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題名:邁向安寧緩和醫療的新一頁
書刊名:生命教育研究
作者:熊誼芳賴允亮 引用關係蘇韋如
作者(外文):Hsiung, YvonneLai, Yuen-liangSu, Wei-ju
出版日期:2014
卷期:6:2
頁次:頁99-118
主題關鍵詞:安寧緩和醫療無效醫療預立醫療自主計畫HospiceMedical futilityAdvance care planning
原始連結:連回原系統網址new window
相關次數:
  • 被引用次數被引用次數:期刊(3) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:3
  • 共同引用共同引用:48
  • 點閱點閱:33
現代安寧緩和醫療肇始於1967年,而臺灣安寧療護的理念則萌芽於1983年,至今亦有逾二十年歷史。在臺灣安寧療護的催生與茁壯過程當中,善終善生的「四全照護」一直是發展的核心。最近三讀通過的第三次《安寧緩和醫療條例》相關修法、社會上積極推動的「預立醫療自主計畫」、以及拒絕急救相關之生命教育與臨終倫理決策,都是近年來安寧照護法規制度上力求完備的確據,也是未來此領域的重要議題。當今安寧緩和醫療的時代使命,是凝聚尖端科技,以科學驗證(evidence base)的研究成果來拒絕臨床上的無效醫療(medical futility),立基在科技、知識及技巧來整合流行病學、症狀學及育成新藥,目的在緩解生命中的苦難,增進末期病人的福祉。隨著時代的潮流法令不斷再修正,民眾接受安寧相關教育的普及化,身為安寧療護從業人員所面對的挑戰也更多元,臺灣的安寧緩和醫療正邁向新的一頁。
Originated from the linguistic root "hospitality," the term ''hospice'' in medieval time referred to an oasis for the weary on a long enervating journey. Created by Dr. Dame Cicely Saunders in 1948, hospice today is far more beyond a facility for terminally ill patientsit now stands for a mission, applying evidence-based knowledge and employing the stateof- the-art technology, a specialized care to ease patient suffering, provide comfort, and help find peace and dignity at the end of life. The goal is to meet not only physical , but also psycho-social, spiritual and cultural needs of both dying patients and their families. Pioneered in 1967, palliative care in Taiwan has evolved and modified through time to include modern societal meanings, yet the mission to center on ultimate humanity remains. Medical futility, however, as a well-established basis for withdrawing and withholding lifesustaining treatment, continues to be an ongoing clinical controversy that complicates the time point Taiwanese initiating hospice/palliative care. In addition, in the past decade the dying population who received palliative care has enlarged to comprise not only cancer Uueaupatients but also that of other diseases. Palli ative care in the new era quickly progresses and the innovative service of psycho-oncology emerges as well. In accordance with the recent third reading of Hospice Palliative Care Regulation Amendment, the govemmentpromoted "Advance Care Planning" helps clarify patients' medical preference, reduce futile possibilities, and further ensure their dignity and quality of death. While there are expected challenges and certain cultural barriers on the way for each Taiwan citizen to achieve "a good death," palliative care providers shall persist with their efforts to complete this mission.
期刊論文
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2.賴允亮(20100900)。面對絕症的醫學--臺灣安寧緩和醫療。醫療品質雜誌,4(5),13-16。new window  延伸查詢new window
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5.Castleden, H.、Crooks, V. A.、Hanlon, N.、Schuurman, N.(2010)。Providers' perceptions of aboriginal palliative care in British Columbia's rural interior。Health and Social Care in the Community,18(5),483-491。  new window
6.Clarke, A.、Seymour, J.(2010)。At the foot of a very long ladder: Discussing the end of life with older people and informal caregivers。Journal of Pain and Symptom Management,40(6),857-869。  new window
7.Council on Ethical and Judicial Affairs & American Medical Association(1999)。Medical futility in end of life care。JAMA,257(10),937-941。  new window
8.Fine, R.(2000)。Proc (Bayl Univ Med Cent)。Medical Futility and the Texas Advance Directives Act of 1999,13(2),144-147。  new window
9.Fried, T. R.、Bradley, E. H.、O'Leary J.(2003)。Prognosis communication in serious illness: perceptions of older patients, caregivers, and clinicians。Journal of the American Geriatrics Society,51(10),1398-1403。  new window
10.Hammes, B. J.、Rooney, B. L.、Gundrum, J. D.(2010)。A comparative, retrospective, observational study of the prevalence, availability, and specificity of advance care plans in a county that implemented an advance care planning microsystem。Journal of the American Geriatric Society,58(7),1249-1255。  new window
11.Hsiung, Y.、Ferrans, C.(2007)。Recognizing Chinese Americans' cultural needs in making end-of-life treatment decisions。Journal of Hospice and Palliative Nursing,9(3),132-140。  new window
12.Hudson, P.、Quinn, K.、Kristjanson, L.、Thomas, T.、Braithwaite, M.、Fisher, J.、Cockayne, M.(2008)。Evaluation of a psycho-educational group programme for family caregivers in home-based palliative care。Palliative Medicine,22(3),270-280。  new window
13.Lai, Enoch Y. L.(2004)。To establish Taiwan hospice & palliative care system。Taiwan Journal of Hospital Palliative Care,9(1),21-27。  new window
14.Pappas, Demetra M.(1996)。Recent historical perspectives regarding medical euthanasia and physician assisted suicide。British Medical Bulletin,52(2),386-393。  new window
15.Schinederman, L. J.、Jecker, N. S.、Jonsen, A. R.(1996)。Medical futility: response to critiques。Annuals of Internal Medicine,125(8),669-674。  new window
16.Steensma, D. P.(2011)。Art of oncology: New voices wanted。Journal of Clinical Oncology,29(25),3343-3344。  new window
17.Tulsky, J. A.、Arnold, R. M.、Alexander, S. C.、Olsen, M. K.、Jeffreys, A. S.、Rodriguez, K. L.(2011)。Enhancing communication between oncologists and patients with a computer-based training program: A randomized trial。Annals of Internal Medicine,155(9),593-601。  new window
18.Wright, A. A.、Zhang, B.、Ray, A.、Mack, J. W.、Trice, E.、Balboni, T.(2008)。Associations between end of life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment。Journal of the American Medical Association,300(14),1665-1673。  new window
19.Yang, C. L.、Chiu, T. Y.、Hsiung, Y.-F. Y.、Hu, W. Y.(2011)。Which factors have the greatest influence on bereaved families' willingness to execute advance directives in Taiwan?。Cancer Nursing,34(2),98-106。  new window
20.孫效智(20090300)。漸凍人氣切的倫理與法律問題。政治與社會哲學評論,28,177-200。new window  延伸查詢new window
21.胡文郁、楊嘉玲(20090200)。生命末期之病情告知與預立照護計畫。護理雜誌,56(1),23-28。new window  延伸查詢new window
22.翁益強(20110300)。探討「預立選擇安寧緩和醫療意願書」與「不施行心肺復甦術同意書」 之差異。安寧照顧會訊,79,9-11。  延伸查詢new window
23.Tulsky, J. A.(2005)。Beyond advance directives: Importance of communication skills at the end of life。JAMA: The Journal of the American Medical Association,294(3),359-365。  new window
24.Tsai, L. Y.、Li, I. F.、Liu, C. P.、Su, W. H.、Change, T. Y.(2008)。Application of quality audit tools to evaluate care quality received by terminal cancer patients admitted to a palliative care unit。Support Care Cancer,16(9),1067-1074。  new window
會議論文
1.邱泰源(201110)。應否撤除氣管內插管?安寧緩和醫療條例修正前後之倫理與法律議題探討。「2011第七屆生命教育」學術研討會,國立臺灣大學生命教育中心主辦 。臺北市:國立臺灣大學生命教中心。new window  延伸查詢new window
圖書
1.American Academy of Nursing(2011)。Raise the voice: Critical conversations on best practices in advance care planning and decision making, a national panel presentation。Washington, DC:Henry J. Kaiser Family Foundation。  new window
2.Lewis, M. J.(2007)。Medicine and care of the dying: A modern history。New York, NY:Oxford University Press。  new window
3.Lien Foundation(2010)。The quality of death: Ranking end-of-life care across the world. A report from the Economist Intelligence Unit。Singapore。  new window
4.Robbins, J.、Moscrop, J.(1995)。Caring for the dying patient in the family。London:Chapman & Hall。  new window
其他
1.「安寧療護推廣員」訓練認證課程,http://www.tho.org.tw/xms。  延伸查詢new window
2.(2011)。Preferred Priorities for Care,http://www.nhsiq.nhs.uk/resource-search/publications/eolc-ppc.aspx。  new window
3.Tilden, V. P.(2011)。Backpedaling, under pressure, on end-of-life talks. Letter to the Editor。  new window
4.(2013)。Definition of palliative care,http://www.who.int/cancer/palliative/definition/en/41。  new window
圖書論文
1.賴允亮、何景良、劉士華、林育靖(2007)。安寧緩和醫療的挑戰。安寧緩和醫療--理論與實務。新北市:新文京。  延伸查詢new window
2.賴允亮(2010)。死亡不是終點站。退休新學堂:迎接銀髮新天地的14堂課。花蓮市:臺灣基督教門諾會醫療財團法人門諾醫院。  延伸查詢new window
3.Schinederman, L. J.、Kronick, R.、Kaplan, R. M.、Anderson, J. P.、Langer, R. D.(1992)。Effects of offering advance directives on medical treatment and costs。Annuals of Internal Medicine。  new window
 
 
 
 
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