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題名:協助同性伴侶參與末期愛滋病患不施行心肺復甦術之自主決定
書刊名:護理雜誌
作者:王淑絹賴霈妤劉曉穎柯文謙柯乃熒
作者(外文):Wang, Shu-jangLai, Pei-yuLiou, Siao-yingKo, Wen-chienKo, Nai-ying
出版日期:2012
卷期:59:5
頁次:頁97-102
主題關鍵詞:同性戀愛滋病毒感染者自主決定同性伴侶HomosexualPatient with HIVSelf-determinate decisionCivil couples
原始連結:連回原系統網址new window
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同性戀愛滋病病人在臨終時,期待委託他們的同性伴侶或是親密友人擔任醫療決策的代理人。雖然我國的民法定義中,同性婚姻不是合法的,但同性戀之愛滋病病人可經由「預立指示」的過程,委任同性伴侶為醫療代理人,完成預立醫囑。此篇案例報告為描述一位末期同性戀愛滋病患者合併肝衰竭,護理人員在病人意識清醒時透過預立醫療指示之過程,尊重並協助病人完成其委任同性伴侶為醫療代理人之護理經驗。護理人員透過認可同性伴侶的角色並給予情感支持外,同時與醫療團隊召開家庭會議,協助個案完成委任同性伴侶成為醫療代理人的心願,藉由個別性及完善的護理措施給予個案及同性伴侶情感支持,並在個案病程變化的同時,給予同性伴侶支持及協助其與個案父親的溝通,摒棄痛苦且無意義的急救過程,共同陪伴個案走過臨終期。臨床護理人員具備臨床專業知識外,更需同理同性戀伴侶在社會的處境,透過相關法律的協助,才能化身為病人的「代言人」,完成病人臨終自主決定的心願。
Family members play an important role in the process of writing advance directives. Homosexual men infected with HIV often wish to authorize their intimate same-sex partner or friends rather than immediate family members to make medical decisions on their behalf. Although same-sex marriage is currently illegal in Taiwan, HIV infected homosexual patients are able to write advance directives appointing their same-sex partner to be their surrogate decision maker for end-of-life medical decisions. This case report describes an experience assisting a homosexual patient with HIV to write his advance directives. The nurse assisted the patient and his partner to make a self-determined decision not to resuscitate. Family conferences held to discuss the patient’s decisions regarding resuscitation helped legitimize his partner’s primary role in making end-of-life healthcare decisions on his behalf. As an advocate for patient rights, nurses should understand the law as it relates to homosexuality and end-of-life decision making, inform patients on the durable power of autonomy, and help execute their advance directives.
期刊論文
1.顧乃平、李從業(20021200)。預立指示及倫理考量。護理雜誌,49(6),18-25。new window  延伸查詢new window
2.方慧芬、張慧玉、林佳靜(20090200)。末期病人面臨預立醫囑、生前預囑之現況及與生命自決之倫理議題。護理雜誌,56(1),17-22。new window  延伸查詢new window
3.Bassett, William W.(1978)。Canon Law and the Common Law。Hastings LJ,29,1383。  new window
4.趙可式(19960300)。臨終病人照護的倫理與法律問題。護理雜誌,43(1),24-28。new window  延伸查詢new window
5.畢恆達(20030500)。男同性戀與父母:現身的考量、策略、時機與後果。女學學誌:婦女與性別研究,15,37-78。new window  延伸查詢new window
6.駱俊宏、林燕卿、王素女、林蕙瑛(20050900)。從異性戀霸權、父權體制觀看同性戀者之處境與污名。臺灣性學學刊,11(2),61-73。new window  延伸查詢new window
7.蔡甫昌、潘恆嘉、吳澤玫、邱泰源、黃天祥(20060700)。預立醫療計畫之倫理與法律議題。臺灣醫學,10(4),517-536。  延伸查詢new window
其他
1.台灣性別人權協會(2006)。蕭美琴籲重視同志婚姻權推動同性婚姻法。  延伸查詢new window
2.全國法規資料庫(2008)。民法。  延伸查詢new window
3.蔡春美(2008)。愛在「正」、「負」之間--愛滋身份相異男同性戀伴侶的諮商經驗。  延伸查詢new window
4.Bor, R., Miller, R., & Goldman, E.(1993)。HIV/AIDS and the family: A review of research in the first decade。  new window
5.Steinbrook, R.(1987)。Ethical issues in the AIDS epidemic。  new window
6.Triangle Community Works(2002)。Health works。  new window
7.Quill, T. E.(2004)。Dying and decision making- Evolution of end-of-life options。  new window
 
 
 
 
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