:::

詳目顯示

回上一頁
題名:視覺障礙學生主要照顧者生活品質影響層面之質性研究
書刊名:特殊教育與復健學報
作者:賀夏梅 引用關係
作者(外文):Ho, Hsia-mei
出版日期:2014
卷期:30
頁次:頁51-73
主題關鍵詞:視覺障礙學生主要照顧者生活品質Children with visual impairmentsPrimary caregiverQuality of life
原始連結:連回原系統網址new window
相關次數:
  • 被引用次數被引用次數:期刊(2) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:2
  • 共同引用共同引用:28
  • 點閱點閱:26
本研究主旨係以質性研究法探究視覺障礙學生(學前至高中職階段)主要照顧者生活品質影響層面。資料蒐集方式是以重視質性研究嚴謹性指標的可信賴性、可靠性、可驗證性及可遷移性之程序考量,採取「焦點團體」(2場)與縱橫雙向形式之「深度訪談」(4步驟)兩大階段進行。形成初步研究範疇「6大主範疇與29項副範疇」;並從進階釐清核心範疇過程中,探討出視覺障礙學生主要照顧者生活品質主要受「視障子女因素」(3項層面)及「周邊支援因素」(4項層面)兩大面向之相關層面所影響;兩者交叉衍生出「時間限制因素」,嚴重造成主要照顧者在喘息需求、家庭角色失職、就業選擇與收入的限制等層面上的影響亦是不容忽視之相關因素。最後,本研究歸納結果提出四項有助於改善生活品質的具體建議策略。
This study investigated and analyzed the quality of life of primary caregivers of children with visual impairments through qualitative research methods. The research process was divided into two major steps, the focus group interview and the in-depth interview, which put great emphasis on credibility, dependability, confirmability, and transferability for the rigorousness of data analysis. There were 6 main categories and 29 subcategories emerging from the first research outcome, which could be further condensed into two core factors, "conditions of children (3 items)" and "supports from surroundings (4 items)." They significantly influenced the quality of life of primary caregivers of children with visual impairments. In addition, the factor of time limitation derived from the two core factors aforementioned also did severe damage to the quality of life of these caregivers in such aspects as insufficient rest time, failure to assume family responsibilities, limitation of job choices, unsatisfactory income, and so on. In the final section, 4 suggestions were proposed to address these problems.
期刊論文
1.Nutheti, R.、Shamanna, B. R.、Nirmalan, P. K.、Keeffe, J. E.、Krishnaiah, S.、Rao, G. N.、Thomas, R.(2006)。Impact of impaired vision and eye disease on quality of life in Andhra Pradesh。Investigative Ophthalmology & Visual Science,47(11),4742-4748。  new window
2.李瑾婷、王如華、林鴻清、李國森、林星帆、王凱微(2011)。台灣長期仰賴氧氣治療孩童的主要照顧者之壓力探討。臺灣醫學,15(6),573-584。  延伸查詢new window
3.胡蓉、林金定(20090600)。特殊需求學生主要照顧者壓力與健康相關生活品質相關性之研究。身心障礙研究,7(2),132-143。  延伸查詢new window
4.渡邊美紀、岡村章司(2009)。家族全体のQOLの向上を目的とした保護者支援の檢討--行動研究を示す自閉症兒の母親はのカウンセリング及びコンサルテーションをを通して―。日本特殊教育學會大會發表論文集,47,378。  延伸查詢new window
5.賀夏梅(2010)。視覺障害學生のためのクオリティー‧オブ‧ライフ評價表開発とその課題-台灣特殊教育法の修正に向けて―。日本特殊教育學會大會發表論文集,48,425。  延伸查詢new window
6.賀夏梅(2011)。視覺障害學生の保護者を對象としたQOL評價尺度開發に向けての質的研究―GTアプローチによるデータ收集プロセス―。日本特殊教育學會大會發表論文集,49,438。  延伸查詢new window
7.Kelso, T.、French, D.、Fernandez, M.(2005)。Stress and coping in primary caregivers of children with a disability: A qualitative study using the Lazarus and Folkman Process Model of Coping。Journal of Research in Special Educational Needs,5(1),3-10。  new window
8.Khanna, R.、Madhavan, S. S.、Smith, M. J.、Patrick, J. H.、Tworek, C.、Becker-Cottrill B.(2011)。Assessment of healthrelated quality of life among primary caregivers of children with autism spectrum disorders。Journal of Autism and Developmental Disorders,41(9),1214-1227。  new window
9.Garwick, A. W.、Kohrman, C.、Wolman, C.、Blum, R. W.(1998)。Families' recommendations for improving services for children with chronic conditions。Archives of Pediatrics and Adolescent Medicine,152(5),440-448。  new window
10.Lamoureux, E. L.、Hassell, J. B.、Keeffe, J. E.(2004)。The Determinants of participation in activities of daily living in people with impaired vision。American Journal Ophthalmology,137(2),265-270。  new window
11.Scott, I. U.、Smiddy, W. E.、Schiffman, J.、Feuer, W. J.、Pappas, C. J.(1999)。Quality of life of low-vision patients and the impact of low-vision services。American Journal of Ophthalmology,128,54-62。  new window
12.Shu, B. C.(2009)。Quality of life of family caregivers of children with autism: The mother's perspective。Autism,13(1),81-91。  new window
13.Theule, Jennifer、Wiener, Judith、Tannock, Rosemary、Jenkins, Jennifer M.(2013)。Parenting stress in families of children with ADHD: A meta-analysis。Journal of Emotional and Behavioral Disorders,21(1),3-17。  new window
14.Trask, P. C.、Paterson, A. G.、Trask, C. L.、Bares, C. B.、Birt, J.、Maan, C.(2003)。Parental and adolescent adjustment to pediatric cancer: associations with coping, social support, and family function。Journal of Pediatric Oncology Nursing,20(1),36-47。  new window
15.Tsai, S. Y.、Cheng, C. Y.、Hsu, W. M.、Su, T. P.、Liu, J. H.、Chou, P.(2004)。The impact of visual impairment and use of eye services on health- related quality of life among the elder in Taiwan: The Shihpai eye study。Quality of Life Research,13(8),1415-1424。  new window
16.Nirmalan, P. K.、Tielsch, J. M.、Katz, J.、Thulasiraj, R. D.、Krishnadas, R.、Ramakrishnan, R.、Robin, A. L.(2005)。Relationship between vision impairment and eye disease to vision-specific quality of life and function in rural india: The aravind comprehensive eye survey。Investigative Ophthalmology of Visual Science,46(7),2308-2312。  new window
17.Shu, B. C.、Hsieh, H. C.、Hsieh, S. C.、Li, S. M.(2001)。Toward an understanding of mothering: The care giving process of mothers with autistic children。The Journal of Nursing Research,9(5),203-213。  new window
18.World Health Organization Quality of Life Work Group(1995)。The world health organization quality of life assessment (WHOQOL): Position paper from the World Health Organization。Social Science Medicine,41(10),1403-1409。  new window
19.臺灣版世界衛生組織生活品質問卷發展小組(20000800)。臺灣版世界衛生組織生活品質問卷之發展簡介。中華公共衛生雜誌,19(4),315-324。new window  延伸查詢new window
會議論文
1.羅清水(2009)。特殊教育發展框架與視野--新修訂特殊教育法對教育之影響與發展。2009年中華民國特殊教育學會41週年年會暨學術研討會。彰化市:國立彰化師範大學特殊教育學系。17-31。  延伸查詢new window
學位論文
1.蔡芳茹(2013)。發展遲緩兒童母親的壓力及相關因子探討(碩士論文)。國立臺灣大學,臺北市。  延伸查詢new window
圖書
1.Fayers, P. M.、Machin, D.(2007)。Quality of life: The assessment, analysis and interpretation of patient-reported outcomes。West Sussex, UK:John Wiley & Sons。  new window
2.姚開屏(2005)。台灣簡明版世界衛生組織生活品質問卷之發展及使用手冊。台北:世界衛生組織生活品質問卷台灣簡明版發展小組。  延伸查詢new window
3.高淑清(2008)。質性研究的18堂課:揚帆再航之旅。高雄:麗文文化。  延伸查詢new window
4.Crabtree, Benjamin F.、Miller, William L.、黃惠雯、童琬芬、梁文蓁、林兆衛(2007)。最新質性方法與研究。韋伯文化國際出版有限公司。  延伸查詢new window
5.Patton, Michael Quinn、吳芝儀、李奉儒(2008)。質性研究與評鑑。濤石文化事業有限公司。  延伸查詢new window
6.Strauss, Anselm Leonard、Corbin, Juliet M.、吳芝儀、廖梅花(2001)。質性研究入門:紮根理論研究方法。濤石文化事業有限公司。  延伸查詢new window
圖書論文
1.Lincoln, Y. S.、Guba, E. G.(1999)。Establishing Trustworthiness。Qualitative Research。Sage。  new window
 
 
 
 
第一頁 上一頁 下一頁 最後一頁 top
:::
無相關書籍
 
無相關著作
 
QR Code
QRCODE