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題名:我與障礙的交織:從五位男性移動障礙者的生命故事來看障礙意象轉變
作者:李婉萍
作者(外文):LEE, WAN-PING
校院名稱:國立暨南國際大學
系所名稱:社會政策與社會工作學系
指導教授:林木筆
學位類別:博士
出版日期:2017
主題關鍵詞:肢體/移動障礙者障礙意象生命故事障礙經驗Physical/Mobility DisabilityDisability ImageLife StoryDisability Experiences
原始連結:連回原系統網址new window
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本研究透過五位不同年代男性移動障礙者的生命故事,探討不同生命階段呈現的障礙意象,呈現受訪的障礙者在兒童、求學、工作、家庭與親密關係等,不同生命階段中,自己是如何認識到自己的「障礙」,以及障礙又是如何對當事人產生影響認識,這些影響包括在不同生命階段中,曾經使用的障礙相關服務,或是受到不同時期障礙政策措施的不同,而在自身障礙意象建構上亦有所影響。
研究發現障礙者如何認識、經驗與詮釋自身的障礙,會受其成長歷程中所接受有關障礙的看法有關,此種對障礙的看法與想像,即本研究所稱的障礙意象。障礙意象最初的形成與家庭有關,若家人認為障礙是因為「業障」,障礙者在建構自我價值與與自我形象,就會出現「負向」障礙意象,若家人認為「障礙」僅是意謂生理限制與不便,個人在童年生活以及求學過程,仍應在各方面均予以投入與嘗試,障礙者較會產生「正向」的障礙意象。隨著障礙者的成長,在接觸到其他障礙同儕以及不同障礙詮釋時,障礙者會有機會去調整或重新翻轉自己的障礙意象,障礙意象的轉變有助於障礙者區辨自身對障礙的看法,同時也重新建構更積極與正向的障礙意象。
此外,障礙意象的形塑與建構,也會受到不同障礙政策與措施的影響,而同一人對障礙意象在不同生命議題上,呈現的看法也會有所區別,例如可能在工作議題上障礙者會持正向障礙意象,即障礙者有可貢獻與回饋社會的部分,但同時在其他生活領域中,例如親密關係中卻抱持障礙者不應有婚姻的負向障礙意象。
本研究建議,障礙者與其家人對障礙的認識應即早進行,此認識不僅在於障礙類別與福利服務層面,而是要針對不同障礙理論與觀點,根據障礙者的社會處境予以探討,以便障礙者與其家庭,可以建構「正向的障礙意象」,將豐富障礙者在自我價值與社會角色的建構。此外,由於本研究是蒐集不同年代障礙者的生命經驗,為了更清楚反映相關身障政策與措施等公共政策對障礙者個人生活領域的影響,應當蒐集更多障礙者的生命故事,包含不同性別與族群,此為本研究限制。
This thesis aims to explore disability image of different life stages by the life stories of five male physical disabled respondents they grown up at a given time. The research investigated how persons with disabilities to know disabilities and how disabilities affected the way they know, such as disability related service usage, disability policy or measures, by exploring the respondents’ experiences of childhood, schooling, work, family, and intimacy in different life stages.
Research finding asserts that the way persons with disabilities know, experience, and explain what disability is are affected by the viewpoint of disability in their growth period. Disability image used in the thesis is the way people know and portrait disabilities. Disability image is to take shape preliminarily in the family. People with disabilities consider a negative image about self-value or self-image if their families consider karma is a cause of disability. Accordingly persons with disabilities consider themselves positive, valuable if disabilities is viewed as physical limitation and inconvenience by the families. With the opportunity to exposure to other persons with disabilities or different disability interpretation, persons with disabilities will have chance to adjust and accommodate the disabilities image they originally thought. persons with disabilities change according to the transformation of disabilities image and could have constructed a more active and more positive disability image.
In additions, disability policy and measures has dominated the formulation and construction of disability image. As we examine the different life issues, we will see the degree to which different disability image perspectives has been applied. For example, persons with disabilities were then to be perceived as work valuable and profitable in one way and should not have equal rights alongside their intimacy lifestyles in another.
The research suggestions here included have been taken from the manuscript of five men with mobility disabilities. It is better to gain an understanding of disability issues as early as possible. Not only persons with disabilities should know there are different disability categories and welfare services to provide the person with the appropriate skills to rehabilitate or deal with it, but also there are different theories and model views disability as a consequence of environmental, social and attitudinal. However, supported by construction of self-value and social role, those who can control their bodies are seen as positive disabilities image. The research’s limitations arise from its failure to emphasis certain aspects of disability, including ethnicity and gender.
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