:::

詳目顯示

回上一頁
題名:腹膜透析隱形實作與軌跡
書刊名:臺灣社會學
作者:林文源 引用關係
作者(外文):Lin, Wen-yuan
出版日期:2009
卷期:17
頁次:頁1-59
主題關鍵詞:腹膜透析病患醫療實作軌跡隱形工作Peritoneal dialysisPatientsMedical practiceTrajectoryInvisible work
原始連結:連回原系統網址new window
相關次數:
  • 被引用次數被引用次數:期刊(6) 博士論文(0) 專書(2) 專書論文(0)
  • 排除自我引用排除自我引用:3
  • 共同引用共同引用:83
  • 點閱點閱:100
對標準化的醫療體系來說,處於不同疾病歷程中的病患實作往往 是隱形、看不見的。台灣既有的腹膜透析推廣方案,也忽略了病患的 觀點。本文由醫療實作研究的相關研究出發,以患病軌跡等概念為基 礎,描繪透析醫療病患的不同歷程與實作經驗,並指出其中病患隱形 工作對既有醫療實作的啟發。本文以四十八位透析病患的集體訪談資 料,以及實地觀察八位病患的相關醫療操作,進行分析。結果發現, 根據病患對於選擇透析的經驗與評價為主,以實作歷程與透析軌跡型 態為主軸,可以初步區分出:進取、追隨、反悔、受害、積極開創與 消極開創等類型。本文並進一步討論這些不同類型的行動者,在情 感、社會性、醫療知識與技術上的隱形實作。這些類型與經驗,可以 被視為是病患在患病歷程中,為了協調生活規劃與醫療規劃,以使自 身有能力面對醫療與生活的努力。最後,本文除了指出患病軌跡類型 與隱形實作對現行標準化醫療操作的實務意涵,核心建議是透析推廣 除了要納入病患觀點外,不應只是「如何挑選具有自主能力的病患, 並將病患訓練為標準、安全的腹膜透析操作者」,而是「如何面對能 力不一的病患,提供各種支持,使其有能力,安全且彈性地協調腹膜 透析操作與生活」。本文並藉此指出本研究對醫療社會學及相關理論 與規範的相關意涵。
Patients' work over the course of an illness is usually invisible to standardized medical systems. This is also the case in a project for promoting peritoneal dialysis (PD) in Taiwan. Based on insights into medical practices, this paper explores different types of PD trajectories and experiences and suggests implications for medical practices. Fieldwork, consisting of interviews with 48 patients in focus groups and 8 patients at home practice, yielded six types of PD trajectories--progress, follow, regret, victimized, active explore, and passive explore. Patients' different invisible work on emotion, sociability, and medical knowledge and techniques are also discussed. These efforts illustrate the struggles that patients coordinate through their daily lives and medical schemas. The paper concludes by explicating how the discussion of illness trajectories and invisible works contribute to medical practices,medical sociology, and other theoretical and moral issues. The rationale is that the medical profession and policy makers should take patients' point of view into account and try to support patients with different abilities and backgrounds to do dialysis safely and flexibly rather than choose the already capable patient for the standardized dialysis.
期刊論文
1.Mol, Annemarie、Law, John(2004)。Embodied Action, Enacted Bodies: the Example of Hypoglycaemia。Body & Society,10(2/3),43-62。  new window
2.林文源(20061200)。漂移之作:由血液透析病患的存在與行動談社會本體論。臺灣社會學,12,69-140。new window  延伸查詢new window
3.Prout, Alan(1996)。Actor-Network Theory, Technology and Medical Sociology: An Illustrative Analysis of the Metered Dose Inhaler。Sociology of Health and Illness,18(2),198-219。  new window
4.蔡友月(20041200)。臺灣癌症患者的身體經驗:病痛、死亡與醫療專業權力。臺灣社會學刊,33,51-108。new window  延伸查詢new window
5.Allen, Davina、Griffiths, Lesley、Lyne, Patricia(2004)。Understanding Complex Trajectories in Health and Social Care Provision。Sociology of Health and Illness,26(7),1008-1030。  new window
6.Bury, Michael(1982)。Chronic Illness as Biographical Disruption。Sociology of Health and Illness,4(2),167-182。  new window
7.Barbot, Janine、Dodier, Nicolas(2002)。Multiplicity in Scientific Medicine: The Experience of HIV-Positive Patients。Science, Technology & Human Values,27(3),404-440。  new window
8.成令方(20020600)。醫「用」關係的知識與權力。臺灣社會學,3,11-71。new window  延伸查詢new window
9.吳嘉苓、黃于玲(20020600)。順從、偷渡、發聲與出走:「病患」的行動分析。臺灣社會學,3,73-117。new window  延伸查詢new window
10.林文源(2008)。腹膜透析歸廣與病患選擇:一個動態歷程的觀點。腎臟與透析,20(1),61-64。  延伸查詢new window
11.林明彥、黃尚志(2007)。臺灣慢性腎臟病/ 末期腎臟病流行病學過去、現在與未來。腎臟與透析,19(1),1-5。  延伸查詢new window
12.Akrich, Madeleine、Pasveer, Bernike(2004)。Embodiment and Disembodiment in Childbirth Narratives。Body and Society,10(2),63-84。  new window
13.Atkinson, Paul、Batchelor, Claire、Parsons, Evelyn(1998)。Trajectories of Collaboration and Competition in a Medical Discovery。Science, Technology & Human Values,23(3),259-284。  new window
14.Becker, Gay、Kaufman, Sharon R.(1995)。Managing an Uncertain Illness Trajectory in Old Age: Patients' and Physicians' Views of Stroke。Medical Anthropology Quarterly, New Series,9(2),165-187。  new window
15.Berg, Marc、Harterink, Paul(2004)。Embodying the Patient: Records and Bodies in Early 20th-century US Medical Practice。Body and Society,10(2),13-42。  new window
16.Bury, Michael(1991)。The Sociology of Chronic Illness: A Review of Research and Prospects。Sociology of Health & Illness,13(4),451-468。  new window
17.Clarke, Adele E.、Shim, Janet K.、Mamo, Laura、Fosket, Jennifer Ruth、Fishman, Jennifer R.(2003)。Biomedicalization: Technoscientific Transformations of Health, Illness, and U.S. Biomedicine。American Sociological Review,68(2),161-194。  new window
18.Corbin, Juliet M.、Strauss, Anselm(1991)。Comeback: The Process of Overcoming Disability。Advances in Medical Sociology,2,137-159。  new window
19.Corbin, Juliet M.、Strauss, Anselm(1991)。A Nursing Model for Chronic Illness Management Based Upon the Trajectory Framework。Scholarly Inquiry for Nursing Practice,5(3),155-174。  new window
20.Cussins, Charis(1996)。Ontological Choreography: Agency through Objectification in Infertility Clinics。Social Studies of Science,26(3),575-610。  new window
21.Geels, Frank W.(2007)。Feelings of Discontent and the Promise of Middle Range Theory for STS: Examples from Technology Dynamics。Science, Technology & Human Values,32(6),627-651。  new window
22.Haddow, Gillian(2005)。The Phenomenology of Death, Embodiment and Organ Transplantation。Sociology of Health & Illness,27(1),92-113。  new window
23.Herman, Barbara(1991)。Agency, Attachment, and Difference。Ethics,101(4),775-797。  new window
24.Hockey, Jenny、Draper, Janet(2005)。Beyond the Womb and the Tomb: Identity, (Dis)embodiment and the Life Course。Body & Society,11(2),41-57。  new window
25.Moreira, Tiago(2004)。Coordination and Embodiment in the Operating Room。Body and Society,10(1),109-129。  new window
26.Star, Susan Leigh(1995)。Epilogue: Work and Practice in Social Studies of Science, Medicine, and Technology。Science, Technology, & Human Values,20(4),501-507。  new window
27.Star, Susan Leigh、Gerson, Elihu M.(1987)。The Management and Dynamics of Anomalies in Scientific Work。The Sociological Quarterly,28(2),147-169。  new window
28.Strauss, Anaelm、Fagerhaugh, Shizuko、Suczek, Barbara、Wiener, Carolyn(1982)。The Work of Hospitalized Patients。Social Science & Medicine,16(9),977-986。  new window
29.Strauss, Anaelm、Fagerhaugh, Shizuko、Suczek, Barbara、Wiener, Carolyn(1982)。Sentimental Work in the Technologicalized Hospital。Sociology of Health & Illness,4(3),254-278。  new window
30.Timmermans, Stefan(1998)。Mutual Tuning of Multiple Trajectories。Symbolic Interaction,21(4),425-440。  new window
31.Timmermans, Stefan(1999)。Closed-chest Cardiac Massage: The Emergence of a Discovery Trajectory。Science, Technology & Human Values,24(2),213-240。  new window
32.Timmermans, Stefan、Berg, Marc(2003)。The Practice of Medical Technology。Sociology of Health & Illness,25(3),97-114。  new window
學位論文
1.楊忠煒(2007)。醫療政策與醫療行為差異之分析:以署立醫院選擇經營透析方式為例(碩士論文)。國立臺灣大學。  延伸查詢new window
2.林文源(1998)。To be or not to be?長期洗腎病患的生活、身體經驗(碩士論文)。國立清華大學。  延伸查詢new window
圖書
1.Oudshoorn, Nelly、Pinch, Trevor(2003)。How Users Matter: The Co-production of Users and Technology。Cambridge, MA:MIT Press。  new window
2.Whyte, Susan Reynolds、Van der Geest, Sjaak、Hardon, Anita(2002)。Social Lives of Medicines。Cambridge University Press。  new window
3.Berg, Marc、Mol, Annemarie(1998)。Differences in Medicine: Unraveling Practices, Technology, and Bodies。Duke University Press。  new window
4.Clarke, Adele E.(2005)。Situational Analyses: Grounded Theory Mapping After the Postmodern Turn。London:Sage Publications。  new window
5.Good, Byran(1990)。Medicine, Rationality, and Experience: an Anthropological Perspective。Cambridge:Cambridge University Press。  new window
6.Strauss, Anselm L.、Glaser, Barney G.(1975)。Chronic Illness and the Quality of Life。Saint Louis:Mosky Co.。  new window
7.Frank, Arthur W.(1995)。The Wounded Storyteller: Body, Illness, and Ethics。Chicago, IL:The University of Chicago Press。  new window
8.Franklin, Sarah(1997)。Embodied Progress: A Cultural Account of Assisted Conception。Routledge。  new window
9.Murphy, Robert F.(1987)。The Body Silent。New York, NY:Henry Holt and Company。  new window
10.Kleinman, Arthur(1980)。Patients and Healer in the Context of Culture: An Exploration of the Borderland between Anthropology, Medicine, and Psychiatry。Berkeley, CA:University of California Press。  new window
11.Corbin, Juliet M.、Strauss, Anselm L.(1988)。Unending Work and Care: Managing Chronic Illness at Home。Jossey-Bass Publishers。  new window
12.Traweek, Sharon(1988)。Beamtimes and lifetimes: the world of high-energy physicists。Cambridge, Mass:Harvard University Press。  new window
13.Rouse, Joseph(1996)。Engaging Science: How to Understand Its Practices Philosophically。Ithaca:Cornell University Press。  new window
14.Latour, B.、Sheridan, A.、Law, J.(1988)。The pasteurization of France。Cambridge, MA:Harvard University Press。  new window
15.Strauss, Anselm Leonard、Glaser, Barney Galland(1965)。Awareness of Dying。New York, NY:Aldine Publishing Co.。  new window
16.Strauss, Anselm L.(1993)。Continual Permutations of Action。New York:Aldine de Gruyter。  new window
17.Foucault, Michel、Sheridan, Alan Mark(1975)。The birth of the clinic: an archaeology of medical perception。New York:Vintage/Random House。  new window
18.Duden, Barbara、Hoinacki, Lee(1993)。Disembodying Women: Perspectives on Pregnancy and the Unborn。Cambridge:Harvard University。  new window
19.Goffman, Erving(1963)。Stigma: Notes on the Management of Spoiled Identity。Englewood Cliffs, New Jersey:Prentice-Hall。  new window
20.Rouse, Joseph(1987)。Knowledge and Power: Toward a Political Philosophy of Science。Cornell University Press。  new window
21.Harding, Sandra G.(1991)。Whose Science? Whose Knowledge?: Thinking from Women's Lives。Cornell University Press。  new window
22.Toombs, S. Kay(1993)。The meaning of illness: A phenomenological account of the different perspectives of physician and patient。Kluwer Academic Publishers。  new window
23.Merleau-Ponty, Maurice、Smith, Colin(1962)。Phenomenology of Perception。London:Routledge & Kegan Paul。  new window
24.Foucault, Michel、Sheridan, A.(1979)。Discipline and Punish: The Birth of the Prison。Lodon:Penguin Books。  new window
25.Mol, Annemarie(2002)。The Body Multiple: Ontology in Medical Practice。Durham, North Carolina:Duke University Press。  new window
26.Berg, Marc、Timmermans, Stefan(2003)。The Gold Standard: the Challenge of Evidence-Based Medicine and Standardization in Health Care。Philadelphia:Temple University Press。  new window
27.Haraway, Donna Jeanne(1990)。Simians, Cyborgs, and Women: The Reinvention of Nature。Routledge。  new window
28.Foucault, Michel、Hurley, Robert(1990)。The History of Sexuality, Vol. 1: An Introduction。Vintage。  new window
29.Pickering, Andrew(1995)。The Mangle of Practice: Time, Agency, and Science。University of Chicago Press。  new window
30.Atkinson, Paul(1997)。The Clinical Experience: The Construction and Reconstruction of Medical Reality。Brookfield, VT:Ashgate。  new window
31.Brown, Nik、Webster, Andrew(2004)。New Medical Technologies and Society。New Medical Technologies and Society。Cambridge, UK。  new window
32.Duden, Barbara(1991)。The Woman Beneath the Skin。The Woman Beneath the Skin。Cambridge, MA。  new window
33.(1997)。The Sociology of Medical Science and Technology。The Sociology of Medical Science and Technology。Oxford, UK。  new window
34.Fujimura, Joan(1991)。On Methods, Ontologies, and Representation in the Sociology of Science: Where Do We Stand?。Social Organization and Social Process: Essays in Honor of Anselm Strauss。New York, NY。  new window
35.Fujimura, Joan(1996)。Crafting Science: A Sociohistory of the Quest for the Genesis of Cancer。Cambridge, MA:Harvard University Press。  new window
36.Glaser, Barney、Strauss, Anselm(1968)。Time for Dying。Time for Dying。Chicago, IL。  new window
37.Grathoff, Richard(1991)。Reality of Social World and Trajectories of Working。Social Organization and Social Process: Essays in Honor of Anselm Strauss。New York, NY。  new window
38.Hillis, Ken(1999)。Digital Sensations: Space, Identity, and Embodiment in Virtual Reality。Digital Sensations: Space, Identity, and Embodiment in Virtual Reality。Minneapolis, MN。  new window
39.Lachmund, Jens、Strollberg, Gunnar(1992)。The Social Construction of Illness: Illness and Medical Knowledge in Past and Present。The Social Construction of Illness: Illness and Medical Knowledge in Past and Present。Stuttgart, Germany。  new window
40.(2000)。Living and Working with the New Medical Technologies: Intersections of Inquiry。Living and Working with the New Medical Technologies: Intersections of Inquiry。Cambridge, UK。  new window
41.Mort, Maggie(2002)。Building a Trident Network: A Study of the Enrollment of People, Knowledge, and Machines。Cambridge, MA:MIT Press。  new window
42.Moser, Ingunn、Law, John(1999)。Good Passage, Bad Passage。Actor Network Theory and After。Oxford, UK。  new window
43.Oudshoorn, Nelly、Pinch, Trevor(2008)。User-technology Relationships: Some Recent Developments。The Handbook of Science and Technology Studies。Cambridge, MA。  new window
44.Riemann, Gerhard、Schutz, Fritz(1991)。Trajectory as a Basic Theoretical Concept。Social Organization and Social Process: Essays in Honor of Anselm Strauss。New York, NY。  new window
45.Stacey, Jackie(1997)。Teratologies: A Cultural Study of Cancer。Teratologies: A Cultural Study of Cancer。London, UK。  new window
46.Strauss, Anaelm、Fagerhaugh, Shizuko、Suczek, Barbara、Wiener, Carolyn(1985)。The Social Organization of Medical Work。Chicago, IL:University of Chicago Press。  new window
47.The, Anne-Mei(2002)。Palliative Care and Communication: Experiences in the Clinic。Buckingham:Open University Press。  new window
48.Young, Iris(1990)。Pregnant Embodiment。Throwing Like a Girl and Other Essays in Feminist Philosophy and Social Theory。Bloomington, IN。  new window
49.Zola, Irving Kenneth(1982)。Missing Pieces: A Chronicle of Living with a Disability。Philadelphia, PA:Temple University。  new window
其他
1.Moser, Ingunn,Law, John(2001)。Making Voices': New Media Technologies, Disabilities, and Articulation。  new window
圖書論文
1.Star, Susan Leigh(1991)。Power, Technology and the Phenomenology of Conventions: On Being Allergic to Onions。A Sociology of Monsters? Essays on Power, Technology and Domination。London:Routledge。  new window
2.Law, John(1987)。Technology and Heterogeneous Engineering: The Case of Portuguese Expansion。The Social Construction of Technological Systems: New Directions in the Sociology and history of Technology。Cambridge, Mass:The MIT Press。  new window
3.Lock, Margaret(2008)。Biomedical Technologies, Culture Horizons, and Contested Boundaries。The Handbook of Science and Technology Studies。Cambridge, MA:The MIT Press。  new window
4.Star, Susan Leigh(1991)。The Sociology of the Invisible: The Primacy of Work in the Writings of Anselm Strauss。Social Organization and Social Process: Essays in Honor of Anselm Strauss。New York, NY:Aldine de Gruyter。  new window
5.Strauss, Anselm、Suczek, Barbara、Wiener, Carolyn、Fagerhaugh, Shizuko(1991)。Illness Trajectories。Creating Sociological Awareness: Collective Images and Symbolic Representations。New Brunswick, NJ:Transaction。  new window
6.Wiener, Carolyn、Strauss, Anselm、Fagerhaugh, Shizuko、Suczek, Barbara(1997)。Trajectories, Biographies, and the Evolving Medical Technology Scene: Labor and Delivery and the Intensive Care Nursery。Grounded Theory in Practice。Thousand Oaks, CA:Sage。  new window
 
 
 
 
第一頁 上一頁 下一頁 最後一頁 top
:::
無相關著作
 
無相關點閱
 
QR Code
QRCODE