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題名:重度心智障礙者家長親職成長團體之實踐脈絡與長期參與者之心路歷程
作者:鄧佳宜
作者(外文):Teng, Chia-Yi
校院名稱:國立臺灣師範大學
系所名稱:特殊教育學系
指導教授:陳昭儀
學位類別:博士
出版日期:2019
主題關鍵詞:重度智能障礙者重度自閉症者家長親職成長團體敘事people with severe intellectual disabilitiespeople with severe autism symptomsparentsparent support groupnarrative
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本研究以家長作為起點,憑藉著家長的述說,反映出在重度心智障礙影響下的生活,而更靠近父母的處境以及自身對於這般處境如何解讀與因應。當家長受苦的臉,在我面前顯現,當下我內心不安的感覺,成為完整知識結構的破口,他人已然在我之中,而啟動了探索與實踐如何支持父母為重度心智障礙孩子提供更好的支持,透過親職成長團體的籌畫與運作,確保能盡力回應整個家庭所需求的各個面向。在推動團體運作的過程中,團體帶領者須確保團體成為接納家長與孩子的友善環境,持續且長期關心與關注家長的生活,連結與整合相關資源以回應生活多元面向之需求,持續應答家長的提問,鼓勵與引導其穿越心智障礙帶來的困境,時常反思是「為誰的利益」,才能讓家長的籲求牽引著團體來跟隨而進行調整。團體長期的停留與主動的介入,使家長有機會超越單一、被框架的角色,而能更主動地去作為,對於協助家庭撐過停滯期,抱持希望,度過危機時期,持續成長相當有幫助,但對於主流社會的框架,公共政策,校園的友善,以及家庭成員的支持則仍力有未逮。
The purpose of this narrative inquiry is to explore how parents understand and experience their own involvement in support groups for parents of raising children with severe intellectual disabilities and its impact on their life. The suffering face speaks to me and thereby invites me to a relation to explore how we can give support for parents to provide more and better support for their children with severe intellectual disabilities. As the professionals create a child friendly group environment, listen more to the views of parents, remain concerned about their problem, integrate community resources, and make time for Self- reflection, group will meet the need of parents.
Group can help parents take initiative, learn and grow, resilient to difficult life challenges, overcom the obstacles in their life, and move on with hope
Group cannot do much about what siblings need and how to provide them more sensitive support, how to build a stronger circle of support with parents and other family members, how to reduce the influence of mainstream culture on the way of thinking on student with severe intellectual disability, and long-term care policy.
參考文獻
王木榮(2007, 9, 10):身心障礙學生家長參與學校教育的角色與功能。南方璀璨的星星。取自http://blog.xuite.net/tb138/asd/105556689-%E8%BA%AB%E5%BF%83%E9%9A%9C%E7%A4%99%E5%AD%B8%E7%94%9F%E5%AE%B6%E9%95%B7%E5%8F%83%E8%88%87%E5%AD%B8%E6%A0%A1%E6%95%99%E8%82%B2%E7%9A%84%E8%A7%92%E8%89%B2%E8%88%87%E5%8A%9F%E8%83%BD
王恆(2007):列維納斯前期存在論境域中的「感性–時間」現象學疏論。中外文學,36(4),137-158。
王國羽(2007):居家中老年智障者的照顧問題:性別、居住安排與相關論述。身心障礙研究,5(1),1-29。
王淑芬(2008):親子成長導向團體對發展遲緩兒童家長親職功能之影響(未出版)。國立台中教育大學早期療育研究所碩士論文,臺中。
王慧婷(譯) (2010):亞斯伯格症與霸凌問題:解決策略與方法 (Nick Dubin著:Asperger Syndrome and Bullying: Strategies and Solutions )。新北:心理。(原著出版於2007)
王鍾和(2009):親職教育。臺北:三民。
內政部(2013):100 年身心障礙者生活狀況及各項需求評估調查。臺北:內政部統計處。
史馥綺、王玉珍(2014):最溫柔的戰士-一位自閉症者的父親之父職經驗敘說研究。國民教育,54(6),57 - 70。
朱怡康(譯)(2017):自閉症群像—我們如何從治療異數,走向接納多元(S. Silberman著:Neurotribes: The Legacy of Autism and the Future of Neurodiversity)。新北:行路。(原著出版於2015)
成虹飛(2014):行動/敘說探究與相遇的知識。課程與教學,17(4),1-24。
成麗萍(譯) (2017):讓愛重生(R. A. Naseef著:Autism in the family: caring and coping together)。中國北京:東方。(原著出版於2012)
伍曉明(譯)(2007) (E. Levinas著:Essence et Desinteressement)。是其之所是(essence)與無是/無私(desinteressement)。中外文學,36(4),65-114。
李文正(2017, 2, 8):照護壓力大母攜智障女燒炭亡。中國時報。取自http://www.chinatimes.com/newspapers/20170208000388-260106
李亭儀、 羅鈞令(2010):自閉症孩童母親不確定感之探討。職能治療學會雜誌,28( 1),29-39。
杜宜展(譯) (2010):家庭學校關係—親師合作成功策略(G. Olsen & M. L.Fuller,.著:Home-School Relations: Working Successfully with Parents and Families, 2rd Edition)。臺北:學富文化。(原著第三版出版於2008)
汪素芳譯(2007) (Emmanuel Levinas著:Metaphysics and Transcendence)。形上學與超越。中外文學,36(4),39-63。
呂素美(2004):親職教育。臺北:龍騰文化。
呂偉白(2017, 3, 23):美國特殊教育相關法規停、聽、看。呂偉白部落格。取自http://blog.ncue.edu.tw/weipailu/doc/39004
利翠珊(2005):身心障礙兒童家庭中夫妻的壓力、付出與恩情。中華心理衛生學刊,18(2),25-54。
何華國(2009):特殊兒童親職教育。臺北:五南。
何粵東(2005):敘事方法論初探。應用心理研究,25,55-72。
身心障礙者個人照顧服務辦法(2015 ):中華民國104年5月20日衛生福利部部授家字第1040700501號令修正發布
身心障礙者權益保障法(2015):中華民國 104 年 2 月 4 日 華總(一)義字第 10400013371 號令發布。
吳芝儀(譯) (2008):敘事研究--閱讀、分析與詮釋 (A. Lieblich , R. Mashiach, & T. Zilber著:Narrative research: reading, analysis and interpretation)。嘉義:濤石。(原著出版於1998)
吳芝儀(2011):以人為主體之社會科學研究倫理議題。人文社會科學研究,5(4),19-39。
吳秀瑾(2005)。依靠與平等:論Kittay愛的勞動。女學學誌,19,157-183。
吳昇儒、林欣漢(2018, 1, 26):寒假第一天陽光媽媽攜愛子輕生。自由時報。取自http://news.ltn.com.tw/news/society/paper/1171891
吳熙娟(2015, 5, 18):要怎麼樣去看支線故事。敘事療法–天使的呢喃。取自http://narrative-therapy.blogspot.com/search/label/%E6%95%98%E4%BA%8B%E5%80%8B%E4%BA%BA%E6%88%90%E9%95%B7
吳碧芳(1999, 6, 9):憾福聯誼會,開創手足「心」天地。生命力新聞。取自http://www.vita.tw/1999/06/blog-post_730.html#.Uzor5PmSySo
吳嫦娥(1993):親職教育活動設計實務手冊。臺北:張老師文化。
吳勝儒(2017):教育系統推動身心障礙轉銜社區日間作業設施之策略。台東特教,46,17-21。
宋鴻燕(2008):支持自閉症幼兒家庭的關係網絡。應用心理研究, 38,173-207。
沈桂枝(2014):誰來主導學校?現代家長與學校互動的關係及啟示。嘉大教育研究學刊,33,55-80。
周月清(2007):老年婦女照顧負擔與社會支持之研究—以智障者和精神障礙者老年女性照顧者為例。內政部委託研究報告。計畫編號:095000000AU631001。取自https://www.sfaa.gov.tw/SFAA/Pages/Detail.aspx?nodeid=725&pid=1949
周月清、鄒平儀(2004):成年心智障礙者及其主要照顧者使用臨托服務影響之研究。社會政策與社會工作學刊,8( 2),39-82。
周沛郁(譯)(2011):孩子,誰來照顧你?一位父親寫給自閉兒的信(H. W. Freihow著:Dear Gabriel)。臺北:春光。(原著初版於2006)
周政達(2008):以繪本讀書會為主的親職教育方案對特殊學校學生家長成長經驗的探討(未出版)。國立台中教育大學特殊教育學系碩士班碩士論文,臺中。
周純玉(2009):從心出發-自閉兒母親參與家長團體的歷程之探討(未出版)。國立屏東教育大學特殊教育學系碩士論文,屏東。
林正盛、韓淑華、林怡欣、吳昭典、廖芳珍(2010):一閃一閃亮晶晶。台北:有鹿文化。
林宏濤(譯)(2013):正義的理念(A. Sen著:The Idea of Justice)。商周:臺北。(原著出版於2009)
林杏足(2013):敘事諮商中當事人自我認同轉化歷程之研究。中華輔導與諮商學報,37,209-242。
林杏足、李華璋、釋宗白、姜兆眉(2009):性侵害倖存者的敘事治療歷程分析-以安置機構少女爲例。亞洲家庭暴力與性侵害期刊,5(2),281-304。
林玲伊(2009):前驅研究︰台灣的青少年和成年人自閉症家庭之照顧者負荷及自閉症終身議題。身心障礙研究季刊,7(4),291-311。
林玲伊(2012):前驅研究:青少年和成年自閉症者兄弟姐妹之日常生活經驗與手足關係。身心障礙研究季刊,10(3),163-178。
林美珠(2000):敘事研究:從生命故事出發。輔導季刊,36(4),27-34。
林美珠、溫錦真、高倜歐(2014):敘事意義性、連貫性與對話性:一次治療書寫的敘事理解與分析。臺灣諮商心理學報,2(1),31-50。
林美瑗(2012):牽著天使的手:十七個慢飛家庭的故事。臺北:心靈工坊。
林家興(1997):親職教育的原理與實務。臺北:心理。
林家興(2010):哪些因素最能預測親職教育團體的效果?。教育心理學報,41(4),847-858。
林桂如(2007):身心障礙學生之家長支持性團體運作探討。身心障礙研究季刊,5(4),259-270。
林靜容(2012):餅乾男孩:一個自閉兒的成長歷程。臺北:哈佛人。
林鴻信(2007):敘事情節當中的自我與他者— 從利他觀點看自我與他者。台灣東亞文明研究學刊,4(2),1-26。
林麗菊(2001):質性資料。載於黃光雄主譯(原作者:Bogdan, R. C. & Biklen, S. K.):質性教育研究:理論與方法(157-217頁)。嘉義:濤石文化。
邱毓玲(2001):自閉症父母照顧需求之探討(未出版)。東海大學社會工作研究所碩士論文,臺中。
邱慕天(2017, 1, 22):全球周刊封面:多重宇宙,我們在哪。新科學人。取自https://anntw.com/articles/20170122-yefY
金樹人(2011):心理位移研究的趣與味:自性化過程的實踐。輔導季刊,47(2),1-6。
卓紋君、簡文英(2003):薩提爾模式親職成長團體對國中生家長輔導效果之研究。高雄師大學報,15,163-188。
施奕如(譯)(2013):平凡的邪惡:艾希曼耶路撒冷大審紀實(H. Arendt著:Eichmann in Jerusalem: A Report on the Banality of Evil)。台北:玉山社。(原著出版於2006)
胡心慈(2017):~坐而「聽」不如起而「行」~以「問題導向學習」為取向的自閉症兒童家長成長團體之發展歷程。應用心理研究,66,47-96。
孫一信(2006):台灣的智障者人權現況與反省。取自www.isu.edu.tw/upload/25/6/files/dept_6_lv_3_3931.doc。
馬家蕙(1995):台灣的殘障權利運動。身心障礙者服務資訊網。取自http://disable1.yam.org.tw/history/1.htm
財團法人育成社會福利基金會(2014):辦理社區日間作業設施及服務模式作業手冊。取自https://ycswf.org.tw/wp-content/uploads/2018/07/103%E8%BE%A6%E7%90%86%E7%A4%BE%E5%8D%80%E6%97%A5%E9%96%93%E4%BD%9C%E6%A5%AD%E8%A8%AD%E6%96%BD%E6%9C%8D%E5%8B%99%E4%BD%9C%E6%A5%AD%E6%89%8B%E5%86%8A.pdf
財團法人中華民國自閉症基金會(2018):2018 年世界關懷自閉症日國際研討會:成人自閉症者之生涯轉銜輔導與全面參與(緣起)。取自http://www.fact.org.tw/index.php/politic-2/2016-10-05-08-16-50/419-2018-02-02-07-33-00
倪志琳(1995):自閉症兒童與其家庭。特殊教育季刊,56,16-22。
唐紀絜、林宏熾、林金定、陳英進、羅淑珍、簡言軒(2007):臺灣地區發展遲緩兒童家庭生活衝擊預測因子之研究。身心障礙研究季刊,5(3),150-163。
張正芬(1997):自閉症兒童的行為輔導—功能性評量的應用。特殊教育季刊,65,1-7。
張秀玉(2011):以家庭優勢為焦點的個別化家庭服務計畫–任務性團體過程與成果。特殊教育研究學刊,36(1),1-26。
張英熙(2013):從失落到接納:特殊兒童家長心理支持團體實務。臺北:心理。
張英熙、吳真(2001):特殊兒童家長支持團體效果初探。特教教育季刊,80,30-4。
張喜凰、林惠芬(2011):國小普通班自閉症學生學校適應與學校支持之研究-以中部地區為例。特殊教育與復健學報,25,25-46。
張順美(2010, 3, 17):淺談親職教育的重要。時事評論。取自https://life.edu.tw/homepage/discuss/t-5-293.php?board_no=B000000169&seri_no=473&pageth=6
張君玫(2016):後殖民的賽伯格: 哈洛威和史碧華克的批判書寫。台北:群學。
陳伶珠(2011):雙重老化智能障礙者家庭照顧經驗初探。台灣高齡服務管理學刊,1(1),135-165。
陳昭儀(1995):身心障礙兒童與家庭。師大學報,40,187-212。
陳冠備(2017, 3, 15):騎三輪車賣菜,啟智學員開心圓夢。自由時報電子報。取自http://news.ltn.com.tw/news/life/breakingnews/2005480
陳致福(2002):特殊教育學校的危機與挑戰。師友月刊,417,15-17。
陳鈞凱(2015, 4, 20):養兒大不易!家有身障兒三成父母動過自殺念頭。NOWnews今日新聞。取自https://www.nownews.com/news/20150420/1672595
陳節如(2017):為愛,竭盡所能:弱勢權益推手陳節如的奮戰之路。 臺北:圓神。
陳嫺霓、楊康臨、阮震亞、吳佩芳(2014, 1, 14):走進光譜的一端~看亞斯伯格兒童家庭的夫妻共親職與壓力調適經驗。臺灣兒童發展早期療育協會第十四屆早療論文發表。取自http://www.caeip.org.tw/modules/AMS/article.php?storyid=791
陳慧真( 2016, 5, 6):成人自閉症母親的吶喊:孩子,媽媽還能照顧你幾年。民報。取自http://www.peoplenews.tw/news/a1a05c7d-eb7e-4820-ad7b-1c9e5cf3d872。
許素彬、張耐、王文瑛(2006):身心障礙幼兒家長支持團體運作之研究與評估:以領航父母為例。臺大社會工作學刊,13,1-40。
梁偉岳(2004):「她是我一生的課題」:一位自閉症青年母親的養育經驗。特殊教育與復健學報,12,257-281。
彭心儀(譯)(2012):走出黑暗.邁向光明–心智障礙服務變革歷程之經驗談(R. L. Schalock & D. L. Braddock 著:Out of the Darkness and Into the Light: Nebraska's Experience in Mental Retardation)。臺北:財團法人心路社會福利基金會。(原著出版於 2002)
黃志雄(2005):特殊教育學校的轉型與挑戰。師友月刊,453,33-36。doi:10.6437/EM.200503.0033
黃淑莉(2016, 6, 16):重障特教生畢業無處安置家長愁。自由時報。取自http://news.ltn.com.tw/news/local/paper/1000912
黃淑賢(2003):復原力對自閉症兒童家長心理調適影響之研究(未出版)。暨南國際大學輔導與諮商研究所碩士論文,南投。
黃旭磊(2019, 2, 21):相挺唐寶寶小作所、庇護商店扶輪社友捐款拋磚引玉。自由時報。取自https://news.ltn.com.tw/news/life/breakingnews/2706081
黃孟嬌(譯)(2008):敘事治療的工作地圖( M. White著:Maps of narrative practice )。臺北:張老師文化。(原著出版於 2007)
曾雅苹(2016):早期療育家長自助團體運作之研究。國立臺中教育大學幼兒教育學系早期療育研究所 碩士論文,臺中。取自http://ntcuir.ntcu.edu.tw/bitstream/987654321/11677/2/NEI103116.pdf
項靖、陳儒晰、陳玉箴、李美馨(譯)(2001):論文計畫與研究方法(L. F. Locke, W. W. Spirduso, & S. J. Silverman著:Proposals that Work: A Guide for Planning Dissertations and Grant Proposals, 4th ed)。臺北:韋伯。(原著出版於 2000)
萬育維、王文娟(譯) (2002):身心障礙家庭—建構專業與家庭的信賴練盟( A. P. Turnbull, & H. R. Turnbull著:Families, Professionals, And Eeceptionality: Collaborating For Empowerment H. Rutherford Turnbull.)。臺北:紅葉文化。(原著第三版出版於2001年)
詹益樑(無日期):自閉症者父母壓力與因應策略之初探。取自http://www.nhu.edu.tw/~society/e-j/85/85-03.htm
雷游秀華 (2005):及早發現、及早治療–早期療育對發展遲緩兒的重要性。衛生署衛生報導, 24-26。
楊穎茜(2013):《笛卡爾式的沉思錄》中的原初領域──論胡塞爾第五沉思中交互主體性理論之困局。清華大學哲學研究所碩士論文,新竹。
楊婉儀(2015):神聖、他人與倫理。生命教育研究,7(1),1-19。
楊婉儀(2017):死‧生存‧倫理。臺北:聯經。
臧汝芬(2010):台灣過動兒家長團體治療的十年回顧。中華團體心理治療,16(1),3-10。
廖淑廷、林玲伊(2013):親子關係與母親安適感之關聯性研究:以臺灣青少年及成年自閉症個案之母親為例。中華輔導與諮商學報,37,157-175。
管瓊瑛、徐尚為、林藍萍、林金定(2013):泛自閉症兒童及青少年健保門診醫療利用與資源耗用初探。身心障礙研究季刊,11(3),140-149。
鄧元尉(2007):列維納斯語言哲學中的文本觀。中外文學,36(4),159-189。
蔡亞樺、張凱翔(2016, 11, 1):庇護工廠、小作職訓場窄門難進。自由時報。取自http://news.ltn.com.tw/news/local/paper/1047478
蔡敏玲、余曉雯(譯)(2016):敘說研究:質性研究中的經驗與故事(D. J. Clandinin & F. M. Connelly著:Narrative inquiry: Experience and story in qualitative research)。新北:心理。(原著初版於2000)
劉慈惠(2007):幼兒家庭與學校合作關係理論與實務。臺北:心理。
劉學融(譯) (2011):與泛自閉症兒童一起成長-給家庭的逐步學習手冊(B. L. Stephanie, M. G. Jennifer, & G. R. Raymond.著:Helping Your Child with Autism Spectrum Disorder: A Step-by-Step Workbook for Families )。臺北:心理。(原著初版於2005)
賴俊雄(2007):倫理回歸:列維納斯的倫理政治。中外文學,36(4),11-38。
賴俊雄(2010):列維納斯與文學。臺北:書林。
賴俊雄(2014):回應他者:列維納斯再探。臺北:書林。
戴華、甘偵蓉、鄭育萍(2010):人文社會科學與研究倫理審查:執行研究倫理治理架構計畫的考察與反思。人文與社會科學簡訊,12(1),10-18。
謝忍翾(譯) (2016):背離親緣(上)(A. Solomon著:Far from the Tree: Parents, Children and the Search for Identity)。新北:大家。(原著初版於2013)
簡宣靚(譯) (2016):背離親緣(下)(A. Solomon著:Far from the Tree: Parents, Children and the Search for Identity)。新北:大家。(原著初版於2013)
藍佩嘉(2009):照護工作:文化觀點的考察。社會科學論叢,3(2),1-27。
藍佩嘉(2014):做父母、做階級:親職敘事、教養實作與階級不平等。台灣社會學,27,97-140。
藍佩嘉 (2018a):父母不帶遲緩兒就醫的背後。親子天下,98。取自https://www.parenting.com.tw/article/5076315-%E8%97%8D%E4%BD%A9%E5%98%89%EF%BC%9A%E7%88%B6%E6%AF%8D%E4%B8%8D%E5%B8%B6%E9%81%B2%E7%B7%A9%E5%85%92%E5%B0%B1%E9%86%AB%E7%9A%84%E8%83%8C%E5%BE%8C/?page=1
藍佩嘉 (2018b):要求家長參與的教學,考量偏鄉隔代教養了嗎?。親子天下,97。取自https://www.parenting.com.tw/article/5075971-?%EF%9A%96%E8%94%97&page=2
鄧元尉(2007)。列維納斯語言哲學中的文本觀。中外文學,36(4),159-189。
嚴慧瑩(譯)(2017):薛西弗斯的神話(A. Camus著:Le Mythe de Sisyphe)。臺北:大塊文化。
Adesida, O., & Foreman, D. (1999). A Support Group for Parents of Children with Hyperkinetic Disorder: An Empowerment Model. Clinical Child Psychology and Psychiatry, 4, 567-578.
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders(5th ed.). Washington, DC: Author.
Bailey, Jr. D. (2001). Evaluating parent involvement and family support in early intervention and preschool program. Journal of Early Intervention, 24, 1–14.
Baker, B. L., Blacher, J., Crnic, K. A., & Edelbrock, C. (2002). Behavior problems and parenting stress in families of three-year-old children with and without developmental delays. American Journal on Mental Retardation, 107, 433–444.
Baker, B. L., McIntyre, L. L., Blacher, K., Crnic, K., Edelbrock, C., Low, C. (2003). Pre-school children with and without developmental delay: behaviourproblems and parenting stress over time. Journal of Intellectual Disability Research, 47, 217–230.
Barnett, D., Clements, M., Kaplan-Estrin, M., & Fialka, J. (2003). Building new dreams; supporting parents’ adaptation to their child with special needs. Infants and Young Children: An Interdisciplinary Journal of Special Care Practices, 16(3), 184–200.
Batu, S. (2014). Effects of teaching simultaneous prompting through visual supports to parents of children with developmental disabilities. Education and Training in Autism and Developmental Disabilities, 49(4), 505–516.
Blum, L. (2007). Mother‐blame in the prozac nation: raising kids with invisible disabilities, Gender & Society, 21(2), 202–226.
Broderick, C. B. (1993). Understanding family Process-Basics of family systems theory. London:SAGE Publications.
Brookman-Frazee, L., Stahmer, A., Baker-Ericzén, M., & Tsai, K. (2006) Parenting interventions for children with autism spectrum and disruptive behavior disorders: opportunities for cross-fertilization. Clinical Child and Family Psychology, Review, 9(3-4), 181–200.
Buck, P.S. (2017). The Child Who Never Grew: A Memoir . New York, NY: Open Road Media.
Buschbacher, P., Fox, L., & Clarke, S. (2004). Recapturing desired family routines: a parent-professional behavioral collaboration. Research and Practice for persons with Severe Disabilities, 29, 25–39.
Cappa, K. A., Begle, A. M., Conger, J. C., Dumas, J. E., & Conger, A. J. (2011). Bidirectional relationships between parenting stress and child coping competence: findings from the Pace Study. Journal of Child and Family Studies, 20, 334–342.
Clarke, S., Dunlap, G., & Vaughn, B. (1999). Family-centered, assessment-based intervention to improve behavior during an early morning routine. Journal of Positive Behavior Interventions, 1, 235–241.
Crnic, K. A., & Greenberg, M. T. (1990). Minor parenting stresses with young children. Child Development, 61, 1628–1637.
Crossley, M. L. (2000). Introducing narrative psychology: Self, trauma and the construction of meaning. Buckinghamshire, England: Open University Press.
Davies, S., & Hall, D. (2005). Contact a Family: professionals and parents in partnership. Archives of Disease in Childhood, 90, 1053-1057.
Deater-Deckard, K. (1998). Parenting stress and child adjustment: some old hypotheses and new questions. Clinical Psychology:Science and Practice, 5, 314–332.
Dellve, L., Samuelsson, L., Tallborn, A., Fasth, A., & Hallberg, L. (2006). Stress and well-being among parents of children with rare diseases: A prospective intervention study. The Journal of Advanced Nursing, 53, 392-402.
Douglas, S., & Michaels, M. (2004). The Mommy Myth. New York: Free Press.
Dunst, C., Hamby, D. W., & Brookfield, J. (2007). Modeling the effects of early childhood intervention variables on parent and family well-being. Journal of Applied Quantitative Methods, 2, 268–288.
Dunst, C. J., & Dempsey, I. (2007). Family/professional partnerships and parenting competence, confidence and enjoyment. International Journal of Disability, Development and Education, 54, 305-318.
Durand, V. M., Hieneman, M., Clarke, S., Wang, M., & Rinaldi, M. L. (2012). Positive family intervention for severe challenging behavior I: a multisite randomized clinical trial. Journal of Positive Behavior Interventions, 15, 133–143.
Durand, V. M. (2011). Optimistic parenting. Hope and help for you and your challenging child. Baltimore: Paul H. Brookes.
Elder, J. (2013). Empowering families in the treatment of autism. In D. M. Fitzgerald (Ed), Recent advances in autism spectrum disorder (Vol. 1, pp. 503-520). Rijeka, Croatia: In Tech.
Emerson, E., Robertson, J., & Wood, J. (2005). Emotional and behavioural needs of children and adolescents with intellectual disabilities in an urban conurbation. Journal of intellectual disability research, 49, 16–24.
Feinberg, E., Augustyn, M., Fitzgerald, E., Sandler, J., Ferreira-Cesar Suarez, Z., Chen, N., Cabral, H., Beardslee, W., & Silverstein, M. (2014). Improving maternal mental health after a child's diagnosis of autism spectrum disorder: Results from a randomized clinical trial. Journal of the American Medical Association Pediatrics, 168(1), 40–46.
Fine, M., & Johnson, F. (1983). Groups for parents of children with Down’s syndrome and multiple handicaps: A pilot project. Canadian Journal of Occupational Therapy, 50(1), 9–14.
Fish, W. W. (2006). Perceptions of parents of students with Autism towards the IEP meeting: A case study of one family support group chapter. Education, 127(1), 56–68.
Floyd, F. J., & Zmich, D. E. (1991). Marriage and the parenting partnership: perceptions and interactions of parents with mentally retarded and typically developing children. Child Development, 62, 1434–1448.
Gavida-Payne, S., & Hudson, A. (2002). Behavioral supports for parents of children with an intellectual disability and problem behaviors: an overview of the literature. Journal of Intellectual & Developmental Disability, 27, 31–55.
Gentry, J., & Luiselli J. (2008). Treating a child’s selective eating through parent implemented feeding intervention in the home setting. Journal of Developmental and Physical Disabilities, 20, 63–70.
Gentry, J., & Luiselli, J. (2008). Treating a child’s selective eating through parent implemented feeding intervention in the home setting. Journal of Developmental and Physical Disabilities, 20, 63–70.
Green, S. E. ‘We’re tired, not sad’: benefits and burdens of mothering a child with a disability. Social Science & Medicine, 64, 150–63.
Hammarberg, K., Sartore, G., Cann, W., & Fisher, J. R. W. (2014). Barriers and promoters of participation in facilitated peer support groups for carers of children with special needs. Scandinavian Journal of Caring Sciences, 28(4), 775–783.
Harper, A., Dyches, T. T., Harper, J., Roper, S. O., & South, M. (2013). Respite care, marital quality, and stress in parents of children with autism spectrum disorders. Journal of autism and developmental disorders, 43(11), 2604-2616.
Harries. J., Guscia, R., Nettelbeck, T., & Kirby, N. (2009). Impact of additional disabilities on adaptive behavior and support profiles for people with intellectual disabilities. American Journal on Intellectual and Developmental Disabilities, 114(4), 237–253.
Hartley, S. L., Barker, E.T., Mailick Seltzer, M., Floyd, F., Greenberg, J., & Orsmond, G. (2010). The relative risk and timing of divorce in families of children with an autism spectrum disorder. Journal of Family Psychology, 24(4), 449–457.
Hastings, R. P., Kovshoff, H., Ward, N.J., Espinosa, F.D., Brown, T., & Remington, B. (2005). Systems a analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35(5), 635-644.
Hastings, R., Robertson, J., & Yasamy, M. (2012). Interventions for children with pervasive developmental disorders in low and middle income countries. Journal of Applied Research in Intellectual Disabilities, 25(2), 119–134.
Hebert, T. P., & Beardsley, T. M.(2001). Jermaine: A critical case study of a gifted black child living in rural poverty. Gifted Child Quarterly, 45(2),85-103.
Heiman, T. & Berger, O. (2008). Parents of children with Asperger syndrome or with learning disabilities: Family environment and social support. Research in Developmental Disabilities, 29(4), 289-300.
Heller, T., Caldwell, J., and Factor, A. (2007). Aging Family Caregivers: Policies and Practices. Mental Retardation and Developmental Disabilities Research Reviews, 13(2), 136-142.
Heiman, T., & Berger, O. (2008). Parents of children with Asperger syndrome or with learning disabilities: Family environment and social support. Research in Developmental Disabilities, 29(4), 289-300
Ho, S.C., & Willms, J.D. (1996). The effect of parental involvement on the achievement of eighth grade students. Sociology of Education, 69(2), 126-141.
Hudak, Glenn M. (2011). On the Commerce of Disability and the Advocacy of Philosophy for Educators. Philosophy of Education Society 2011 Annual Yearbook, 223-225.
Janice M. F., Arlene K. F., & Karen C. M. (2012). Parents and Professionals Partnering for Children with Disabilities: A Dance That Matters. Thousand Oaks, California: Corwin Press.
Jackson, A. C., Liang, R. P., Frydenberg,E., Higgins, R. O., & Murphy, B. M. (2016). Parent education programmes for special health care needs children: a systematic review. Journal of Clinical Nursing, 25(11-12), 1528-47.
Johnson, C. A., & Katz, R. C. (1973). Using parents as change agents for their children: A review. Journal of Child Psychology and Psychiatry and Allied Disciplines, 14(3), 181-200.
Jones, L., Hastings, R. P, Totsik, V., Keane, L., & Rhule, N. (2014). Child behavior problems and parental well-being in families of children with autism: the mediating role of mindfulness and acceptance. American Association on Intellectual and Developmental Disabilities, 119, 171–185.
Kaminski, J. W., Valle,L. A., Filene, J. H., & Boyle, C. L. (2008). A meta-analytic review of components associated with parent training program effectiveness. Journal of Abnormal Child Psychology, 36(4), 567–589.
Kapell, D., Nightingale, B., Rodriguez, A., Lee, J. H., Zigman, W. B., & Schupf, N. (1998). Prevalence of chronic medical conditions in adults with mental retardation: comparison with the general population. Mental Retardation, 36(4), 269–279.
Kersh, J., Hedvat, T. T., Hauser-Cram, P., & Warfield, M. E. (2006). The contribution of marital quality to the wellbeing of parents of children with developmental disabilities. Journal of Intellectual Disability Research, 50, 883–893.
Kingsnorth, S., Gall, C., Beayni, S., & Rigby, P. (2011). Parents as transition experts? Qualitative findings from a pilot parent-led peer support group. Child: Care, Health and Development, 37(6), 833–840.
Kohler, P. D. (1996). A taxonomy for transition programming: Linking research and practice. Champaign: University of Illinois, Transition Research Institute.
Kraemer, B. R., & Blacher, J. (2001). Transition for young adults with severe mental retardation: School preparation, parent expectations, and family involvement. Mental Retardation, 39, 423-435.
Kratochwill, T. R., McDonald, L., Levin, J. R., Scalia, P. A., & Coover, G. (2009). Families and schools together: An experimental study of multi-family support groups for children at risk. Journal of School Psychology, 47(4), 245–265.
Kregel, J., Wehman, P., Seyfarth, J., & Marshall, K. (1986). Community
integration of young adults with mental retardation: Transition
from school to adulthood. Education and Training of the Mentally,
21, 35-42.
Kregel, J., Wehman, P., Seyfarth, J., & Marshall, K.
(1986). Community integration of young adults
with mental retardation: Transition from
school to adulthood. Education and Training of
the Mentally Retarded, 21, 35–42
Kregel, J., Wehman, P., Seyfarth, J., & Marshall, K.
(1986). Community integration of young adults
with mental retardation: Transition from
school to adulthood. Education and Training of
the Mentally Retarded, 21, 35–42
Kregel, J., Wehman, P., Seyfarth, J., & Marshall, K.
(1986). Community integration of young adults
with mental retardation: Transition from
school to adulthood. Education and Training of
the Mentally Retarded, 21, 35–42.
Lamb, M. (1997). The role of the father in child development. 3rd edition. New York: Wiley
Lang, R., Sigafoos, J., van der Meer, L., O’Reilly, M. F., Lancioni, G. E, & Didden, R. (2013). Early signs and early behavioral intervention of challenging behavior. In Hastings R, Rojahn J, (Eds.), International Review of Research in Developmental Disability (pp.1-35). London: Elsevier Inc. Academic Press
Law, M., King, S., Stewart, D., & King, G. (2001). The perceived effects of parent-led support groups for parents of children with disabilities. Physical & Occupational Therapy in Pediatrics, 21(2-3), 29–48.
Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behavior problems on caregiver stress in young people with autism spectrum disorder. Journal of Intellectual Disability Research, 50, 172-183.
Leslie, D. L., Martin, A. (2007). Health care expenditures associated with autism spectrum disorders. Archives of Pediatrics and Adolescent Medicine, 161(4), 350–355.
Lin, L. P., Kuan, C. Y., Hsu, S. W., Lee, T. N., Lai, C. I., Wu, J. L.,& Lin, J. D. (2013). Outpatient visits and expenditures for children and adolescents diagnosed with autism spectrum disorders and co-occurring intellectual disability: an analysis of the national health insurance claims data. Research in Autism Spectrum Disorders, 7(12), 1625–1630.
Lindo, E. J., Kliemann, K. R., Combes, B. H., & Frank, J. (2016). Managing stress levels of parents of children with developmental disabilities: A meta-analytic review of interventions. Family Relations, 65(1), 207–224.
Liptak, G..S., Stuart, T.,& Auinger, P.(2006). Health care utilization and expenditures for children with autism: data from U.S. national samples. Journal of autism and developmental disorders,36, 871–9.
Machalicek, W., Didden, R., Lang, R. Green, V. A., Lequia, J., Sigafoos, J., Lancioni, G., & O’Reilly, M. F. (2014). Parent and sibling interventions. In P. Sturmey, J. Tarbox, D.Dixon, & J.L. Matson (Eds.), Handbook of Early Intervention for Autism Spectrum Disorders. New York: Springer.
Madden, J.M., Lakoma, M.D., Lynch, F.L., Rusinak, D., Owen-Smith, A.A., Coleman, K.J., Quinn, V.P., Yau, V.M., Qian, Y.X., & Croen, L.A.(2017). Psychotropic Medication Use among Insured Children with Autism Spectrum Disorder. The Journal of Autism and Developmental Disorders, 47(1):144-154.
Malone, D. G, & Gallagher, P. A. (2008). Transition to preschool programs for young children with disabilities. Journal of Early Intervention, 30(4):341–356.
Malone, D. G., & Gallagher, P. A.(2009). Transition to preschool special education: A review of the literature. Early Education and Development, 20(4):584–602.
Mandell, D. S., & Salzer, M.S. (2007). Who joins support groups among parents of children with autism? Autism, 11(2), 111-122.
Meyer, L. H., Eichinger, J., & Park-Lee, S. (1987). A validation of program quality indicators in educational services for students with severe disabilities. Journal of the Association for Persons with Severe Handicaps, 12, 251–263.
McCabe, H., & McCabe, K. (2013). Disability and family in the People’s Republic of China: Implementation, benefits, and comparison of two mutual support groups. Journal of Intellectual & Developmental Disability, 38(1), 12–22.
McConachie, H., & Diggle, T. (2006). Parent implemented early intervention for young children with autism spectrum disorder: a systematic review. Journal of Evaluation in Clinical Practice, 13, 120–129.
McConkey, R., Kelly, F., & Craig, S. (2011). Access to respite breaks for families who have a relative with intellectual disabilities: a national survey. Journal of Advanced Nursing, 67, 1349–1357.
McConkey, R. (1994). Early intervention: Planning futures,shaping years. Mental Handicap Research, 7(1), 4-15.
McStay, R. L., Dissanayake, C., Scheeren, A., Koot, H. M., & Begeer, S. (2014). Parenting stress and autism: The role of age, autism severity, quality of life and problem behaviour of children and adolescents with autism. Autism, 18(5), 502-10.
Meadan, H., Ostrosky, M., Zaghlawan, H., & Yu, S. (2009). Promoting the social and communicative behavior of young children with autism spectrum disorders: a review of parent-implemented intervention studies. Topics in Early Childhood Special Education, 29, 90–104.
Minnes, P., Woodford, L., and Passey, J. (2007). Mediators of Well-being in Ageing Family Carers of Adults with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities, 20(6), 539-552.
Minuchin, P. (1985). Families and individual development: provocations from the field of family therapy. Family Development and the Child, 56(2), 289–302.
Mohr, W. K. (2004). Surfacing the life phases of a mental health support group. Qualitative Health Research, 14(1), 61–77.
Murkoff, H. E., & Mazel, S. (2014). What to expect the first year. 3rd edition. New York: Workman Publishing.
Myers, B.J., Mackintosh, V.H., & Goin-Kochel, R.P. (2009). “My greatest joy and my greatest heart ache:” Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives. Research in Autism Spectrum Disorders, 3, 670-684.
Ogston, P. L., Mackintosh, V. H., & Myers, B. J. (2011). Hope and worry in mothers of children with an autism spectrum disorder or down syndrome. Research in Autism Spectrum Disorders, 5(4), 1378-1384.
Orelove, F. P., Sobsey, D., & Silberman, R.(2004). Educating children with multiple disabilities: a transdisciplinary approach. 4th edition. Baltimore: Paul H Brookes Publishing Co.
Oswald, D.P.,& Sonenklar, N.A.(2007). Medication use among children with autism spectrum disorders. Journal of Child and Adolescent Psychopharmacology, 17(3), 348-355.
Ott, D., Siddarth, P., Gurbani, S., Koh, S., Tournay, A., Shields, W. D., & Caplan, R. (2003). Behavioral disorders in pediatric epilepsy: Unmet psychiatric need. Epilepsia, 44(4), 591-597.
Plummer, K. (1995). Telling Sexual Stories. London: Routledge.
Podolski, C., & Nigg, J.T. (2001). Parent stress and coping in relation to child ADHD severity and associated child disruptive behavior problems. Journal of Clinical Child and Adolescent Psychology, 30(4), 503-513.
Postorino, V., Sharp, W. G., McCracken, C. E., Bearss, K., Burrell, T. L., Evans, A. N., & Scahill, L. (2017). A systematic review and meta-analysis of parent training for disruptive behavior in children with autism spectrum disorder. Clinical Child and Family Psychology Review, 20(4), 391-402.
Pugh, G., De'Ath, E., & Smith, C. (1994). Confident parents, confident children: policy and practice in parent education and support. London: National Children's Bureau.
Raikes, H., & Thompson, R.(2005). Efficacy and social support as predictors of parenting stress among families in poverty. Journal of Mental Health ,26, 177–90.
Raphael, J.L., Zhang, Y., Liu, H., & Giardino, A.P. (2009). Parenting stress in US families: implications for pediatric healthcare utilization. Child Care Health and Development, 36, 216–224.
Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of autism and developmental disorders, 44(7), 1609-1620.
Roberts, M., & Kaiser, A. (2011). The effectiveness of parent-implemented language interventions: a meta-analysis. American Journal of Speech-Language Pathology, 20(3), 180–199.
Rose, S. D.(1974). Group training of parents as behavior modifiers. Social Work, 19(2),156-162.
Sayer, L.C., Bianchi, S.M., & Robinson, J.P. (2004). Are parents investing less in children? Trends in mothers’ and fathers’ time with children, American Journal of Sociology, 110( 1), 1–43.
Scallan, S., Senior, J., & Reilly, C. (2011). William syndrome: daily challenges and positive impact on the family. Journal of Applied Research in Intellectual Disabilities, 24, 181–188.
Schall , C. (2000). Family perspectives on raising a child with Autism. Journal of Child and Family Studies, 9, 409–423.
Seligman, M. (1990). Group approaches for parents of children with disabilities. In Seligman, M. & Marskak, L. E. ( Eds.), Group Psychotherapy: Interventions with Specific Populations. Boston: Allyn and Bacon.
Sharpley, C. F., Bitsika, V., & Efremidis, B. (1997). Influence of gender, parental health, and perceived expertise of assistance upon stress, anxiety and depression among parents of children with autism. Journal of Intellectual and Development Disability, 22, 19-28.
Shilling, V., Morris,C., Thompson-Coon, J., Ukoumunne, O.,Rogers, M., & Logan, S. (2013). Peer support for parents of children with chronic disabling conditions: A systematic review of quantitative and qualitative studies. Developmental Medicine and Child Neurology, 55(7), 602-609.
Shulruf, B. (2005). Parent support and education programme: A systematic review. New Zealand Research in Early Childhood Education,8 , 81–102.
Shurr, J., &Bouck, E. C. (2013). Research on curriculum for students with moderate and severe intellectual disability: a systematic review. Education and Training in Autism and Developmental Disabilities, 48(1), 76–87.
Singer, G.H. S.(2006). Meta-analysis of comparative studies of depression in mothers of children with and without developmental disabilities. American journal of mental retardation, 111(3), 155–169.
Snell, M. E., & Brown, F. (2010). Instruction of students with severe disabilities.7th edition. Upper Saddle River, NJ: Merrill/Prentice Hall.
Solomon, M., Pistrang, N., & Barker, C. (2001). The benefits of mutual support groups for parents of children with disabilities. American journal of community psychology, 29(1), 113-132.
Spann, S. J., Kohler, F. W., & Soenksen, D. (2003). Examining parents’ involvement in and perceptions of special education services: An interview with families in a parent support group. Focus on Autism and Other Developmental Disabilities, 18(4), 228–237
Stearns, P. N. (2003). Anxious Parents: A history of modern childrearing in America. New York: New York University Press.
Stewart, B.J., & Archbold, P. G. (1993). Focus on psychometrics — Nursing intervention studies require outcome measures that are sensitive to change: Part 2. Research in Nursing & Health, 16, 77-81.
Strauss, K., Mancini, F., & Fava, L. (2013). Parent inclusion in early intensive behavior interventions for young children with ASD: A synthesis of meta-analyses from 2009 to 2011. Research in Developmental Disabilities. 34(9):2967–2985.
Super, D. E. (1990). A life-span, life-space approach to career development. In D. Brown, L. Brooks, & Assoc. (Eds.), Career choice and development: Applying contemporary theories to practice (2nd ed, p. 197-261). SanFrancisco: Jossey-Bass.
Surbaugh, M. (2011). The Equality of Difference: A Phenomenological Ontology for Disability and Education. Philosophy of Education, 215-222.
Taub, D.J. (2006). Understanding the Concerns of Parents of Students with Disabilities: Challenges and Roles for School Counselors. Professional School Counseling Journal , 10(1),52-57.
Tongue, B., Brereton, A., Kiomall, M., Mackinnon, A., King, N., & Rinehart, N. (2006). Effects on parental mental health of an education and skills training program for parents of young children with autism: A randomized controlled trial. Journal of the American Academy of Child and Adolescent Psychiatry, 45(5), 561-569.
Totsika, V., Hastings, R.P., Emerson, E., Lancaster, G.A., & Berridge, D.M. (2011). A population-based investigation of behavioral and emotional problems and maternal mental health: Associations with Autism Spectrum Disorder and Intellectual Disability. Journal of Child Psychology and Psychiatry, 52, 91-99.
Twoy, R., Connolly, P. M., & Novak, J. M. (2007). Coping strategies used by parents of children with autism. Journal of the American Academy of Nurse Practitioners, 19(5), 251–260.
Ushpiz, A.(Producer & Director). (2016). 漢娜鄂蘭:思想的行動
Vita Activa: The Spirit of Hannah Arendt . Taiwan: 佳映娛樂。
Vismara, L.A., Colombi, C., & Rogers, S.J. (2009). Can one hour of therapy lead to lasting changes in young children with autism? Autism, 13, 93–115.
Wan, C. K., Jaccard, J., & Ramey, S. L. (1996). The relationship between social support and life satisfaction as a function of family structure. Journal of Marriage and the Family, 58(2), 502-513.
Weiss, S. J. (1991). Stressors experienced by family caregivers of children with pervasive developmental disorders. Child Psychiatry and Human Development, 21(3), 203-216.
Woodgate, R. L., Ateah, C., & Secco, L. (2008). Living in a world of our own: The experience of parents who have a child with autism. Qualitative Health Research, 18(8), 1074–1083.
Woodman, A. (2014). Trajectories of stress among parents of children with disabilities: A dyadic analysis. Family Relations, 63(1), 39–54.
Woodman, A. C., & Hauser-Cram, P.(2013). The role of coping strategies in predicting change in parenting efficacy and depressive symptoms among mothers of adolescents with developmental disabilities. Journal of Intellectual Disability Research, 57, 513–530.
Yalom, I. D., & Leszcz, M. (2005). The theory and practice of group psychotherapy. 5th edition. New York: Basic Books.
 
 
 
 
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