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題名：兒童少年家庭照顧者之照顧經驗初探
書刊名：社會政策與社會工作學刊
作者：吳書昀 引用關係
作者(外文)：Wu, Jessie Shu-yun
出版日期：2011
卷期：15:2
頁次：頁79-140
主題關鍵詞：兒童少年家庭照顧者；照顧經驗；兒童及少年；架構分析法；Young carers；Caring experience；Children and young people；Framework analysis
原始連結：連回原系統網址new window
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  • 被引用次數被引用次數:期刊(11) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:10
  • 共同引用共同引用:117
  • 點閱點閱:71
兒童少年做為家庭照顧者雖不是一個新的社會現象，但這些孩子的照顧經驗與不利處境卻長期被忽略，在台灣，相關的實證資料亦相當稀少。本文從初步探索的立場出發，以質化研究的方式深入了解兒童少年家庭照顧者的真實生活樣貌，期待專業服務者及政策制定者能敏察並認知到這群隱性案主，使得負擔家庭照顧責任的孩子能得到應有的支持。本研究的結果發現，當兒童少年被賦予照顧某位家人的責任時，他們需同時承擔許多角色任務，有些任務與照顧直接相關，如：提供家庭成員身心上的照料；有些任務則是因家庭中的照顧需求而衍生出來的，如：擔負家庭勞務、維持家庭的日常運作、因應家庭經濟上的困難。這些任務並非全都是兒童少年的發展階段能夠掌握或適合參與的，因此本研究的結果也顯示，在照顧過程中，孩子的課業及學校參與被犧牲，孩子的身心健康受到傷害或處於危機，核子也欠缺發展或維繫友伴關係的機會。針對兒童少年家庭照顧者所面臨的種種不利處境與限制，本研究提出相關之思索與建議，分別為「賦予兒童少年家庭照顧者特定的福利身份類別」、「發展適切的評估與處遇，讓孩子安心求助」、以及「學校應扮演積極角色」，期待給予這些孩子適時的協助。
The undertaking of family care responsibilities by children and young people is not a recent social phenomenon. However, the roles performed by these individuals as well as the negative impacts of these roles on them have not been well recognized. The situation of young carers in Taiwan is also poorly understood. In this preliminary study, the qualitative method and in-depth interviews are adopted to examine the everyday experiences and practices of children and young people involved in family care provision in Taiwan. By providing a deeper investigation of the lives of young caring, this research enhances the understanding of the nature of young caring. The empirical findings reveal that young carers carry out a variety of tasks in and around the home, ranging from intimate and personal care responsibilities to domestic chores and financial support. Many of these tasks distinguish the young carers from other children and young people who do not take on caring roles within the family. The research particularly identifies the ways in which the caring roles affect the lives and development of the young carers. The burden of caring can severely impede the educational performance of the children and young people. It also has an adverse effect on the young carers' physical and mental wellbeing. In addition, the young carers experience difficulties in establishing friendships. To respond to the impacts of care activities on children and young people, this research concludes by proposing recommendations for further enhancing current services in order to support young carers.
期刊論文
1.呂寶靜(20051200)。支持家庭照顧者的長期照護政策之構思。國家政策季刊，4(4)，25-40。  延伸查詢new window
2.Hill, S.(1999)。The physical effect of caring on children。Journal of Young Carers' Work，3(1)，6-7。  new window
3.Joseph, S.、Becker, S.、Becker, F.、Regel, S.(2009)。Assessment of caring and its effects in young people: Development of the multidimensional assessment of caring activities checklist (MACA-YC18) and the positive and negative outcomes of caring questionnaire (PANOC-YC20) for young carers。Child: Care, Health and Development，35(4)，510-520。  new window
4.林秀純、徐亞瑛、姚開屏、吳淑瓊(19990200)。臺灣北部地區失能老人家庭照顧品質及相關因素之探討。護理研究，7(1)，15-28。new window  延伸查詢new window
5.吳書昀(20100600)。被忽略的照顧者：認識兒童少年家庭照顧者。社區發展季刊，130，85-97。new window  延伸查詢new window
6.屈蓮、白璐、鄧光銳、王修平(1996)。大台北地區主要照顧者之工作負荷量及對居家照顧服務之需求程度的調查。臺灣公共衛生雜誌，15(4)，289-302。  延伸查詢new window
7.陳伶珠(20100600)。「礙」到老？中高齡終身障礙者老化經驗初探。社會政策與社會工作學刊，14(1)，119-162。new window  延伸查詢new window
8.胡幼慧、王孝仙、郭淑珍(19950700)。家人照護失能老人的困境：一項質化與量化整合的研究。公共衛生，22(2)，99-113。  延伸查詢new window
9.吳書昀(2010)。「甜蜜的負荷」外一章：兒童少年家庭照顧者的生活境遇與福利建構。臺大社會工作學刊，21，153-190。new window  延伸查詢new window
10.黃彥宜(2005)。照顧的難題：以ー個掃女志工成長團體爲例。台大社工學刊，12，51-88。  延伸查詢new window
11.Becker, S.(2007)。Global Perspectives on Children's Unpaid Caregiving in the Family: Research and Policy on “Young Carers” in the UK, Australia, the USA and Sub-Saharan Airica。Global Social Policy，7(1)，23-50。  new window
12.Aldridge, J.(2008)。All Work and No Play? Understanding the Needs of Children with Caring Responsibilities。Children & Society，22(4)，253-264。  new window
13.Aldridge, J.、Becker S.(1999)。Children as Carers: the Impact of Parental Illness and Disability on Children’s Caring Roles。Journal of Family Therapy，21(3)，303-320。  new window
14.Lee, Y. J.、Ku, Y. W.(2007)。East Asian Welfare Regimes: Testing and Hypothesis of the Developmental Welfare State。Social Policy & Administration，41(2)，197-212。  new window
15.Cline, T.、Crafter, S.、de Abreu, G.、O'Dell L.(2009)。Changing Families, Changing Childhood: Changing Schools?。Pastoral Care in Education，27(1)，29-39。  new window
16.Earley, L.、Cushway, D.、Cassidy, T.(2007)。Children's Perceptions and Experiences of Care Giving: A Focus Group Study。Counselling Psychology Quarterly，20(1)，69-80。  new window
17.Moore, T.、McArthur, M.(2007)。We're All in It Together: Supporting Young Carers and Their Families in Australia。Health and Social Care in the Community，15(6)，561-568。  new window
18.Nolan, M.、Keady, J.、Grant, G.(1995)。Developing a Typology of Family Care: Implications for Nurses and Other Service Providers。Journal of Advanced Nursing，21(2)，256-265。  new window
19.O'Dell, L.、Crafter, S.、de Abreu, G.、Cline, T.(2010)。Constructing “Normal Ghildhoods”: Young People Talk about Young Carers。Disability and Society，25(6)，643-655。  new window
20.Ekwall, A.、Sivberg, B.、Hallberg, I. R.(2004)。Dimensions of Informal Care and Quality of Life among Elderly Family Caregivers。Nordic College of Caring Sciences，18(3)，239-248。  new window
21.Eley, S.(2004)。If They Don’t Recognize It, You’ve Got to Deal With It Yourself: Gender, Young Caring and Educational Support。Gender and Education，16(1)，65-75。  new window
22.Grant, G.、Repper, J.、Nolan, M.(2008)。Young People Supporting Parents with Mental Health Problem: Experiences of Assessment and Support。Health and Social Care in the Community，16(3)，271-281。  new window
23.Gray, B.、Robinson, C.(2009)。Hidden Children: Perspectives of Professionals on Young Carers of People with Mental Health Problems。Child Care in Practice，15(2)，95-108。  new window
24.Gray, B. Robinson, C.、Seddon, D.(2008)。Invisible Children: Young Carers of Parents with Mental Health Problems - The Perspectives of Professionals。Child and Adolescent Mental Health，13(1)，169-172。  new window
25.Ireland, Michael James、Pakenham, Kenneth Ian(2010)。The nature of youth care tasks in families experiencing chronic illness/disability: Development of the Youth Activities of Caregiving Scale (YACS)。Psychology & Health，25(6)，713-731。  new window
26.Jegermalm, M.(2006)。Informal Care in Sweden: A Typology of Care and Caregivers。International Journal of Social Welfare，15(4)，332-343。  new window
27.Keigher, S.、Zabler, B.、Robinson, N.、Fernandez, A.、Stevens, P. E.(2005)。Young Caregivers of Mothers with HIV: Need for Supports。Children and Youth Services Review，27(8)，881-904。  new window
28.McCallion P.、Janicld, M.、Grant-Griffin, L.(1997)。Exploring the Impact of Culture and Acculturation on Older Families Caregiving Persons with Developmental Disabilities。Family Relations，46(4)，347-357。  new window
29.McDonald, J.、Gumming, J.、Dew, K.(2009)。An Exploratory Study of Young Carers and Their Families in New Zealand。Kotuitui: New Zealand Journal of Social Sciences Online，4(1)，115-129。  new window
30.Metzing-Blau, S.、Schnepp, W.(2008)。Young Carers in Germany: To Live on as Normal as Possible: A Grounded Theory Study。BMC Nursing，7，15。  new window
31.Robson, E.、Ansell, N.、Huber, U. S.、Gould, W. T. S.、van Blerk, L.(2006)。Young Caregivers in the Context of the HIV/AIDS Pandemic in Sub-Saharan Africa。Population, Space, and Place，12(1)，93-111。  new window
32.Rose, H. D.、Cohen, K.(2010)。The Experiences of Young Carers: A Meta-Synthesis of Qualitative Findings。Journal of Youth Studies，13(4)，473-487。  new window
33.Sahoo, R.、Suar, D.(2009)。Do Young Carers Deserve Justice? Young Caring in the Context of Illness。Psychology and Developing Societies，21(1)，133-150。  new window
34.Olsen, R.(1996)。Young Carers: Challenging the Facts and Politics of Research into Children and Caring。Disability & Society，11(1)，41-54。  new window
35.Olsen, R.(2000)。Families under the Microscope: Parallels between the Young Carers Debate of the 1990s and the Transformation of Childhood in the Late Nineteenth Century。Children & Society，14(5)，384-394。  new window
36.Richardson, K.、Jinks, A.、Roberts, B.(2009)。Qualitative Evaluation of a Young Carers' Initiative。Journal of Child Health Care，13(2)，150-160。  new window
37.Schlarmann, J. G.、Metzing-Blau, S.、Schnepp, W.(2008)。The Use of Health-Related Quality of Life (HRQOF) in Children and Adolescents as an Outcome Criterion to Evaluate Family Oriented Support for Young Carers in Germany: An Integrative Review of the Literature。BMC Public Health，8，414。  new window
38.Skovdal, M.(2010)。Children Caring for Their “Caregivers”: Exploring the Caring Arrangements in Households Affected by AIDS in Western Kenya。AIDS Care，22(1)，96-103。  new window
39.Skovdal, M.、Ogutu, V. O.、Aoro, C.、Campbell, C.(2009)。Young Carers as Social Actors: Coping Strategies of Children Caring for Ailing or Ageing Guardians in Western Kenya。Social Science & Medicine，69(4)，587-595。  new window
40.Smyth, C.、Michail, S.(2010)。Exploring Young Carers' Agency。Qualitative Research Journal，10(2)，36-45。  new window
41.Smyth, C.、Blaxland, M.、Cass, B.(2011)。'So Tiiafs How I Found I Was a Young Carer and That I Actually Had Been a Carer Most of My Life' Identifying and Supporting Hidden Young Carers。Journal of Youth Studies，14(2)，145-160。  new window
42.Thomas, N.、Stainton, T.、Jackson, S.、Cheung, W. Y.、Doubtfire, S.、Webb, A.(2003)。'Your Friends Don’t Understand'：Invisibility and Unmet Need in the Lives of 'Young Carers'。Child and Family Social Work，8(1)，35-46。  new window
43.Warren, J.(2007)。Young Carers: Conventional or Exaggeratea Levels of Involvement in Domestic and Caring Tasks?。Children & Society，21(1)，136-146。  new window
學位論文
1.吳宇娟(2004)。少年家庭照顧者之生命故事(碩士論文)。國立政治大學，臺北市。  延伸查詢new window
2.趙善如(2002)。從平衡觀點探討老年妻子照顧者的生活適應現象(博士論文)。東海大學。new window  延伸查詢new window
圖書
1.Aldridge, J.、Becker, S.(2003)。Children caring for parents with mental illness: Perspectives of young carers, parents and professionals。Bristol：The Policy Press。  new window
2.Aldridge, J.、Becker, S.(1993)。Children who care: Inside the world of young carers。Department of Social Sciences, Loughborough University。  new window
3.Department of Health(1999)。Caring about Carers: A National Strategy for Carers。London：Department of Health。  new window
4.Frank, J.(1995)。Couldn’t care more: A study of young carers and their needs。London：The Children’s Society。  new window
5.Harvey, M.,、Russell, G.(2001)。Perspectives on young carers。London：UK Youth。  new window
6.Bibby, A.、Becker, S.(2000)。Younger carers in their own words。London：Calouste Gulbenkian Foundation。  new window
7.Frank, J., Tatum, C.,、Tucker, S.(1999)。On small shoulders。London：The Children’s Society。  new window
8.Dearden, C.,、Becker, S.(2004)。Young carers in the UK: The 2004 report。London：Carers UK and the Children’s Society。  new window
9.Becker, S.、Aldridge, J.、Dearden, C.(1998)。Young carers and their families。Oxford：Blackwell。  new window
10.呂寶靜(2007)。老人照顧：老人、家庭、正式服務。台北：五南出版社。new window  延伸查詢new window
11.Silverman, David(2000)。Doing qualitative research: A practical handbook。London：Sage Publications。  new window
12.Guba, E. G.、Lincoln, Y. S.(1984)。Naturalistic inquiry。Newbury Park, CA：Sage。  new window
13.Patton, Michael Quinn(1990)。Qualitative evaluation and research method。Sage。  new window
14.Mason, J.(2002)。Qualitative Researching。London：SAGE。  new window
15.Australian Bureau of Statistics(2004)。Disability. Aging and Carers 2003: Summary of Findings。Canberra。  new window
16.Dearden, C.、Becker, S.(1998)。Young Carers in the UK。London。  new window
17.Dearden, C.、Becker, S.(2000)。Growing up Caring: Vulnerability and Transition to Adulthood: Young Carers Experiences。Leicester。  new window
18.Fives, A.、Kerman, D.、Canavan, J.、Brady, B.、Cairns, D.(2010)。Study of Young Carers in the Irish Population: Executive Summary。Dublin。  new window
19.Carers Australia(2002)。Young Carers Research Project: Final Report。Canberra。  new window
20.Dearden, C.、Becker, S.(1995)。Young Carers: The Facts。Sutton。  new window
21.Joseph, S.、Becker, F.、Becker, S.(2009)。Manual for Measure of Caring Activities and Outcomes for Children and Young People。London：The Princess Royal Trust for Carers。  new window
22.Department of Health(1996)。Carers (Recognition and Services) Act 1995: Policy Guidance and Practice Guide。Department of Health。  new window
23.Moore, T.(2005)。Reading Between the Lines: Listening to Children and Young People about Their Experiences of Young Caring in the ACT。Lyneham：The Youth Coalition of the ACT。  new window
24.Moore, T.(2005)。Stop to Listen: Findings from the ACT Young Carers Research Project。Lyneham。  new window
25.Ritchie, I.、Spencer, L.、O'Connor, W.(2003)。Carrying out Qualitative Analysis。Qualitative Research Practice: A Guide for Social Science Students and Researchers。London。  new window
26.The Princess Royal Trust and The Children’s Society(2010)。Supporting Young Carers: A Resource for Schools。London。  new window
27.Crabtree, H.、Warner, L.(1999)。Too Much to Take On: A Report on Young Carers and Bullying。London。  new window
其他
1.社團法人中華民國家庭照顧者關懷總會(2007)。2007第二屆家 庭照顧者日：家庭照顧者調査，http://www.familvcare.org.tw/db/pdfs/upload/journal/2007research_24424512.pdf。  延伸查詢new window
圖書論文
1.Ritchie, J.、Spencer, L.(1994)。Qualitative data analysis for applied policy research。Analyzing qualitative data。London：Routledge。  new window
2.Corsini, R.(1995)。Introduction。Current psychotherapies。Itasca, Illinois：F. E. Peacock。  new window
 
 
 
 
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