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題名:一位尼曼匹克疾病C型末期合併呼吸困難住院病童之護理經驗
書刊名:護理雜誌
作者:陳映筑陳思蓉黃美智
作者(外文):Chen, Ying-chuChen, Su-jungHuang, Mei-chih
出版日期:2020
卷期:67:6
頁次:頁89-96
主題關鍵詞:罕見疾病尼曼匹克疾病末期照護呼吸困難照顧者角色緊張Rare diseaseNiemann-Pick diseaseEnd-of-life careDyspneaCaregiver role strain
原始連結:連回原系統網址new window
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  • 被引用次數被引用次數:期刊(0) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:0
  • 共同引用共同引用:44
  • 點閱點閱:2
期刊論文
1.DelPo, Eleanor G.、Frick, Sandra B.(1988)。Directed and Nondirected Play as Therapeutic Modalities。Children's Health Care,16(4),261-266。  new window
2.姜月桃、陳紀雯、蔡培癸、陳全美、唐秀治(20121200)。兒童生命末期症狀盛行率之文獻回顧。榮總護理,29(4),374-381。new window  延伸查詢new window
3.鄭芬蘭、蔡孟芬、蔡惠玲(20130200)。罕見疾患的家庭壓力因應與需求--以高雄市為例。教育心理學報,44(專刊),433-458。new window  延伸查詢new window
4.謝慧觀、林蕙鈴(20140700)。緩和照護中伴隨呼吸困難病人的處置。呼吸治療雜誌,13(2),23-33。  延伸查詢new window
5.Wolfe, J.、Hammel, J. F.、Edwards, K. E.、Duncan, J.、Comeau, M.、Breyer, J.、Aldridge, S. A.、Grier, H. E.、Berde, C.、Dussel, V.、Weeks, J. C.(2008)。Easing of suffering in children with cancer at the end of life: Is care changing?。Journal of Clinical Oncology,26(10),1717-1723。  new window
6.黃詩凌、賴維淑、方素瓔(20180800)。運用風扇緩解呼吸困難--系統性文獻回顧與臨床應用。護理雜誌,65(4),84-93。new window  延伸查詢new window
7.Pontes, Jéssica Etienne Dourado、Tabet, Elaine、Dos Santos Folkmann, Maria Áurea、da Rocha Cunha, Mariana Lucas、de Amorim Almeida, Fabiane(2015)。Therapeutic play: Preparing the child for the vaccine。Einstein,13(2),238-242。  new window
8.呂淑如、王筱珮(20180600)。俯臥通氣治療及其護理。護理雜誌,65(3),96-102。new window  延伸查詢new window
9.林宜信、曾曉苓(20140300)。罕見疾病病人及家屬對罕見疾病防治政策期待之調查。慈濟大學人文社會科學學刊,15,37-70。new window  延伸查詢new window
10.黃承緯、黃柏翰、梁惠茹、王玠能、蔡瑞鴻、邱威鑫(20180400)。兒童呼吸困難症狀控制。臨床醫學,81(4)=484,243-246。new window  延伸查詢new window
11.蔣立琦(20180700)。以實證為基礎的家庭護理--從理論到實務應用。源遠護理,12(2),5-12。  延伸查詢new window
12.Bösch, A.、Wager, J.、Zemikow, B.、Thalemann, R.、Frenzel, H.、Krude, H.、Reindl, T.(2018)。Life-limiting conditions at a university pediatric tertiary care center: A cross-sectional study。Journal of Palliative Medicine,21(2),169-176。  new window
13.Chavoshi, N.、Miller, T.、Siden, H.(2013)。Resource utilization among individuals dying of pediatric life-threatening diseases。Journal of Palliative Medicine,16(10),1210-1214。  new window
14.Drake, R.、Frost, J.、Collins, J. J.(2003)。The symptoms of dying children。Journal of Pain and Symptom Management,26(1),594-603。  new window
15.Geberhiwot, T.、Moro, A.、Dardis, A.、Ramaswami, U.、Sirrs, S.、Marfa, M. P.、Vanier, M. T.、Walterfang, M.、Bolton, S.、Dawson, C.、Héron, B.、Stampfer, M.、Imrie, J.、Hendriksz, C.、Gissen, P.、Crushell, E.、Coli, M. J.、Nadjar, Y.、Klünemann, H.、Patterson, M.(2018)。Consensus clinical management guidelines for Niemann-Pick disease type C。Orphanet Journal of Rare Diseases,13(1)。  new window
16.Khraisat, O. M.、Alakour, N. A.、O'Neill, T. M.(2017)。Pediatric end-of-life care barriers and facilitators: Perception of nursing professionals in Jordan。Indian Journal of Palliative Care,23(2),199-206。  new window
17.Marwaha, S.、Goswami, M.、Vashist, B.(2017)。Prevalence of principles of Piaget's theory among 4-7-year-old children and their correlation with IQ。Journal of Clinical and Diagnostic Research,11(8),ZC111-ZC115。  new window
18.Staretz-Chacham, O.、Aviram, M.、Morag, I.、Goldbait, A.、Hershkovitz, E.(2018)。Pulmonary involvement in Niemann-Pick C type 1。European Journal of Pediatrics,177(11),1609-1615。  new window
19.van der Geest, I. M. M.、Darlington, A. S. E.、Streng, I. C.、Michiels, E. M. C.、Pieters, R.、van den Heuvel-Eibrink, M. M.(2014)。Parents' experiences of pediatric palliative care and the impact on long-term parental grief。Journal of Pain and Symptom Management,47(6),1043-1053。  new window
20.Vanier, M. T.(2010)。Niemann-Pick disease type C。Orphanet Journal of Rare Diseases,5(1)。  new window
21.von Ranke, F. M.、Pereira Freitas, H. M.、Mançano, A. D.、Rodrigues, R. S.、Hochhegger, B.、Escuissato, D.、Araujo Neto, C. A.、Da Silva, T. K. B.、Marchiori, E.(2016)。Pulmonary involvement in Niemann-Pick disease: A state-of-of-the-art review。Lung,194(4),511-518。  new window
22.Widger, K.、Seow, H.、Rapoport, A.、Chalifoux, M.、Tanuseputro, P.(2017)。Children's end-of-life health care use and cost。Pediatrics,139(4)。  new window
23.張麗春、李怡娟(20040400)。賦權概念分析。護理雜誌,51(2),84-90。new window  延伸查詢new window
研究報告
1.衛生福利部統計處(2019)。107年度死因統計。  延伸查詢new window
其他
1.財團法人罕見疾病基金會。罕病分類與介紹--Niemann-Pick氏症,http://www.tfrd.org.tw/tfrd/rare_b/view/id/32。  延伸查詢new window
 
 
 
 
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