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題名:癌症兒童主要照顧者所關注的居家健康照護需求
書刊名:護理研究
作者:李雅玲高碧霞曾紀瑩駱麗華
作者(外文):Lee, Ya-lingGau, Bih-shyaTseng, Chi-yingLo, Li-hua
出版日期:2000
卷期:8:6
頁次:頁673-684
主題關鍵詞:居家健康照護兒童癌症照顧者需求Home health careChildrenCancerCaregiverNeed
原始連結:連回原系統網址new window
相關次數:
  • 被引用次數被引用次數:期刊(4) 博士論文(1) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:4
  • 共同引用共同引用:142
  • 點閱點閱:87
     本研究目的在瞭解癌症兒童的主要照顧者對居家健康照護的需求。以結構式問卷調查法,訪談來自北區多所醫學中心及區域醫院的病童主要照顧者,共得146份有效問卷。有效率88.5%。研究結果顯示:(1)病童的平均年齡為10歲,男生佔多數;主要照顧者以母親佔最多數,其次為父母共同。(2)診斷以白血病最多,患病時間平均為4.7年。(3)主要照顧者對居家健康照護的認知與期望多數是「部份了解」(43.3%);認為「目前不需家訪」的佔多數(77.8%);另一方面,若需家訪希望由A兒童癌症顧問護理師B來訪視的最多(47.3%),其次是居家照護護士(30.1%)。訪視時間以選擇「在每一次做完化療後」者為最多(72.3%)。除了護理人員外,受訪者最希望A社工師B來家訪(32.2%),其次是「營養師」(30.8%),「學校老師和醫師」分別為19.9%和19.2%。一半以上的受訪者會介意居家照護費用對家庭經濟造成負擔。(4)居家健康照護需求的項目方面,前十項依序為「陪孩子做心理輔導」、「意外傷害的預防及處理」、「飲食評估」、「提供照顧者情緒諮商(支持)」、「膳食指導」、「居家教學」、「靜脈注射藥物」、「黏膜破皮處理」、「發燒處理」、「疼痛處理」。比起成人慢性病患的居家照護,癌症兒童的居家健康照護需求有其獨特性。本研究結果可做為提供癌症病童居家健康照護服務內容很好的參考依據。
     The purpose of this study was to understand the home health care needs of children with cancer from the point of view of the caregivers. 146 caregivers were interviewed using a structured questionnaire from northern Taiwan medical centers and district hospitals. The results showed that: (1) The average age of children with cancer was 10 years old, most were male. (2) The average duration of disease was 4.7 years, most frequent diagnosis among them was leukemia. (3) The knowledge and expectations of most caregivers were very limi-ted, and most of them wanted to know more about home health care for children. Consultant nurses were the ones most caregivers expected to do home visits. In addition to these nurses, social workers, dieticians, teachers, physicians, in this order, were also expected to visit. Over half of the interviewees admitted that the fees for home health care would be a burden. (4) Ten items of home health care needs for cancer children were “mental consultation for children” “prevention and management of accidents” “diet assessment” “emotional support for caregivers” “dietetic guidance” “home teaching” “intravenous injection” “management of breakdown of mucous membrane” “management of fever” and “pain management”
期刊論文
1.李惠玲、顧乃平(19920600)。乳癌病人於化學治療中訊息需求之探討。護理雜誌,39(2),55-65。new window  延伸查詢new window
2.賴裕和(19980800)。門診接受化學治療病人之症狀困擾及居家護理需求探討。護理研究,6(4),279-289。new window  延伸查詢new window
3.李淑霞、吳淑瓊(19980200)。家庭照護者負荷與憂鬱之影響因素。護理研究,6(1),57-68。new window  延伸查詢new window
4.Blank, J. J.、Clark, L.、Lingman, A. J.、Atwood, J. R.(1989)。Perceived home care needs of cancer patients and their caregivers。Cancer Nursing,12(2),78-84。  new window
5.陳滋茨、林艷君、戴玉慈(19991000)。出院病患居家首月所面臨健康照護問題之探討。護理研究,7(5),423-434。new window  延伸查詢new window
6.高淑芳、盧孳豔、葉淑惠、劉雪娥(19990400)。探討家庭功能、社會支持與社區殘病老人照顧者負荷之關係。護理研究,7(2),172-182。new window  延伸查詢new window
7.黃璉華(19890400)。長期照護與居家照護。護理雜誌,36(2),19-23。new window  延伸查詢new window
8.李雅玲、陳月枝、林國信(19930900)。癌症兒童家庭主要照顧者對支持系統的感受。護理雜誌,40(3),59-69。new window  延伸查詢new window
9.吳聖良、胡杏佳、姚克明(19911000)。臺灣地區居家照護老人主要照顧者負荷情況及其需求之調查研究。公共衛生,18(3),237-248。  延伸查詢new window
10.胡幼慧、王孝仙、郭淑珍(19950700)。家人照護失能老人的困境:一項質化與量化整合的研究。公共衛生,22(2),99-113。  延伸查詢new window
11.吳淑瓊、江東亮(19950600)。臺灣地區長期照護的問題與對策。中華公共衛生雜誌,14(3),246-255。new window  延伸查詢new window
學位論文
1.金繼春(1986)。學齡白血病患童母親所感受到的壓力源及其應變策略(碩士論文)。國立台灣大學,台北。  延伸查詢new window
2.曾紀瑩(1993)。癌症患童母親之壓力與調適行為(碩士論文)。國立臺灣大學。  延伸查詢new window
圖書
1.Nunnally, Jum C.、Bernstein, Ira H.(1978)。Psychometric Theory。McGraw-Hill。  new window
其他
1.中央健康保險局(1998)。中華民國中央健康保險局業務手冊。  延伸查詢new window
2.中華民國兒童癌症基金會(2000)。中華民國兒童癌症基金會會訊。  延伸查詢new window
3.中華民國長期專業照護協會(2000)。台閩地區長期照護機構名冊。  延伸查詢new window
4.王銘賢(1997)。大台北早產兒居家護理小組。  延伸查詢new window
5.行政院衛生署(1999)。衛生白皮書--跨世紀衛生建設。  延伸查詢new window
6.余玉眉(1982)。癌症兒童居家護理的推展。  延伸查詢new window
7.余玉眉(1990)。居家照護納入全民健保的可行性。  延伸查詢new window
8.李雅玲(1997)。癌症兒童居家照護需求評估。  延伸查詢new window
9.周碧琴、陳靜敏、盧美秀(2000)。應用護理照護藍圖於居家腦中風病患照護之探討。  延伸查詢new window
10.陳敏麗等合著(1997)。慢性病護理學。  延伸查詢new window
11.曾紀瑩、高碧霞、李雅玲(1995)。癌症兒童父母親對化學治療護理指導需求之調査。  延伸查詢new window
12.劉佳安、吳淑瓊(1999)。社區老人對居家護理之認識及其影響因子。  延伸查詢new window
13.劉慧俐、王鴻昌(1999)。保險給付病患與非保險給付病患居家照護利用因素之探討。  延伸查詢new window
14.Bordy, S. J., &Masciocchi, C.(1980)。Data for longterm care planning by health system agencies。  new window
15.Chen, Y. C.,& Chao (Yu), Y. M.(1991)。Promoting health care for children with cancer in Taiwan。  new window
16.Cuthbert-Allman, C.,& Burrows, K.(1998)。Overcoming obstracles: Challenges of caring for an urban pediatric population。  new window
17.Fontiane, P. J.(1991)。Performance of a new softening expanding midline catheter in home intravenous therapy patients。  new window
18.Gatford A.(1992)。Keeping the sick child out of hospital。  new window
19.Irigoyen, M. See, D. & Findley, S. E.(1999)。Annotation: Children's disengagement from medical home--a neglected public health imperative。  new window
20.Jaffe, K. B.(1989)。Home health care and rehabilitation nursing。  new window
21.Kane, R. L.(1995)。Improving the quality of longterm care。  new window
22.Moeser, L. C.(1991)。Anaphylaxis: A preventable complication of home infusion therapy。  new window
23.Wong, D. L.(1991)。Transition from hospital to home for children with complex medical care。  new window
 
 
 
 
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