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題名：原住民基因研究之倫理課題與規範初探
書刊名：國立臺灣大學法學論叢
作者：李崇僖 引用關係
作者(外文)：Lee, Chung-hsi
出版日期：2007
卷期：36:3
頁次：頁465-518
主題關鍵詞：人類基因多樣性計畫；貝蒙特報告；社區諮商；集體同意；概括同意；Human genome diversity project；Belmont report；Community consultation；Group consent；General consent
原始連結：連回原系統網址new window
相關次數：
  • 被引用次數被引用次數:期刊(5) 博士論文(1) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:3
  • 共同引用共同引用:263
  • 點閱點閱:81
近年來隨著基因科技之發展，生物醫學界致力於探討疾病與基因之關係，因此在國際上以及許多國家內部都有進行基因檢體採集與儲存之計畫。有鑑於基因研究典範與過去醫學研究有所不同，而原住民族群又是特別容易受到基因研究影響的群體，因此本文乃針對原住民基因研究之倫理規範加以探討。本文採取自由主義多元文化論之立場，強調對原住民族特別保護之必要性，但同時應兼顧多元族群社會之相互尊重與利益協調，並保持個人應有的自主決定空間。 本文以「貝蒙特報告」所揭示之三項醫學倫理原則爲基礎，檢討其在基因研究上之適用性，並探討原住民應受到何種權利保障才符合醫學倫理之基本精神。本文認爲對原住民進行基因研究時，必須尊重原住民族作爲一個整體之利益，因此在集體協商方式上需要建立更詳細的規範架構。
In the past few years, biomedical researchers have focused their works on understanding underlying genetic links to complex diseases. These efforts have started several genetic sampling and databases projects, both on international level and individual countries. Since genetic research has very different impacts to participants than traditional medical research and indigenous peoples are always the most vulnerable to this research, this article tries to analyze the ethical framework for those genetic researches concerning indigenous peoples. For the basic presumption of this analysis, this article stands on the principles of liberal multiculturalism. Starting from the famous biomedical research ethical statement named Belmont Report, this article reviews the principles and adapts them to genetic research. In conclusion, the recommendations stress the importance of acknowledging the obligations that sample collectors should be responsible to indigenous peoples.
期刊論文
1.Hsieh, Alice(2004)。A Nation's Genes for a Cure to Cancer: Evolving Ethical, Social and Legal Issues Regarding Population Genetic Databases。Columbia Journal of Law and Social Problems，37，359-411。  new window
2.李崇僖(20070200)。基因資訊隱私保護法理與規範。臺灣本土法學雜誌，91，71-85。  延伸查詢new window
3.Lekovic, Gregory P.(2004)。Genetic Diagnosis and Intellectual Property Rights: A Proposal to Amend "the Physician Immunity Statute"。Yale Journal of Health Policy, Law, and Ethics，4，275。  new window
4.Greely, Henry T.(1999)。Breaking the Stalemate: A Prospective Regulatory Framework for Unforeseen Research Uses of Human Tissue Samples and Health Information。Wake Forest Law Review，34，737-766。  new window
5.Marchant, Gary E.(2005)。Property Rights and Benefit-Sharing for DNA Donors?。Jurimetrics Journal，45，153-178。  new window
6.North American Regional Committee of the Human Genome Diversity Project(1997)。Proposed Model Ethical Protocol for Collecting DNA Samples。HOUS. L. Rev.，33，1431。  new window
7.Smaglik, Paul(2000)。Tissue Donors Use Their Influence in Deal Over Gene Patent Terms。NATURE，407，821。  new window
8.Austin, Melissa A.、Crouch, Jrlia、Digiacomo, Alyssa(2005)。Applying International Guidelines on Ethical, Legal, and Social Issues to New International Genebanks。Jurimetrics Journal，45，115-134。  new window
9.陳叔倬(20001000)。原住民人體基因研究之倫理爭議與立法保護。生物科技與法律研究通訊，8，7-28。  延伸查詢new window
10.劉宏恩(20040600)。冰島設立全民醫療及基因資料庫之法律政策評析--論其經驗及爭議對我國之啟示。臺北大學法學論叢，54，41-43+45-99。new window  延伸查詢new window
11.李崇僖(2005)。原住民文化遺產保護之國際現況與展望。輔仁法學，29，1-52。new window  延伸查詢new window
12.Sharp, Richard R.、Foster, Morris W.(2002)。An Analysis of Research Guidelines on the Collection and Use of Human Biological Materials from American Indian and Alaskan Native Communities。Jurimetrics，42，165-182。  new window
13.Weijer, Charles(1999)。Another Tuskegee?。The American Journal of Tropical Medicine and Hygiene，61，1-25。  new window
14.Kleiner, K.(2000)。Blood Feud。New Scientist，7，30-30。  new window
15.Greely, Henry T.(2001)。Genotype Discrimination: The Complex Case for Some Legislative Protection。University of Pennsylvania Law Review，149，1483-1505。  new window
16.Halewood, Michael(1999)。Indigenous and Local Knowledge in International Law: A Preface to Sui Generis Intellectual Property Protection。McGill Law Journal，44，953-996。  new window
17.Barsh, Russel L.(2003)。Pharmacogenomics and Indigenous Peoples: Real Issues and Actors。Cardozo Journal of International and Comparative Law，11，365-388。  new window
18.Stevens, Jacqueline(2003)。Racial Meanings and Scientific Methods: Changing Policies for NIH-Sponsored Publications Reporting Human Variation。Journal of Health Politics, Policy and Law，28，1033-1079。  new window
19.Collins, S. Francis(2004)。The Case for a U. S. Prospective Cohort Study of Genes and Environment。Nature，429，475-475。  new window
20.Hamilton, Cindy(2001)。The Human Genome Diversity Project and the New Biological Imperialism。Santa Clara Law Review，41，619-641。  new window
21.Benatar, R. Solomon(2004)。Towards Progress in Resolving Dilemmas in International Research Ethics。The Journal of Law, Medicine & Ethics，32(4)，574-582。  new window
圖書
1.Cavalli-Sforza, L.L.、P. Mwnozzi、A. Piazza.(1994)。The history and geography of human genes。Princeton, New Jersey：Princeton University Press。  new window
2.Olson, Steve、霍達文(2004)。人類基因的歷史地圖。臺北：聯經。  延伸查詢new window
3.Thornberry, Patrick(2002)。Indigenous Peoples and Human Rights。Manchester：New York：Juris Publishing。  new window
4.Murphy, Timothy(2004)。Case Studies in Biomedical Research Ethics。MIT Press。  new window
5.Shamoo, Adil E.、Resnik, David B.(2003)。Responsible Conduct of Research。New York, NY：Oxford University of Press。  new window
6.Keal, Paul(2003)。European Conquest and the Rights of Indigenous Peoples: The Moral Backwardness of International Society。Cambridge University Press。  new window
7.Kottak, Conrad Phillip、徐雨村(2005)。文化人類學--文化多樣性的探索。臺北：桂冠圖書股份有限公司。  延伸查詢new window
8.施正鋒(2005)。台灣原住民族政治與政策。臺中：新新台灣文教基金會。new window  延伸查詢new window
9.Anaya, S. James(1996)。Indigenous Peoples in International Law。Oxford University Press。  new window
10.Kymlicka, Will、劉莘(2003)。當代政治哲學導論。臺北：聯經。  延伸查詢new window
11.林淑雅(20000000)。第一民族：臺灣原住民族運動的憲法意義。臺北：前衛出版社。new window  延伸查詢new window
12.浦忠成(19990000)。原住民的神話與文學。臺北：臺原。new window  延伸查詢new window
13.Kymlicka, Will、鄧紅風(2004)。少數群體的權利：民族主義、多元文化主義和公民權。臺北：左岸文化。  延伸查詢new window
14.王嵩山(20010000)。臺灣原住民的社會與文化。臺北：聯經。new window  延伸查詢new window
15.Steinberg, Mark L.、Cosloy, Sharon(1995)。生物技術暨遺傳工程辭典。生物技術暨遺傳工程辭典。臺北市。  延伸查詢new window
16.National Research Council(1997)。Evaluating Genetic Diversity。Evaluating Genetic Diversity。Washington, DC。  new window
17.Gostin, Lawrence O.(2000)。Public Health Law: Power, Duty, Restraint。New York, NY：The Milbank Memorial Fund。  new window
18.Mappes, Thomas A.、Degrazia, David(2001)。Biomedical Ethics。Biomedical Ethics。Boston, MA。  new window
19.(2003)。基因技術挑戰與法律回應。基因技術挑戰與法律回應。臺北市。  延伸查詢new window
20.Andrews, Lori B.、Mehlman, Maxwell J.、Rothstein, Mark A.(2002)。Genetics: Ethics, Law and Policy。Genetics: Ethics, Law and Policy。St. Paul, MN。  new window
21.Lerner, Natan(2003)。Group Rights and Discrimination in International Law。Martinus Nijhoff Publishers。  new window
22.Lewinski, Von Silke(2003)。Indigenous Heritage and Intellectual Property。Indigenous Heritage and Intellectual Property。0。  new window
23.Weir, Robert F.、Olick, Robert S.(2004)。The Stored Tissue Issue。The Stored Tissue Issue。New York, NY。  new window
24.Greely, Henry T.(2003)。Genome Research and Minorities。Pharmacogenomics: Social, Ethical, and Clinical Dimensions。Hoboken, NJ。  new window
其他
1.Leng, Chee Heng(1995)。Bioethics and Human Population Genetics Research 1，0。  new window
2.National Human Genome Research Institute(2002)。Background on Ethical and Sampling Issues Raised by the International HapMap Project，0。  new window
3.WHO Advisory Committee on Health Research(2002)。Report of the Advisory Committee on Health Research，0。  new window
 
 
 
 
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