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題名:嬰幼兒安寧療護:一位一歲四個月大的腦瘤病童接受安寧緩和醫療照護的經驗分享
書刊名:安寧療護
作者:蔡佳純蔡佩渝王士忠林益卿
作者(外文):Tsai, Chia-chunTsai, Pei-yuWang, Shih-chungLin, I-ching
出版日期:2013
卷期:18:2
頁次:頁218-229
主題關鍵詞:安寧緩和療護腦瘤幼兒Pediatric palliative careBrain tumorChildren
原始連結:連回原系統網址new window
相關次數:
  • 被引用次數被引用次數:期刊(0) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:0
  • 共同引用共同引用:22
  • 點閱點閱:70
末期病童接受安寧療護的比例普遍偏低,在安寧病房接受安寧緩和照護的個案更是少之又少,本文報告一位一歲四個月大的末期腦瘤幼兒接受安寧病房緩和醫療照護的過程及經驗分享,討論安寧療護團隊在照護過程中於生理、心理、靈性、社會層面所遇到的困難,並從文獻探討中尋求解答,希望能作為相關領域的專業人員日後提供腦瘤幼兒安寧療護的參考依據。
In Taiwan, children who have terminal disease seldom receive palliative care. Among these patients, few patients had ever admitted to hospice ward. We report a 16 months old child who had atypical teratoid/rhabdoid tumor with terminal stage and admitted to hospice ward and received complete palliative care in the rest of his life. We share the experience during caring this little patient, including the difficulty in bio-psycho-social and spiritual level, and also review some articles which can deal with our problems. We wish there will be more resources for the pediatric palliative care.
期刊論文
1.陳一瑋、顏上惠、黃棣棟、何明德、張開屏、郭萬祐、邱士華、梁慕理、李宜燕、黃品逸(20071100)。罕見兒童中樞性神經腫瘤:非典型畸胎/類橫紋肌細胞瘤(Atypical Teratoid / Rhabdoid Tumor)之回顧與治療方式探討。臨床醫學,60(5)=359,324-330。new window  延伸查詢new window
2.Ho, D. M. -T.、Hsu, C. -Y.、Wong, T. -T.、Ting, L. -T.、Chiang, H.(2000)。Atypical teratoid/rhabdoid tumor of the central nervous system: a comparative study with primitive neuroectodermal tumor/medulloblastoma。Acta Neuropathologica,99(5),482-488。  new window
3.甄子俊、孫曉非、夏奕(2007)。成人常用鎭痛藥治療兒童癌痛的可行性及療效。癌症,26(8),866-869。  延伸查詢new window
4.江孟冠(20100600)。兒童癌症之疼痛評估及處理。腫瘤護理雜誌,10(1),13-24。  延伸查詢new window
5.Garcia-Sola, R.、Pulido, P.、Capilla, P.(1991)。The immediate and long-term effects of mannitol and glycerol。Acta Neurochirurgica,109(3-4),114-121。  new window
6.Klein, S. M.、Saroyan, J. M.(2011)。Treating a child with a life-threatening condition。Pediatr Ann,40(5),259-265。  new window
7.Norman, R.、Bennett, M.(1986)。Care of the dying child at home: a unique cooperative relationship。Aust J Adv Nurs,3(4),3-16。  new window
8.沈青青、林妙怜、許婷秀、齊珍慈(20080900)。醫護人員及家屬對兒童安寧緩和照護需求滿意度之探討。榮總護理,25(3),206-214。new window  延伸查詢new window
9.許馨文、胡文郁、程劭儀、姚建安、陳慶餘、邱泰源(20051100)。某緩和病房小兒癌末病人善終服務。安寧療護,10(4),358-370。new window  延伸查詢new window
10.黃淑姿、湯玉英(19961200)。罹患腦瘤死亡兒童母親所面臨的失落哀傷反應及調適行為。護理雜誌,43(4),34-41。new window  延伸查詢new window
11.邱淑娥、黃美智(19960600)。且讓生死兩相安--一位母親面對女兒瀕死的過程。護理雜誌,43(2),56-62。new window  延伸查詢new window
學位論文
1.陳思蓉(2011)。以個案研究法分析某醫學中心兒童癌症末期照護服務(碩士論文)。國立成功大學,臺南。  延伸查詢new window
2.高崇蘭(2005)。兒童中樞神經系統非典型畸胎/橫紋肌細胞瘤基因變異分析(博士論文)。國立陽明大學,臺北。  延伸查詢new window
圖書
1.行政院衛生署(2013)。中華民國100年死因統計。臺北:衛生署。  延伸查詢new window
2.Hockenberry-Eaton, Marilyn、Barrera, Patrick、Brown, Melody、Bottomley, Sarah J.、O’Neill, Jill Brace(1999)。Pain management in children with cancer。Texas:Texas Cancer Council。  new window
其他
1.中華民國兒童癌症基金會(20070405)。兒童腦瘤,http://www.ccfroc.org.tw/child/child_affection_read.php?a_id= 14#2。  延伸查詢new window
 
 
 
 
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