運動，本研究建議未來強化自我倡導者彼此的網絡連結、智青自我權利意識覺醒與對自己生活及所接受服務的自我決策，才能更符合「自我倡導」是心智障礙者主導的社會運動之本質。
Since the mid-1970s, self-advocacy groups could be found all over the world. Persons with intellectual disabilities are supported to make self-decision and make their voices heard. In Taiwan, since mid-1990s, more and more 'Groups of persons with intellectual disabilities' were formed. In 2008, the idea of 'self-advocacy' was introduced via the Self-Advocacy Platform formed by Parents' Association for Persons with Intellectual Disability, Taiwan (PAPID). The purpose of this study is to explore the contexts and current operation styles of various self-advocacy groups in Taiwan. Qualitative approach was adopted and in-depth interviews were taken. Participants were 15 service providers and 3 self-advocates from 8 organizations which developed self-advocacy groups in the earliest time and those which have stable participation in the Self-Advocacy Platform. We found that the initiation of these self-advocacy groups was from professionals' perception of the gap between clients' needs and services. Through small-size regular meetings on various topics, these groups support persons with intellectual disabilities to develop self-advocacy. Besides, with the differences in organizational contexts and definitions of the role of self-advocacy in existing services, these organizations developed different styles of operation and contents. This study suggests the development of more networking among self-advocates, enhancement of self-advocates' awareness of rights, and self-determination in their everyday lives and services they receive. Thus, self-advocacy will then reflect more of its real nature.
期刊論文
1.Bambara, L. M.、Cole, C. L.、Koger, F.(1998)。Translating self-determination concepts into support for adults with severe disabilities。The Association for Persons with Severe Handicaps，23(1)，27-37。  new window
2.Caldwell, J.(2010)。Leadership development of individuals with developmental disabilities in the self-advocacy movement。Journal of Intellectual Disability Research，54，1004-1014。  new window
3.Cone, A. A.(1999)。Profile of advisors to self-advocacy groups for people with mental retardation。Mental Retardation，37，308-318。  new window
4.Pennell, R. L.(2001)。Self-determination and self-advocacy。Journal of Disability Policy Studies，11(4)，223-227。  new window
5.Aspis, S.(1997)。Self-advocacy for People with Learning Difficulties: Does it have a future?。Disability & Society，12(4)，647-654。  new window
6.Beart, S.、Hardy, G.、Buchan, L.(2004)。Changing Selves: a Grounded Theory Account of Belonging to a Self-advocacy Group for People with Intellectual Disabilities。Journal of Applied Research in Intellectual Disabilities，17，91-100。  new window
7.Buchanan, I.、Walmsley, J.(2006)。Self-advocacy in historical perspective。British J. of Learning Disabilities，34(3)，133-138。  new window
8.Caldwell, J.(2011)。Disability identity development of leaders in the self-advocacy movement。Intellectual and Developmental Disabilities，49，315-326。  new window
9.Cone, A.(2000)。Self-advocacy group advisor activities and their impact/relation to self-advocacy group development。International Journal of Disability, Development and Education，47，137-154。  new window
10.Clifford, S. A.(2013)。A Narrative Inquiry of a Self-Advocacy Meeting: Rethinking Empowerment from Sovereignty to Spontaneity。Disability Studies Quarterly，33(3)。  new window
11.Chapman, M.、Bannister, S.、Davies, J.、Fleming, S.、Graham, C.、Mcmaster, A.、Seddon, A.、Wheldon, A.、Whittell, B.(2012)。Speaking up about advocacy: findings from a partnership research project。British Journal of Learning Disabilities，40(1)，71-80。  new window
12.Wappett, M. T.(2002)。Self-Determination and Disability Rights: Lessons From the Women's Movement。Journal of Disability Policy Studies，13(2)，119-124。  new window
13.Slater, J.(2012)。Self-advocacy and socially just pedagogy。Disability Studies Quarterly，32(1)。  new window
14.Roets, G.、Goodley, D.(2008)。Disability, Citizenship and Uncivilized Society: The Smooth And Nomadic Qualities Of Self-advocacy。Disability Studies Quarterly，28(4)。  new window
15.Rhoades, C. M.、Browning, P.、Thorin, E.(1986)。Self-help advocacy movement: A promising peer-support system for people with mental disabilities。Rehabilitation Literature，47(1/2)，2-7。  new window
16.Palmer, C.(2000)。Self-advocacy among people with disabilities in the transition from good will to civil rights: Is it sufficient?。Work，14(1)，61-65。  new window
17.ODDC(2011)。The Power and Importance of Self-Advocacy。DD Quarterly。  new window
18.Ne'eman, A.(2010)。The Future (and the Past) of Autism Advocacy, Or Why the ASA's Magazine Wouldn't Publish This Piece。Disability Studies Quarterly，30(1)。  new window
19.Nagase, O.(2013)。Promotion of Self-advocacy of Persons with Intellectual Disabilities: Case of Myanmar。Ars Vivendi Journal，4，13-17。  new window
20.Miller, A.、Keys, C.(1996)。Awareness, Action and Collaboration, How the Self-Advocacy Movement is Empowering for Persons with Developmental Disabilities。Mental Retardation，34，312-319。  new window
21.Llewellyn, P.、Northway, R.(2008)。The views and experiences of people with intellectual disabilities concerning advocacy: A focus group study。Journal of Intellectual Disabilities，12(3)，213-228。  new window
22.Kim, J. K.、Kim, H. K.(2001)。Korea's Developmental Disabilities Self-Advocacy Rights Movement People First: Purposes and Issues。Journal of Asia-Pacific Special Education，1(2)，33-43。  new window
23.Jackson, R.(2005)。Does Advocacy Have a Future?。Journal on Developmental Disabilities，12(1)，19-30。  new window
24.Kennedy, M.、Shoultz, B.(1996)。Thoughts About Self-Advocacy。TASH Newsletter，22(4)，27-28。  new window
25.Gilmartin, A.、Slevin, E.(2010)。Being a member of a self-advocacy group: experiences of intellectually disabled people。British Journal of Learning Disabilities，38(1)，152-159。  new window
26.Garcia-Iriarte, E.、Kramer, J. C.、Kramer, J. M.、Hammel, J.(2008)。'Who Did What?': A Participatory Action Research Project to Increase Group Capacity for Advocacy。Journal of Applied Research in Intellectual Disabilities，22(1)，10-22。  new window
27.Dybwad, G.(1996)。From Feeblemindedness to Self-advocacy: a half century of growth and self-fulfillment。European Journal of Mental Disability，3(11)，3-18。  new window
28.Dawson, P.(2002)。Hearing but not listening。Learning Disability Practice，5(7)，26。  new window
學位論文
1.McNamara, G.(2009)。The Concept of Advocacy for people with Learning Disabilities in Ireland(碩士論文)。The Huston School of Film and Digital Media。  new window
圖書
1.Benz, C.、Newman, I.(1998)。Qualitative-quantitative research methodology: Exploring the interactive continuum。Carbondale：Southern Illinois Univ. Press。  new window
2.Caldwell, J.、Arnold, K. K.、Rizzolo, M. K.(2012)。Envisioning the future: Allies in self-advocacy final report。Chicago：The University of Illinois at Chicago, Institute on Disability and Human Development。  new window
3.Williams, P.、Shoultz, B.(1982)。We can speak for ourselves: Self-advocacy by mentally handicapped people。Bloomington, IN：University Press。  new window
4.Tufail, J.、Lyon, K.(2007)。Introducing advocacy: the first book of speaking up: a plain text guide to advocacy。London：Jessica Kingsley Publishers。  new window
5.Sutcliffe, J.、Simons, K.(1993)。Self-advocacy and adults with learning difficulties。Leicester：National Institute of Adult Continuing Education。  new window
6.Goodbody Economic Consultants(2004)。Developing an Advocacy Service for People with Disabilities。Dublin：Comhairle。  new window
7.Goodley, D.(2000)。Self-Advocacy in the Lives of People with Learning Difficulties: The Politics of Resilience。Buckingham：Open University Press。  new window
8.Fyffe, C.、McCubbery, J.、Frawley, P.、Laurie, D.、Bigby, C.(2004)。Disability advocacy resource unit model development report。Melbourne：Disability Services Division, DHS。  new window
其他
1.Association for Self-Advocacy(2011)。What is advocacy，http://www.uzso.hr/eng/what-is-self-advocacy/。  new window
2.Advocating Change Together(2008)。Self-Advocacy Quick Guide ACT Self Advocacy Resource Network，http://www.selfadvocacy.org/docs/ACT_QuickGuide2008.pdf。  new window
3.陳弘中(20100622)。台灣的People First 運動，http://disable.yam.org.tw/node/2967。  new window
4.中華民國智障者家長總會(20110524)。2011第四屆智能挑戰者自立生活學習體驗營活動報導，http://www.papmh.org.tw/ugC_Action_Detail.asp?hidActID=1&hidActionCatID=2&hidActionID=132。  延伸查詢new window
5.Bailey, S.(2011)。Self-Advocacy Through Drama for People with Developmental Disabilities，http://www.dramatherapycentral.com/index.php?option=com_content&view=article&id=130:self-advocacy-through-drama-for-people-with-developmental-disabilities&catid=56:articles&Itemid=195。  new window
6.Barrows, M.(2011)。Importance of running your own group，http://www.sabeusa.org/?catid=167。  new window
7.Barrows, M.(2012)。Importance of running your own group，http://www.sabeusa.org/?catid=167。  new window
8.Brown, H.(1999)。Self-Advocacy Training for High School Students with Disabilities: A Literature Review，https://fp.auburn.edu/institute/multimedia/al_transition/11_Cons_Speak_0ut/papers/Holly.pdf。  new window
9.YouTube(2010)。Nancy Ward on People First of Nebraska，http://www.youtube.com/watch?v=TPAaqW_QE04。  new window
10.YouTube(2010)。Linda Kunick on Disability Identity，https://www.youtube.com/watch?v=jvDPas1mX34。  new window
11.Ward, N.(2013)。What self-advocacy means to me，http://mn.gov/mnddc/parallels/seven/7menu.html。  new window
12.Walker, A.(2012)。"We Are People First": The History and Dynamics of the Self-Advocacy Movement，http://www.accessingsafety.org/uploads/File/Feb%2014%202012%20ASI%20web%20conference%20Self-Advocacy.pdf。  new window
13.Vávrová, M.，Petrovičová, M.，Homolová, Z.，Kaňková, P.，Mroczkowska, P.，Valentová, K.，Simon, A.，Tóth, S.，Dáko, R.，Pál, M.，Kovács, I.，Katarzyna, B.，Anna, A.，Grota, I.，Saczynska, K.，Dorota, T.，Kwiatkovska, R.(2012)。Self-Advocacy of People with Intellectual Disabilities. A Comparison of Self-Advocacy Models in Slovakia, the Czech Republic, Hungary and Poland，http://www.spmpcr.cz/uploaded/Jdeme_dal/Self-Advocacy%20of%20People%20with%20Intellectual%20Disabilities.pdf。  new window
14.The Self-Advocacy Association of New York State, Inc.(2007)。All about groups，http://www.sanys.org/AllAboutGroups22007web.pdf。  new window
15.The Arc of West Virginia(2015)。People First Chapter Handbook & Toolkit，http://www.thearcofwv.org/file_download/9f9c174e-10b2-4b6e-8110-a3be54fef760。  new window
16.The Arc(2016)。Self-advocacy，http://www.thearc.org/who-we-are/position-statements/rights/self-advocacy。  new window
17.The Arc(2015)。Advocacy，http://www.thearc.org/page.aspx?pid=2349。  new window
18.Self Advocacy Sydney INC.(2015)。What is Advocacy，http://sasinc.com.au/index.php/our-services/what-self-advocacy/。  new window
19.STIR And Shifting the Power(2002)。The Speak Up Guide. Chapter 5: Self-Advocacy and Self-Determination，http://www.ohiosda.org/ProjectSTIR/MainPage.pdf。  new window
20.Stuckey, C.(2012)。Self-Advocacy，http://www.sabeusa.org/?catid=167。  new window
21.Ritchey, A.(2013)。The New Jersey Self-Advocacy Project Advisor and Officer Handbook, 2011-2012，http://www.arcnj.org/file_download/1383c039-b766-4afa-862f-f65feb1163db。  new window
22.Reinforce(2009)。Reinforce Newsletter，http://reinforce.org.au/。  new window
23.Pring, J.(2011)。Self-advocates break new ground with internet broadcast，http://disabilitynewsservice.com/2011/08/self-advocates-break-new-ground-with-internet-broadcast/。  new window
24.People First of West Virginia(2013)。People First Chapter Handbook & Toolkit，http://www.peoplefirstwv.org/images/.../Chapter_Handbook.pdf。  new window
25.People First of West Virginia(2013)。History of People First，http://www.peoplefirstwv.org/aboutpeoplefirst/history.html。  new window
26.Ntulo, C.(2010)。The Self Advocacy Tool Kit For Mental Health Services Users，http://www.cbm.org/article/downloads/54741/The_Self_Advocacy_Toolkit_-_For_Mental_Health_Service_Users.pdf。  new window
27.NCD(2011)。Rising Expectations: The Developmental Disabilities Act Revisited，http://www.ncd.gov/publications/2011/Feb142011。  new window
28.National Forum of people with learning difficulties(2011)。Staying Strong: Taking self advocacy into the future，http://www.mihliverpool.co.uk/further-information/useful-links/people-first-merseyside/staying-strong-taking-self-advocacy-into-the-future/。  new window
29.National Disability Authority(2003)。Exploring Advocacy，http://bipolarworld.net/pdf/fullreport.pdf。  new window
30.NADSP(1999)。Frontline Initiative，https://www.nadsp.org/communication/frontline-initiative/9-communications.html。  new window
31.MGCDD(2014)。Gloria Steinbring From Assembly Line to Activism，http://mn.gov/mnddc//parallels/seven/7d4/1.html。  new window
32.MGCDD(2014)。Daniels: inside and out of the institution，http://mn.gov/mnddc//parallels/seven/7d3/1.html。  new window
33.MGCDD(2014)。Patrick Worth: Believe in Yourself，http://mn.gov/mnddc//parallels/seven/7d2/1.html。  new window
34.MGCDD(2014)。Parallels In Time: A History of Developmental Disabilities. VII. The Self-Advocacy Movement 1980's- Present. C. Goals of Self-Advocacy，http://mn.gov/mnddc//parallels/seven/7menu.html。  new window
35.Maryland Disabilities Forum(1999)。20 Years in Self Advocacy: Disability Civil Rights Movement，http://www.marylanddisabilitiesforum.com/images/20th_Anniversary_Presentation.ppt。  new window
36.Lundström, F.(2008)。Mapping Self-Advocacy Initiatives for People with Intellectual Disability in Ireland，http://www.citizensinformationboard.ie/publications/social/downloads/SelfAdvocacyMapping_rpt_Oct2008.doc。  new window
37.Inclusion International(2014)。Independent but Not Alone: A Global Report on the Right to Decide，http://inclusion-international.org/wp-content/uploads/2014/06/Independent-But-Not-Alone.pdf。  new window
38.Inclusion Europe(2015)。The European Platform of Self-Advocates (EPSA)，http://inclusion-europe.org/en/self-advocacy。  new window
39.IDAHO Council on Developmental Disabilities(2013)。Self-Advocacy: What is Self-Advocacy?，http://www.icdd.idaho.gov/advocacy/。  new window
40.Health and Disability Commissioner(2009)。Advocacy overview，http://advocacy.hdc.org.nz/about-us。  new window
41.Hallahan, L.(2012)。The paradox for advocacy: NDIS - an obstacle and an opportunity，http://www.dana.org.au/wp-content/uploads/Dr-Lorna-Hallahan-DANA-AGM-2012-Presentation-Advocacy-starts-in-shadows.docx。  new window
42.Goodley, D.，Armstrong, D.(2001)。Self-advocacy, Civil Rights and the Social Model of Disability，https://www.esrc.ac.uk/my-esrc/grants/R000237697/outputs/Download/28c9567e-1000-4422-81f7-64c8d675c5fb。  new window
43.DRW(2012)。What is Advocacy?，http://www.disabilityrightswa.org/what-advocacy。  new window
44.DAC(2013)。Individual or Self Advocacy，http://disabilityachievementcenter.com/advocacy/individual-or-self-advocacy/。  new window
45.Cooper, R.(2011)。Realizing the Intent of the DD Act: How the DD Network Advances the Independence, Productivity, and Integration of People with Intellectual and Developmental Disabilities，http://www.acl.gov/programs/aidd/Program_Resource_Search/Resources/docs/Realizing_Intent_DDAct.pdf。  new window
 
 
 
 
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