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題名:人體生物資料庫通知基因研究「偶然發現」(incidental findings)之倫理及法律問題--兼論臺灣生物資料庫面臨之挑戰與建議
書刊名:政大法學評論
作者:賈文宇 引用關係
作者(外文):Chia, Wen-yu
出版日期:2018
卷期:153
頁次:頁145-191
主題關鍵詞:生物倫理人體生物資料庫偶然發現結果告知再接觸重建識別倫理治理倫理法律社會影響臺北宣言BioethicsBiobanksIncidental findingIndividual feedbackRe-contactReidentificationEthic governanceEthics, legal, and social impactThe WMA declaration of Taipei
原始連結:連回原系統網址new window
相關次數:
  • 被引用次數被引用次數:期刊(0) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:0
  • 共同引用共同引用:11
  • 點閱點閱:2
期刊論文
1.范建得、廖嘉成(20100500)。人體生物資料庫管理條例評釋。月旦法學,180,207-219。new window  延伸查詢new window
2.林瑞珠(20070400)。Biobank計畫中之再接觸(re-contact)的問題。法律與生命科學,1,20-24。new window  延伸查詢new window
3.鍾金湯、劉仲康(20050500)。佛萊明[Alexander Fleming]--青黴素的發現者。科學發展月刊,389,40-47。  延伸查詢new window
4.劉源祥(20080100)。國家級人類基因資料庫研究成果之告知義務。法律與生命科學,4,31-44。new window  延伸查詢new window
5.陳仲嶙(20151200)。評人體研究法的倫理審查機制--憲法疑義與修正建議。政大法學評論,143,191-237。new window  延伸查詢new window
6.陳立威(2014)。免驚!基因檢測懶人包來了。臺安醫訊,196,8-9。  延伸查詢new window
7.張雁明、邢國芳、劉美桃、劉曉東、韓淵懷(2013)。全基因組關聯分析:基因組學研究的機遇與挑戰。生物技術通報,2013(6),1-6。  延伸查詢new window
8.Budin-Ljøsne, Isabelle(2016)。Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?。BIOPRESERVATION & BIOBANKING,14,241。  new window
9.Bledsoe, Marianna J.(2013)。Return of Research Results from Genomic Biobanks: Cost Matters。Genetics in Medicine,15,103。  new window
10.Black, Lee(2013)。Funding Considerations for the Disclosure of Genetic Incidental Findings in Biobank Research。CLINICAL GENETICS,84,397。  new window
11.Ball, Madeleine P.(2014)。Harvard Personal Genome Project: Lessons from Participatory Public Research。Genome Medicine,6(2),10。  new window
12.Abdul-Karim, Ruqayyah(2013)。Disclosure of Incidental Findings from Next-Generation Sequencing in Pediatric Genomic Research。PEDIATRIC,131(3),564。  new window
13.Kaufman, David(2008)。Subjects Matter: A Survey of Public Opinions about a Large Genetic Cohort Study。Genetics in Medicine,10,831。  new window
14.Hansson, Mats G.(2016)。The Risk of Re-identification versus the Need to Identify Individuals in Rare Disease Research。European Journal of Human Genetics,24,1153。  new window
15.Frizzo-Barker, Julie(2016)。Genomic Big Data and Privacy: Challenges and Opportunities for Precision Medicine。COMPUTER SUPPORTED COOPERATIVE Work,25,115。  new window
16.Bush, William S.、Moore, Jason H.(2012)。Genome-Wide Association Studies。PLOS Computational Biology,8(12),1。  new window
17.Murphy, Juli、Scott, Joan、Kaufman, David、Geller, Gail、LeRoy, Lisa、Hudson, Kathy(2008)。Public Expectations for Return of Results from Large-cohort Genetic Research。American Journal of Bioethics,8(11),36-43。  new window
18.McGeveran, William、Fatehi, Leili、McGarraugh, Pari(2012)。Deidentification and Reidentification in Returning Individual Findings from Biobank and Secondary Research: Regulatory Challenges and Models for Management。Minnesota Journal of Law, Science & Technology,13,485-539。  new window
19.Lévesque, Emmanuelle、Joly, Yann、Simard, Jacques(2011)。Return of Research Results: General Principles and International Principles。Journal of Law, Medicine & Ethics,39,583。  new window
20.Kohane, Isaac S.、Masys, Daniel R.、Altman, Russ B.(2006)。The incidentalome: a threat to genomic medicine。JAMA,296,212。  new window
21.Thorogood, Adrian(2014)。An Implementation Framework for the Feedback of Individual Research Results and Incidental Findings in Research。BMC medical ethics,15,88。  new window
22.Scholtes, Emily(2016)。Incorporating Cost into the Return of Incidental Findings Calculus: Defining a Responsible Default for Genetics and Genomics Researchers。Minnesota Law Review,100,1171。  new window
23.Purdy, Jedediah、Siegel, Neil S.(2012)。The Liberty of Free Riders: The Minimum Coverage Provision, Mill's "Harm Principle," and American Social Morality。American Journal of Law & Medicine,38,374。  new window
24.Wolf, Susan M.(2013)。Return of Individual Research Results & Incidental Findings: Facing the Challenges of Translational Science。Annual Review of Genomics and Human Genetics,14,557。  new window
25.Wolf, Susan M.(2012)。Managing Research Results and Incidental Findings in Genomic Research Involving Biobanks & Archived Datasets。Genetics in Medicine,14(4),361。  new window
26.Wolf, Susan M.(2008)。The Past, Present, and Future of the Debate over Return of Research Results and Incidental Findings。Genetics in Medicine,14(4),355。  new window
27.Wolf, Susan M.(2008)。The Law of Incidental Findings in Human Subjects Research: Establishing Researchers' Duties。Journal of Law, Medicine & Ethics,36,361。  new window
28.Wolf, Susan M.、Branum, Rebecca、Koenig, Barbara A.、Petersen, Gloria M.、Berry, Susan A.、Beskow, Laura M.、Daly, Mary B.、Fernandez, Conrad V.、Green, Robert C.、LeRoy, Bonnie S.、Lindor, Noralane M.、O'Rourke, P. Pearl、Breitkopf, Carmen R.、Rothstein, Mark A.、Van Ness, Brian、Wilfond, Benjamin S.(2015)。Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations。Journal of Law, Medicine & Ethics,43(3),440-463。  new window
29.邱玟惠(20091200)。屍體之法律性質 : 物權與人類尊嚴之二元結構初探。國立臺灣大學法學論叢,38(4),335-383。new window  延伸查詢new window
會議論文
1.UK Biobank Ethics and Governance Council(2014)。Past, Present, Future: The Ethics and Governance of Big Biobanks Conference。  new window
研究報告
1.Precision Medicine Initiative Working Group(2015)。The Precision Medicine Initiative Cohort Program--Building a Research Foundation for 21st Century Medicine。  new window
圖書
1.Buchanan, Allen、Brock, Dan W.、Daniels, Norman、Wikler, Daniel、蕭郁雯(2004)。從機會到選擇:遺傳學與正義。  延伸查詢new window
2.ten Have, Henk A. M. J.、Jean, Michèle S.(2009)。Universal Declaration on Bioethics and Human Rights: Background, Principles and Application。Paris:U.N. Educational。  new window
圖書論文
1.林瑞珠、廖嘉成(2010)。導覽Taiwan Biobank重要法律議題。人體生物資料庫管理條例逐條釋。  延伸查詢new window
2.Kanellopoulou, Nadja(2009)。Reconsidering Altruism, Introducing Reciprocity and Empowerment in the Governance of Biobanks in the UK。Principles and Practice in Biobank Governance。NY:Routledge。  new window
3.Liu, Hung-En、Tai, Terence Hua(2009)。Public Trust, Commercialization, and Benefit Sharing: Toward a Trustworthy Biobank in Taiwan。Human Genetic Biobanks in Asia: Politics of Trust and Scientific Advancement。NY:Routledge。  new window
 
 
 
 
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