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題名:臺灣某醫學中心愛滋病患家屬壓力與因應行為之初探
書刊名:護理雜誌
作者:蘇逸玲邱臺生陳瑛瑛
作者(外文):Su, Y. L.Chiu, T. S.Chen, Y. Y.
出版日期:1998
卷期:45:6
頁次:頁43-53
主題關鍵詞:愛滋病家庭壓力因應行為AIDSFamilyStressRelevant responses
原始連結:連回原系統網址new window
相關次數:
  • 被引用次數被引用次數:期刊(8) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:8
  • 共同引用共同引用:59
  • 點閱點閱:47
     由於愛滋病需要長期的監測與照顧,除了病患外,家屬在照顧上也承受許多的壓 力與責任。本研究之目的為瞭解國內愛滋病患家屬所面臨的壓力與因應行為。進行探測性描 述研究, 於 85 年 1 月起至 12 月期間進行四位個案深入訪談,並分析訪談之內容資料。 研究結果顯示, 愛滋病患家屬之壓力來源包括( 1 )病患因素:對疾病認知不足、疾病的 合併症之照顧、不確定未來與死亡之威脅; ( 2 )家庭因素:家庭成員的反應和經濟問題 ;( 3 )社會因素:社會恥辱與社會隔離。 而家屬在情緒上反應出震驚、哀傷與懷疑,害 怕、焦慮與恐懼,無奈與抱怨。因應行為包括逃避、認命、期待與計畫、自我調適與尋求資 源。本研究建議保護病患之隱私權、提供經濟支援、成立支持團體、家屬成長團體、定期舉 辦相關人員的在職教育以及提供宗教信仰之支持。
     Families having patients with HIV infection (PWHIV) or AIDS may endure a lot of stress and responsibility while taking care of PWHIV. Due to the life-threatening disease, PWHIV frequently undergo prolonged hospitalization. An exploratory, descriptive study evaluating the stress and relevant responses of families of PWHIV was conducted from Jan 1, 1996 through Dec 31, 1996 by interviewing four families in a Taiwanese medical center. The results of this study showed that sources of stress endured by the families of PWHIV fall into three categories: (1)Patient and disease factors: including lack of knowledge of this life-threatening disease, help in dealing with complications of the disease, the uncertain future and the threat of death. (2)Family factors: the reactions of family members and financial difficulties. (3)Social factors: social stigma and social isolation. The relevant responses to these stresses involve shock, grief, and suspicion behaviors-avoidance, yielding, anticipation, planning, self-adjustment, and resource seeking. We suggest it is mandatory to protect the patient's privacy, provide financial assistance, organize social supporting groups and the family supporting groups, and provide caregivers of PWHIV with professional care training, and spiritual care.
期刊論文
1.莊苹、劉仲冬(19970200)。愛滋風暴--愛滋之烙印對感染者及一般民眾之意義。護理研究,5(1),52-64。new window  延伸查詢new window
2.趙可式(19970200)。臺灣癌症末期病患對善終意義的體認。護理雜誌,44(1),48-55。new window  延伸查詢new window
3.Brown, M. A.、Powell-Cope, G.(1991)。AIDS family caregiving: Transitions through uncertainty。Nursing Research,40(6),338-345。  new window
4.Bull, M. J.、Maruyama, G.、Luo, D.(1995)。Testing a model for posthospital transition of family caregivers for elderly persons。Nursing Research,44(3),132-138。  new window
5.Atkins, R.、Amenta, M.(1991)。Family adaptation to AIDS: A comparative study。Hospice Journal,7(1/2),71-83。  new window
6.Alexander, R.(1994)。Family caregivers for people with AIDS in rural communities。AIDS Patient Care,8(4),206-211。  new window
7.Abrams, D.(1997)。HIV的照護伙伴該如何自我調適?。誼光會訊,5,2。  延伸查詢new window
8.屠城(1993)。家有愛滋初長成:淺談家庭調適。誼光會訊,10,12-15。  延伸查詢new window
9.Fink, S. V.(1995)。The influence of family resources and family demands on the strains and wellbeing of caregiving families。Nursing Research,144(3),139-145。  new window
10.Buck, B.(1991)。Support groups for hospitalized AIDS pations。AIDS Patient Care,5(4),255-258。  new window
11.Hall, B. A.(1992)。Overcoming stigmatization: Social and personal implications of the human immuodeficiency virus diagnosis。Archives of Psychiatric Nursing,6(3),189-194。  new window
12.Giacquinta, B. S.(1990)。Attachment responses in a family affected by AIDS。AIDS Patient Care,4(1),19-22。  new window
13.Giacquinta, B.(1989)。Researching the effects of AIDS on families。The American Journal of Hospice Care,6(3),31-36。  new window
14.McCann, K.、Wadsworth, E.(1992)。The role of informal carers in supporting gay men who have HIV-related illness: What do they do and what are their needs。AIDS Patient Care,4(1),25-34。  new window
15.Manderino, M.、Brown, M.(1992)。A practical, step-by-step approach to stress management for women。The American Journal of Primary Health Care,7(17),18-28。  new window
16.Machlin, E.(1988)。AIDS: Implications for families。Family Relations,37(2),141-149。  new window
17.Kyle, R. D.、Sachs, L. G.(1994)。Perceptions of control and social support in relation to psychosocial adjustment to HIV/AIDS。AIDS Patient Care,8(6),323-327。  new window
18.Knox, M. D.、Davis, M.、Friedrich, M.(1995)。The HIV mental health spectrum。AIDS Patient Care,9(1),20-27。  new window
19.Taggart, M.-E.、Reidy, M.、Asselin, L.(1992)。Dimensions psychosociales de certains besoins fondamentaux de familles aux prises avec l'infection VIH。Canadian Journal of Public Health,83(1),42-46。  new window
20.Schmidt, J.(1992)。Care management problems and home care。Journal of the Association of Nurse in AIDS Care,3(3),37-44。  new window
21.Sadovsky, R.(1991)。Psychosocial issues in symptomatic HIV infection。American Family Physician,44(6),2065-2072。  new window
22.Raveis, V. G.、Siegal, K.(1991)。The Impact of Care Giving on Informal or Familial Care Givers。AIDS patient care,5(1),30-43。  new window
23.McGaffic, G. M.、Longman, A. J.(1993)。Connecting and disconnecting: Bereavement experiences of six gay men。Journal of Association of the Nurses in AIDS Care,4(1),49-57。  new window
24.李惠玲、湯梅芬、黃香香(19941100)。癌症病人家屬在照顧病人住院期間的壓力與因應行為。國防醫學,19(5),485-489。  延伸查詢new window
圖書
1.李宇宙(1994)。家屬的心理反應與照顧原則,後天免疫缺乏症候群心理輔導手冊。台北:行政院衛生署。  延伸查詢new window
2.林惠仁(1994)。我家有個愛滋病患者。台北:行政院衛生署。  延伸查詢new window
3.Bor, R.、Elford, J.(1995)。The Family and HIV。New York:Cassell。  new window
圖書論文
1.Christ, G. H.、Wiener, L. S.(1985)。Psychological issues in AIDS。AIDS: Etiology diagnosis, treatment, and prevention。New York:J. B. Lippincott。  new window
2.Helquist, M.(1987)。From the heart: The family's response。AIDS: A self-care manual。Los Angeles, CA:AIDS Project。  new window
3.Graves, P.(1984)。Intervening in crisis。Community health nursing; Process and practice for promoting health。ST. Louis, MO:C. V. Mosby。  new window
 
 
 
 
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