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題名:「中途障礙」的概念內涵與障礙事件對個體及家庭之衝擊:南投縣服務提供者觀點的探究
書刊名:臺灣社會福利學刊
作者:王育瑜 引用關係
作者(外文):Wang, Yu Yu
出版日期:2011
卷期:9:2
頁次:頁185-234
主題關鍵詞:中途障礙衝擊生命事件生命時期Becoming disabledImpactLife eventLife period
原始連結:連回原系統網址new window
相關次數:
  • 被引用次數被引用次數:期刊(3) 博士論文(1) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:3
  • 共同引用共同引用:40
  • 點閱點閱:71
我國身心障礙者權益保障白皮書與勞委會促進身心障礙者就業中程計畫,皆強調中途障礙者相關服務推展的重要。民間單位近年來也紛紛發展以中途障礙者為對象的服務。然而,不論政府或民間部門,對中途障礙人口的描述,皆倚賴內政部關於障礙成因的統計,該統計由於分類概念無法完全互斥,因而對於中途障礙人口的描述,相當模糊。此外,政府、民間與相關文獻對中途障礙的概念莫衷一是,且相關研究缺乏,無法提供對於中途障礙者需求的具體描述。因此,政策與服務設計缺乏系統的需求分析,更遑論個別化與多元服務的提供。為釐清國內脈絡下中途障礙概念如何被界定,本研究探討服務提供者如何定義中途障礙概念,其實際服務經驗中,觀察到哪些中途障礙者及其家庭的需求。透過服務提供者的實務經驗整理,期待初步釐清定義中途障礙更細緻的思維面向。本研究採質性研究取向為主,以焦點團體方式蒐集資料,輔以開放式問卷調查。研究結果分二層面分析:障礙作為突發事件的衝擊,以及不同時間點發生障礙,對個體與家庭的影響。本研究根據研究發現,對未來人口統計、相關政策與實務推展方向,提出建議。
Two Taiwanese government documents, “Disabled People’s Rights Protection,” and “Mid-term Plan for Promoting Employment of Disabled People,” set goals for the development of services for people who “become disabled.” In recent years, non-government organizations also have developed programs targeting this group. However, because previous statistical analyses have employed ambiguous categorization, they provide very limited information about the needs of this group. There also is a lack of consensus on how to define “becoming disabled,” and studies of what factors influence it are rare. Thus, relevant policies and practices have not been based on systematic analyses of the needs of disabled people, and adequate provision of both individual and multiple services has therefore become an impossible dream. In this study, the participants drew upon their experiences of working with disabled people to establish what this groups’ needs are, and how “becoming disabled” should be defined. The main approach was qualitative. Focus group interview was the main data collection method, preceded by an open-ended social survey. Findings were analyzed from two dimensions: (1) disability as an unexpected life event and (2) the disability onset at different stages of life. This article proposes suggestions on policies and practices, items to be considered in a census survey, as well as further research.
期刊論文
1.周月清、彭淑芬、舒靜嫻、鄭芬芳(20040700)。中途障礙社會模式介入與生活重建服務整合--伊甸、新事暨陽光服務方案為例。臺灣社會工作學刊,2,123+125-157。new window  延伸查詢new window
2.萬明美(20000900)。中途失明成人致盲原因及適應歷程之研究。特殊教育研究學刊,19,59-78。new window  延伸查詢new window
3.Reynolds, S. L.、Silverstein, M.(2003)。Observing the onset of disability in older adults。Social Science & Medicine,57(10),1875-1889。  new window
4.Guralnik, J. M.、Wallace, R. B.、Ferrucci, L.、Simonsick, E. M.、Salive, M. E.(1995)。Lower-extremity function in persons over the age of 70 years as a predictor of subsequent disability。The New England Journal of Medicine,332(9),556-562。  new window
5.王育瑜(2003)。瑞典、英國中途致障者職業重建模式。社區發展季刊,101,445-452。new window  延伸查詢new window
6.林昭吟(2008)。身心障礙者老化之概念探討與初探性實證研究。東吳社會工作學報,19,37-80。new window  延伸查詢new window
7.陳曉瑩(2006)。中途致障者就業支持服務理念。工業安全衛生月刊,12,14-16。  延伸查詢new window
8.Avlund, K.、Damsgaard, M. T.、Sakari-Rantala, R.、Laukkanen, P.、Schroll, M.(2002)。Tiredness in Daily Activities among Nondisabled Old People as Determinant of Onset of Disability。Journal of Clinical Epidemiology,55(10),965-973。  new window
9.Avlund, K.、Lund, R.、Holstein, B.、Due, P.(2004)。Social Relations as Determinant of Onset of Disability in Aging。Archives of Gerontology and Geriatrics,38(1),85-89。  new window
10.Avlund, K.、Vass, M.、Hendriksen, C.(2003)。Onset of Mobility Disability among Community-dwelling Old Men and Women。The Role of Tiredness in Daily Activities.Age and Ageing,32(6),579-584。  new window
11.Lay, B.、Blanz, B.、Hartmann, M.、Schmidt, M. H.(2000)。The Psychosocial Outcome of Adolescent-Onset Schizophrenia: A 12-Year Followup。Schizophrenia Bulletin,26(4),801-816。  new window
12.Loprest, P.、Maag, E.(2007)。The Relationship between Early Disability Onset and Education and Employment。Journal of Vocational Rehabilitation,26(1),49-62。  new window
13.Mattews, R. J.、Smith, L. K.、Hancock, R. M.、Jagger, C.、Spiers, N. A.(2005)。Socioeconomic Factors Associated with the Onset of Disability in Older Age: A Longitudinal Study of People Aged 75 Years and Over。Social Science & Medicine,61(7),1567-1575。  new window
14.Onder, G.、Penninx, W.、Ferrucci, L.、Fried, L.、Guralnik, J.、Pahor, M.(2003)。Measures of Physical Performance and Risk for Progressive and Catastrophic Disability: Results from the Women's Health and Aging Study。The Journals of Gerontology, Series A: Biological Sciences & Medical Sciences,60(1),74-79。  new window
15.Quittner, A. L.、Opipari, L.、Regoli, M.、Jacobsen, J.、Eigen, H.(1992)。The Impact of Caregiving and Role Strain on Family Life: Comparisons between Mothers of Children with Cystic Fibrosis and Matched Controls。Rehabilitation Psychology,37,275-290。  new window
16.Turk, D. C.、Okifuji, A.、Starz, T. W.、Sinclair, J. D.(1996)。Effects of Type of Symptom Onset on Psychological Distress and Disability in Fibromyalgia Syndrome Patients。Pain,68(2/3),423-430。  new window
17.Verbrugge, L. M.、Yang, L.(2002)。Aging with Disability and Disability with Aging。Journal of Disability Policy Studies,12(1),253-267。  new window
18.Ville, I.、Winance, M.(2006)。To Work or not to Work? The Occupational Trajectories of Wheelchair Users。Disability and Rehabilitation,28,423-436。  new window
學位論文
1.蘇建銘(2004)。一位後天失明者於失明前後的生命轉折及其在從事心理治療的自我展現(碩士論文)。國立高雄師範大學。  延伸查詢new window
2.柯明期(2004)。中途失明者適應與重建之研究(碩士論文)。國立臺灣師範大學。  延伸查詢new window
3.蘇雅琪(2006)。中途致殘者的宗教信仰與其障礙適應關係之探究(碩士論文)。國立高雄師範大學。  延伸查詢new window
4.林金梅(2004)。中途顏面燒傷患者之生命轉化歷程--三位傷友的故事(碩士論文)。南華大學。  延伸查詢new window
5.陳秀雅(1992)。成年後失明者的適應歷程及影響因素之研究(碩士論文)。國立彰化師範大學。  延伸查詢new window
圖書
1.行政院內政部社會司(2009)。身心障礙者權益保障白皮書。臺北:內政部社會司。  延伸查詢new window
2.內政部統計處(2007)。身心障礙者生活需求調查報告。臺北:內政部統計處。  延伸查詢new window
3.行政院勞委會職訓局(2007)。促進身心障礙者就業中程計畫〈96年--99年〉。臺北:行政院勞委會職訓局。  延伸查詢new window
4.行政院勞委會職訓局(2010)。辦理身心障者職業重建服務窗口計畫。臺北:行政院勞委會職訓局。  延伸查詢new window
5.南投縣政府社會處(2010)。南投縣身心障礙者致殘成因。南投縣:南投縣政府社會處。  延伸查詢new window
6.Altschuler, J.(1997)。Working with Chronic Illness: a Family Approach。London:Macmillan Press Ltd.。  new window
7.Burchardt, T.(2003)。Being and becoming: Social Exclusion and the Onset of Disability。London:ESRC Centre for Analysis of Social Exclusion, London School of Economics。  new window
8.Falvo, D.(2005)。Medical and Psychosocial Aspects of Chronic Illness and Disability。Mass Jones & Bartlett Publishers, Inc.。  new window
9.Reynolds, C. R.、Fletcher-Janzen, E.(2001)。Concise Encyclopedia of Special Education: A Reference for the Education of the Handicapped and other Exceptional Children and Adults。New Jersey:John Wiley & Sons, Inc.。  new window
10.Rolland, J. S.(1994)。Families, Illness, and Disability。New York:Basic Books。  new window
其他
1.內政部(2002)。身心障礙者生涯轉銜服務整合實施方案,臺北:內政部。  延伸查詢new window
2.內政部社會司(2008)。各縣市機構查詢,http://sowf.moi.gov.tw/05/new05.htm, 2008/10/24。  延伸查詢new window
3.內政部統計處(2010)。04-19 身心障礙者人數按致殘成因分,http://sowf.moi.gov.tw/stat/year/y04-19.xls, 2010/12/19。  延伸查詢new window
4.內政部統計處(2010)。內政統計通報九十九年第三十四週,http://www.moi.gov.tw/files/news_file/week9934.doc, 2010/12/19。  延伸查詢new window
5.伊甸社會福利基金會網站(2010)。照顧服務:臺北市八德服務中心,http://www.eden.org.tw/contact_service_detail.php?team_id=6&service_id=16, 2010/12/19。  延伸查詢new window
6.伊甸總會部落格(2010)。伊甸Oh!My Son中途致障資源手冊,http://edenblog.eden.org.tw/index.php?op=ViewArticle&articleId=183&blogId=1, 2010/12/19。  new window
7.身心障礙e能網(2008)。身心障礙組織,http://www.enable.org.tw/res/index03.php?county=南投縣, 2008/10/24。  延伸查詢new window
8.南投縣政府社會處(2008)。南投縣立案身心障礙機構查詢,http://www.nantou.gov.tw/big5/download.asp?dptid=376480000AU130000&catetype=01&cid=957&cid1=976, 2008/10/24。  延伸查詢new window
9.財團法人愛盲基金會視障服務網(2010)。99年度中途失明者多元服務方案,http://www.blindness.org.tw/tc3.php?PHPSESSID=a833195af9ab22e9736515d7a348d63a, 2010/12/19。  延伸查詢new window
10.臺灣公益資訊中心網站(2010)。97年度再耕園中途致障者家庭支持服務,http://www.npo.org.tw/Bulletin/showact.asp?ActID=12520, 2010/12/19。  延伸查詢new window
11.Meadow, K. P.(1975)。The Quiet Worlds of Deafness - A Sociological Description of the Deaf Subculture,Mimeo:Faculty Workshop, California State University. Hayward。  new window
圖書論文
1.Rollands, J. S.(1999)。Chronic Illness and the Family Life Cycle。The Expanded Family Life Cycle: Individual, Family and Social Perspectives。Needham Heights:Allyn & Bacon。  new window
 
 
 
 
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