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題名:一位癌症病童生命末期躁動的陪伴經驗
書刊名:安寧療護
作者:蔡惠芳吳莉芬王怡青潘雪幸何景良錢新南
作者(外文):Tsai, Hui-fangWu, Li-fenWang, Yi-chinPan, Hsueh-hsingHo, Ching-liangCheng, Shin-nan
出版日期:2014
卷期:19:2
頁次:頁193-201
主題關鍵詞:癌末兒童躁動社會心理照顧安寧共同照護Terminal cancerChildrenAgitationPsychosocial careHospice shared care
原始連結:連回原系統網址new window
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  • 被引用次數被引用次數:期刊(0) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:0
  • 共同引用共同引用:31
  • 點閱點閱:90
目前在台灣安寧療護的領域中,面對兒童生命末期的照護,比較偏重於生理症狀的探討;當醫療出現極限時,如何提供病童的情緒照顧則較少被提及,彰顯臨床上兒童生命末期情緒照顧經驗應有更多討論的需求。本案是以安寧共同照護的方式,協助一名11歲罹患神經母細胞瘤的病童,在其生命最後一個月的臨終階段,產生情緒躁動狀況時,引導其經由對躁動的外化,進而對躁動情況命名、宣洩情緒到與情緒共處。病童主動表達出對末期自我逐漸失控的不安感,並表示「我是陽光小鬥士,怎麼現在會變這樣?」在團隊明白其內在心理的衝突後,得以在面對病童躁動時,除了用藥之外,同時提供心理情緒的照顧,使病童了解到自己的獨特及重要性,進而勇敢面對及與疾病共處。此結果亦是安寧共同照護在協助原團隊對病童的末期照顧中,所期待能發揮的角色與功效。
In hospice and palliative care for children, previous researches in Taiwan focused on subject about symptoms during end-of-life. Those however had less contents about children's emotional care. For care providers, caring children's mental and emotional requests represents a major and critical issue. We provide a case study in hospice shared care mode. The patient is an 11-year-old child who suffered from Neuroblastoma. In the patient's last month of lifespan, we assisted the patient to verbalize and nominate agitation. From the process of emotional disclosure to coexistence, the patient actively expressed the nervous feeling for being out of control self during end-of-life, and stated "I am a positive fighter! How can these happen?" By evaluating the internal confliction in the patient, hospice team provided mental care and led the patient understand more value of self-lifespan except using medication, and in advance the patient could courageously face to and peacefully coexist with the illness. When we review this case, under the shared care mode for children, the role which the hospice care team took and the efficacy is the result we expected.
期刊論文
1.沈青青、林妙怜、許婷秀、齊珍慈(20080900)。醫護人員及家屬對兒童安寧緩和照護需求滿意度之探討。榮總護理,25(3),206-214。new window  延伸查詢new window
2.許馨文、胡文郁、程劭儀、姚建安、陳慶餘、邱泰源(20051100)。某緩和病房小兒癌末病人善終服務。安寧療護,10(4),358-370。new window  延伸查詢new window
3.姜月桃、陳紀雯、蔡培癸、陳全美、唐秀治(20121200)。兒童生命末期症狀盛行率之文獻回顧。榮總護理,29(4),374-381。new window  延伸查詢new window
4.郭文正(20130400)。正向快樂行--談運用敘事治療來實踐正向心理學。諮商與輔導,328,5-14。  延伸查詢new window
5.林信佑(20100800)。小兒癌症患者之適應問題與相關影響。諮商與輔導,296,30-34。  延伸查詢new window
6.沈青青、劉王靈美、柯識鴻、龔怡萍、羅美如、田怡清、黃鈴雅、吳麗芬(20121200)。接受緩和療護癌末兒童疼痛照護之臨床指引。榮總護理,29(4),330-343。new window  延伸查詢new window
7.劉麗惠(20121200)。敘事治療在兒童諮商上的應用。諮商與輔導,324,45-49。  延伸查詢new window
8.郭銘惠、彭雪芳、鄭雅慧(20121200)。一位腱膜下出血新生兒及其家庭面臨死亡的護理經驗。榮總護理,29(4),351-357。new window  延伸查詢new window
9.普安、蔡昌雄、程裕藍、游碧真(20130300)。癌末病童之靈性照顧--以安寧病房為例。安寧療護,18(1),62-75。new window  延伸查詢new window
10.呂季紋、黃棣棟、穆佩芬(20110800)。護理人員照顧癌症病童臨終時的經驗。護理雜誌,58(4),37-46。new window  延伸查詢new window
11.林素琴(20090600)。癌末瀕死時躁動不安之現象學探討。中華心理衛生學刊,22(2),161-180。new window  延伸查詢new window
12.Gagnon, P.、Charbonneau, C.、Allard, P.、Soulard, C.、Dumont, S.、Fillion, L.(2002)。Delirium in advanced cancer: A psychoeducational intervention for family caregivers。Journal of Palliative Care,18(4),253-261。  new window
13.Morita, T.、Akechi, T.、Ikenaga, M.、Inoue, S.、Kohara, H.、Matsubara, T.(2007)。Terminal delirium: recommendations from bereaved families' experiences。Journal of Pain and Symptom Management,34(6),579-589。  new window
14.周志建(20020800)。敘事治療與現實治療之比較。諮商與輔導,200,18-22。  延伸查詢new window
15.趙國玉、葉昭幸、趙家琛、洪悠紀、陳月枝(20030600)。癌症病童面對治療之因應策略。長庚護理,14(2)=42,101-111。new window  延伸查詢new window
16.陳雅惠、陳月枝、駱麗華、林東燦、王建得(20081200)。兒科急重症病房護理人員照護臨終兒童之困境。長庚護理,19(4)=64,450-460。new window  延伸查詢new window
17.莊榮彬(20050200)。安寧共同照顧簡介。安寧療護,10(1),39-43。new window  延伸查詢new window
18.黃雅儀、楊倩玲、林素瑛、張珍珍、陳淑真(20070400)。與癌童談論死亡的策略。護理雜誌,54(2),79-84。new window  延伸查詢new window
圖書
1.陳阿月(2012)。從故事到療癒:敘事治療入門。台北:心靈工坊。  延伸查詢new window
2.列小慧(2009)。敘事從家庭開始。香港:突破。  延伸查詢new window
3.White, Michael、黃孟嬌(2008)。敘事治療的工作地圖。臺北:張老師文化事業股份有限公司。  延伸查詢new window
 
 
 
 
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