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題名：失智症家庭照顧者之受苦與因應經驗研究
書刊名：中華輔導與諮商學報
作者：蔡佳容 引用關係／蔡榮順 引用關係／李佩怡 引用關係
作者(外文)：Tsai, Chia-jung／Tsai, Jung-shun／Li, Pei-yi
出版日期：2016
卷期：47
頁次：頁59-90
主題關鍵詞：失智症；因應；受苦；家庭照顧者；照顧經驗；Caregiving experience；Coping；Dementia；Family caregiver；Suffering
原始連結：連回原系統網址new window
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  • 被引用次數被引用次數:期刊(2) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:2
  • 共同引用共同引用:461
  • 點閱點閱:31
本研究旨在探究失智症家庭照顧者在照顧失智親人過程中主觀的受苦及因應經驗。採用詮釋現象學研究方法，邀請四位自願受訪者，以半結構深度訪談蒐集的文本資料來分析。結果：失智症家庭照顧者之受苦經驗內涵為：對失智症的無知和退化進展束手無策；漫長病程變數多，長期照顧的考驗層出不窮；無法由失智親人確知其需求，常處在矛盾疑惑和不安自責中；經歷關係失落的痛楚，只能持續單向地對失智親人付出；照顧者對其他家庭及工作的角色責任感到拉扯虧欠；照顧者常感孤軍奮鬥，為難於手足支持不夠或照顧意見相左。失智症家庭照顧者之因應經驗內涵為：照顧的動力來自維持與失智親人的關係連結；照顧互動是依循失智親人的生命脈絡去滿足雙方的需求；照顧的主控感在於專注此時此刻的陪伴，珍惜當下雙方的相處；照顧過程有賴專業照護系統的支援；照顧的力量來自於對失智親人不離不棄的意志力，接受承擔照顧責任；照顧的成就在於盡心盡力達成子女的角色責任，了無遺憾；照顧者從照顧經歷覺察對自己身體的照顧，體悟老化與死亡，學習愛。研究結果可為失智症家屬提供經驗借鏡，並指引出助人者對待照顧者的視角。
The purpose of the present study was to make manifest the subjective suffering and coping experiences of family caregivers of dementia patients. A hermeneutic phenomenological approach was chosen to analyze the essential themes. Data was collected through semi-structured, in-depth interviews from four volunteer families of dementia patients. Themes revealed the suffering experiences of dementia family caregivers, which included: feeling helpless and having a lack of control with regard to the onset and progression of dementia; facing constant challenges during the long-term caregiving process; feeling skeptical and uncertain, and blaming oneself due to the inability to fulfill the patient's needs; experiencing distress from the diminishing relationship and continual offering of one-sided affection to the patient; bearing strain and guilt for taking on the responsibility of multiple roles; perceiving difficulties with insufficient sibling support or conflict, and feeling isolated while fighting a lonely battle. The themes for the coping experiences of family caregivers of dementia patients were: sustaining motivation by maintaining a relationship bond; maintaining interaction and fulfilling the needs of both sides according to the patient's life context; being autonomous and gaining control by focusing on and cherishing the here and now; relying on assistance from professional systems; empowering the self through one's own willpower and actively taking responsibility; fulfilling oneself by doing one's best to accomplish filial duty without regret; gaining self-awareness of one's health, aging, and death issues through the lessons of love. These findings could offer practical information to family caregivers of dementia patients and remind professional helpers how to communicate with family caregivers.
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31.張慈君、徐亞瑛、陳明岐、邱逸榛、黃惠玲(20121200)。失智症家庭照顧者問題處理能力預測因子之探討。護理雜誌，59(6)，25-35。new window  延伸查詢new window
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學位論文
1.盛秀明(2012)。失智症之成年女兒照顧者家庭角色轉換歷程之敘說研究(碩士論文)。臺北市立教育大學。  延伸查詢new window
2.Holley, C.(2009)。Anticipatory grief in the context of dementia caregiving. Unpublished doctorial dissertation(博士論文)。University of Louisville，Kentucky。  new window
3.王釧如(2008)。與羈絆的靈魂共舞--一位阿茲海默氏症患者之主要照顧者的生命經驗敘事研究(碩士論文)。南華大學。  延伸查詢new window
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圖書
1.Yalom, I. D.、易之新(2003)。存在心理治療(下)--自由、孤獨、無意義。臺北市：張老師文化。  延伸查詢new window
2.Roos, S.(2002)。Chronic sorrow: A living loss。New York, NY：Brunner-Routledge。  new window
3.Kring, A. M.、Davison, G. C.、Neale, J. M.、Johnson, S. L.、張本聖、徐儷瑜、黃君瑜、古黃守廉、曾幼涵(2015)。變態心理學。台北：雙葉。  延伸查詢new window
4.Levine, Donald L.(1985)。The flight from ambiguity: Essays in Social and Cultural Theory。Chicago, Ill.：University of Chicago Press。  new window
5.高淑清(2008)。質性研究的18堂課：揚帆再航之旅。高雄：麗文文化。  延伸查詢new window
6.余德慧(20010000)。詮釋現象心理學。臺北：心靈工坊文化。new window  延伸查詢new window
7.李佩怡(20130000)。榮格個體化思想 : 由負傷到療癒的整合之道。臺北：天馬。new window  延伸查詢new window
8.van Manen, Max、高淑清、連雅惠、林月琴(2004)。探究生活經驗：建立敏思行動教育學的科學。濤石文化。  延伸查詢new window
9.黃光國(20090000)。儒家關係主義：哲學反思、理論建構與實徵研究。臺北：心理。new window  延伸查詢new window
其他
1.台灣失智症協會(2015)。102~149年臺灣地區失智症人口推計報告，http://www.tada2002.org.tw/tada_know_02.html。  延伸查詢new window
圖書論文
1.Boss, P.、Kalpan, L.(2004)。Ambiguous loss and ambivalence when a parent has dementia。Intergenerational Ambivalence: New perspectives on parent-child relations in later life。Oxford：Elservier。  new window
2.Meuser, T. M.、Marwit, S. T.、Sander, S.(2004)。Assessing grief in family caregivers。Living with grief: Alzheimer。Washington, DC：Hospice Foundation of America。  new window
3.Lincoln, Y. S.、Guba, E. G.(1999)。Establishing trustworthiness。Qualitative Research。Sage。  new window
4.傅中玲(2015)。失智症的類型、病程與治療。失智症照護。台北：華都文化。  延伸查詢new window
 
 
 
 
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