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題名:成年心智障礙者及其主要照顧者使用臨托服務影響之研究
書刊名:社會政策與社會工作學刊
作者:周月清鄒平儀
作者(外文):Chou, Yueh-chingTzou, Ping-yi
出版日期:2004
卷期:8:2
頁次:頁39-82
主題關鍵詞:成年心智障礙者主要照顧者社區照顧臨時及短期照顧服務喘息服務影響評估Adults with intellectual disabilitiesCarerCaregiverCommunity careRespite careImpact
原始連結:連回原系統網址new window
相關次數:
  • 被引用次數被引用次數:期刊(7) 博士論文(1) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:7
  • 共同引用共同引用:206
  • 點閱點閱:154
本研究目的係為暸解成年心智障礙者及其主要照顧者使用臨時及短期照顧服務(簡稱臨托服務)情形,並評估此服務是否有助照顧者壓力舒緩與提升其生活品質,且能促進障礙者社會融合與延緩機構安置程度。針對台北市等九縣市,正在使用臨托服務及使用三個月以上成年心智障礙者共352名從事普查,以主要照顧者為訪談對象,得有效樣本162名,受訪率46%。研究發現,此臨托服務達到支持家庭照顧的功能,但未達到延緩障礙者機構安置與促進其社區融合的顯著意義;此外,使用此項服務的家庭並不多,且多半集中在照顧者是中年人和教育程度較高者。據此,建議此服務仍有必要繼續推廣,且需放寬使用時數的限制,尤其針對居住在非院轄市、主要照顧者為父母或教育程度低者,更宜鼓勵其多參與相關性團體活動,以藉由交流、支持而增進其獲得相關資訊,並強化持續使用此項服務的動機。
The study aims to explore who are the users, how the services used, and what are the effects of the services. The study population is 352, and a survey of all these informal carers in households is conducted to evaluate the scheme, for adults with intellectual disabilities, is provided by 9 local authorities. The characteristics of 162 users whose informal carers voluntarily and successfully participated in the study are identified: who are more from Taipei City, age in 25, fathers with higher education degree, having no low-income family subsidy from the governments. Most of informal carers are female (80.2%) particularly their mothers (72.2%) and age in 51, and 41.3% of caregivers have full time or part time jobs and also join the related parental associations (77.7%). The average history of using the services is 3.1 year, average hours within a year is 12 days, being a member of the NGOs is the main way to access the services, 55.6% of the users are satisfied with the rate of self­payment, 88.6% are satisfied with the services, and 97.5% will continue to use the services. After respite, there is a statistically significant difference on releasing the caregiver's care burden and psychological stress, improving the caregiver's family and social interaction, social support, life satisfaction. on the contrary, the services are useless to enhance adults' social inclusion and postpone adults' out-of-home placement. To conclude, the respite is supportive in the issue of family care; conversely, it's not a substitute service of institutional care and it's unsuccessful for adults' social inclusion.
期刊論文
1.Cooper, J.(1989)。From Casework to Community Care: The End is Where we Start from (T. S. Eliot)。British Journal of Social Work,19,177-188。  new window
2.周月清(19960300)。心智發展障礙者家庭在宅服務方案之評估研究。東吳社會工作學報,2,183-208。new window  延伸查詢new window
3.甘炳光(19950300)。社區照顧概念與推行原則。社區發展季刊,69,132-141。new window  延伸查詢new window
4.周月清(19960600)。成年心智障礙者對家庭的影響與未來安置模式選擇因素探討。特殊教育研究學刊,14,45-66。new window  延伸查詢new window
5.周月清(20020300)。臺灣「社區照顧」與「由社區照顧」之研究--以障礙者及老人照顧為例。東吳社會工作學報,8,19-74。new window  延伸查詢new window
6.Abraham, C.(1989)。Supporting People with a Mental Handicap in the Community: A Social Psychological Perspective。Disability, Handicap and Society,4(2),121-130。  new window
7.Apolloni, A. H.、Triest, G.(1983)。Respite Services in California: Status and Recommendations for Improvement。Mental Retardation,21,240-243。  new window
8.Borsay, A.(1990)。Disability and Attitudes to Family Care in Britain: Towards a Sociological Perspective。Disability, Handicap and Society,5(2),107-122。  new window
9.Botuck, S.、Winsberg, B. G.(1991)。Effects of Respite on Mothers of School-Age and Adult Children with Severe Disabilities。Mental Retardation,29(1),43-47。  new window
10.Chappell, A. L.(1994)。A Question of Friendship: Community Care and the Relationships of People with Learning Difficulties。Disability, Handicap and Society,9(4),419-434。  new window
11.Clements, L.(1997)。Community Care - Towards a Workable Statute。The Liverpool Law Review,19(2),181-191。  new window
12.Deimling, G. T.(1991)。Respite Use and Caregiver Well-Being in Families Caring for Sable and Declining AD Patients。Journal of Gerontological Social Work,18(1/ 2),117-134。  new window
13.Emerson, E. B.、Pretty, G. M. H.(1987)。Enhancing the Social Relevance of Evaluation Practice。Disability, Handicap and Society,2(2),151-162。  new window
14.Evans, G.、Murcott, A.(1990)。Community Care: Relationships and Control。Disability, Handicap and Society,5(2),123-135。  new window
15.Gates, B.、Wray, J.(1995)。Support for Carers of People with Learning Disabilities。Nursing Times,91(46),36-37。  new window
16.Grant, G.、McGrath, M.(1990)。Need for Respite-Care Services for Caregivers of Persons with Mental Retardation。American Journal on Mental Retardation,94(6),638-648。  new window
17.Joyce, K.、Singer, M.、Isralowitz, R.(1983)。Impact of Respite Care on Parents' Perceptions of Quality of Life。Mental Retardation,21(4),153-156。  new window
18.Knoll, J. A.(1990)。Family Support: A Challenge for the 1990's。Exceptional Parent,20(4),28-34。  new window
19.Lutzer, V. D.、Brubaker, T. H.(1988)。Differential Respite Needs of Aging Parents of Individuals with Mental Retardation。Mental Retardation,26(1),13-15。  new window
20.Marc, D.、Macdonald, L.(1988)。Respite Care - Who Uses It?。Mental Retardation,26(2),93-96。  new window
21.Mest, G. M.(1988)。With a Little Help from Their Friends: Use of Social Support Systems by Persons with Retardation。Journal of Social Issues,41(1),117-125。  new window
22.Montgomery, R. J. V.(1988)。Respite Care: Lessons form a Controlled Design Study。Health Care Financing Review,Annual Supplement,133-138。  new window
23.Potter, J.、Collie, F.(1989)。Community Care as Persuasive Rhetoric: A Study of Discourse。Disability, Handicap and Society,4(1),57-64。  new window
24.Rimmerman, A.(1989)。Provision of Respite Care for Children with Developmental Disabilities: Changes in Maternal Coping and Stress over Time。Mental Retardation,27(2),99-103。  new window
25.Rudin, D. J.(1994)。Caregiver Attitudes Regarding Utilization and Usefulness of Respite Services for People with Alzheimer's Disease。Journal of Gerontological Social Work,23(1/ 2),85-107。  new window
26.Salisbury, C. L.(1990)。Characteristics of Users and Nonusers of Respite Care。Mental Retardation,28(5),291-297。  new window
27.Salisbury, C.、Griggs, P. A.(1983)。Developing Respite Care Services for Families of Handicapped Persons。TASH Journal,8(Spring),50-57。  new window
28.Walker, A.(1981)。Community Care and the Elderly in Great Britain: Theory and Practice。International Journal of Health Services,11(4),541-557。  new window
29.Walker, C.、Ryan, T.、Walker, A.(1995)。A Step in the Right Direction: People with Learning Difficulties Moving into the Community。Health and Social Care in the Community,3(4),249-259。  new window
30.Wikler, L.(1981)。Chronic Stresses of Families of Mentally Retarded Children。Family Relations,30,281-288。  new window
研究報告
1.李淑容、賴兩陽(2001)。地方政府身心障礙福利業務績效評估之研究。台北。  延伸查詢new window
2.傅立葉、周月清、洪永泰、鄭夙芬(2000)。台北市身心障礙者生活需求調查。  延伸查詢new window
學位論文
1.李侃璞(1990)。成年智障者年老父母需求之探討(碩士論文)。東海大學。  延伸查詢new window
2.吳慧婷(1994)。臺北市殘障居家生活補助對成年智障者家庭影響之研究(碩士論文)。東吳大學。  延伸查詢new window
3.林幸君(1997)。臺北市臨時扥育服務對心智障礙者之主要照顧者影響之研究,沒有紀錄。  延伸查詢new window
圖書
1.Clements, L.(1996)。Community Care and the Law。London, UK:Legal Action Group。  new window
2.Ayer, S.、Alaszewski, A.(1984)。Community Care and the Mentally Handicapped: Services for Mothers and Their Mentally Handicapped Children。London, UK:Croom Helm。  new window
3.Hunter, D. J.、Wistow, G.(1987)。Community Care in Britain: Variations on a Theme。London, UK:King's Found Publishing Office。  new window
4.Maclean, U.(1989)。Dependent Territories: The Frail Elderly and Community Care。London, UK:The Nuffield Provincial Hospitals Trust。  new window
5.Abbott, P.、Sapsford, R.(1988)。Community Care for Mentally Handicapped Children。Milton Keynes, UK:Open University Press。  new window
6.Payne, M.(1986)。Social Care in the Community。Macmillan Education。  new window
7.The Department of Health(2001)。Valuing people: A new strategy for learning disability for the 21st Century。UK:The Department of Health。  new window
8.Meredith, B.(1996)。The Community Care Handbook。London:Age Concern England。  new window
9.林清山(1997)。心理與教育統計學。臺北:東華書局。  延伸查詢new window
10.周月清(2000)。英國社區照顧:緣起與爭議。臺北:五南。  延伸查詢new window
11.Titmuss, R. M.(1968)。Commitment to Welfare。London:George Allen and Unwin Ltd.。  new window
12.Griffiths, S. R.(1988)。Community Care: Agenda for Action。HMSO。  new window
13.周月清(19980000)。身心障礙者福利與家庭社會工作:理論、實務與研究。臺北:五南。new window  延伸查詢new window
14.黃源協(20000000)。社區照顧:臺灣與英國經驗的檢視。臺北:揚智文化。new window  延伸查詢new window
15.中華民國智障者家庭總會(1997)。臨時暨短期扥育服務分區說明會成果報告。臨時暨短期扥育服務分區說明會成果報告。臺北。  延伸查詢new window
16.臺北市政府社會局(1999)。「臺北市政府社會局八十八年度身心障礙者臨時及短期照顧服務」。「臺北市政府社會局八十八年度身心障礙者臨時及短期照顧服務」。臺北。  延伸查詢new window
17.財團法人心路文教基金會(1994)。83年度心路文教基金會智障者臨時照顧服務評估報告。83年度心路文教基金會智障者臨時照顧服務評估報告。沒有紀錄。  延伸查詢new window
18.Davis, A.、Ellis, K.(1995)。Enforces Altruism in Community Care。Ethical Issues in Social Work。London, UK。  new window
19.Department of Health(1992)。Guidance on Standards for the Residential Care Needs of People with Learning Disabilities/ mental Handicap。Guidance on Standards for the Residential Care Needs of People with Learning Disabilities/ mental Handicap。London, UK。  new window
20.Department of Health and Social Security(1987)。Mental Handicap: Progress, Problems and Priorities: A Review of Mental Handicap Services in England Since the 1971 White Paper: 'Better Services for the Mentally Handicapped'。Mental Handicap: Progress, Problems and Priorities: A Review of Mental Handicap Services in England Since the 1971 White Paper: 'Better Services for the Mentally Handicapped'。London, UK。  new window
21.Department of Health and Social Security(1971)。White Paper: Better Services for the Mentally Handicapped。White Paper: Better Services for the Mentally Handicapped。London, UK。  new window
22.Eyde, D. R.、Willig, S.(1981)。Home Support for Families with Disturbed Children。Treating Families in the Home: An Alternative to Placement。Illinois。  new window
23.Farber, B.(1968)。Mental Retardation: Its Social Context and Social Consequence。Mental Retardation: Its Social Context and Social Consequence。Boston, MA。  new window
24.Hoyes, L.、Means, R.(1991)。Implementing the White Paper on Community Care。Implementing the White Paper on Community Care。Bristol。  new window
25.Hunter, D. J.、Wistow, G.(1989)。Community Care Policies: Their Evolution。Acting on the Agenda: Principles and Responsibilities in Community Care。Leeds, UK。  new window
26.Great Britain. Committee of Enquiry into Mental Handicap Nursing and Care(1979)。Report of the Committee of Enquiry into Mental Handicap Nursing and Care, Vol. 1。Report of the Committee of Enquiry into Mental Handicap Nursing and Care, Vol. 1。London, UK。  new window
27.Kurtz, R. A.(1981)。The Sociological Approach to Mental Retardation。Handicap in a Social World。London, UK。  new window
28.McKnight, J.(1981)。Professionalized Service and Disabling Help。Handicap in a Social World。London, UK。  new window
29.Perlman, R.(1983)。Introduction。Family Home Care: Critical Issues for Services and Policies。New York, NY。  new window
30.Ramon, S.(1991)。Principles and Conceptual Knowledge。Beyond Community Care: Normalisation and Integration Work。London, UK。  new window
31.Ryan, J.、Thomas, F.(1987)。The Politics of Mental Handicap。London, UK:Free Association Books。  new window
32.Great Britain. Committee of Enquiry into Mental Handicap Nursing and Care(1979)。Report of the Committee of Enquiry into Mental Handicap Nursing and Care。Report of the Committee of Enquiry into Mental Handicap Nursing and Care。London, UK。  new window
33.Seed, P.(1994)。Changing Services for People with Learning Disabilities。Caring for People in the Community: The New Welfare。London, UK。  new window
34.Tester, Susan(1996)。Women and Community Care。Women and Social Policy: An Introduction。London, UK。  new window
35.Walker, A.(1989)。Community Care。The New Politics of Welfare: An Agenda for the 1990s。London, UK。  new window
其他
1.Secretary of State for Health, Secretary of State for Social Security, Secretary of State for Wales & Secretary of State for Scotland(1989)。White Paper: Caring for People: Community Care in the Next Decade and Beyond,London:HMSO。  new window
2.內政部統計處(2000)。臺閩地區身心障礙者生活需求調查,沒有紀錄。  延伸查詢new window
3.臺北市智障者家長協會(0)。臨時暨短期扥育的服務簡章,臺北。  延伸查詢new window
4.Upshur, C. C.(1994)。Respite Care in the Context of Family Support: Emerging Issues for the 1990's,Boston, MA。  new window
圖書論文
1.Walker, A.(1982)。The Meaning and Social Division of Community Care。Community Care--The Family, the State and Social Policy。London:Basil Blackwell and Martin Robertson。  new window
2.Bergman, A. I.、Singer, G. H. S.(1996)。The thinking behind new public policy。Redefining family support: Innovatios in public-private partnerships。Baltimore, MD:Paul H. Brookes Publishing Co。  new window
3.Dockrell, Julie(1995)。People with Mild Learning Difficulties and Challenging Behaviour: user Input to Service Evaluation。Community Care: Asking the User。London:Chapman & Hall。  new window
 
 
 
 
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