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題名:民主審議作為一項生醫研究倫理原則--國際人權、美國法及臺灣經驗之考察
書刊名:中華國際法與超國界法評論
作者:張兆恬
作者(外文):Chang, Chao-tien
出版日期:2012
卷期:8:2
頁次:頁269-298
主題關鍵詞:生醫研究倫理原則主義專業自律自決告知同意倫理委員會美國國家生物倫理委員會民主審議人體生物資料庫資訊隱私利益分享公眾參與賦權Biomedical research ethicsPrinciplismProfessional self-regulationAutonomyInformed consentInstitutional Review BoardIRBPresidential Commission for the Study of Bioethical IssuesDemocratic democracyInformation privacyBenefit-sharingPublic participationEmpowerment
原始連結:連回原系統網址new window
相關次數:
  • 被引用次數被引用次數:期刊(3) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:1
  • 共同引用共同引用:39
  • 點閱點閱:33
期刊論文
1.Chien-Te Fan et al.(2008)。Taiwan Biobank: A Project Aiming to Aid Taiwan's Transition into a Biomedical Island。PHARMACOGENOMICS,9(2),1。  new window
2.Carol E. Kaufman、Saumya Ramarao(200504)。Community Confidentiality, Consent, and the Individual Research Process: Implications for Demographic Research。POPULATION Research and Policy Review,24(2),149+154-155。  new window
3.Patricia Kahn(1994)。Genetic Diversity Project Tries Again。SCIENCE,720,720。  new window
4.Ellen Wright Clayton(2002)。The Complex Relationship o f Genetics, Groups, and Health: What It Means for Public Health。J. L. Med. & ETHICS,30,290-292。  new window
5.Joan L. McGregor(2007)。Population Genomics and Research Ethics with Socially Identifiable Groups。J.L. MED. & ETHICS,35,356-358。  new window
6.Richard R. Sharp(2000)。Involving Study Populations in the Review of Genetic Research。J.L. Med. & ETHICS,28,41-42。  new window
7.立法院(2008)。委員會紀錄。立法院公報,97(28),234-235。  延伸查詢new window
8.Katherine Drabiak-Syed, J.D.(2009)。State Codification of Federal Regulatory Ambiguities in Biobanking and Genetic Research。J. Legal Med.,30,299-302。  new window
9.Jane Kaye et al.(201205)。From Patients to Partners: Participant-Centric Initiatives in Biomedical Research。NATURE REVIEWS GENETICS,13,371。  new window
10.邱文聰(20090500)。從資訊自決與資訊隱私的概念區分--評「電腦處理個人資料保護法修正草案」的結構性問題。月旦法學,168,172-189。new window  延伸查詢new window
11.Wong, Joseph(2005)。Re-making the Developmental State in Taiwan: The Challenges of Biotechnology。International Political Science Review,26(2),169-191。  new window
會議論文
1.吳挺鋒、翁裕峯、陳佳欣(2010)。人體生物資料庫(Biobank)的公衆溝通:台灣經驗的初探。第二屆STS學會、年會曁會員大會,12-13。  延伸查詢new window
圖書
1.Tom L. Beauchamp、James F. Childress(2009)。Principles of Bioimedical Ethics 99-280。New York:Oxford Univ. Press。  new window
2.Albert T. Jonsen et al.(1998)。Source Book in Bioethics:A Documentary History 22。Washington D.C.:Georgetown Univ. Press。  new window
3.(2012)。Improving the System for Protecting Human Subjects: Counteracting IRB “Mission Creep”。The Illinois White Paper。  new window
4.Steven Joffe et al.(2001)。Quality of Informed Consent in Cancer Clinical Trials: a Cross-Sectional Survey。368 LANCET。  new window
5.Sandra Soo-Jin Lee et al.(2001)。The Meaning of "Race" in the New Genomics: Implications for Health Disparities Research。1 YALE J. HEALTH POL’Y L. & ETHICS 33。  new window
6.Weldon(2007)。Social Concerns: 9。THE ETHICS AND Governance of Human Genetic Databases:European Perspectives。  new window
7.Alan Doyle et al.(2003)。The UK Biobank。Society and Genetic Information: Codes and Laws in the Genetic Era。  new window
8.Joseph Wong(2011)。Betting on Biotech Innovation -and the Limits of Asia's Developmental State1-2。Ithaca:Cornell Univ. Press。  new window
9.Terence Hua Tai、Wen-Tsong Chiu(2007)。Equality and Community in Public Deliberation: Genetic Democracy in Taiwan。GENETIC DEMOCRACY: PHILOSOPHICAL PERSPECTIVES。  new window
10.Kathryn G. Hunter、Graeme T. Laurie(2009)。Involving Public in Biobank Governance。The Governance of Genetic Information:Who Decides?。  new window
11.Lado, Robert(1957)。Linguistics across Cultures: Applied Linguistics for Language Teacher。University of Michigan Press。  new window
12.Gutmann, Amy、Thompson, Danis(1996)。Democracy and Disagreement。Belknap Press of Harvard University Press。  new window
13.Gutmann, Amy、Thompson, Dennis F.(2004)。Why Deliberative Democracy?。Princeton University Press。  new window
14.Young, Iris Marion(2000)。Inclusion and Democracy。Oxford University Press。  new window
其他
1.Presidential Commission for the Study of Bioethical Issues(20110913)。“ETHICALLY IMPOSSIBLE” STD RESEARCH IN GUATEMALA FROM 1946-1948,http://bioethics.gov/cms/node/654, 20121212。  new window
2.Presidential Commission for the Study of Bioethical Issues(20111215)。MoralScience: Protecting Participants in Human Subjects Research,http://bioethics.gov/cms/node/558 (last visited ), 20121212。  new window
3.(20101216)。Presidential Commission for the Study of Bioethical Issues, New Directions: The Ethics of Synthetic Biology and Emerging Technologies 4,http://bioethics.gov/cms/synthetic-biology-report, 20121212。  new window
4.林思宇(20121103)。中研院「台灣生物資料庫」啓動,https://rec.chass.ncku.edu.tw/tidings/1178, 20121210。  延伸查詢new window
5.WMA(2012)。Declaration of Helsinki,http://www.wma.net/en/30publications/10policies/b3/, 20100831。  new window
6.Centers for Disease Control and Prevention, U.S.(20110614)。Public Health Service Syphilis Study at Tuskegee,http://www.cdc.gov/tuskegee/timeline.htm, 20121212。  new window
7.HHS。Federal Policy for the Protection of Human Subjects,http://www.hhs.gov/ohrp/humansubjects/cominonrule/index.html, 20120831。  new window
8.North American Regional Committee Human Genome Diversity Project(1998)。Proposed Model Ethical Protocol for Collecting DNA Samples North American Regional Committee Human Genome Diversity Project, 11,http://hsblogs.stanford.edu/morrison/files/2011/03/model-ethical-protocol.pdf, 20121212。  new window
9.NIH(20080221)。to Consider When Planning a Genetic Study That Involves Members OF Named Populations,http://bioethics.od.nih.gov/named_populations.html, 20121212。  new window
10.UNAIDS/WHO(2011)。Participatory Practice -Guidelines for Biomedical HIV Prevention Trials,http://www.unaids.org/en/media/unaids/contentassets/ documents/unaidspublication/2011/JC1853_GPP_Guidelines_2011_en.pdf, 20121212。  new window
11.Presidential Commission for the Study of Bioethical Issues(20100830)。Research Across Borders:Proceedings of the International Research Panel of the Presidential Commission for the Study of Bioethical Issues,http://bioethics.gov/cms/node/346, 20121212。  new window
12.劉靜怡,劉宏恩(2009)。台灣生物資料庫荒腔走板,蘋果日報。,http://www.appledaily.com.tw/appledaily/article/headline/20090507/31609127, 20121210。  延伸查詢new window
13.李柏毅、詹惠鈞(2009)。跨國藥廠採集基因恐洩露個資,http://www.awakeningtw.com/awakening/news_center/show.php?itemid=6532, 20121212。  延伸查詢new window
14.(20120517)。Transcript of Presidential Commission for the Study of Bioethical Issues Meeting on May 17, 2012 in Washington,http://bioethics.gov/cms/meeting-9。  new window
15.(2012)。建制台灣生物資料庫先期規劃之延續計畫,http://www.twbiobank.org.tw/01news.htm, 20121210。  延伸查詢new window
16.(2012)。建制台灣生物資料庫先期規劃,http://www.twbiobank.org.tw/DOH_Pilotl/, 20121210。  延伸查詢new window
17.衛生署臨床試驗與研究推動小組(2012)。台灣生醫科技島計畫,http://www.etan.com.tw/impetus/island.htm, 20120828。  延伸查詢new window
18.王慧瑛,林秀美(2010)。原住民痛/年抽八次血另種苦難,http://biobankforum.blogspot.com/2010/03/blog-post_9793.html, 20121210。  延伸查詢new window
19.陳威任(20100322)。原民基因研究引發倫理爭議,http://news.sina.com.tw/article/20100322/2902302.html, 20121210。  延伸查詢new window
20.李宗祐(2007)。研究葛瑪蘭唾液,林媽利遭糾正,http://www.coolloud.org.tw/node/7488, 20121210。  延伸查詢new window
圖書論文
1.邱文聰(2010)。科學研究自由與第三波科學民主化的挑戰--對「知識憲法」與「政治憲法」二分的一個批判考察。2009科技發展與法律規範雙年刊:科學管制、學術研究自由與多元民主價値。  延伸查詢new window
 
 
 
 
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