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題名：雙重老化智能障礙者家庭照顧經驗初探
書刊名：臺灣高齡服務管理學刊
作者：陳伶珠 引用關係
作者(外文)：Chen, Ling-chu
出版日期：2011
卷期：1:1
頁次：頁138-165
主題關鍵詞：老化；智能障礙者；雙重老化家庭；照顧經驗；Aging；Intellectual disability；Two-generation-elderly family；Care experiences
原始連結：連回原系統網址new window
相關次數：
  • 被引用次數被引用次數:期刊(7) 博士論文(0) 專書(0) 專書論文(0)
  • 排除自我引用排除自我引用:7
  • 共同引用共同引用:1257
  • 點閱點閱:300
隨著醫療科技與公共衛生的進步，國內外文獻均指出智能障礙者平均餘命延長，智障者有很大機會邁入老年階段，他們的主要照顧者大多數也面臨個人老化的問題，因而引發研究社群對智障者及其照顧者雙重老化議題的關注。本研究運用現象學質性探究方法了解老化智能障礙者的主要照 顧者照顧經驗脈絡。研究參與者為7 位主要照顧者，與智障者關係以父母為主，另有1 位手足、1 位配偶，年齡49-83 歲，研究參與者照顧的智障者有女性4 人、男性3 人，年齡43-48 歲。研究結果依據照顧者關注的面向歸納照顧經驗主軸有三：日常生活照顧、健康照顧、老年與終極照顧，貫穿三個主軸的照顧經驗本質是「無止境的擔憂」。研究結果凸顯提供老化智障者與其主照顧者支持服務的重要性。研究發現與建議：從照顧者的角度認識獨特及正向的照顧經驗、運用照顧管理舒緩老年照顧者負荷、針對個別化需求提供社區式的長期照顧服務、支持雙重老化智障者家庭的政策與專業知識技術仍待發展。
As medical science and public health advanced, documents have pointed out that the average life expectation of adults with intellectual disabilities (ID) is extended. Adults with ID can survive into old age as same as their counterparts.Most of their caregivers are ageing and suffering their own ageing problems.The agenda of two-generation-elderly families caused researchers’ attentions.This study applied phenomenological qualitative research method to inquire the care experiences of families with adults with ID. Participants are 7 caregivers, 5 old parents, 1 sibling, and 1 spouse, aged from 49 to 83. Their family members with ID are 4 female and 3 male, aged from 43 to 48. Results include 3 main axis: daily life care, health care, and old age and end of life care. The essence of their care experiences is “endless worries”. Findings highlight the importance of providing support services to families with adults with ID. The researcher suggests: recognize caregivers’ unique and positive care experiences via their own perspectives, apply care management to ease the caregivers’ burdens, develop community-based long-term care services to fit their individualized demands, and cumulate policy debate and professional knowledge and skills to work with families with adults with ID.
期刊論文
1.Kim, H. W.、Greenberg, J. S.、Seltzer, M. M.、Krauss, M. W.(2003)。The role of coping in maintaining the psychological well-being of mothers of adults with intellectual disability and mental illness。Journal of Intellectual Disability Research，47(4/5)，313-327。  new window
2.王國羽(20070300)。居家中老年智障者的照顧問題：性別、居住安排與相關論述。身心障礙研究，5(1)，1-29。  延伸查詢new window
3.Aronow, H. U.、Hahn, J. E(2005)。Well and Healthy! Pilot Study Findings from an in Home Preventive Healthcare Programme for Persons Ageing with Intellectual and/or Developmental Disabilities。Journal of Applied Research in Intellectual Disabilities，18(2)，163-173。  new window
4.Botsford, A. L.、King, A.(2005)。End-of-life Care Policies for People with an Intellectual Disability。Journal of Disability Policy Studies，16(1)，22-30。  new window
5.Botsford, A. L.、Rule, D.(2004)。Evaluation of a Group Intervention to Assist Aging Parents with Permanency Planning for an Adult Offspring with Special Needs。Social Work，49(3)，423-431。  new window
6.Chaplin, E、O'Hara, J.、Holt, G.、Bouras, N(2009)。Mental Health Services for People with Intellectual Disability: Challenges to Care Delivery。British Journal of Learning Disabilities，37(2)，157-164。  new window
7.Chen, F.(2008)。Effects of a Future Care Planning Workshop for Aging Parents of the Mentally Ill。Families in Society，89(1)，44-50。  new window
8.Fisher, K.(2004)。Nursing Care of Special Populations: Issues in Caring for Elderly People with Mental Retardation。Nursing Forum，39(1)，28-31。  new window
9.Friedman, R. I.(1998)。Use of Advance Directives: Facilitating Health Care Decisions by Adults with Mental Retardation and Their Families。Mental Retardation，36(6)，444-456。  new window
10.Glidden, L. M.、Schoolcraft, S. A.(2003)。Depression: Its Trajectory and Correlates in Mothers Rearing Children with Intellectual Disability。Journal of Intellectual Disability Research，47(4)，250-263。  new window
11.Greenberg, J. S.、Seltzer, M. M.、Krauss, M. W.、Kim, Hea-Won(1997)。The Differential Effects of Social Support on the Psychological Well-being of Aging Mothers of Adults with Mental Illness or Mental Retardation。Family Relations，46(4)，383-394。  new window
12.Ha, J.,、Hong, J.,、Seltzer, M. M.、Greenberg, J. S(2008)。Age and Gender Differences in the Well-being of Midlife and Aging Parents with Children with Mental Health or Developmental Problems: Report of a National Study。Journal of Health and Social Behavior，49(3)，301-316。  new window
13.Hatfield, A. B.(2000)。Helping Elderly Caregivers Plan for the Future Care of a Relative with Mental Illness。Psychiatric Rehabilitation Journal，24(2)，103-107。  new window
14.Hastings, R. P.、Allen, R.、McDermott, K.、Still, D.(2002)。Factors Related to Positive Perceptions in Mothers of Children with Intellectual Disabilities。Journal of Applied Research in Intellectual Disabilities，15(3)，269-275。  new window
15.Hayden, M. F.、Goldman, J.(1996)。Families of Adults with Mental Retardation: Stress Levels and Need for Services (book)。Social Work，41(6)，657-667。  new window
16.Heller, T.、Caldwell, J.、Factor, A.(2007)。Aging Family Caregivers: Policies and Practices。Mental Retardation and Developmental Disabilities Research Reviews，13(2)，136-142。  new window
17.Jennings, J.(1987)。Elderly Parents as Caregivers for Their Adult Dependent Children。Social Work，32(5)，430-433。  new window
18.Kaufman, A. V.(1998)。Older Parents Who Care for Adult Children with Serious Mental Illness。Journal of Gerontological Social Work，29(4)，35-55。  new window
19.Lifshitz, H.、Merrick, J.(2004)。Aging Among Persons with Intellectual Disability in Israel in Relation to Type of Residence, Age, and Etiology。Research in Developmental Disabilities，25(2)，193-205。  new window
20.Minnes, P.、Woodford, L.、Passey, J.(2007)。Mediators of Well-being in Ageing Family Carers of Adults with Intellectual Disabilities。Journal of Applied Research in Intellectual Disabilities，20(6)，539-552。  new window
21.Singer, G. H. S.(2006)。Meta-analysis of Comparative Studies of Depression in Mothers of Children with and without Developmental Disabilities。American Journal on Mental Retardation，111(3)，155-169。  new window
22.Strydom, A.、Hassiotis, A.、Livingston, G.(2005)。Mental Health and Social Care Needs of Older People with Intellectual Disabilities。Journal of Applied Research in Intellectual Disabilities，18(3)，229-235。  new window
23.Van, d. L.、Vorstenbosch, R.、Vinck, L.,、Penning, C.,、Evenhuis, H.(2009)。Prevalence of Hypertension in Adults with Intellectual Disability in the Netherlands。Journal of Intellectual Disability Research，53(1)，78-84。  new window
24.Yamaki, K.,、Hsieh, K.,、Heller, T.(2009)。Health Profile of Aging Family Caregivers Supporting Adults with Intellectual and Developmental Disabilities at Home。Intellectual and Developmental Disabilities，47(6)，425-435。  new window
25.Seltzer, M. M.、Krauss, M. W.(2001)。Quality of life of adults with mental retardation/developmental disabilities who live with family。Mental Retardation and Developmental Disabilities Research Reviews，7，105-114。  new window
26.Bigby, C、Ozanne, E.、Gordon, M.(2002)。Facilitating Transition: Elements of Successful Case Management Practice for Older Parents of Aadults with Intellectual Disability。Journal of Gerontological Social Work，37(3)，25-43。  new window
27.McGuire, B. E.、Daly, P.、Smyth, F.(2007)。Lifestyle and health behaviours of adults with an intellectual disability。Journal of Intellectual Disability Research，51(7)，497-510。  new window
28.Giorgi, Amedeo(1997)。The Theory, Practice, and Evaluation of the Phenomenological Method as a Qualitative Research Procedure。Journal of Phenomenological Psychology，28(2)，235-260。  new window
29.周月清、鄒平儀(20041200)。成年心智障礙者及其主要照顧者使用臨托服務影響之研究。社會政策與社會工作學刊，8(2)，39-82。new window  延伸查詢new window
30.林金定、林藍萍(20080600)。智能障礙者老化：失智症與健康照護。臺灣老人保健學刊，4(1)，58-74。new window  延伸查詢new window
31.Cook, J. A.、Lefley, H. P.、Pickett, S. A.、Cohler, B. J.(1994)。Age and family burden among parents of offspring with severe mental illness。American Journal of Orthopsychiatry，64(3)，435-447。  new window
32.Heller, Tamar、Miller, Alison B.、Factor, Alan(1997)。Adults with Mental Retardation as Supports to Their Parents: Effects on Parental Caregiving Appraisal。Mental Retardation，35(5)，338-346。  new window
33.Patja, K.、Mölsä, P.、Iivanainen, M.(2001)。Cause-specific mortality of people with intellectual disability in a population-based, 35-year follow-up study。Journal of Intellectual Disability Research，45(1)，30-40。  new window
研究報告
1.王國羽(2000)。聯合國「國際智能障礙科學研究學會」與「國際促進智障者融入社會協會」：老年與智能障礙者延長壽命與促進健康摘要報告。  延伸查詢new window
圖書
1.Lincoln, Y. S.、Guba, E. G.(1985)。Establishing Trustworthiness。Naturalistic Inquiry。Beverly Hills, CA：Sage。  new window
2.Moustakas, C.(1994)。Phenomenological Research Method。Sage Publications。  new window
3.Padgett, Deborah K.(1998)。Qualitative methods in social work research: Challenges and rewards。Sage。  new window
4.Patton, Michael Quinn(2002)。Qualitative Research and Evaluation Methods。Sage。  new window
5.Erlandson, D. A.、Harris, E. L.、Skipper, B. L.、Allen, S. D.(1993)。Doing Naturalistic Inquiry: A Guide to Methods。Sage Publications。  new window
6.陳向明(20020000)。社會科學質的研究。臺北：五南。new window  延伸查詢new window
7.Neuman, W. L.(2003)。Social Research: Qualitative and Quantitative Approach。MA：Allyn and Bacon。  new window
其他
1.內政部統計處(2009)。95年身心障礙者生活需求調查摘要分析，http://sowf.moi.gov.tw/stat/Survey/95年身心障礙者生活需求調查期末報告摘要.doc。  延伸查詢new window
2.內政部統計處(2010)。統計年報：身心障礙按年齡或等級與男女，http://sowf.moi.gov.tw/stat/year/y04-18.xls。  延伸查詢new window
圖書論文
1.Janicki, M. P.(1990)。Growing Old with Dignity: On Quality of Life for Older Persons with A Lifelong Disability。Quality of Life: Perspectives and Issues。Washington, DC：American Association。  new window
 
 
 
 
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