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題名:「和而不同」的生病事件建構:以對偶關係探究腸造口癌症患者及其照顧者的心理生活經驗
書刊名:本土心理學研究
作者:林耀盛 引用關係陳玫蓉
作者(外文):Lin, Yaw-shengChen, Mei-jung
出版日期:2009
卷期:32
頁次:頁251-325
主題關鍵詞:我們感疾病經驗偏航照顧對偶Beyond normalityCaringDyadIllness experienceSense of we-ness
原始連結:連回原系統網址new window
相關次數:
  • 被引用次數被引用次數:期刊(7) 博士論文(1) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:2
  • 共同引用共同引用:167
  • 點閱點閱:64
本研究以「腸造口患者及其主要照顧者」為配對樣本,探討「病患」與「照顧者」雙方的共構心理生活經驗。研究場域是南部某醫學單位癌症中心,同時訪談患者及其主要照顧者。共蒐集五組對偶資料。五位受訪患者中,有四名男性與一名女性,診斷皆為直腸癌第二至三期,並於最後一次訪談時,接受憂鬱狀態評量。五位照顧者中,有一名男性與四名女性。每對平均受訪次數為2.4次,患者的罹病時間平均為16.2個月,照顧者照顧經驗平均為14.6個月。資料經詮釋分析後,結果顯示病患與照顧者雙方的偏航模式是「不對稱狀態」。透過牽引線歷程,使雙方在多元脈絡下存活,建構「和而不同」的事件意義,並進一步形成「對稱和諧」對偶關係,且患者情緒狀態較佳。本文探討病後新生命曲線所指向的「和而不同」歷程之臨床意涵;並反思「我們感」的對偶關係衍生之意義。最後,筆者提出本研究結果於臨床心理學上的應用與限制。
This paper explores the psychosocial reactive experiences and lifestyles of cancer survivors, and the caring experiences and coping strategies of their primary caregivers using participant observation, interviews, and interpretive phenomenology. Five patient-caregiver dyads (4 male and 1 female patients; 4 female and 1 male care-givers) were interviewed an average of 2.4 times each at a hospital in southern Taiwan over a 2-year period. The average duration of illness was 16.2 months. The average duration of care was 14.6 months. In the last interview, the depression scale was administered to the cancer patients as an adaptation index after a chronic illness. Results showed cancer patients and their caregivers shared a similar psychosocial process. After the cancer event, they both felt their biographies could be narrated metaphorically. They felt 'The life trajectory is out of the daily rotines'. Through the narrative line, the life trajectory could be drawn to the routined order as before. However, the cancer assaulted their lived world; their life story changed ontologically. The patients and their caregivers constructed different lifestyles from each other, which not only presented limitations, but also revealed their adaptations for the patients. But from the caregivers' view, the illness caring experiences might be the burden processes for the maladaptive dyad. The analysis showed that a sense of we-ness can enhance mutual intimacy and empower a relationship. By enacting the we-ness care pattern, the clinical psychologist and related mental health workers could offer healing by taking care of their biological, social, and psychological needs and ensure positive new trajectories.
期刊論文
1.林耀盛(20000300)。地震之後,千禧之始:重探心理學與諮商學的共構關係。應用心理研究,5,165-193。new window  延伸查詢new window
2.Cheung, J.、Hocking, P.(2004)。Caring as worrying: The experience of spousal carers。Journal of Advanced Nursing,47(5),475-482。  new window
3.Stroebe, M. S.(2001)。Bereavement Research and Theory: Retrospective and Perspective。American Behavioral Scientist,44(5),854-865。  new window
4.Laurenceau, Jean-Philippe、Barrett, Lisa Feldman、Pietromonaco, Paula R.(1998)。Intimacy as an Interpersonal Process: The Importance of Self-disclosure, Partner Disclosure, and Perceived Partner Responsiveness in Interpersonal Exchanges。Journal of Personality and Social Psychology,74(5),1238-1251。  new window
5.童輝傑(20020600)。追求與變遷:天人合一境界與中國人的國民性格。本土心理學研究,17,245-265。new window  延伸查詢new window
6.Brown Ill, F. M.(2002)。Inside every chronic patient is an acute patient wondering what happened。In Session: Psychotherapy,58(11),1443-1449。  new window
7.Gerhardt, U.(1990)。Introductory essay: Qualitative research on chronic illness: The issue and the history。Social Science and Medicine,30(11),1149-1159。  new window
8.郭士賢(20020600)。從「天人類比」再思「控制觀」:一個行動理論的觀點。本土心理學研究,17,269-307。new window  延伸查詢new window
9.Tutton, E.、Seers, K.(2003)。An exploration of the concept of comfort。Journal of Clinical Nursing,12(5),689-696。  new window
10.Strocbe, M. S.、Folkman, S.、Hansson, R. O.、Schut, H.(2006)。The prediction of bereavement of outcome: Development of an integrative risk factor framework。Social Science and Medicine,63(9),2440-2451。  new window
11.余德慧、石世明、夏淑怡、王英偉(20060300)。病床陪伴的心理機制:一個二元複合模式的提出。應用心理研究,29,71-100。new window  延伸查詢new window
12.Sumalla, E. C.、Ochoa, C.、Blanco, I.(2009)。Posttraumatic growth in cancer: Reality or illusion?。Clinical Psychological Review,29(1),24-33。  new window
13.林耀盛、李弘毅、余德慧(20070800)。生病作為一種倫理事件:洗腎者病程經驗的現象詮釋。本土心理學研究,28,79-139。new window  延伸查詢new window
14.余德慧、石世明(20011100)。臨終處境所顯現的具體倫理現象。哲學雜誌,37,60-86。  延伸查詢new window
15.Bury, Mike(2001)。Illness Narratives: Fact or Fiction?。Sociology of Health and Illness,23(3),263-285。  new window
16.Egnew, T. R.(2005)。The meaning of healing: Transcending suffering。The Annals of Family Medicine,3(3),255-262。  new window
17.Linley, P. Alex、Joseph, Stephen(2004)。Positive change following trauma and adversity: A review。Journal of Traumatic Stress,17(1),11-21。  new window
18.林耀盛(20010600)。時間與意義--疾病、創傷及敘說之交疊構面。本土心理學研究,15,221-270。new window  延伸查詢new window
19.林耀盛(20030600)。書寫創傷:探究「九二一震災」受創者的心理社會療癒經驗。本土心理學研究,19,3-64。new window  延伸查詢new window
20.林耀盛(20060300)。聆聽受苦之聲:從「咱們」關係析究慢性病照顧。應用心理研究,29,183-212。new window  延伸查詢new window
21.林耀盛、龔卓軍(20090300)。我的傷口先於我存在?從創傷的精神分析術到倫理現象學作為本土心理治療的轉化。應用心理研究,41,185-234。new window  延伸查詢new window
22.龔卓軍(20031200)。生病詮釋現象學--從生病經驗的詮釋到醫病關係的倫理基礎。生死學研究,1,57-75。new window  延伸查詢new window
23.李維倫(20041200)。作為倫理行動的心理治療。本土心理學研究,22,359-420。new window  延伸查詢new window
24.李淯琳、余安邦、林家興(20070800)。倫理主體的形塑、顯現與流變:以精神病患家屬為例。本土心理學研究,28,19-77。new window  延伸查詢new window
25.李維庭(2000)。九二一震災的心理重建經驗。應用心理研究,6,213-250。new window  延伸查詢new window
26.Aujoulat, I.、Marcolongo, R.、Bonadiman, L.、Deccache, A.(2008)。Reconsidering Patient Empowerment in Chronic Illness: A Critique of Models of Self-efficacy and Bodily Control。Social Science & Medicine,66(5),1228-1239。  new window
27.Beitz, J. M.、Goldberg, E.(2005)。The Lived Experience of Having a Chronic Wound: A Phenomenological Study。Dermatology Nursing,17(4),272-281。  new window
28.Ben-Zur, H.、Gilbar, O.、Lev, S.(2001)。Coping with Breast Cancer: Patient, Spouse, and Dyad Models。Psychosomatic Medicine,63,32-39。  new window
29.Black, A. R.、Cook, J. L.、Murry, V. M.、Cutrona, C. E.(2005)。Ties that Bind: Implications of Social Support for Rural, Partnered African American Women's Health Functioning。Women's Health Issues,15(5),216-223。  new window
30.Dean, P. R.(1999)。Personal Perception of Chronic Illness。Home Care Provider,4(2),54-55。  new window
31.Devins, G. M.、Dion, R.、Pelletier, L. G.、Shapiro, C. M.、Abbey, S.、Raiz, L. R(2001)。Structure of Lifestyle Disruptions in Chronic Disease: A Confirmatory Factor Analysis of the Illness Intrusiveness Ratings Scale。Medical Care,39(10),1097-1104。  new window
32.Enyert, G.、Burman, M. E.(1999)。A Qualitative Study of Self-transcendence in Caregivers of Terminally Ill Patients。American Journal of Hospice and Palliative Medicine,16(2),455-462。  new window
33.Eriksson, M.、Svedlund, M.(2006)。"The Intruder": Spouses' Narratives about Life with a Chronically Ill Partner。Journal of Clinical Nursing,15,324-333。  new window
34.Germino, B. B.、Fife, B. L.、Funk, S. G.(1995)。Cancer and the Partner Relationship: What is its Meaning?。Seminars in Oncology Nursing,11,43-50。  new window
35.Henman, L. D.(2001)。Humor as a Coping Mechanism: Lessons from POWs。International Journal of Humor Research,14(1),83-94。  new window
36.Hollinger, D.(2003)。Curing, Caring and Beyond: Reflections for a Clinical Ethics。Ethics & Medicine,19(1),45-53。  new window
37.許敏桃、Kahn, D. L.、余德慧、李維倫(2004)。Recovery through Reconnection: A Cultural Design for Family Bereavement in Taiwan。Death Studies,28(8),761-787。  new window
38.Joseph, S.、Linley, P. A.(2006)。Growth Following Adversity: Theoretical Perspectives and Implications for Clinical Practice。Clinical Psychological Review,26(8),1041-1053。  new window
39.Katz, R. C.、Flasher, L.、Cacciapaglia, H.、Nelson, S.(2001)。The Psychosocial Impact of Cancer and Lupus: A Cross Validation Study that Extends the Generality of "Benefit-Finding" in Patients with Chronic Disease。Journal of Behavioral Medicine,24(6),1573-3521。  new window
40.Knight, S. J.、Emanuel, L.(2007)。Processes of Adjustment to End-of-life Losses: A Reintegration Model。Journal of Palliative Medicine,10(5),1190-1198。  new window
41.Lewis, F. M.(1993)。Psychosocial Transitions and the Family's Adjusting to Cancer。Seminars in Oncology Nursing,9(2),127-129。  new window
42.Lim, J. W.、Zebrack, B.(2004)。Caring for Family Members with Chronic Physical Illness: A Critical Review of Caregiver Literature。Health and Quality of Life Outcome,2(50)。  new window
43.Little, M.、Sayers, E. J.(2004)。While there's Life…Hope and the Experience of Cancer。Social Science and Medicine,59,1329-1337。  new window
44.Manderson, L.(2005)。Boundary Breaches: The Body, Sex, and Sexuality after Stoma Surgery。Social Science and Medicine,61(2),405- 415。  new window
45.Manne, S.、Badr, H.(2008)。Intimacy and Relationship Processes in Couples' Psycho-social Adaptation to Cancer。Cancer,112,2541-2555。  new window
46.Manne, S.、Glassman, M.(2000)。Perceived Control, Coping Efficacy, and Avoidance Coping as Mediators between Spouses' Unsupportive Behaviors and Cancer Patients' Psychological Distress。Health Psychology,19(2),155-164。  new window
47.Manne, S. L.、Zautra, A. J.(1989)。Spouse Criticism and Support Their Association with Coping and Psychological Adjustment among Women with Rheumatoid Arthritis。Journal of Personality and Social Psychology,56(4),608-617。  new window
48.Mattiasson, A. C.、Hemberg, M.(1998)。Intimacy-meeting Needs and Respecting Privacy in the Care of Elderly People: What is a Good Moral Attitude on the Part of the Nurse/carer?。Nursing Ethics,5(6),527-534。  new window
49.McLean, L. M.、Jones, J. M.(2007)。A Review of Distress and Its Management in Couples Facing End-of-life Cancer。Psycho-Oncology,16,603-616。  new window
50.Meshefedjian, G.、McCusker, J.、Bellavance, F.、Baumgarten, M.(1998)。Factors Associated with Symptoms of Depression among Informal Caregivers of Demented Elders in the Community。Gerontologist,38(2),247-253。  new window
51.Middelboe,T.、Ovesen, L.、Mortensen, E. L.、Bech, P.(1994)。Depressive Symptoms in Cancer Patients Undergoing Chemotherapy: A Psychometric Analysis。Psychotherapy and Psychosomatics,61(3/ 4),171-177。  new window
52.(O' Connor, D. W.、Pollitt, P. A.、Roth, M.、Brook, C. P. B.、Reiss, B. B.)(1990)。Memory Complaints and Impairment in Normal, Depressed and Demented Elderly Persons Identified in a Community Survey。Archives of General Psychiatry,47,224-227。  new window
53.(Öhman, M.、Söderberg, S.、Lundman, B.)(2003)。Hovering between Suffering and Enduring: The Meaning of Living with Serious Chronic Illness。Qualitative Health Research,13(4),528-542。  new window
54.(Reid, D. W.、Dalton, E. J.、Laderoute, K.、Doell, F. K.、Nguyen, T.)(2006)。Therapeutically Induced Changes in Couple Identity: The Role of We-ness and Interpersonal Processing in Relationship Satisfaction。Genetic, Social, and General Psychology Monographs,132(3),241-284。  new window
55.(Robinson, D. W.、Carroll, S. J.、Watson, L. W.)(2005)。Shared Experience Building Around the Family Crucible of Cancer。Families, Systems, & Health,23(2),131-147。  new window
56.(Sellick, S. M.、Crooks, D. L.)(1999)。Depression and Cancer: An Appraisal of the Literature for Prevalence, Detection and Practice Guideline Development for Psychological Interventions。Psycho-Oncology,8,315-333。  new window
57.Skerrett, K.(2003)。Couple Dialogues with Illness: Expanding the "We"。Families, Systems, & Health,21(1),69-80。  new window
58.(Smerglia, V. L.、Deimling, G. T.)(1997)。Care-related Decision-making Satisfaction and Caregiver Well-being in Families Caring for Older Members。The Gerontologist,37(5),658-665。  new window
59.(Soothill, K.、Morris, S. M.、Harman, J. C.、Francis, B.、Thomas, C.、Mc Illmurray, M. B.)(2001)。Informal Carers of Cancer Patients: What are Their Unmet Psychosocial Needs?。Health and Social Care in the Community,9(6),464-475。  new window
60.Toombs, S. K.(1990)。The Temporality of Illness: Four Levels of Experience。Theoretical Medicine,11,227-241。  new window
61.Van Manen, M.(2002)。Care-as-worry, or "Don't Worry, be Happy"。Qualitative Health Research,12(2),262-278。  new window
62.Whitehead, L.(2006)。Toward a Trajectory of Identity Reconstruction in Chronic Fatigue Syndrome/myalgic Encephalomyelitis: A Longitudinal Quailtative Study。International Journal of Nursing Studies,43(8),1023-1031。  new window
63.Yang, L. H.、Kleinman, A.(2008)。'Face' and the embodiment of stigma in China: the cases of schizophrenia and AIDS。Social Science and Medicine,67(3),398-408。  new window
會議論文
1.Zabinski, B.、Valsiner, J.(2004)。Affective Synthesis of the Other through the Self: A New Look at Empathy。The 3rd International Conference on Dialogical Self。Warsaw。  new window
學位論文
1.林耀盛(1999)。疾病意義、身體意象與認同形式:糖尿病患者社會心理因應歷程(博士論文)。國立臺灣大學。new window  延伸查詢new window
2.侯懿真(2006)。悲悼的歧義--癌症新近喪偶者傷逝療癒歷程的建構詮釋(碩士論文)。高雄醫學大學,高雄市。  延伸查詢new window
3.陳怡靜(2001)。婦癌患者身體心像、社會支持和憂鬱的對照研究(碩士論文)。高雄醫學大學。  延伸查詢new window
4.羅愔愔(2007)。婦癌患者與主要照顧者之憂鬱傾向與生活品質探討:照顧覺知落差的觀點。  延伸查詢new window
圖書
1.Embree, L.、水輒、靳希平(2007)。現象學入門:反思性分析。北京:北京大學出版社。  延伸查詢new window
2.Sharf, R. S.(2008)。Theories of psychotherapy and counseling: Concept and cases。Australia:Brooks/Cole。  new window
3.黃光國(2008)。建構實在論與儒家關係主義 : 發展本土心理學的知識論策略。本土心理研究取徑論叢。臺北:遠流。  延伸查詢new window
4.Royse, D.、Thyer, B. A.、Padgett, D. K.、Logan, T.(2006)。Program Evaluation: An Introduction。Belmont, CA:Thomson Brooks。  new window
5.Kleinman, Arthur(2006)。What Really Matters: Living a Moral Life Amidst Uncertainty and Danger。Oxford University Press。  new window
6.Sarafmo, E. P.(2008)。Health Psychology: Biopsychosocial Interactions。New York:John Wiley & Sons, Inc.。  new window
7.Zaner, Richard M.、譚家瑜(2001)。醫院裡的哲學家。臺北:心靈工坊文化公司。  延伸查詢new window
8.Moustakas, C.(1994)。Phenomenological Research Method。Sage Publications。  new window
9.Bauman, Zygmunt、張成崗(2003)。後現代倫理學。南京:江蘇人民出版社。  延伸查詢new window
10.Cohen, M. Z.、Kahn, D. L.、Steeves, R. H.(2000)。Hermeneutic Phenomenological Research: A Practical Guide for Nurse Researchers。Sage Publications。  new window
11.Kübler-Ross, E.(1969)。On Death and Dying: What the Dying Have to Teach Doctors, Nurses, Clergy, and Their Own Families。New York:Macmillan。  new window
12.Crossley, Michele L.(2000)。Introducing narrative psychology: Self, trauma and the construction of meaning。Open University Press。  new window
13.盧瑞容(2004)。中國古代「相對關係」思維探討--「勢」「和」「權」「屈曲」概念溯源分析。商鼎文化出版社。  延伸查詢new window
14.Sontag, S.(1977)。疾病的隱喻。疾病的隱喻。臺北。  延伸查詢new window
15.何輝彬(2007)。西方悲劇的中國式批判。北京:中國社會科學出版社。  延伸查詢new window
16.Toombs, S. K.(2001)。病患的意義。病患的意義。青島。  延伸查詢new window
17.Laporte, D.(2006)。屎的歷史。屎的歷史。北京。  延伸查詢new window
18.Kleinman, A.(2008)。苦痛和疾病的社會根源:現代中國的抑鬱、神經衰弱和病痛。苦痛和疾病的社會根源:現代中國的抑鬱、神經衰弱和病痛。上海。  延伸查詢new window
19.Freud, S.(2007)。詼諧與潛意識的關係。臺北:胡桃木文化公司。  延伸查詢new window
20.Kavanaugh, R. E.(1972)。Facing Death。New York, NY:Penguin Books。  new window
21.(Tedeschi, R. G.、Park, C. L.、Calhoun, L. G.)(1998)。Posttraumatic Growth: Positive Changes in the Aftermath of Crisis。Posttraumatic Growth: Positive Changes in the Aftermath of Crisis。Mahwah, NJ。  new window
其他
1.行政院衛生署(2008)。衛生資訊-衛生統計-死因統計,臺北。  延伸查詢new window
圖書論文
1.Garro, Linda C.(1992)。Chronic illness and the construction of narratives。Pain as human experience: An anthropological perspective。Berkeley:University of California press。  new window
2.余安邦(2008)。以M. Foucault的觀點為核心論述倫理主體的構成與裂解、消融與轉化:慈惠堂的例子。本土心理與文化療癒:倫理化的可能探問。臺北:中央研究院民族學研究所。new window  延伸查詢new window
3.余德慧、李維倫、林耀盛(20080000)。倫理化的可能--臨床心理學本土化進路的重探。本土心理與文化療癒:倫理化的可能探問。臺北:中央研究院民族學研究所。new window  延伸查詢new window
4.黃囇莉(20080000)。科學渴望創意、創意需要科學:紮根理論在本土心理學中的運用與轉化。本土心理研究取徑論叢。臺北:遠流出版事業股份有限公司。new window  延伸查詢new window
5.Williams, G.(1993)。Chronic Illness and the Pursuit of Virtue in Everyday Life。Worlds of Illness: Biographical and Cultural Perspectives on Health and Disease。London:Routledge。  new window
 
 
 
 
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